Guest guest Posted December 18, 2001 Report Share Posted December 18, 2001 Lori, Thanks for the progress report. My son just finished his 3rd round so you're ahead of us. It's great to read about other experiences so that we know what to expect. My son does get more hyper after each round, jumps around a lot, and starts to hand flap everytime he's excited. I hope this will subside. He never had this handflapping before. I think it comes with jumping. thanks, Huong > Group- > Thought it might be time for a progress report. We've been chelating > my 5-year old since labor day weekend of this year. He started out > at 25 mg. of DMSA every 4 hours. We bumped it up to 50 mg. every 4 > hours a few cycles ago. Here's what we've noticed so far: > > 1. By far the most dramatic change is he's no longer tired. > Although he's kinda a hyper guy - not the bouncing off the > wall type, but fidgety, can't sit still, impulsive, - he > always was tired. He'd lay on the couch to watch tv or videos, > after every meal he'd go lay down on the couch, he'd go up in > his room to lay down. This was every day. And it wasn't as if > he wasn't getting enough sleep at night. He goes to bed around > 8:30 and sleeps all the way through to 7:30 or 8:00 in the > morning. > > Since we started chelating, this chronic fatigue thing has > totally disappeared. I have not seen him lay down on the couch > once since we began chelation (although I must admit I kinda > miss it sometimes!) > > 2. His motor planning is better. For example, he could dress himself > prior to chelation, but after he got started, he couldn' quite > finish the job without alot of reminders and prodding from me. > Suddenly, once we began chelation, I'll tell him to go get > dressed and a minute later he's done. Picked out his clothes > and got them all on in the right order. No fuss, no muss. > > 3. He's dropped a couple of annoying habits. One was he was always > digging his chin into something. Some sorta sensory thing I > guess and grinding his teeth when he did it. Totally stopped > since chelation. He also did this stim thing with pushing > books around. Stopped doing that too. > > 4. He's more social. He has a younger brother who, although he > liked him being around, he didn't really say anything to him. > He would kinda let me know what he wanted to get across to his > brother, but now I've noticed he'll say things directly to him > now and also to his teenage sister. He also used to move if > his brother came and sat next to him on the couch or someplace > else and now he has no problem being close to him. > > 5. He hand flaps a lot less. I'm a little reluctant to add this > one because I've seen the flapping vary before, but this is > a pretty long time where it's been way down. > > > A couple of things I've noticed regarding DMSA. At 25 mgs he had no > side effects. At 50 mgs. he gets more hyper on the 2nd day and that > lasts a couple of days and fades. We just got back the results of > our first urine test and he had high tin. Consequently, our Dr. > advised not to start ALA until we reduce the tin, so we upped his > DMSA to 75 mgs. this weekend to move it out faster. At 75 mgs. he > seems a bit worse than at 50mgs. I actually saw him toewalking > today which he never ever did in his life. > > Another interesting thing is his bloodwork. He's had bloodwork done > every so often for the past 2 years or so and his MCV, MCH and MCHC > values were always off. Too high. In addition his BU/CR Ratio was > always way off - once double the high end of the range. > Everytime I asked a Dr. about what that ratio was & why it was always > off I always got a blow-off - Oh, it's nothing. Anyway, on his last > blood test since chelating, that goofy ratio is finally normal as are > the MCV, MCH and MCHC values. Don't know what any of them mean or if > they are significant or not, but I just thought I'd mention it. It > would be great if someone could enlighten me on what those mean. > > Finally, what I haven't seen any improvement in is the > hpyer/impulsivity/distractibility component. He is verbal and I > haven't noticed too much in the way in language improvement, but I > wouldn't expect that until we added the ALA. > > Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2002 Report Share Posted January 13, 2002 hi I am so happy your son is good well. Could you tell me when you started ALA. Best regards, Lee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2002 Report Share Posted January 13, 2002 nne, This is such good news! I love hearing stories like this. Our son age 4.6 seems to be improving in all areas except for the dyspraxia so this is good to hear. Maybe it will come later. > Listmates: > > We just finished another round, 3hr protocol 25mg ALA, 50mg DMSA on a > 45lb child. We have been chelating since last February, almost a > year and Jack seems to be calming down and breaking through the > apraxia. Last night I fell asleep laying on the couch cuddling w/ > Jack. This is a first, in about 2 years. Jack in the past could not > calm down enough to lay still with me. Last night, I was on the couch > watching TV and Jack layed beside me and fell asleep. He did not > fidget or do any of his quirky things, he just layed down and fell > asleep. It was so wonderful. And today the stereo was playing and > Jack started dancing w/ his sister another first. We were so happy > and he knew he was doing it and he was happy too. He also colored on > his own today. In August, I could not get him to pick up the marker > and he plays w/ play dough all the time now. Infact he plays > appropriately all the time now and he does 60-70piece puzzles on > aregular basis on his own. Last year he was doing 7 piece puzzles. > So many positive things. > > Thanks > > nne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2002 Report Share Posted January 14, 2002 Dear marianne: Thank you. I'm proud of you and Jack. Often I imagine what my son Ben will be like a year from now. I imagine him riding his tricycle down the street so fast that I can't catch him. Holly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2002 Report Share Posted January 14, 2002 nne, Thanks for responding so fast. I have been chelating my son Ed since July with DMSA only and would like to add ALA. So, I was wondering how you administer the two together? Did you do ALA from the beginning of chelation? Did you see a lot of improvements with ALA or DMSA or both? We have seen a lot with only DMSA. But the enzymes seemed to make a huge difference too. Thanks again for your help. Lee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2002 Report Share Posted January 14, 2002 Lee, I started ALA first on a three hour protocol. I wanted to see if this was another therapy that did not work before I invested alot of energy and money in it. I read a posts by Andy and Amy holmes back in the 2000s that said if you can not find a doctor supplement w/ zinc and the other supplements 4xs a day and try it at a low dose and stop if you get a bad reaction. (This is not quoting anyone just what I remember).Jack got a new letter sound after the first round. I added in the DMSA a few rounds later. nne > hi > I am so happy your son is good well. Could you tell me when you started ALA. > Best regards, > Lee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Congratulations, Dee. We love to hear that the labs are almost normal and you got your life back. It makes the herxes and all the pain involved in the " Road Back " worth the trip. Don't overdue, you will have to have to get used to " normal life " again. Stay healthy. We are celebrating your success, Den and Skip - Original Message ----- From: <LJDSLL@...> <rheumatic > Sent: Wednesday, March 20, 2002 10:53 AM Subject: rheumatic progress report > Hi All, > > I just had to share this mornings news with everyone because Lord knows I've > asked enough questions and complained enough to you all. I had my rheumy > appointment to go over my bloodwork this morning and all of my labs are > almost back to normal. I just wanted to thank you all for your > kindness,support, and information during this last year. To all of you out > there just starting or wondering about AP please know that with some > research, alot of perseverance, and some fine tuning this can work for you > and give you back the life you thought you had lost. I gotta run and I mean > that literally!!!! > > Health and happiness to all, > Dee > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Congratulations Dee! (I still can't run yet, just a bear-like lumber!) Gail > From: LJDSLL@... > Date: Wed, 20 Mar 2002 10:53:36 EST > rheumatic > Subject: rheumatic progress report > > Hi All, > > I just had to share this mornings news with everyone because Lord knows I've > asked enough questions and complained enough to you all. I had my rheumy > appointment to go over my bloodwork this morning and all of my labs are > almost back to normal. I just wanted to thank you all for your > kindness,support, and information during this last year. To all of you out > there just starting or wondering about AP please know that with some > research, alot of perseverance, and some fine tuning this can work for you > and give you back the life you thought you had lost. I gotta run and I mean > that literally!!!! > > Health and happiness to all, > Dee > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Hi All, Congratulations Dee. I am new here. I am from Brazil (and my English is not good). I have interested in antiobiotic protocol to treatment of R.A.. I have done labs and I have found positive results for M. Pneumoniae in seroloy labs. In fact, the result is: IgG: positive 214 U/ML (reference value: less than or equal to 200 U/ML for negative); IgM: negative May that units be different from yours and I could not know how to translate them to your measure system. What can I do? Is the orthomolecular medicine a good therapy? What kind of medicine could be better? IV or IM minocycline therapy? I am grateful for Adlard who have been helpful and have supported me at rheumatic.org site. Kind regards. Valdenio Araujo. rheumatic progress report > > Hi All, > > I just had to share this mornings news with everyone because Lord knows I've > asked enough questions and complained enough to you all. I had my rheumy > appointment to go over my bloodwork this morning and all of my labs are > almost back to normal. I just wanted to thank you all for your > kindness,support, and information during this last year. To all of you out > there just starting or wondering about AP please know that with some > research, alot of perseverance, and some fine tuning this can work for you > and give you back the life you thought you had lost. I gotta run and I mean > that literally!!!! > > Health and happiness to all, > Dee > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2002 Report Share Posted March 21, 2002 --- In rheumatic@y..., Valdênio Miranda de Araújo <vmaraujo@f...> wrote: > Hi All, > Congratulations Dee. > > I am new here. I am from Brazil (and my English is not good). > I have interested in antiobiotic protocol to treatment of R.A... Welcome aboard Valdênio. If you have the time and inclination, perhaps you could reply to Cláudia's message at: rheumatic/message/27447 She is from Brazil also, but doesn't speak the American/English language. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2002 Report Share Posted March 21, 2002 Hi All, This mail is to contact . She's is from Brazil too, and probably she lives at a city near my one. May be we could help us. Have a nice day. Thank you. Oi Cláudia, recebi um e-mail da mailing list rheumatic e verifiquei seu e-mail. Acho que poderemos trocar algumas informações. Estou avaliando o tratmento dom minociclina. Peço que me escreva. Pode usar os e-mails abaixo; valdenio@... vmaraujo@... valdenioa@... Até a próxima. Valdênio rheumatic Re: progress report --- In rheumatic@y..., Valdênio Miranda de Araújo <vmaraujo@f...> wrote: > Hi All, > Congratulations Dee. > > I am new here. I am from Brazil (and my English is not good). > I have interested in antiobiotic protocol to treatment of R.A... Welcome aboard Valdênio. If you have the time and inclination, perhaps you could reply to Cláudia's message at: rheumatic/message/27447 She is from Brazil also, but doesn't speak the American/English language. To unsubscribe, email: rheumatic-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2002 Report Share Posted March 21, 2002 Hi Sally, I was diagnosed in October of 2000. I had RA for awhile before that but I had no idea what was wrong with me and when I couldn't move anymore I finally went to the doctor. When I got to a rheumy he put me on 50 mg. of Vioxx which helped but didn't make a dramatic difference. He started talking next line of drugs and that's when I found out about AP. I started out on 100mg minocin MWF but found that to be rather ineffective. I started on 200mg MWF which seems to be working for me. I don't eat any meat other than chicken occasionally and fish. I limit sugar (I am a sugar addict and chocoholic) and I still haven't been able to give up that morning cup of coffee. I avoid food additives and try to make everything from scratch or at least with preservative free ingredients. I take 1000mg MSM 2x a day, a 50mg B vitamin with each meal, and 1000mg flaxseed oil 2x a day. I also started a parasite cleanse about 2 weeks ago after reading posts about it and I must say that it has made a difference for me. I feel alot better in the last few days and not to be disgusting but I have compared notes with my husband who is doing it also and we have both had visible critters come out. Hope this helps and all the best to you. Dee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2002 Report Share Posted March 22, 2002 Hi Zanash, Parasite cleanses rid your body of any organisms that are parasitic. Most of them are microscopic but some are visible to the naked eye believe me because I've seen more than I want to lately. Hookworms, tapeworms, and pinworms are some that you might be familiar with. If you do a search on the net for parasite cleanses it will direct you to tons of sites which offer information. I really feel it is helping. Be well, Dee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2002 Report Share Posted March 22, 2002 Can you recommend a good brand? Can I get something like this at a health store? Re: rheumatic progress report Hi Zanash, Parasite cleanses rid your body of any organisms that are parasitic. Most of them are microscopic but some are visible to the naked eye believe me because I've seen more than I want to lately. Hookworms, tapeworms, and pinworms are some that you might be familiar with. If you do a search on the net for parasite cleanses it will direct you to tons of sites which offer information. I really feel it is helping. Be well, Dee To unsubscribe, email: rheumatic-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2002 Report Share Posted September 25, 2002 Keri, That is GREAT news! I know what a great relief it can be to see your child improve! Keep us updated! >From: " keri_cabrera " <cdc210@...> >Before the efas Nick had about 50 words in his vocab and not all of >them were to clear. He rarely tried to say anything new and was almost >always fustrated. Now just 3 1/2 weeks after we have started taking >the efas we have noticed that he is alot " calmer " or not so easily >fustrated. He is babbling and attempting to talk more. He now has >over 70 words in his vocab and at least half of those words are said >correctly! His biggest improvement has been with making his vowel >sounds. Before the efas he could only say the short a and long i >sounds. Now I am happy to say that he is able to say the long e sound >and long i sound!!!!! And just this past week we heard him say his >name for the first time!!! He still has a long way to go but at least >now it seems like he is on the right road!!!! > >I just wanted to say thank you to everyone for all of the great info >that is shared here....its a great asset! > >Keri (mom to 4.9 yrs, 3 yrs and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2002 Report Share Posted December 2, 2002 Hi Charlene Congratulations on your daughter's progress. It is definitely not a small accomplishment. Of all people, we on the list can relate with how huge it was to hear your daughter say Naaa Mama. That's wonderful. I remember my son's first meaningful " word " after starting Pro EFA was when he saw an ice cream on t.v. and he walked to the t.v., patted his tummy and went MMMMMMMMM (as in yummy). We had been working on the " m " sound with no progress for about 4 months and it came out after the Pro EFA just like that. We were jumping up and down we were so excited! Anyway, I just wanted to tell you that it is definitely not a small thing and that I'm very happy for you. I'm sure her progress will continue. in NJ KDR@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2003 Report Share Posted October 16, 2003 wow that is amazing. how young did he start to type? my son comes a stares at my hands while I type and is very interested in letter yet doesn't vocalize much. he is only two But i would be thrilled if he could communicate to me on computer or in any way [ ] Progress report I have not posted for a long while however I thought I should send an update on progress to the list because my son's progress has been so remarkable. Adam is 10yrs 2 months, and has recently been tested on reading ability and maths. He is still non-verbal and communicates via a computer. Tests conducted by an independent organisation revealed a reading age of 14yrs 6 months with a spelling age of 14 years. Our educational psychologist then tested him with the BAS Number Skills tests which she put up on his computer. He scored an amazing age level of 18+ with a percentile grade of 99.5%, this is without completing the last section because he tired. He can do manipulations on numbers in thousands, do algebra and fractions, he can calculate the volume of a cylinder and he does it all in his head easily. This is all self-taught, including the reading and writing skills. We asked him if he has always been able to read, and he said no he has learned in the last two years and it is because of chelation. He said chelation made his mind feel better. I started chelating Adam in January 2002 using DMSA only on Andy's protocol. This was after 5 years of ABA and CFGF etc etc. I stopped chelation back in February this year, and he has recently asked me to start again because it " makes me feel better " . He wrote on the computer in front of his Ed Psych, " I want chelation, get on with it " . He is still very autistic, and his behaviours preclude mainstream schooling. He has no motivation to learn independence skills or to modify his behaviour to conform socially or to please others. He is still in nappies and still will decorate his room with the contents. His speech or rather lack of it is still a major deficit. We asked him why with the advanced vocabulary in his head, he cannot speak, and he replied that the problem with talking is: " I go to big point and it just isn't in my ying. Ying is a mouth like in my mind. It goes in my inside head and any sound is lost " . We asked if he thought he would ever be able to talk, and if there was anything we could do to help. He replied that he thought he would not be able to speak and that we could help by keeping up his speech by making him talk. I do not know if ongoing chelation will help his speech, but I will keep going with it. It appears to me that there is major damage to the pathway that links his thoughts with articulating them verbally. I hope ongoing chelation will help, and the brain is a pretty plastic thing which may develop an alternative pathway with extensive patterning. So although it is planned to get him a LightWriter for communication, we will continue to work at making him talk. Now if only we could improve his health!! He is riddled with vaccine strain measles virus and still has major gut problems. But as a chelation story, I think this can be counted a a major success. I will be sending him to school next year (after I have forced the funding from the local educational authority) as we can no longer educate him at home. I have found a school which can handle his academic giftedness and his autistic behaviours, he will be in a group of high functioning AS kids who are working at the same level. I will use my freed-up time to attack the British Government over their continued use of thimerosal containing vaccines and their decision to yank the public funding for Adam's case against Merck (MMR)! Celia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2003 Report Share Posted October 16, 2003 Celia, I just thought I'd chime in here. My son is now a college student. He attends with an aide who takes notes for him (he has cerebral palsy) and the sessions are also taped. My son also has had limited speech, but as we continue to chelate, he is coming out with longer sentences. We have been doing this for 3 years now. My son told us in the past that he couldn't find the words in his head--that it took him a while--but that this was coming faster as we chelated, also used FC for communication. So . . . courage and strength! Wonderful news. Barb P.S. Craig recently published a book in London called Embracing the Sky. Perhaps your son would enjoy hearing his experience of autism. (Available at amazon.com or jkp.com.) Let me know what he thinks, please! [ ] Progress report > > I have not posted for a long while however I thought I should send an > update on progress to the list because my son's progress has been so > remarkable. Adam is 10yrs 2 months, and has recently been tested on > reading ability and maths. He is still non-verbal and communicates > via a computer. Tests conducted by an independent organisation > revealed a reading age of 14yrs 6 months with a spelling age of 14 > years. Our educational psychologist then tested him with the BAS > Number Skills tests which she put up on his computer. He scored an > amazing age level of 18+ with a percentile grade of 99.5%, this is > without completing the last section because he tired. He can do > manipulations on numbers in thousands, do algebra and fractions, he > can calculate the volume of a cylinder and he does it all in his head > easily. This is all self-taught, including the reading and writing > skills. > > We asked him if he has always been able to read, and he said no he > has learned in the last two years and it is because of chelation. He > said chelation made his mind feel better. I started chelating Adam > in January 2002 using DMSA only on Andy's protocol. This was after 5 > years of ABA and CFGF etc etc. I stopped chelation back in February > this year, and he has recently asked me to start again because > it " makes me feel better " . He wrote on the computer in front of his > Ed Psych, " I want chelation, get on with it " . > > He is still very autistic, and his behaviours preclude mainstream > schooling. He has no motivation to learn independence skills or to > modify his behaviour to conform socially or to please others. He is > still in nappies and still will decorate his room with the contents. > His speech or rather lack of it is still a major deficit. We asked > him why with the advanced vocabulary in his head, he cannot speak, > and he replied that the problem with talking is: " I go to big point > and it just isn't in my ying. Ying is a mouth like in my mind. It > goes in my inside head and any sound is lost " . We asked if he thought > he would ever be able to talk, and if there was anything we could do > to help. He replied that he thought he would not be able to speak and > that we could help by keeping up his speech by making him talk. > > I do not know if ongoing chelation will help his speech, but I will > keep going with it. It appears to me that there is major damage to > the pathway that links his thoughts with articulating them verbally. > I hope ongoing chelation will help, and the brain is a pretty plastic > thing which may develop an alternative pathway with extensive > patterning. So although it is planned to get him a LightWriter for > communication, we will continue to work at making him talk. > > Now if only we could improve his health!! He is riddled with vaccine > strain measles virus and still has major gut problems. But as a > chelation story, I think this can be counted a a major success. > I will be sending him to school next year (after I have forced the > funding from the local educational authority) as we can no longer > educate him at home. I have found a school which can handle his > academic giftedness and his autistic behaviours, he will be in a > group of high functioning AS kids who are working at the same level. > I will use my freed-up time to attack the British Government over > their continued use of thimerosal containing vaccines and their > decision to yank the public funding for Adam's case against Merck > (MMR)! > > Celia > > > > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2003 Report Share Posted October 16, 2003 celia, try giving your son monolaurin(www.lauricidin.com) with bromelain and see if it helps to get rid of the measles virus......also lots of vitamin A R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2003 Report Share Posted October 17, 2003 Hi Celia, Have you considered trying the Specific Carbohydrate Diet with Adam? Healing his gut could make a huge difference. Warmly, [ ] Progress report I have not posted for a long while however I thought I should send an update on progress to the list because my son's progress has been so remarkable. Adam is 10yrs 2 months, and has recently been tested on reading ability and maths. He is still non-verbal and communicates via a computer. Tests conducted by an independent organisation revealed a reading age of 14yrs 6 months with a spelling age of 14 years. Our educational psychologist then tested him with the BAS Number Skills tests which she put up on his computer. He scored an amazing age level of 18+ with a percentile grade of 99.5%, this is without completing the last section because he tired. He can do manipulations on numbers in thousands, do algebra and fractions, he can calculate the volume of a cylinder and he does it all in his head easily. This is all self-taught, including the reading and writing skills. We asked him if he has always been able to read, and he said no he has learned in the last two years and it is because of chelation. He said chelation made his mind feel better. I started chelating Adam in January 2002 using DMSA only on Andy's protocol. This was after 5 years of ABA and CFGF etc etc. I stopped chelation back in February this year, and he has recently asked me to start again because it " makes me feel better " . He wrote on the computer in front of his Ed Psych, " I want chelation, get on with it " . He is still very autistic, and his behaviours preclude mainstream schooling. He has no motivation to learn independence skills or to modify his behaviour to conform socially or to please others. He is still in nappies and still will decorate his room with the contents. His speech or rather lack of it is still a major deficit. We asked him why with the advanced vocabulary in his head, he cannot speak, and he replied that the problem with talking is: " I go to big point and it just isn't in my ying. Ying is a mouth like in my mind. It goes in my inside head and any sound is lost " . We asked if he thought he would ever be able to talk, and if there was anything we could do to help. He replied that he thought he would not be able to speak and that we could help by keeping up his speech by making him talk. I do not know if ongoing chelation will help his speech, but I will keep going with it. It appears to me that there is major damage to the pathway that links his thoughts with articulating them verbally. I hope ongoing chelation will help, and the brain is a pretty plastic thing which may develop an alternative pathway with extensive patterning. So although it is planned to get him a LightWriter for communication, we will continue to work at making him talk. Now if only we could improve his health!! He is riddled with vaccine strain measles virus and still has major gut problems. But as a chelation story, I think this can be counted a a major success. I will be sending him to school next year (after I have forced the funding from the local educational authority) as we can no longer educate him at home. I have found a school which can handle his academic giftedness and his autistic behaviours, he will be in a group of high functioning AS kids who are working at the same level. I will use my freed-up time to attack the British Government over their continued use of thimerosal containing vaccines and their decision to yank the public funding for Adam's case against Merck (MMR)! Celia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2003 Report Share Posted November 28, 2003 Hi Cory, I am glad to hear was doing so well until the red mark. I have to say, Bill calling you back is wonderful. It is just confirming what everyone has said on this board. Enjoy your weekend and you " free head " ! Kathy (mom to JT DOC 10/30) --- In Plagiocephaly , " Cory Schwemley " <cory6@c...> wrote: > Well, did sleep it in the first night, Wed night, and was in it all day > Thur (w/skin checks of course) until about 4pm when he developed a dark red > spot that did not go away, in fact you can still see it. Thanks to you guys > I did not even think of putting his helmet back on, I knew that I wasn't > supposed to! He was such a little trooper yesterday. We had a flat tire on > the way to TX which meant almost an extra 2 hours in his car seat for > and he was fine the whole time in his helmet! > > So, when we got home from our trip to Ft. Worth today I called the ortho > office (they're closed today) and Bill Barringer called me at home and said > to leave off the helmet until Monday and he'd get me in Monday morning. > > I have to say that the hardest part about this whole thing is not being able > to snuggle his sweet little head. *sniff* > > Cory Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2003 Report Share Posted November 28, 2003 Cory, It's so exciting to hear that is in his helmet! I'm sorry about the development of the dark red spot, but it sounds like you are in great communication with Bill Barringer. I hope you get the fit resolved on Monday... let us know! Take care, Christie (Mom to Repo'd Remy( --- In Plagiocephaly , " Cory Schwemley " <cory6@c...> wrote: > Well, did sleep it in the first night, Wed night, and was in it all day > Thur (w/skin checks of course) until about 4pm when he developed a dark red > spot that did not go away, in fact you can still see it. Thanks to you guys > I did not even think of putting his helmet back on, I knew that I wasn't > supposed to! He was such a little trooper yesterday. We had a flat tire on > the way to TX which meant almost an extra 2 hours in his car seat for > and he was fine the whole time in his helmet! > > So, when we got home from our trip to Ft. Worth today I called the ortho > office (they're closed today) and Bill Barringer called me at home and said > to leave off the helmet until Monday and he'd get me in Monday morning. > > I have to say that the hardest part about this whole thing is not being able > to snuggle his sweet little head. *sniff* > > Cory Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2003 Report Share Posted November 29, 2003 Cory, That is good news that is adjusting well and that Bill is being so accommodating. Sorry to hear about the flat tire. & na progress report Well, did sleep it in the first night, Wed night, and was in it all dayThur (w/skin checks of course) until about 4pm when he developed a dark redspot that did not go away, in fact you can still see it. Thanks to you guysI did not even think of putting his helmet back on, I knew that I wasn'tsupposed to! He was such a little trooper yesterday. We had a flat tire onthe way to TX which meant almost an extra 2 hours in his car seat for and he was fine the whole time in his helmet!So, when we got home from our trip to Ft. Worth today I called the orthooffice (they're closed today) and Bill Barringer called me at home and saidto leave off the helmet until Monday and he'd get me in Monday morning.I have to say that the hardest part about this whole thing is not being ableto snuggle his sweet little head. *sniff*CoryFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2003 Report Share Posted November 29, 2003 Cory, It's very common to need a few adjustments in the beginning of treatment. I'm sure that is all that is needed. Enjoy his naked little head! --- In Plagiocephaly , " Cory Schwemley " <cory6@c...> wrote: > Well, did sleep it in the first night, Wed night, and was in it all day > Thur (w/skin checks of course) until about 4pm when he developed a dark red > spot that did not go away, in fact you can still see it. Thanks to you guys > I did not even think of putting his helmet back on, I knew that I wasn't > supposed to! He was such a little trooper yesterday. We had a flat tire on > the way to TX which meant almost an extra 2 hours in his car seat for > and he was fine the whole time in his helmet! > > So, when we got home from our trip to Ft. Worth today I called the ortho > office (they're closed today) and Bill Barringer called me at home and said > to leave off the helmet until Monday and he'd get me in Monday morning. > > I have to say that the hardest part about this whole thing is not being able > to snuggle his sweet little head. *sniff* > > Cory Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 Thanks for sharing the positive news, Bones. ________________________________________________________________ Get your name as your email address. Includes spam protection, 1GB storage, no ads and more Only $1.99/ month - visit http://www.mysite.com/name today! Quote Link to comment Share on other sites More sharing options...
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