This Board -- stating the case to focus LDN for the last time

[Guest guest]

Bringing up the topic of off-topic items is clearly unpopular with

some folks on this board. I joined this board in late February and

began taking LDN in March for MS. I have posted my story several

times. I am grateful for the information and help I received from

those here. Unfortunately, some of those that were posting

regularly no longer post. My sense is that some find the lack of

focus on LDN discouraging. I have to believe that most of the 1200

people that have joined this site joined it because of the stated

purpose on the Homepage.

It reads:

" The Low Dose Naltrexone (LDN) group is an announcement and

discussion group for those interested in LDN, and who wish to be

notified about updates to the Low Dose Naltrexone website

(www.low dose naltrexone.org). "

I monitor several other boards and have noticed that many of the off-

topic posts are duplicated in other places. No doubt many of those

posts are interesting and helpful! Post 852 (copied below) makes

some excellent points about places to discuss topics of more general

interest.

" From: " LarryGC " <larrygc@s...>

Date: Wed Sep 15, 2004 7:49 pm

Subject: Re: [low dose naltrexone] Re: chlorella(TOM BAYUK) - off-

topic -- how far is too far?

There are already other groups that have some of the same members

and could be utilized for various other topics.

Spotlight_LDN (mostly all LDN takers with MS)

MSWatchers (my group, broader topics, I send a lot more than MS &

LDN related info there)

Both ran by guys named ce (but I prefer Larry, thank you), one

in the UK, and me in NY.

There's also a lot of other groups, which you can see in the long

list of CC's on some crosspostings. There's many MSN groups,

there's MGH/Braintalk, MSFacts, MSWorld, MSWatch, the MSRC (UK)'s

ezboard, my LDN ezboard, 's LDN board, ThisisMS, and the list

goes on and on.

I agree, this group should be 99.9% LDN related/based. Hard to

control.. we can't even seem to stop the really really OT and SPAM

messages. Now that should be first priority. "

I am taking the time, and making the effort, to again state the case

for focusing discussion on this board on LDN because I believe LDN

is far too important, for potentially far too many people, not to

make it the priority.

The nature of posting boards like this is such that those that

actively post tend to dictate the content. It is not up to me, or

any other individual other than a moderator to direct the topics

discussed here. I am sure we all prefer an uncensored environment,

but with that freedom should come some responsibility. I do believe

this site can and should be a valuable LDN resource. I also believe

that was the original intent for the site, and at the very least, is

why I joined. I have joined many other groups to learn about, and

discuss, lots of other MS and health related topics.

My position is not in any way personal. Unfortunately, some seem to

be taking it as such. I believe our " group " intent for this site

should be to make it as simple as possible for people to learn

about, and ask questions about, LDN related issues, in addition to

posts of " progress " reports and other LDN results. I am hoping that

those reading this will take the points presented in the spirit in

which they are presented.

This is the last you will hear about this subject from me. Clearly,

we each need to decide how we feel, and act accordingly.

Best regards,

Alan

[Guest guest]

This board might become much better, if many of the FAQ's could be

posted as files or links for ready perusal.

I suspect there is a certain fatigue developing in answering the same

questions again and again. Discussing the same topics repeatedly

makes us go around in circles. New topics can only be explored, if we

dont waste time rehashing what has been said umpteen times.

Perhaps the moderator might look into this.

Y

--- In low dose naltrexone , " LarryGC " <larrygc@s...>

wrote:

> Here's all the links to the sites I mention below, in order:

>

>

> Spotlight_LDN

Spotlight_ldn/ (for people

with MS taking LDN)

>

> MSWatchers http://www.larrygc.com/mswatchers (not only

LDN takers, the owner talks about his own life there too)

>

> Some MSN groups (that are LDN Friendly):

>

> MSFriends http://groups.msn.com/MSFriends

>

> name in the link:

http://groups.msn.com/AHomeawayfromHomeaMSSupportBoard

>

>

> MGH/Braintalk

http://www.braintalk.org (all

neurological diseases and more)

> Braintalk MS forum

http://brain.hastypastry.net/forums/forumdisplay.php?f=181 (weekly

LDN check-ins)

>

> MSFacts http://www.msfacts.org/cgi-

bin/dcforum/dcboard.cgi (some LDN takers there)

>

> MSWorld

http://www.msworldboards.org/vbulletin/ (NOT LDN friendly from my

point of view)

>

> MSWatch http://www.mswatch.com/Community/

(NOT LDN friendly from my point of view)

>

> MSRC ezboard http://p198.ezboard.com/bmsrcsharing

(don't know much about them)

>

> My LDN ezboard http://www.larrygc.com/ldn (quite inactive,

just waiting for people to chat there)

>

> 's board http://ldn.proboards3.com/index.cgi

>

> ThisisMS http://www.thisisms.com/

>

> ThisisMS LDN forum http://www.thisisms.com/modules.php?

name=Forums & file=viewforum & f=10

>

>

> and also good to know:

>

> Remedyfind for MS http://remedyfind.com/hc-Multiple-Sclerosis.asp

>

> Remedyfind LDN reports http://remedyfind.com/rem.asp?ID=4393

>

>

>

>

> ----- Original Message -----

> From: alanms1579

> low dose naltrexone

> Sent: Friday, September 17, 2004 01:25

> Subject: [low dose naltrexone] This Board -- stating the case to

focus LDN for the last time

>

>

>

> There are already other groups that have some of the same members

> and could be utilized for various other topics.

>

> Spotlight_LDN (mostly all LDN takers with MS)

>

> MSWatchers (my group, broader topics, I send a lot more than MS &

> LDN related info there)

>

> Both ran by guys named ce (but I prefer Larry, thank you),

one

> in the UK, and me in NY.

>

> There's also a lot of other groups, which you can see in the long

> list of CC's on some crosspostings. There's many MSN groups,

> there's MGH/Braintalk, MSFacts, MSWorld, MSWatch, the MSRC (UK)'s

> ezboard, my LDN ezboard, 's LDN board, ThisisMS, and the

list

> goes on and on.

[Guest guest]

Here's all the links to the sites I mention below, in order:

Spotlight_LDN Spotlight_ldn/ (for people with MS taking LDN)

MSWatchers http://www.larrygc.com/mswatchers (not only LDN takers, the owner talks about his own life there too)

Some MSN groups (that are LDN Friendly):

MSFriends http://groups.msn.com/MSFriends

name in the link: http://groups.msn.com/AHomeawayfromHomeaMSSupportBoard

MGH/Braintalk http://www.braintalk.org (all neurological diseases and more)

Braintalk MS forum http://brain.hastypastry.net/forums/forumdisplay.php?f=181 (weekly LDN check-ins)

MSFacts http://www.msfacts.org/cgi-bin/dcforum/dcboard.cgi (some LDN takers there)

MSWorld http://www.msworldboards.org/vbulletin/ (NOT LDN friendly from my point of view)

MSWatch http://www.mswatch.com/Community/ (NOT LDN friendly from my point of view)

MSRC ezboard http://p198.ezboard.com/bmsrcsharing (don't know much about them)

My LDN ezboard http://www.larrygc.com/ldn (quite inactive, just waiting for people to chat there)

's board http://ldn.proboards3.com/index.cgi

ThisisMS http://www.thisisms.com/

ThisisMS LDN forum http://www.thisisms.com/modules.php?name=Forums & file=viewforum & f=10

and also good to know:

Remedyfind for MS http://remedyfind.com/hc-Multiple-Sclerosis.asp

Remedyfind LDN reports http://remedyfind.com/rem.asp?ID=4393

----- Original Message -----

From: alanms1579

low dose naltrexone

Sent: Friday, September 17, 2004 01:25

Subject: [low dose naltrexone] This Board -- stating the case to focus LDN for the last time

There are already other groups that have some of the same members and could be utilized for various other topics. Spotlight_LDN (mostly all LDN takers with MS) MSWatchers (my group, broader topics, I send a lot more than MS & LDN related info there) Both ran by guys named ce (but I prefer Larry, thank you), one in the UK, and me in NY. There's also a lot of other groups, which you can see in the long list of CC's on some crosspostings. There's many MSN groups, there's MGH/Braintalk, MSFacts, MSWorld, MSWatch, the MSRC (UK)'s ezboard, my LDN ezboard, 's LDN board, ThisisMS, and the list goes on and on.

[Guest guest]

Only the owner/moderator can add files and links in this group, I just looked.

Perhaps needs some moderators to help with the spam, files, and links. I'm sure this group is a lot larger than he ever expected it will be.

----- Original Message -----

From: yashagrawal

low dose naltrexone

Sent: Friday, September 17, 2004 12:10

Subject: [low dose naltrexone] Re: This Board -- stating the case to focus LDN for the last time

This board might become much better, if many of the FAQ's could be posted as files or links for ready perusal. I suspect there is a certain fatigue developing in answering the same questions again and again. Discussing the same topics repeatedly makes us go around in circles. New topics can only be explored, if we dont waste time rehashing what has been said umpteen times.Perhaps the moderator might look into this.

[Guest guest]

Y, that's a great idea! Let's move forward and that's a great way to get

started. Have a great weekend!

-----Original Message-----

From: yashagrawal [mailto:yashagrawal@...]

Sent: Friday, September 17, 2004 12:11 PM

low dose naltrexone

Subject: [low dose naltrexone] Re: This Board -- stating the case to focus LDN

for the last time

This board might become much better, if many of the FAQ's could be posted as

files or links for ready perusal.

I suspect there is a certain fatigue developing in answering the same

questions again and again. Discussing the same topics repeatedly makes us go

around in circles. New topics can only be explored, if we dont waste time

rehashing what has been said umpteen times.

Perhaps the moderator might look into this.

Y

--- In low dose naltrexone , " LarryGC " <larrygc@s...>

wrote:

> Here's all the links to the sites I mention below, in order:

>

>

> Spotlight_LDN

Spotlight_ldn/ (for people

with MS taking LDN)

>

> MSWatchers http://www.larrygc.com/mswatchers (not only

LDN takers, the owner talks about his own life there too)

>

> Some MSN groups (that are LDN Friendly):

>

> MSFriends http://groups.msn.com/MSFriends

>

> name in the link:

http://groups.msn.com/AHomeawayfromHomeaMSSupportBoard

>

>

> MGH/Braintalk

http://www.braintalk.org (all

neurological diseases and more)

> Braintalk MS forum

http://brain.hastypastry.net/forums/forumdisplay.php?f=181 (weekly LDN

check-ins)

>

> MSFacts http://www.msfacts.org/cgi-

bin/dcforum/dcboard.cgi (some LDN takers there)

>

> MSWorld

http://www.msworldboards.org/vbulletin/ (NOT LDN friendly from my point of

view)

>

> MSWatch http://www.mswatch.com/Community/

(NOT LDN friendly from my point of view)

>

> MSRC ezboard http://p198.ezboard.com/bmsrcsharing

(don't know much about them)

>

> My LDN ezboard http://www.larrygc.com/ldn (quite inactive,

just waiting for people to chat there)

>

> 's board http://ldn.proboards3.com/index.cgi

>

> ThisisMS http://www.thisisms.com/

>

> ThisisMS LDN forum http://www.thisisms.com/modules.php?

name=Forums & file=viewforum & f=10

>

>

> and also good to know:

>

> Remedyfind for MS http://remedyfind.com/hc-Multiple-Sclerosis.asp

>

> Remedyfind LDN reports http://remedyfind.com/rem.asp?ID=4393

>

>

>

>

> ----- Original Message -----

> From: alanms1579

> low dose naltrexone

> Sent: Friday, September 17, 2004 01:25

> Subject: [low dose naltrexone] This Board -- stating the case to

focus LDN for the last time

>

>

>

> There are already other groups that have some of the same members

> and could be utilized for various other topics.

>

> Spotlight_LDN (mostly all LDN takers with MS)

>

> MSWatchers (my group, broader topics, I send a lot more than MS &

> LDN related info there)

>

> Both ran by guys named ce (but I prefer Larry, thank you),

one

> in the UK, and me in NY.

>

> There's also a lot of other groups, which you can see in the long

> list of CC's on some crosspostings. There's many MSN groups,

> there's MGH/Braintalk, MSFacts, MSWorld, MSWatch, the MSRC (UK)'s

> ezboard, my LDN ezboard, 's LDN board, ThisisMS, and the

list

> goes on and on.

[Guest guest]

> Bringing up the topic of off-topic items is clearly unpopular with

> some folks on this board. I joined this board in late February and

> began taking LDN in March for MS. I have posted my story several

> times. I am grateful for the information and help I received from

> those here. Unfortunately, some of those that were posting

> regularly no longer post. My sense is that some find the lack of

> focus on LDN discouraging. I have to believe that most of the 1200

> people that have joined this site joined it because of the stated

> purpose on the Homepage.

>

> It reads:

>

> " The Low Dose Naltrexone (LDN) group is an announcement and

> discussion group for those interested in LDN, and who wish to be

> notified about updates to the Low Dose Naltrexone website

> (www.low dose naltrexone.org). "

>

> I monitor several other boards and have noticed that many of the off-

> topic posts are duplicated in other places. No doubt many of those

> posts are interesting and helpful! Post 852 (copied below) makes

> some excellent points about places to discuss topics of more general

> interest.

>

> " From: " LarryGC " <larrygc@s...>

> Date: Wed Sep 15, 2004 7:49 pm

> Subject: Re: [low dose naltrexone] Re: chlorella(TOM BAYUK) - off-

> topic -- how far is too far?

>

> There are already other groups that have some of the same members

> and could be utilized for various other topics.

>

> Spotlight_LDN (mostly all LDN takers with MS)

>

> MSWatchers (my group, broader topics, I send a lot more than MS &

> LDN related info there)

>

> Both ran by guys named ce (but I prefer Larry, thank you), one

> in the UK, and me in NY.

>

> There's also a lot of other groups, which you can see in the long

> list of CC's on some crosspostings. There's many MSN groups,

> there's MGH/Braintalk, MSFacts, MSWorld, MSWatch, the MSRC (UK)'s

> ezboard, my LDN ezboard, 's LDN board, ThisisMS, and the list

> goes on and on.

>

> I agree, this group should be 99.9% LDN related/based. Hard to

> control.. we can't even seem to stop the really really OT and SPAM

> messages. Now that should be first priority. "

>

> I am taking the time, and making the effort, to again state the case

> for focusing discussion on this board on LDN because I believe LDN

> is far too important, for potentially far too many people, not to

> make it the priority.

>

> The nature of posting boards like this is such that those that

> actively post tend to dictate the content. It is not up to me, or

> any other individual other than a moderator to direct the topics

> discussed here. I am sure we all prefer an uncensored environment,

> but with that freedom should come some responsibility. I do believe

> this site can and should be a valuable LDN resource. I also believe

> that was the original intent for the site, and at the very least, is

> why I joined. I have joined many other groups to learn about, and

> discuss, lots of other MS and health related topics.

>

> My position is not in any way personal. Unfortunately, some seem to

> be taking it as such. I believe our " group " intent for this site

> should be to make it as simple as possible for people to learn

> about, and ask questions about, LDN related issues, in addition to

> posts of " progress " reports and other LDN results. I am hoping that

> those reading this will take the points presented in the spirit in

> which they are presented.

>

> This is the last you will hear about this subject from me. Clearly,

> we each need to decide how we feel, and act accordingly.

>

> Best regards,

> Alan

================

Thank you Alan. The past few weeks I have totally lost all interest in this

forum because of the spamming and off topic posts. I dropped in over at

Spotlight LDN where they are as of this moment still talking about LDN. I hope

this forum can find again the topic of LDN. If not I won't be around much

longer.

[Guest guest]

Alan, Larry, and Yash, they are great ideas. I totally agree with ye.

It's very frustrating seeing people post the exact same posts in all

the forums...be so much better if this forum just stuck to LDN. I go

to MS Friends and MSRC for all general topics to do with MS. Then I

go to the MS Diet GRoup to meet my Best Bet Diet budies and to share

advice information, then I'm a member of MS Cured which is kinda a

mix on alternative therapies. I'm also a member of MS Watch another

general topic place on MS and LDN Spotlight which is for LDN but

generally not as good as here. There are so many forums out there so

as you lot say it would be great that this forum could jsut stick to

LDN. Maybe then those newbies coming in or those of us oldtimers like

myself who dont' get online mcuh may be able to find LDN information

easier and this group could function better. I know I would post alot

more if the group functioned as it's supposed to but it's very hard

for me the way it works at moment.