Guest guest Posted February 12, 2002 Report Share Posted February 12, 2002 In a message dated 2/12/02 7:13:29 PM Eastern Standard Time, jsloane@... writes: > > Dear a, > > Yes, I have had this symptom you describe recently. And as you > describe it, it is more of a subjective experience. Meaning that > other's often cannot tell, but I am aware of being thick tongued and > having to think more about my speech. This symptom comes and goes. > > Are you receiving any treatment for Lyme presently? > > Love, > I have had 6 months IV Rocephin and oral Flagyl. Now I am doing Bicillin shots weekly along with Biaxin one week and Flagyl the next. I have seen an inmprovement in my energy levels although that is about it. a ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Do me a favor Doc ~ Tell me something good. Blair ~ The Exorcist Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2002 Report Share Posted February 12, 2002 In a message dated 2/12/02 7:04:06 PM, StarDantzer@... writes: << Anyone else experience slurred speech as a symptom? I am having it now and then and it is starting to scare me. My family tells me that they don't actually hear slurring but I feel as hough it is difficult to speak ~ kind of like I have to think about forming the words carefully. >> a- I HAD THIS!!!!! I was so bad that I also used to drool!!!! How attractive, 40 yrs. old, was told it was all menopause~~ I also had the paralysis of the throat, had difficulty swallowing, actually FORGOT how to swallow many times and would choke on water!!! IT GOES AWAY WITH LONG TERM TREATMENT!!!! I also was paralyzed from the neck down, couldn't turn a light on in my house for 1 yr, and could not listen to ANY noise, not even a TV....try doing THAT with 6 kids!!! LOL sue in nj sue massie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2002 Report Share Posted February 12, 2002 a: I have experienced similar symptoms and they are scary but with the antibiotics, there seems to be some relief. I am on many meds, including neurontin, doxepin, xanax, morphine, thyroid replacement and others that I don't remember right this moment. Sometimes it is hard for me to know whether my reactions are from lyme, die off or the meds...even though I take silymarin and other supplements that are supposed to help the liver, etc. When I have a few symptom free hours I feel like my Angels have given me a peak at the wonderful sunshine above. Best wishes, Donna " Have courage for the great sorrows of life and patience for the small ones; and when you have laboriously accomplished your daily task, go to sleep in peace. God is awake. " Victor Hugo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2002 Report Share Posted February 12, 2002 Dear a, Yes, I have had this symptom you describe recently. And as you describe it, it is more of a subjective experience. Meaning that other's often cannot tell, but I am aware of being thick tongued and having to think more about my speech. This symptom comes and goes. Are you receiving any treatment for Lyme presently? Love, > Anyone else experience slurred speech as a symptom? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2002 Report Share Posted February 12, 2002 a, OK, I would definately let your LLMD know about this symptom. Are you taking Neurontin? It seems to help me, though others may have a different opinion. Good news about the energy levels, though. Yea for that! > I have had 6 months IV Rocephin and oral Flagyl. Now I am doing Bicillin > shots weekly along with Biaxin one week and Flagyl the next. I have seen an > inmprovement in my energy levels although that is about it. > a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2002 Report Share Posted February 12, 2002 StarDantzer@... wrote: Anyone else experience slurred speech as a symptom? I am having it now and then and it is starting to scare me. My family tells me that they don't actually hear slurring but I feel as hough it is difficult to speak ~ kind of like I have to think about forming the words carefully. Dear kristina, I have had the same symptoms with speach articulation and strugeling to manipulate the tounge to express the sound I intended. Additionally I often had problems swollowing, including choking on my saliva for no reason. Pain in my throat if I turned my neck to the left and the throat swelling. These symptoms tend to be intermittent - I try not to become frightend... How long time have you been on Biaxin and Flagyl combo? Does Flagyl have anything to do with this? Love Grete ¸..· ´¨¨)) -:¦:- ¸.·´ .·´¨¨)) ((¸¸.·´ ..·´ -:¦:- a -:¦:- ((¸¸.·´* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2002 Report Share Posted February 13, 2002 For months I have been getting hung on words, I stutter and cannot get them out. I have also had problems enunciating and sounding them out. I used to have perfect enunciation and speech, I think that this new symptom is from the Flagyl getting into the brain. Re: [ ]Slurred Speech > > > StarDantzer@... wrote: > Anyone else experience slurred speech as a symptom? I am having it now and > then and it is starting to scare me. My family tells me that they don't > actually hear slurring but I feel as hough it is difficult to speak ~ kind of > like I have to think about forming the words carefully. > Dear kristina, > > I have had the same symptoms with speach articulation and strugeling to manipulate the tounge to express the sound I intended. Additionally I often had problems swollowing, including choking on my saliva for no reason. Pain in my throat if I turned my neck to the left and the throat swelling. These symptoms tend to be intermittent - I try not to become frightend... > > How long time have you been on Biaxin and Flagyl combo? Does Flagyl have anything to do with this? Love Grete > > > > > ¸..· ´¨¨)) -:¦:- > ¸.·´ .·´¨¨)) > ((¸¸.·´ ..·´ -:¦:- a > -:¦:- ((¸¸.·´* > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2002 Report Share Posted February 13, 2002 In a message dated 2/13/02 2:54:12 AM Eastern Standard Time, grete_alice@... writes: > I have had the same symptoms with speach articulation and strugeling to > manipulate the tounge to express the sound I intended. Additionally I often > had problems swollowing, including choking on my saliva for no reason. Pain > in my throat if I turned my neck to the left and the throat swelling. These > symptoms tend to be intermittent - I try not to become frightend... > > How long time have you been on Biaxin and Flagyl combo? Does Flagyl have > anything to do with this? Love Grete > Hi Grete, I have been on the Flagyl for about 8 months now and possibly it is giving me some neuro side affects. It is hard to tell though. I also have excess saliva, alot of twitching muscles and pain in my back, creepy sensations under my skin and numbness in my hands/arms when I sleep. I have looked these symptoms up and all I keep on finding is ALS or Lou Gehrigs disease. This, of course is terrifying me. i kow that Lyme can cause so many symptoms though. I am going to try an get an appt with my LLMD. a ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Do me a favor Doc ~ Tell me something good. Blair ~ The Exorcist Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2002 Report Share Posted February 14, 2002 In a message dated 2/13/02 3:15:58 PM, StarDantzer@... writes: << I also have excess saliva, alot of twitching muscles and pain in my back, creepy sensations under my skin and numbness in my hands/arms when I sleep >> a- I wrote you privately but wanted to post to the group.... I had ALL of these symptoms and more. I KNOW it is scary as hell, you feel 'this is it', someone is missing this diagnosis and I am going to continue to go downhill....NOT TRUE. Stick with the program, especially the flagyl because that is treating the babesia. Babesia is the common thread with people that are diagnosed with ALS/lyme!!!! I will send my phone #, call me. Not only do you secrete excess saliva, but also vaginally (sorry guys but women need to know these things!!! LOL). Muscle twitches??? It is caused by a lack of magnesium!!! Get some calcium/magnesium, Tropical Oasis brand, www.tropicaloasis.com or ask your health food store to order it. It is a liquid, keep refrigerated, tastes like mint (get the orange flavor). EXCELLENT source!!! Arms/legs falling asleep, I still get it rarely. Used to get it ALL THE TIME!! Woke me up (when I could sleep, I remember the insomnia REALLY bad!). I now sleep 7-8 hrs/night SOUNDLY, have no creepy feelings like bugs crawling under your skin, no twitches/muscle spasms, etc. sue in nj sue massie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2002 Report Share Posted February 14, 2002 Dear Sue, Flagyl is not used for Babesiosis. Martha A. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2002 Report Share Posted February 14, 2002 Rodney & <rod@...> wrote: For months I have been getting hung on words, I stutter and cannot get them out. I have also had problems enunciating and sounding them out. I used to have perfect enunciation and speech, I think that this new symptom is from the Flagyl getting into the brain. Re: [ ]Slurred Speech > > > StarDantzer@... wrote: > Anyone else experience slurred speech as a symptom? I am having it now and > then and it is starting to scare me. My family tells me that they don't > actually hear slurring but I feel as hough it is difficult to speak ~ kind of > like I have to think about forming the words carefully. > Dear kristina, > > I have had the same symptoms with speach articulation and strugeling to manipulate the tounge to express the sound I intended. Additionally I often had problems swollowing, including choking on my saliva for no reason. Pain in my throat if I turned my neck to the left and the throat swelling. These symptoms tend to be intermittent - I try not to become frightend... > > How long time have you been on Biaxin and Flagyl combo? Does Flagyl have anything to do with this? Love Grete > > > > > ¸..· ´¨¨)) -:¦:- > ¸.·´ .·´¨¨)) > ((¸¸.·´ ..·´ -:¦:- a > -:¦:- ((¸¸.·´* > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2002 Report Share Posted February 14, 2002 StarDantzer@... wrote: Hi Grete, I have been on the Flagyl for about 8 months now and possibly it is giving me some neuro side affects. It is hard to tell though. I also have excess saliva, alot of twitching muscles and pain in my back, creepy sensations under my skin and numbness in my hands/arms when I sleep. I have looked these symptoms up and all I keep on finding is ALS or Lou Gehrigs disease. This, of course is terrifying me. i kow that Lyme can cause so many symptoms though. I am going to try an get an appt with my LLMD. a ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Dear a, I understand your anxiety and concerns. When I feel that way I find it improtant that I get the answers I'm looking for, whatever it takes. If it of any help to you, I have had the same symptoms in my face and muscle jerks and numbness of hands as well as very cold feet when taking Flagyl. The easiest way for me to find out if it was Flagyl that caused the severity of symptoms, was to get of it and waite until symptoms subsided, and they did. Then I became aware of that Flagyl often is used late in the treatment, and is concideded contorversial by the LLMD community. Eventually the choice is mine - as you may note in an earlier respone of mine, I chose to stop for a while and continued the Biaxin. Love Grete --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2002 Report Share Posted February 15, 2002 How long time have you been on Biaxin and Flagyl combo? Does Flagyl have > anything to do with this? I have been on only Flagyl since 4-01. YES I feel that the Flagyl is causing this by getting deep into the brain. 2 weeks ago I had to go off the Flagyl and all my speech problems are gone, however the word-find and problems like that have remained. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2002 Report Share Posted February 15, 2002 Rodney & <rod@...> wrote: I have been on only Flagyl since 4-01. YES I feel that the Flagyl is causing this by getting deep into the brain. 2 weeks ago I had to go off the Flagyl and all my speech problems are gone, however the word-find and problems like that have remained. Dear , Somtimes I takes longer time for some Herx symptoms to subside, like my horsness at this time which is about 14 days now since I stoped Flagyl. My LLMD told me not to let the Herx become significant, " because some people was not able to return to their prior state of functioning " . Therefore I'm very coutious with my tolerance to the medication (I have had Lyme since my early childhood, but started treatment two month ago)and take the slow progression. I have a feeling when reading the info here, that most have significant Herxheimer symptoms. I just do not want to take the chance of not returning to my prior state of funktioning. Currently I do well on Biaxin 500mg times 2 daily - and is able to maintain a level of function while recovering. Love Grete Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2004 Report Share Posted September 28, 2004 I've beem taking LDN for about 9 months now and my only problem with my MS( PPMS) is balance & slurred speech.I'm working on the balance problem but I was wondering if any of my felllow MSers have found anything other than speech therapy that has beem of any benefit. Thanks, Don Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 i am ppms after heavymetal detox and treating the autonomic nervous system and still using a growth hormone releaser my slurred speech has improved to where i'm not really consideribg it anymore nps ----- Original Message ----- From: " maryew2002 " <dwalsh2@...> <low dose naltrexone > Sent: Tuesday, September 28, 2004 11:55 AM Subject: [low dose naltrexone] slurred speech > > I've beem taking LDN for about 9 months now and my only problem with > my MS( PPMS) is balance & slurred speech.I'm working on the balance > problem but I was wondering if any of my felllow MSers have found > anything other than speech therapy that has beem of any benefit. > Thanks, Don > > > > > > Quote Link to comment Share on other sites More sharing options...
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