Confused about how to poceed

[Guest guest]

Howdy all,

Just thought that I would ask for a little input from anyone who has

been on LND for around six months or more.

I began LDN in February, and for the first five months had great

success on 3mg. Walking better, balance great, much more strength,

bladder control really good, and fatigue almost gone.

At month six, I began to notice that my balance was getting worse,

and in addition, I was beginning to have lots of muscle spasms in my

legs---also a lot of pain. I also was waking in the middle of the

night three or four times with my legs jerking (which I took a

Baclofen or xanex to eliminate, so that I could go back to sleep).

I moved the LDN up to 4.5, and completely lost the muscle spasms and

pain in my legs (well, almost); leg jerking in the middle of the

night also was pretty much eliminated....but my bladder has become

horrible, and my sleeping is now affected...I have a lot of

difficulty getting to sleep, and also staying asleep.

Anyone have any suggestions? I've found myself going back and forth

from the 3 to 4.5, some nights just to get a little sleep, and also

for bladder problems.

Pam

prsklak@...

[Guest guest]

Pam,

We sound very similar I also started in Feb with 3.0 after 6 months felt the

same way so tried 4.5. . . That was a disaster with my bladder, got up at

least 5 or 6 times to use the restroom on those nights. .. So it's back to

3mg?? I'm almost tempted to try 6mg just to see what kind of reaction I get?

That's the only change I can see we try before we eliminate and simply go

back to 3mg. Good luck and keep us abreast of your progress.

-----Original Message-----

From: pamridge49 [mailto:prsklak@...]

Sent: Tuesday, August 31, 2004 9:12 AM

low dose naltrexone

Subject: [low dose naltrexone] Confused about how to poceed

Howdy all,

Just thought that I would ask for a little input from anyone who has been on

LND for around six months or more.

I began LDN in February, and for the first five months had great success on

3mg. Walking better, balance great, much more strength, bladder control

really good, and fatigue almost gone.

At month six, I began to notice that my balance was getting worse, and in

addition, I was beginning to have lots of muscle spasms in my legs---also a

lot of pain. I also was waking in the middle of the night three or four

times with my legs jerking (which I took a Baclofen or xanex to eliminate,

so that I could go back to sleep).

I moved the LDN up to 4.5, and completely lost the muscle spasms and pain in

my legs (well, almost); leg jerking in the middle of the night also was

pretty much eliminated....but my bladder has become horrible, and my

sleeping is now affected...I have a lot of difficulty getting to sleep, and

also staying asleep.

Anyone have any suggestions? I've found myself going back and forth from

the 3 to 4.5, some nights just to get a little sleep, and also for bladder

problems.

Pam

prsklak@...

[Guest guest]

Pam for the bladder problems if it is UTI, I use

high potency cranberry tablets together with slippery elm twice a day.

*Zora*

San

Trinidad

West Indies

***

-----Original Message-----

From: marciemjm@...

[mailto:marciemjm@...]

Sent: Tuesday, August 31, 2004 10:42 AM

low dose naltrexone

Subject: Re: [low dose naltrexone]

Confused about how to poceed

Pam,

I'm no doctor, but since we are pretty much like a make-shift trial with LDN anyway,

why not try 6mg? Take 2 of your 3mg capsules. If that doesn't help,

you can always cut back. I just wouldn't quit the LDN.

I've been on LDN for about 300 days now, and my improvements remain good.

Better bladder function, better sleep (after the 1st month), a sense of

well being. Most of the time I have more energy.

Hang in there! Dang this disease or condition or whatever you want to

call it!

Marcie (PPMS)

[Guest guest]

Thanks Zora,

I do not have a UTI, which is only proven when I drop back to 3mg of

LDN.....

I am thinking of trying 6mg as a few people have said. Will let you

know what happens.

At the moment, I just saw an orthapedic surgeon today, and I am going

to have to go off the LDN for a while, because I am having a knee

replacement in November. Am not looking forward to the surgery, nor

going off the LDN.

Pam

[Guest guest]

How soon before sugery will you have to go off the LDN? I, too, am having sugergy (hip) soon.

Lennie

[Guest guest]

I am sure the knee surgery will go well, try to concentrate

on pleasant thoughts.

*Zora*

San

Trinidad

West Indies

***

-----Original Message-----

From: pamridge49

[mailto:prsklak@...]

Sent: Thursday, September 02, 2004 6:12 PM

low dose naltrexone

Subject: [low dose naltrexone] Re:

Confused about how to poceed

Thanks Zora,

I do not have a UTI, which is only proven when I

drop back to 3mg of

LDN.....

I am thinking of trying 6mg as a few people have

said. Will let you

know what happens.

At the moment, I just saw an orthapedic surgeon

today, and I am going

to have to go off the LDN for a while, because I

am having a knee

replacement in November. Am not looking

forward to the surgery, nor

going off the LDN.

Pam

[Guest guest]

Thanks Zora,

I am almost more nervous about going off LDN than I am about the knee

surgery itself---my worst concern after surgery, is whether or not I

will be able to kneel....I can't imagine working out in the garden,

much less cleaning the shower stalls, without the ability to

kneel....as we all know with MS, my " squatting " abilities are long

gone! LOL

Pam

[Guest guest]

I can imagine your concern.

Stopping LDN…well you have one

HUGE consolation, you’ll be able to go back on it as soon as possible.

Once again, try to attract soothing thoughts. HUGE

*Zora*

San

Trinidad

West Indies

***

-----Original Message-----

From: pamridge49

[mailto:prsklak@...]

Sent: Friday, September 03, 2004 4:18 PM

low dose naltrexone

Subject: [low dose naltrexone] Re:

Confused about how to poceed

Thanks Zora,

I am almost more nervous about going off LDN than

I am about the knee

surgery itself---my worst concern after surgery,

is whether or not I

will be able to kneel....I can't imagine working

out in the garden,

much less cleaning the shower stalls, without the

ability to

kneel....as we all know with MS, my

" squatting " abilities are long

gone! LOL

Pam

[Guest guest]

Hi Lennie,

I'm having surgery in November, around the 15th (they haven't given

me a definite date.

I wrote an email to the webmaster on Dr. Bihari's site, and his

response was to stop taking it approximately 2-3 days before

surgery. He said that in reality it is out of your system about six

hours after you take it....<S>

Hope that helps. What kind of surgery are you going to have?

Pam