Re: Digest Number 910

[Guest guest]

>

> Message: 18

> Date: Tue, 16 May 2000 20:40:13 EDT

> From: mcamp10139@...

> Subject: Re: IP and update

>

> In a message dated 5/16/00 2:14:47 AM Central Daylight Time,

> egroups writes:

> ...snip...

> After reading the info on OLE, I am surprised that it is not

> recommended by more experts such as Cheney.

> ...snip...

>

> Mike

Dr. Cheney does recommend OLE (I'm assuming you're referring to olive

leaf extract) for many of his patients. I am in the process of

transcribing the tapes from my recent visit with him and the following

is what he said about OLE. " I like olive leaf at lot, actually. It's a

good broad-spectrum anti-microbial. "

Sheri

[Guest guest]

Hi Sheri,

I look forward to reading the summary of your Dr. Cheney report.

Thanks,

Al

> I am in the process of

> transcribing the tapes from my recent visit with him and the following

> is what he said about OLE. " I like olive leaf at lot, actually. It's a

> good broad-spectrum anti-microbial. "

>

> Sheri

>

[Guest guest]

Tatezi,

All 4 of my kids had chicken pox and i did not get it. I had had a mild case of

it as a child, so was a bit worried. Now, my babysitter, did come down with it

real bad, clear down in her throat. So I dont think you have any easier chance

of getting it than anyone else. But that is just my opinion. LOL

I have a question, tho, for anyone about taking provera. Not really menopausal,

but have long gaps without menstruation. So doctor prescribed to take 10 days

worth every 3 months, if dont get a period. Well, I did a search on AOL and came

up with one article giving side effects, such as... well, something to do with

blood clotting was one. I do have arythmia problems with heart beat and was told

once by heart specialist that it will probably never really give me a problem,

unless other complications in coexistence, such as, blood clot.... then the

article also gave contraindications to taking provera as.. for one .. liver

dysfunction or disease (have hep c and cirrhosis) .. also listed possible

adverse reactions .. including edema (already taking hydrocholor(something) for

edema now, and mental depression.. insomnia.. I am thinking that as long as

periods dont go real long times apart .. i may just skip this provera.. but will

call and talk to the doc i guess but wondered if anyone else knew or had

experience in this area.

Always wondering,

Dawn

Date: Sat, 25 May 2002 11:08:57 -0500

From: Tatezi <tatezi@...>

Subject: Doc--Chicken Pox Question

I know if we have had chicken pox, we are

generally immune to getting it

again...however, I also know that adults who have

had chicken pox and

are exposed to the virus will quite often get

shingles with is the same

virus strain.

My question is...with hep c and having had

chicken pox as a child, what

are the chances of getting shingles if exposed to

a child one week after

he has broken out with chicken pox...and his

mother has never had them

so she could be in the incubation period? And his

grandmother who lives

with them, has had chicken pox but never had

shingles?

I am asking because I am due to spend next

weekend with my friend and

her grandson broke out in chicken pox yesterday.

The last time I went to

spend a weekend with them, her grandson came down

with Hep A two days

after I left and I was quite concerned for a

while. And with no

insurance and busy interviewing for jobs, I

really need to know if I am

at risk for shingles if I go out there next

weekend...I cannot take the

chance on getting sick now that I am in the

running for a job.

Advise?????

Blessings

Tatezi

My message to you: Don't worry, be happy!!

Love to hear from YOU!

Dawn

---------------------------------

[Guest guest]

Dawn,

Are you missing your periods because of hep c or treatment? I have skipped

months while on treatment, the period, but still had the pms crap. It's not

unusual while on treatment, but do check with your doc. Sorry I don't know

anything about the horse hormones

alley

[Guest guest]

Dawn,

Are you missing your periods because of hep c or treatment? I have skipped

months while on treatment, the period, but still had the pms crap. It's not

unusual while on treatment, but do check with your doc. Sorry I don't know

anything about the horse hormones

alley

[Guest guest]

http://www.toolsforhealing.com/products/Product_differences.htm

Found a really good website about electronics and health:

In any event, to get back to the task at hand, how do these devices differ

and do you need to use all three of them? In short, they are different in

major ways and, Yes, you do need to use them all to be more effective in

eliminating parasites of all types. The Zapper kills by passing an

electrical current through the body. Electricity travels on the surface of

muscle tissue and will not penetrate the body like radio waves or x-rays do.

Therefore, there are large areas of the body that the current cannot reach,

making it ineffective in eliminating parasites in those locations. Areas

such as the contents of your stomach and your intestines, your sinus

cavities, parasites inside gallstones in your gallbladder and/or liver, and

the blood stream and lymph tend to be impervious to the Zapper.

Unfortunately, large numbers of parasites live in all of those areas. So

you need different devices to reach different areas.

The Bob Beck Blood Purifier differs from the Zapper in that it's primary

focus is to clean the blood stream by immobilizing the parasites found

there. It takes approximately two hours for the blood of a typical person

to completely circulate once throughout the body. So while wearing Bob

Beck's Blood Purifier unit you are exposing your blood stream to the current

about once every two hours.

The Magnetic Pulse Generator allows you to target specific areas on the

body, such as the Lymph system, the face, or certain muscle groups. These

are all areas which can have little or no exposure to the electrical

currents of the other two devices. Because of the short duration of the

magnetic pulses this device is not effective in cleaning the blood like the

Blood Purifier(Silver Pulser).

Please remember, one treatment with any or all three of these devices won't

kill or immobilize all parasites in your blood or your body. You have to do

repeated sessions to continually work on the parasites that are ever

present. And no one can guarantee the elimination of all parasites

throughout the body, it just isn't possible.. The Zapper works mainly on

the muscle tissue and surface areas inside the body. The Blood Purifier

works on the blood stream. The Magnetic Pulse Generator is mainly used on

the Lymph system and areas around the head and stomach. So there is little

overlap of the three devices and they should all be used for the most

effective treatment of any major disease or as a preventative treatment.

Peace be yours,

barb

Barbara F.

Sandusky, Ohio

http://sanduskyohio.org

---

[This E-mail scanned for viruses by LRBCG.COM, Inc.]

[Guest guest]

In a message dated 12/25/03 3:00:13 AM Mountain Standard Time,

SSRI medications writes:

> How many are here today because of a LIE? Would you want to listen to

> someone preaching a lie or preaching the TRUTH? I'm here today because i was

LIED

> to and i HATE BEING LIED TO! How about you?

>

Of course we were lied to. Our entire society and culture are built on a

lie. The only thing I hate more than than our government and its pawns lying to

us is being preached to about something I also don't believe in and that is

religion per se. Don't mean to offend you, Connie, but I think your religious

rants are best left to personal e-mails or another board. Sorry about that.

Blind Reason

a novel of espionage and pharmaceutical intrigue

Think your antidepressant is safe? Think again.

[Guest guest]

Without some higher power in your life, you will never break through the lies.

I believe we are all sinners, but I have found someone who won't lie to me.

That's the only reason I am a psychiatric survivor. Have a nice Christmas!!!

glitterari@... wrote:In a message dated 12/25/03 3:00:13 AM Mountain

Standard Time,

SSRI medications writes:

> How many are here today because of a LIE? Would you want to listen to

> someone preaching a lie or preaching the TRUTH? I'm here today because i was

LIED

> to and i HATE BEING LIED TO! How about you?

>

Of course we were lied to. Our entire society and culture are built on a

lie. The only thing I hate more than than our government and its pawns lying to

us is being preached to about something I also don't believe in and that is

religion per se. Don't mean to offend you, Connie, but I think your religious

rants are best left to personal e-mails or another board. Sorry about that.

Blind Reason

a novel of espionage and pharmaceutical intrigue

Think your antidepressant is safe? Think again.

[Guest guest]

HI! I joined this group about a month ago because I am getting ready to have LDN for MS. My primary care MD has agreed to prescribe it, if my neuro will not, based on his assessment that it cannot hurt me.

SO what I would like to know from you guys is if there is a site that details how the doc should write the prescription to get the right fillers etc. I read somewhere that it ought to be made a certain way. SO you recommend I not use my local compounding pharmacy? If I did use them what would I tell them to get it right or where do I refer them so they know how to make it with the right carriers?

Thank you.

ALso, I notice the posts about staying on topic and agree. When you are new to LDN what you want is a place to go to find out about this subject...It's wierd to come here and start reading about colloidal silver. If you believe in CS and think it helps you, then please find a site for true believers of CS. This site is monitored by some allopathic doctors who are interested in possibly prescribing LDN, like my primary care doc. Putting stuff like that on here weakens our position that LDN is a legitimate medical treatment for MS because colloidal silver is marketed and sold as a treatment by people who expect to profit by it's sale and CS has a well known downside toxicity. Most all doctors know of this problem due to a recent article in the journal about it. LDN could look guilty by association. So please stay with LDN

One of the complaints that the national MS society had against LDN was that it was "being marketed on the internet" Now we all know there is no one "marketing" LDN ( who is making a profit? the little pharmacies making the stuff?), but there sure is someone marketing CS, kallawalla, and millions of other things for MS. A person would go broke if they wanted to try to take everything that sounds good. These marketers have a new style of marketing nowdays. They join websites with forums under false pretenses and post often occassionally making a post about their product to increase sales. They are cautioned to be sure not to talk too often about their stuff or they will be found out. You can actually get a job as a forum marketer. Now I don't know that there is anyone doing that here but I tell you since it can happen and people know about it, it makes people suspicious about things touted on the internet just becasue of this contamination. Therefore, if we keep to LDN information and anectdotal experience, this site will be a ressource for people who are interested in LDN, including interested doctors and researchers, and also for anyone interested in being careful about what they use as a resource because all of what is found here will be strictly subjective data and facts.

Just imagine that someone from NMSS got an idea to look into LDN because of the continued calls to the office about it and they came to this site and read a whole bunch of stuff about CS which has that mentioned well known toxicity..(sorry; if you take it I will not back away from that. It's true).

Imagine you are a doctor and you come to this site and see a lot of stuff about how dumb doctors are for not prescribing this stuff (even though there are no studies yet, and Dr Bihari ought to have submitted a paper like a case study on his findings if they are as good as he says)? Would you feel good or bad about LDN after reading that?

Imagine that you took a job with the NMSS and you see yourself as protecting and fighting for a cure for MS by doing your job (just go with this) and you go to this site and instead of interesting anectdotal stories about how useful ti was in the life of people with MS, it was full of offers to do other things? Wouldn't you conclude it must not be that useful?

Conversely, imagine that you read on this site that many people are doing better with LDN and that some even report that on their MRI findings they have stabilized? Imagine that someone tells how they used to have 3 exacerbations a year and now they say they have not had one for 2 years? Imagine someone says I used to be able to walk only 1/4 mile and now the other day I went for a 1 mile hike in the woods with my husband? Imagine now you are the NMSS person, what would you do?

Guys we are the leading edge. Ask yourself what evidence can I offer that is useful to those who are investigating the possibility of using LDN for themselves or their patients? You are not anonymous and unseen. You are afffecting many many people with your words. Think about your participation in a new way.

Marie

[Guest guest]

Marie,

Very well said. You have, in my opinion a good perspective on the subject. Here's what I am seeing now...people who want to take LDN, but don't do their own research learning all that they can on their own first. Rather, they come here and ask questions that are so readily and easily answered on the low dose naltrexone.org website. Or, they seem to already have made up their minds to do whatever, even if it is opposite of what Drs Bihari and Lawrence have learned through their experiences, and it's as if they want some type of validation from others.

I have a friend who has been having neurological problems for several years, but the docs can't make any diagnosis. I suggested LDN. Her doc prescribed it. The first night she slept like a baby. She was so happy. The next two nights were hell. Now she has developed some type of blemishes on her face. She asked me if it could be the LDN. I have no idea! I've never heard of that as a result of LDN. Now, after three nights of 3mg, she is thinking of doubling the dose! I told her 'NO'. Take 3mg for one month and then try 4.5mg. What I'm saying is...some people are expecting miracles! That would be great, but the MAIN thing is HALT/SLOWING OF DISEASE PROGRESSION. Right??? I don't think this can be emphasized enough.

There is so much information out there. Use it!!

Marcie (PPMS)

In a message dated 9/17/2004 9:18:06 AM Central Standard Time, mrhodesrnch@... writes:

Guys we are the leading edge. Ask yourself what evidence can I offer that is useful to those who are investigating the possibility of using LDN for themselves or their patients? You are not anonymous and unseen. You are afffecting many many people with your words. Think about your participation in a new way.

Marie

[Guest guest]

Thank you. I post rarely as I don't take LDN, my husband does.

However, I have been considering dropping myself from this site because

there seems to be more " stuff " about other things than there is about

LDN.

Robin

>>> mrhodesrnch@... 09/17/04 10:13AM >>>

HI! I joined this group about a month ago because I am getting ready

to have

LDN for MS. My primary care MD has agreed to prescribe it, if my

neuro will

not, based on his assessment that it cannot hurt me.

SO what I would like to know from you guys is if there is a site that

details

how the doc should write the prescription to get the right fillers

etc. I

read somewhere that it ought to be made a certain way. SO you

recommend I not

use my local compounding pharmacy? If I did use them what would I tell

them

to get it right or where do I refer them so they know how to make it

with the

right carriers?

Thank you.

ALso, I notice the posts about staying on topic and agree. When you

are new

to LDN what you want is a place to go to find out about this

subject...It's

wierd to come here and start reading about colloidal silver. If you

believe in

CS and think it helps you, then please find a site for true believers

of CS.

This site is monitored by some allopathic doctors who are interested in

possibly prescribing LDN, like my primary care doc. Putting stuff like

that on here

weakens our position that LDN is a legitimate medical treatment for MS

because colloidal silver is marketed and sold as a treatment by people

who expect to

profit by it's sale and CS has a well known downside toxicity. Most

all

doctors know of this problem due to a recent article in the journal

about it. LDN

could look guilty by association. So please stay with LDN

One of the complaints that the national MS society had against LDN was

that

it was " being marketed on the internet " Now we all know there is no

one

" marketing " LDN ( who is making a profit? the little pharmacies making

the stuff?),

but there sure is someone marketing CS, kallawalla, and millions of

other

things for MS. A person would go broke if they wanted to try to take

everything

that sounds good. These marketers have a new style of marketing

nowdays. They

join websites with forums under false pretenses and post often

occassionally

making a post about their product to increase sales. They are

cautioned to be

sure not to talk too often about their stuff or they will be found out.

You

can actually get a job as a forum marketer. Now I don't know that

there is

anyone doing that here but I tell you since it can happen and people

know about

it, it makes people suspicious about things touted on the internet just

becasue of this contamination. Therefore, if we keep to LDN

information and

anectdotal experience, this site will be a ressource for people who are

interested in

LDN, including interested doctors and researchers, and also for anyone

interested in being careful about what they use as a resource because

all of what is

found here will be strictly subjective data and facts.

Just imagine that someone from NMSS got an idea to look into LDN

because of

the continued calls to the office about it and they came to this site

and read

a whole bunch of stuff about CS which has that mentioned well known

toxicity..(sorry; if you take it I will not back away from that. It's

true).

Imagine you are a doctor and you come to this site and see a lot of

stuff

about how dumb doctors are for not prescribing this stuff (even though

there are

no studies yet, and Dr Bihari ought to have submitted a paper like a

case

study on his findings if they are as good as he says)? Would you feel

good or bad

about LDN after reading that?

Imagine that you took a job with the NMSS and you see yourself as

protecting

and fighting for a cure for MS by doing your job (just go with this)

and you

go to this site and instead of interesting anectdotal stories about how

useful

ti was in the life of people with MS, it was full of offers to do other

things? Wouldn't you conclude it must not be that useful?

Conversely, imagine that you read on this site that many people are

doing

better with LDN and that some even report that on their MRI findings

they have

stabilized? Imagine that someone tells how they used to have 3

exacerbations a

year and now they say they have not had one for 2 years? Imagine

someone says

I used to be able to walk only 1/4 mile and now the other day I went

for a 1

mile hike in the woods with my husband? Imagine now you are the NMSS

person,

what would you do?

Guys we are the leading edge. Ask yourself what evidence can I offer

that is

useful to those who are investigating the possibility of using LDN for

themselves or their patients? You are not anonymous and unseen. You

are afffecting

many many people with your words. Think about your participation in a

new

way.

Marie

[Guest guest]

Wow Marie, Excellent post, from start to finish!

I am ONLY taking LDN. I didn't find CS before I started LDN so I took one that had a whole lot of minerals in it. Never noticed anything from it. I've tried coral calcium, and calcium/mag/D, fibercon, stool softener, multi's, C, B50's, a few things over the years. The only thing I take every day is LDN and haven't taken many vitamins or minerals in a while now. When I go camping I take B1's to help with the mosquitos, but that's about it for 'daily'.

As far as memory goes, I discovered an event in 1978 I was talking to friends about and realized THAT was an exacerbation. I had a situation in 1981 that, now that I know about MS, was CLASSIC! Had it happened like that in the last few years, it would have been pegged as MS almost immediately. I had some instances in the 80s, but just worked on the problems, never tied them all together under one umbrella.

Same for the 90s, the day I got my MRI results (6/21/02) I immediately remembered Annual flares from 1996 on, then remembered 94, 93 and 92 incidents. So for 10 years prior to my DX, I can remember annual flares every year from 92 except for 95.

My '02 flare ended in May, I started LDN 4/17/03, so may I was 'due' for my next one, and I haven't had one since starting LDN. It's only a year and half, so is it too early to say my Annual flares have stopped? It's now been 2 1/2 years since the start of my last flare. So now it's a time game. This coming May would make 3 full years without a flare, 2 yrs and 1 month being on LDN. But can't count your chickens before they hatch.

So far so good... before LDN I wished for "ONE more day of freedom like I had".... now it's been 520 of those "One more day's". It's not perfect, but it sure is a heck of a lot better than the few years prior to starting LDN.

Summer 2003 was The Most Totally Awesome summer of my 4 decade+ life; and this summer wasn't too bad either.. not as exciting for Cloud 9, but awesome in spots anyway.

Good luck to us ALL!

----- Original Message -----

From: mrhodesrnch@...

low dose naltrexone

Sent: Friday, September 17, 2004 11:13

Subject: Re: [low dose naltrexone] Digest Number 910

.......

Imagine that you took a job with the NMSS and you see yourself as protecting and fighting for a cure for MS by doing your job (just go with this) and you go to this site and instead of interesting anectdotal stories about how useful ti was in the life of people with MS, it was full of offers to do other things? Wouldn't you conclude it must not be that useful?

Conversely, imagine that you read on this site that many people are doing better with LDN and that some even report that on their MRI findings they have stabilized? Imagine that someone tells how they used to have 3 exacerbations a year and now they say they have not had one for 2 years? Imagine someone says I used to be able to walk only 1/4 mile and now the other day I went for a 1 mile hike in the woods with my husband? Imagine now you are the NMSS person, what would you do?

Guys we are the leading edge. Ask yourself what evidence can I offer that is useful to those who are investigating the possibility of using LDN for themselves or their patients? You are not anonymous and unseen. You are afffecting many many people with your words. Think about your participation in a new way.

[Guest guest]

blemishes?? strange, i've had some of that since i started ldn too, almost like puberty again

anyone had this happen with ldn??

-------------- Original message -------------- Marie, Very well said. You have, in my opinion a good perspective on the subject. Here's what I am seeing now...people who want to take LDN, but don't do their own research learning all that they can on their own first. Rather, they come here and ask questions that are so readily and easily answered on the low dose naltrexone.org website. Or, they seem to already have made up their minds to do whatever, even if it is opposite of what Drs Bihari and Lawrence have learned through their experiences, and it's as if they want some type of validation from others. I have a friend who has been having neurological problems for several years, but the docs can't make any diagnosis. I suggested LDN. Her doc prescribed it. The first night she slept like a baby. She was so happy. The next two nights were hell. Now she has developed some type of blemishes on her face. She asked me if it could be the LDN. I have no idea! I've never heard of that as a result of LDN. Now, after three nights of 3mg, she is thinking of doubling the dose! I told her 'NO'. Take 3mg for one month and then try 4.5mg. What I'm saying is...some people are expecting miracles! That would be great, but the MAIN thing is HALT/SLOWING OF DISEASE PROGRESSION. Right??? I don't think this can be emphasized enough. There is so much information out there. Use it!! Marcie (PPMS) In a message dated 9/17/2004 9:18:06 AM Central Standard Time, mrhodesrnch@... writes:

Guys we are the leading edge. Ask yourself what evidence can I offer that is useful to those who are investigating the possibility of using LDN for themselves or their patients? You are not anonymous and unseen. You are afffecting many many people with your words. Think about your participation in a new way. Marie

[Guest guest]

Connie,

I will be interested to hear how you feel about the topper. We bought a

Tempurpedic a few months before my surgery (LTHR - 8/04) and it helped me

remember what it actually meant to have a good night's sleep. Bone-on-bone

at the time, I would be able to sleep for about 20 minutes or half-hour at a

time until the pain built from pressure of the mattress enough to wake me

up. I would then move to another position and repeat the cycle. The

Tempurpedic solved the problem of pressure build-up completely and while I

still woke a few times during the night, it was an immense improvement. Not

irritating it all night also helped get through the days as I could start

with less pain in the first place. Wish I had done it sooner - and have

wondered if the topper would give the same result. No question - it's a LOT

less expensive!

Martie

> Date: Sat, 4 Jun 2005 14:52:39 EDT

> From: tashadow@...

> Subject: Re: Re: Memory Foam Mattresses

>

>

> I just need a mattress topper right now. But, when I do need a new

> mattress, I will definitely be seeking one out. I can do that now then

when I am

> ready to buy a mattress, I know what I am looking for. Thank you for you

input.

>

> Connie