Guest guest Posted September 12, 2004 Report Share Posted September 12, 2004 Connie, I can't comment on the alcohol issue, as I haven't had a drink since starting LDN. I take that back, I had a couple of Mimosas here a while back, but didn't notice anything. May have been the LDN or may not have been much alcohol in them. I don't know. Now, about the motorized carts at shopping stores...thank goodness I have my own power chair because I wouldn't want to sit on the public use ones after seeing some of the people who use them! I'm not a terribly judgmental person, but please!!! I'm not what you would call a clean fanatic, but I would be wiping them down with disinfectant!! Since I can't stand or walk at all, I have to have my own. How about not being able to find a handicapped parking space and that same 'robust' woman is taking one up, gets out of her car smoking a cigarette, and then uses the cart once in the store!! Meanwhile, I have to park at the back of the parking lot!!! And the restroom situation!!! Oh my gosh...we won't go there!!! I guess we need to find some humor in all of this!!! Marcie (PPMS) In a message dated 9/12/2004 4:30:35 PM Central Standard Time, cbubbles@... writes: I agree with your assessment of this "benign" issue which has somehow become controversial. Having lived in a community where alcohol IS a problem for some people, I feel that having a glass of wine with my husband is a good way to spend time just talking with him. I have seen too many couples drift apart just because they are so busy with their individual lives and the responsibilities involved therein, and I like the idea of spending quality one-on-time together. I have never felt that I'm doing something immoral; I find nowhere in scripture that it is said that drinking a glass of wine is wrong. What I do find is that drinking in excess, becoming drunk, is wrong. I guess I think it is more morally wrong to eat to excess, becoming obese. It really gripes me when I go into a place like Walmart and need to use a motorized scooter to shop and find the two they usually have are being used. Then, when I try to shop for the items I absolutely need and find myself dragging my left leg and hardly being able to move, I see some extremely fat woman riding glibly along in one of motorized carts. THAT makes my blood boil. (I've even talked with one of the pharmacists there about this. She says there is nothing they can do when someone says they need a cart.) Now I'll get off my soap box; I just don't care to have a "Pharisee" tell me that I "need" to drink when I have one glass of wine. But I am interested in how others are affected by alcohol. As you say, , the differences in how people are affected are probably as diverse as the differences in how people are affected by MS. Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2004 Report Share Posted September 12, 2004 Connie, Here's another one...I encountered this just last night. I parked in the 'Van Accessible' handicapped parking spot at a restaurant. As I parked, I commented that I hoped noone parked on the right side of me because the extra room was on the left side. Most vans open from the right side, and the lift takes up about 4 - 5 feet once deployed. Once we had finished eating and went out to the van, sure enough, a car was parked right next to me. I couldn't get the lift out. Luckily, my date was able to move the van over to the left, and I was able to load up! I know it wasn't the driver of the car's mistake. The restaurant needs to be made aware of the situation. Oh the things we take for granted until faced with the situation! Marcie (PPMS) In a message dated 9/12/2004 5:14:49 PM Central Standard Time, cbubbles@... writes: I know what you mean; I have a small portable wheelchair that I use often when we go places. But there is no basket on it; where do you put your purchases? And..I was so angry once when someone parked in a handicapped spot that I went in to the service desk and reported it. They told me that they can't do anything about this. So I called the police, but by the time they got there, the perpetrator..notice my attempt to appear "sophisticated"...was gone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2004 Report Share Posted September 12, 2004 Another thing! I did call the police once when a non-disabled vehicle was parked in the only spot available for me. I was running late for a school board meeting, and it burned me up!! Turns out it was a friend of mine, and I didn't recognize her vehicle!! I felt like a total jerk, but she was so good-natured! She said that was OK because she should have known better, and it would make her think the next time! Marcie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2004 Report Share Posted September 12, 2004 That's why I said we have to find some humor in these situations! I know there are people with conditions that are not obvious by appearance. Such as respiratory or cardiac conditions for example. That's why I prefaced that with 'I'm not usually judgmental.' But when that woman parks with no handicapped tag and proceeds to take up the spot, that's where I draw the line!! Then she gets out smoking her cigarette and proceeds to use the electric cart!! No way!! If I can park at the back of the parking lot, so can she!! Or else, stay at the house!! Make out a list, and send someone to the store!! There are too many people such as ourselves who really need the spaces!! Marcie (PPMS) In a message dated 9/12/2004 5:49:29 PM Central Standard Time, jmlrussell@... writes: WAIT!!! i way have been that "robust woman" you see using the handicapped parking space...my Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2004 Report Share Posted September 12, 2004 , Thanks for this info. I was able to get my property taxes lowered, thank goodness! Every little bit helps when one is on a fixed income! BTW...how is your son doing? My son has been able to e-mail me fairly often from Iraq. He has been involved in gunfire. Luckily, last Monday, he was a few trucks back from the car bombing that took the lives of 7 of our Marines. I am concerned, not only for his safety, but for his state of mind when returning home. So far, so good, I guess. Marcie (PPMS) In a message dated 9/12/2004 5:51:45 PM Central Standard Time, jatrac1@... writes: On another note, do all of you know that the power companies (I don't know for sure if ALL power companies...) will give a discount on your electricity if you have a medical need? It's called a Medical Baseline. For MSers we have the need for cooler houses in the summer... You need a form signed by your doctor, and you must recertify Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2004 Report Share Posted September 12, 2004 Great Reply.... you never know, by looking at someone, what their disability may be. Dont you all know of that "But you look so good" thing that goes with MS?? If the "robust woman" is using the cart, maybe, just maybe its not because shes too "robust" or lazy to walk. And, sometimes, just sometimes, ones who park in the handicap parking spaces, forget to put their tag up on their mirror and needed the space as much as you did. I know I have forgotten a few times in the past 5 yrs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2004 Report Share Posted September 12, 2004 , I agree with your assessment of this "benign" issue which has somehow become controversial. Having lived in a community where alcohol IS a problem for some people, I feel that having a glass of wine with my husband is a good way to spend time just talking with him. I have seen too many couples drift apart just because they are so busy with their individual lives and the responsibilities involved therein, and I like the idea of spending quality one-on-time together. I have never felt that I'm doing something immoral; I find nowhere in scripture that it is said that drinking a glass of wine is wrong. What I do find is that drinking in excess, becoming drunk, is wrong. I guess I think it is more morally wrong to eat to excess, becoming obese. It really gripes me when I go into a place like Walmart and need to use a motorized scooter to shop and find the two they usually have are being used. Then, when I try to shop for the items I absolutely need and find myself dragging my left leg and hardly being able to move, I see some extremely fat woman riding glibly along in one of motorized carts. THAT makes my blood boil. (I've even talked with one of the pharmacists there about this. She says there is nothing they can do when someone says they need a cart.) Now I'll get off my soap box; I just don't care to have a "Pharisee" tell me that I "need" to drink when I have one glass of wine. But I am interested in how others are affected by alcohol. As you say, , the differences in how people are affected are probably as diverse as the differences in how people are affected by MS. Connie ----- Original Message ----- From: low dose naltrexone Sent: Sunday, September 12, 2004 3:15 PM Subject: Re: [low dose naltrexone] Re: alcohol and MS I don't recall anyone stating that they "need" to drink. Nor did I read any posts from anyone who seemed to have an unusual interest in drinking. The comments had to do with the change in the effect of the drink, not the desire for it, the appropriate or inappropriateness of it, or the morality of drinking. Alcohol has, at the very least, dual roles in our society. It is both a deadly addiction and a benign part of social and cultural events. For someone who is not addicted to alcohol an occasional beer or glass of wine should be no more of a problem than the occasional dessert or other "off diet" treat to those who are concerned about the value of the foods they eat. What is really of interest to me here is the fact that taking LDN seems to have had a major effect on our ability to tolerate alcohol. It sounds like the majority of people are finding they can't drink much without being strongly affected. A few of us seem to now have a greater resistance to the effects. I don't understand why we should be seeing both extremes. But then we don't even know if everyone with MS has the same disease, so this may just be another aspect of the difficulty of predicting the results of treating such a varied disease. JT ----- Original Message ----- From: pamridge49 low dose naltrexone Sent: Sunday, September 12, 2004 12:25 PM Subject: [low dose naltrexone] Re: alcohol and MS Martha,I guess that I would have to 100% agree with you. Haven 't touched alcohol in quite a few years, as I have enough trouble navigating to add more balance difficulties with alcohol....<S>It worries me terribly to hear someone "worrying" about drinking....maybe they should "worry" about why they "need" to drink. Maybe there is a bigger problem here.Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2004 Report Share Posted September 12, 2004 Thanks for your support, Connie. Sometimes we have a problem here separating our semi-scientific observations from our moral concerns. I really like it best when the group supports each other and seeks answers together... ----- Original Message ----- From: Connie Delvaux low dose naltrexone Sent: Sunday, September 12, 2004 3:30 PM Subject: Re: [low dose naltrexone] Re: alcohol and MS , I agree with your assessment of this "benign" issue which has somehow become controversial. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 Do you watch "Monk"? Maybe we all need to carry disinfectant wipes! JT Now, about the motorized carts at shopping stores...thank goodness I have my own power chair because I wouldn't want to sit on the public use ones after seeing some of the people who use them! I'm not a terribly judgmental person, but please!!! I'm not what you would call a clean fanatic, but I would be wiping them down with disinfectant!! Since I can't stand or walk at all, I have to have my own. How about not being able to find a handicapped parking space and that same 'robust' woman is taking one up, gets out of her car smoking a cigarette, and then uses the cart once in the store!! Meanwhile, I have to park at the back of the parking lot!!! And the restroom situation!!! Oh my gosh...we won't go there!!! I guess we need to find some humor in all of this!!! Marcie (PPMS) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 I know what you mean; I have a small portable wheelchair that I use often when we go places. But there is no basket on it; where do you put your purchases? And..I was so angry once when someone parked in a handicapped spot that I went in to the service desk and reported it. They told me that they can't do anything about this. So I called the police, but by the time they got there, the perpetrator..notice my attempt to appear "sophisticated"...was gone. Then there are the places that have one handicapped parking place..or those like 's that put their handicapped spots clear behind the building so that a person has to go a long way to get inside..what's up with that! I think we could all go on and on..most people just don't get it! I remember when I was teaching and students in a Critical Issues class would ask me to talk with their class about MS and its effects. I would also include some of the things that we all take for granted..at least I did before I had MS..like doors that I now say have suction cups, taking a step up to get in somewhere, rugs that are placed in certain places..I can't think of all of this now, but I was amazed how wonderful kids can be..I never felt awkward with the students..adults..now there is a different story.. enough of my babble.. ----- Original Message ----- From: marciemjm@... low dose naltrexone Sent: Sunday, September 12, 2004 5:51 PM Subject: Re: [low dose naltrexone] Re: alcohol and MS Connie, I can't comment on the alcohol issue, as I haven't had a drink since starting LDN. I take that back, I had a couple of Mimosas here a while back, but didn't notice anything. May have been the LDN or may not have been much alcohol in them. I don't know. Now, about the motorized carts at shopping stores...thank goodness I have my own power chair because I wouldn't want to sit on the public use ones after seeing some of the people who use them! I'm not a terribly judgmental person, but please!!! I'm not what you would call a clean fanatic, but I would be wiping them down with disinfectant!! Since I can't stand or walk at all, I have to have my own. How about not being able to find a handicapped parking space and that same 'robust' woman is taking one up, gets out of her car smoking a cigarette, and then uses the cart once in the store!! Meanwhile, I have to park at the back of the parking lot!!! And the restroom situation!!! Oh my gosh...we won't go there!!! I guess we need to find some humor in all of this!!! Marcie (PPMS) In a message dated 9/12/2004 4:30:35 PM Central Standard Time, cbubbles@... writes: I agree with your assessment of this "benign" issue which has somehow become controversial. Having lived in a community where alcohol IS a problem for some people, I feel that having a glass of wine with my husband is a good way to spend time just talking with him. I have seen too many couples drift apart just because they are so busy with their individual lives and the responsibilities involved therein, and I like the idea of spending quality one-on-time together. I have never felt that I'm doing something immoral; I find nowhere in scripture that it is said that drinking a glass of wine is wrong. What I do find is that drinking in excess, becoming drunk, is wrong. I guess I think it is more morally wrong to eat to excess, becoming obese. It really gripes me when I go into a place like Walmart and need to use a motorized scooter to shop and find the two they usually have are being used. Then, when I try to shop for the items I absolutely need and find myself dragging my left leg and hardly being able to move, I see some extremely fat woman riding glibly along in one of motorized carts. THAT makes my blood boil. (I've even talked with one of the pharmacists there about this. She says there is nothing they can do when someone says they need a cart.) Now I'll get off my soap box; I just don't care to have a "Pharisee" tell me that I "need" to drink when I have one glass of wine. But I am interested in how others are affected by alcohol. As you say, , the differences in how people are affected are probably as diverse as the differences in how people are affected by MS. Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 WAIT!!! i way have been that "robust woman" you see using the handicapped parking space...my youthful appearance belies my disability, i'm 43, and i have multiple sclerosis. i don't smoke, so obviosly that was not me, and sometimes i walk ok, most of the time i don't. i have had notes left on my car telling me that "obviosly you don't need this space, leave it for someone who does" that person obviosly was not with me the times my husband has to carry me to the bathroom, or the time i knocked myself out falling into the wall all i am saying is never judge a person by first appearances -------------- Original message -------------- Do you watch "Monk"? Maybe we all need to carry disinfectant wipes! JT Now, about the motorized carts at shopping stores...thank goodness I have my own power chair because I wouldn't want to sit on the public use ones after seeing some of the people who use them! I'm not a terribly judgmental person, but please!!! I'm not what you would call a clean fanatic, but I would be wiping them down with disinfectant!! Since I can't stand or walk at all, I have to have my own. How about not being able to find a handicapped parking space and that same 'robust' woman is taking one up, gets out of her car smoking a cigarette, and then uses the cart once in the store!! Meanwhile, I have to park at the back of the parking lot!!! And the restroom situation!!! Oh my gosh...we won't go there!!! I guess we need to find some humor in all of this!!! Marcie (PPMS) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 And where else could you possibly vent and know you would be understood??? Those of us with as yet less visible MS symptoms encounter a slightly different set of concerns. Friends who don't really get it when we don't want to go on long shopping trips, family members who can't quite understand our lack of interest in fatiguing family gatherings, frustration with our inability to keep our houses as clean as we'd like. Oh yes, I'm very glad to still be walking and able to shop on my own two feet, but frustrated with my own set of limitations. At least I don't yet have to deal with inconsiderate people who take the handicapped parking places. Maybe with LDN that will never become a problem for me and I can keep on opening doors and reaching for things that are just beyond someone elses' stretch. And maybe over time it will no longer be a problem for some of you who may be in a slow healing trend. We can hope. On another note, do all of you know that the power companies (I don't know for sure if ALL power companies...) will give a discount on your electricity if you have a medical need? It's called a Medical Baseline. For MSers we have the need for cooler houses in the summer... You need a form signed by your doctor, and you must recertify periodically. Recertification so far has not required another form from the doctor. And you can also ask for a permanent exemption from jury duty based on the limits MS has put on our energies (or bladder capacity). The court may or may not approve this one, but in my county a letter from my doctor was all it took. The letter was very vague, but the request was approved with no challenge. I do still work, but at work I can get up and move around when I want, and make all the trips to the restroom that seem necessary. Sorry to be long winded; I don't remember seeing these issues mentioned before. JT ----- Original Message ----- From: Connie Delvaux low dose naltrexone Sent: Sunday, September 12, 2004 4:07 PM Subject: Re: [low dose naltrexone] Re: alcohol and MS I know what you mean; I have a small portable wheelchair that I use often when we go places. But there is no basket on it; where do you put your purchases? And..I was so angry once when someone parked in a handicapped spot that I went in to the service desk and reported it. They told me that they can't do anything about this. So I called the police, but by the time they got there, the perpetrator..notice my attempt to appear "sophisticated"...was gone. Then there are the places that have one handicapped parking place..or those like 's that put their handicapped spots clear behind the building so that a person has to go a long way to get inside..what's up with that! I think we could all go on and on..most people just don't get it! I remember when I was teaching and students in a Critical Issues class would ask me to talk with their class about MS and its effects. I would also include some of the things that we all take for granted..at least I did before I had MS..like doors that I now say have suction cups, taking a step up to get in somewhere, rugs that are placed in certain places..I can't think of all of this now, but I was amazed how wonderful kids can be..I never felt awkward with the students..adults..now there is a different story.. enough of my babble.. ----- Original Message ----- From: marciemjm@... low dose naltrexone Sent: Sunday, September 12, 2004 5:51 PM Subject: Re: [low dose naltrexone] Re: alcohol and MS Connie, I can't comment on the alcohol issue, as I haven't had a drink since starting LDN. I take that back, I had a couple of Mimosas here a while back, but didn't notice anything. May have been the LDN or may not have been much alcohol in them. I don't know. Now, about the motorized carts at shopping stores...thank goodness I have my own power chair because I wouldn't want to sit on the public use ones after seeing some of the people who use them! I'm not a terribly judgmental person, but please!!! I'm not what you would call a clean fanatic, but I would be wiping them down with disinfectant!! Since I can't stand or walk at all, I have to have my own. How about not being able to find a handicapped parking space and that same 'robust' woman is taking one up, gets out of her car smoking a cigarette, and then uses the cart once in the store!! Meanwhile, I have to park at the back of the parking lot!!! And the restroom situation!!! Oh my gosh...we won't go there!!! I guess we need to find some humor in all of this!!! Marcie (PPMS) In a message dated 9/12/2004 4:30:35 PM Central Standard Time, cbubbles@... writes: I agree with your assessment of this "benign" issue which has somehow become controversial. Having lived in a community where alcohol IS a problem for some people, I feel that having a glass of wine with my husband is a good way to spend time just talking with him. I have seen too many couples drift apart just because they are so busy with their individual lives and the responsibilities involved therein, and I like the idea of spending quality one-on-time together. I have never felt that I'm doing something immoral; I find nowhere in scripture that it is said that drinking a glass of wine is wrong. What I do find is that drinking in excess, becoming drunk, is wrong. I guess I think it is more morally wrong to eat to excess, becoming obese. It really gripes me when I go into a place like Walmart and need to use a motorized scooter to shop and find the two they usually have are being used. Then, when I try to shop for the items I absolutely need and find myself dragging my left leg and hardly being able to move, I see some extremely fat woman riding glibly along in one of motorized carts. THAT makes my blood boil. (I've even talked with one of the pharmacists there about this. She says there is nothing they can do when someone says they need a cart.) Now I'll get off my soap box; I just don't care to have a "Pharisee" tell me that I "need" to drink when I have one glass of wine. But I am interested in how others are affected by alcohol. As you say, , the differences in how people are affected are probably as diverse as the differences in how people are affected by MS. Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 Just a reminder, Martha, that we all react differently to things and that MS doesn't affect us all the same. And perhaps you should check out the research about women, red wine, and heart disease. ________________________________________________________________ Get your name as your email address. Includes spam protection, 1GB storage, no ads and more Only $1.99/ month - visit http://www.mysite.com/name today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 I agree, balance is everything! Only a healthy lifestyle will help us keep ours! Keeping the good foods around and giving ourselves other things to do to de stress besides eating and drinking just anything, will keep us balanced. ;0) On Sun, 12 Sep 2004 09:57:21 -0700 " " <jatrac1@...> writes: detrimental to both emotional and physical health. Some days the stress over what I should and shouldn't eat is more upsetting to my system than just eating SOMETHING. Balance is everything. JT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2004 Report Share Posted September 14, 2004 Marcie, I have similar problem. My lift is on the side of the van. But I cannot drive the van, so that is easier. At times we have to reverse the van into parking lot for me to be able to get out and in, probably that might work for you as well. *Zora* San Trinidad West Indies *** -----Original Message----- From: marciemjm@... [mailto:marciemjm@...] Sent: Sunday, September 12, 2004 8:00 PM low dose naltrexone Subject: Re: [low dose naltrexone] Re: alcohol and MS Connie, Here's another one...I encountered this just last night. I parked in the 'Van Accessible' handicapped parking spot at a restaurant. As I parked, I commented that I hoped noone parked on the right side of me because the extra room was on the left side. Most vans open from the right side, and the lift takes up about 4 - 5 feet once deployed. Once we had finished eating and went out to the van, sure enough, a car was parked right next to me. I couldn't get the lift out. Luckily, my date was able to move the van over to the left, and I was able to load up! I know it wasn't the driver of the car's mistake. The restaurant needs to be made aware of the situation. Oh the things we take for granted until faced with the situation! Marcie (PPMS) In a message dated 9/12/2004 5:14:49 PM Central Standard Time, cbubbles@... writes: I know what you mean; I have a small portable wheelchair that I use often when we go places. But there is no basket on it; where do you put your purchases? And..I was so angry once when someone parked in a handicapped spot that I went in to the service desk and reported it. They told me that they can't do anything about this. So I called the police, but by the time they got there, the perpetrator..notice my attempt to appear " sophisticated " ...was gone. Quote Link to comment Share on other sites More sharing options...
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