Re: Re: Naltrexone, low or normal dose? Please do LDN!

[Guest guest]

Greetings to all.

With regard to MS, I am a disinterested 3rd party. I've read many of the posts since the Fuhrman character appeared.

I find the input from the supposed Dr. Fuhrman contradictory to the good results reported by so many. To many people with MS are getting good results from LDN therapy to deny the efficacy of the treatment. Increasing the dosage an order of magnitude is simply a different regimine which will have different effects.

Those with MS who don't get good results from the standard dosages Bilhari recommends certainly could try increasing dosage as much as 100% to see if the effects change.

I strongly suggest that this character that can't spell, whose posts read like they could be from Colonel Klink, with a put on accent should NOT be given the weight of so many who have had great success for many years with the LDN therapy.

Best Regards,

Don Schultz

[Guest guest]

Until your last paragraph I was in agreement with your post. To attack someone's spelling and grammar when they are communicating in a second language, or in their native language for that matter, is rude and unnecessary, and makes your otherwise rational concern a personal attack.

----- Original Message -----

From: Don Schultz

low dose naltrexone

Sent: Monday, October 04, 2004 5:18 AM

Subject: RE: [low dose naltrexone] Re: Naltrexone, low or normal dose? Please do LDN!

Greetings to all.

I strongly suggest that this character that can't spell, whose posts read like they could be from Colonel Klink, with a put on accent should NOT be given the weight of so many who have had great success for many years with the LDN therapy.

Best Regards,

Don Schultz

[Guest guest]

Amen! And Amen! Why would he not want to talk with Dr. Bahari

himself??? Very suspicious to me.

Kathy

On 4-Oct-04, at 6:18 AM, Don Schultz wrote:

> Greetings to all.

>  

> With regard to MS, I am a disinterested 3rd party.  I've read many of

> the posts since the Fuhrman character appeared.

>  

> I find the input from the supposed Dr. Fuhrman contradictory to the

> good results reported by so many.  To many people with MS are getting

> good results from LDN therapy to deny the efficacy of the treatment. 

> Increasing the dosage an order of magnitude is simply a different

> regimine which will have different effects. 

>  

> Those with MS who don't get good results from the standard dosages

> Bilhari recommends certainly could try increasing dosage as much as

> 100% to see if the effects change.

>  

> I strongly suggest that this character that can't spell, whose posts

> read like they could be from Colonel Klink, with a put on accent

> should NOT be given the weight of so many who have had great success

> for many years with the LDN therapy.

>  

> Best Regards,

>  

> Don Schultz

>

>

>

>

[Guest guest]

Perhaps Dr Bihari could occasionally participate in our group to help dispel fears and misunderstandings? It would sure be helpful...

JT

----- Original Message -----

From: Kathy Huget

low dose naltrexone

Sent: Monday, October 04, 2004 11:04 AM

Subject: Re: [low dose naltrexone] Re: Naltrexone, low or normal dose? Please do LDN!

Amen! And Amen! Why would he not want to talk with Dr. Bahari himself??? Very suspicious to me.KathyOn 4-Oct-04, at 6:18 AM, Don Schultz wrote:

[Guest guest]

Wait a minute Larry, I didn't ask that he spend an inordinate amount of time in a chat group. I asked if he couldn't occasionally participate in this group, which has a lot of unanswered questions. We can't all go to see him, which would use up far more of his time anyway. He could easily make himself available in one of the most accessible formats currently in existence without spending a lot of time doing so. I have long wondered why he does not. But anyone who questions Dr Bihari's statements here is immediately answered in a manner that is pretty close to an attack. That is not so good, there should always be the freedom to question.

This is turning into a ridiculous conflict. LDN is unproven, except for anecdotal evidence. Yep, the evidence is growing, we all believe LDN has value, but we don't have all the answers. Neither does Dr Fuhrmann, he just has a different theory, and an as yet very limited, set of anecdotal evidence. He can't make anyone here increase their dose, nor should we be in a panic thinking that is what will happen. If you don't like what he says and are concerned he will get too much attention imagine how much more attention his theory is getting with all the controversy going on here.

JT

----- Original Message -----

From: LarryGC

low dose naltrexone

Sent: Monday, October 04, 2004 1:17 PM

Subject: Re: [low dose naltrexone] Re: Naltrexone, low or normal dose? Please do LDN!

Instead of SEEING patients? He's in his 70s, do we really want him to spend the rest of his life in a Chat group? I'm surprised he hasn't packed it in, wished us all good luck, and retire to a warmer climate.

----- Original Message -----

From:

low dose naltrexone

Sent: Monday, October 04, 2004 15:35

Subject: Re: [low dose naltrexone] Re: Naltrexone, low or normal dose? Please do LDN!

Perhaps Dr Bihari could occasionally participate in our group to help dispel fears and misunderstandings? It would sure be helpful...

JT

----- Original Message -----

From: Kathy Huget

low dose naltrexone

Sent: Monday, October 04, 2004 11:04 AM

Subject: Re: [low dose naltrexone] Re: Naltrexone, low or normal dose? Please do LDN!

Amen! And Amen! Why would he not want to talk with Dr. Bahari himself??? Very suspicious to me.KathyOn 4-Oct-04, at 6:18 AM, Don Schultz wrote:

[Guest guest]

Instead of SEEING patients? He's in his 70s, do we really want him to spend the rest of his life in a Chat group? I'm surprised he hasn't packed it in, wished us all good luck, and retire to a warmer climate.

----- Original Message -----

From:

low dose naltrexone

Sent: Monday, October 04, 2004 15:35

Subject: Re: [low dose naltrexone] Re: Naltrexone, low or normal dose? Please do LDN!

Perhaps Dr Bihari could occasionally participate in our group to help dispel fears and misunderstandings? It would sure be helpful...

JT

----- Original Message -----

From: Kathy Huget

low dose naltrexone

Sent: Monday, October 04, 2004 11:04 AM

Subject: Re: [low dose naltrexone] Re: Naltrexone, low or normal dose? Please do LDN!

Amen! And Amen! Why would he not want to talk with Dr. Bahari himself??? Very suspicious to me.KathyOn 4-Oct-04, at 6:18 AM, Don Schultz wrote:

[Guest guest]

Dr. Bihari sees patients from 10 am, staying in his office until 9 at night. I'm not sure just how much time that would give him to sit at the computer to participate in this site.

But I DO know, that whenever questions come up, calling his office is sure to give you the answer. I think I'll call Bill tomorrow, and discuss this with him. See if maybe he can't be the one to pop in every now and then. I'll let you know how the conversation goes.

Carol

[Guest guest]

Right. OK. Well, maybe you don't see how it will cause problems for "LD"N if someone is telling someone who gets 50MG tabs to make liquid to not bother making liquid to take 3 or 4.5, but just take the whole pill, twice a day, during the day. THAT is NOT LDN. That is the heroin addict/alcoholic dose. The few who have been confused previously, that I have read about, who had MS, all got violently ill at ONE 50 MG pill a day.

The Website for LDN says 3.0 and 4.5, some are told 6.0. Talking about 50, twice a day, or 175, or up to 800, is not LDN, not what the website married to THIS group says, not what the Patent says, not what any of us who take 3, 4.5 or 6 say.

I'm sorry, but something isn't right. Replying to 10 posts in a row with the same link over and over again is also SPAM, is it not? I deleted most of them, but I did check it out and it's all in German.

I just find it very counter productive, dangerous, and suspect.

----- Original Message -----

From:

low dose naltrexone

Sent: Monday, October 04, 2004 16:10

Subject: Re: [low dose naltrexone] Re: Naltrexone, low or normal dose? Please do LDN!

Wait a minute Larry, I didn't ask that he spend an inordinate amount of time in a chat group. I asked if he couldn't occasionally participate in this group, which has a lot of unanswered questions. We can't all go to see him, which would use up far more of his time anyway. He could easily make himself available in one of the most accessible formats currently in existence without spending a lot of time doing so. I have long wondered why he does not. But anyone who questions Dr Bihari's statements here is immediately answered in a manner that is pretty close to an attack. That is not so good, there should always be the freedom to question.

This is turning into a ridiculous conflict. LDN is unproven, except for anecdotal evidence. Yep, the evidence is growing, we all believe LDN has value, but we don't have all the answers. Neither does Dr Fuhrmann, he just has a different theory, and an as yet very limited, set of anecdotal evidence. He can't make anyone here increase their dose, nor should we be in a panic thinking that is what will happen. If you don't like what he says and are concerned he will get too much attention imagine how much more attention his theory is getting with all the controversy going on here.

JT

[Guest guest]

Maybe he's not a computer person? Only 1 of my 3 chiros are online, none of the rest of my docs are, neuro, gp, etc, etc. I guess it would be nice if he were. Maybe someone from his office should be... maybe some day.

----- Original Message -----

From: pamridge49

low dose naltrexone

Sent: Monday, October 04, 2004 18:11

Subject: [low dose naltrexone] Re: Naltrexone, low or normal dose? Please do LDN!

,I completely agree with you. I do not understand why Dr. Bihari doesn't "want" to become involved with us on this board. Not only would he be a help to us, but maybe our experiences would also aid him in his LDN usage.

[Guest guest]

I put myself in his(Dr.Bahari's)shoes just now and realised that he can not attempt to monitor this forum as with all the phone consults and other work he does there is just not enough hours in the day.

Lets say he does answer just one letter which one would it be? Who would feel spurned because the great Dr. didn't respond to them?Why did he charge me yet gives others the benefit of his wisdom free of charge?When is enuf answers enuf?

You see what I am getting at?

If I were him I would have to stay mute.We were getting along just fine up until now.Right?

Reg.

-------Original Message-------

From: low dose naltrexone

Date: 10/04/04 16:45:10

low dose naltrexone

Subject: [low dose naltrexone] Re: Naltrexone, low or normal dose? Please do LDN!

,I completely agree with you. I do not understand why Dr. Bihari doesn't "want" to become involved with us on this board. Not only would he be a help to us, but maybe our experiences would also aid him in his LDN usage.Pam

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

[Guest guest]

Amen

But that doesn't reduce my pleasure in being able to feel my feet again, just leaves me wondering why he isn't interested.

----- Original Message -----

From: pamridge49

low dose naltrexone

Sent: Monday, October 04, 2004 3:11 PM

Subject: [low dose naltrexone] Re: Naltrexone, low or normal dose? Please do LDN!

,I completely agree with you. I do not understand why Dr. Bihari doesn't "want" to become involved with us on this board. Not only would he be a help to us, but maybe our experiences would also aid him in his LDN usage.Pam

[Guest guest]

We were getting along, but I did wonder why there has been no input from Dr B. I do understand what you are saying, and there is sense in it, but it also would be nice if someone in his office could step in with some info when there is a recurring question here. I wouldn't expect him, or them, to answer every question. We do a good job of answering each other's questions, and getting the new folks started on the right foot. But when we have a recurring unanswered question it would be great if someone in his office could post on it. And what a huge source of evidence, although of course anecdotal again, is left untapped here.

But maybe Dr B is just getting used up and can't stretch any further. I sure know that feeling myself.

JT

----- Original Message -----

From: Reg Kreil

low dose naltrexone

Sent: Monday, October 04, 2004 4:27 PM

Subject: Re: [low dose naltrexone] Re: Naltrexone, low or normal dose? Please do LDN!

I put myself in his(Dr.Bahari's)shoes just now and realised that he can not attempt to monitor this forum as with all the phone consults and other work he does there is just not enough hours in the day.

Lets say he does answer just one letter which one would it be? Who would feel spurned because the great Dr. didn't respond to them?Why did he charge me yet gives others the benefit of his wisdom free of charge?When is enuf answers enuf?

You see what I am getting at?

If I were him I would have to stay mute.We were getting along just fine up until now.Right?

Reg.

-------Original Message-------

From: low dose naltrexone

Date: 10/04/04 16:45:10

low dose naltrexone

Subject: [low dose naltrexone] Re: Naltrexone, low or normal dose? Please do LDN!

,I completely agree with you. I do not understand why Dr. Bihari doesn't "want" to become involved with us on this board. Not only would he be a help to us, but maybe our experiences would also aid him in his LDN usage.Pam

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

[Guest guest]

BECAUSE SOMEBODY WILL SUE HIM FOR SOMETHING.

wrote:

Amen But

that doesn't reduce my pleasure in being able to feel my feet again, just

leaves me wondering why he isn't interested.

----- Original Message -----

From:

pamridge49

low dose naltrexone

Sent: Monday, October 04, 2004 3:11

PM

Subject: [low dose naltrexone] Re: Naltrexone,

low or normal dose? Please do LDN!

,

I completely agree with you. I do not understand why Dr. Bihari

doesn't "want" to become involved with us on this board. Not only

would he be a help to us, but maybe our experiences would also

aid

him in his LDN usage.

Pam

[Guest guest]

I can't answer for the web designer, but he has nothing to do with the doctor's office or practice. Not sure if he was just a patient like we were. This group is related to the website, neither of them have any involvement by or from Dr. B.

I run 2 Wayne Dyer groups, it would be like asking why Wayne Dyer isn't a member of my group. He may know about the group, but he doesn't even own a computer. Sure it would be Nice if he were online, but not everyone in the world is online yet. Some may never be.

If you want to really stretch it, we've actually exploited Dr. B and his practice. For years he was treating people, if you wanted LDN, you went to him. Word gets out, word spreads, all of a sudden hundreds of people are seeking it. I'm just thankful I can get this stuff through my own neuro and through an expert PhD ran compounding pharmacy for less than a standard old copay per month.

I think we should all be very grateful for what we do have, not what could be or should be or may be or isn't.

----- Original Message -----

From: pamridge49

low dose naltrexone

Sent: Monday, October 04, 2004 19:12

Subject: [low dose naltrexone] Re: Naltrexone, low or normal dose? Please do LDN!

Larry,I sure wish he were online too; it seems to me that if you can set up a website, and tell everyone about the research that you have been doing.....and get all of us here to be using LDN, then maybe you should somehow find someone in your office that could possibly gather some of the questions that we are all asking, and post some answers.I guess that it just upsets me that there is "nobody" to ask questions of, especially when things aren't going well with the LDN. I feel as though I am my own researcher, trying to make things better for myself, and maybe passing on little tid-bits of the positive results to all of you....but it all just seems so hit or miss. It sure would be nice to know "definitely" what the next steps should be when the LDN isn't doing what Dr. Bihari says it should.

[Guest guest]

It certainly seems to ms that there is a lot of needless, reckless talk

going on here. I have been on LDN for a year and three months. As soon as

I started I had improvement with leg strength, balance and urinary function.

Several weeks later I was very stiff. I called Dr. Bihari and he made

several suggestions, one was to reduce the dose to 3.omg. That made no

difference, I called again and he said to go back to 4.5.

The point is that each and every time I contacted him, he either spoke to me

or called me back to advise me. I have had no progression in all that time.

If he is in his office either seeing patients or responding to patients

where is he supposed to get the time to answer potentially hundreds of

internet questions every day?

He knows what LDN can do, we that are taking LDN know that it is said to

only stop the progression. Hopefully, there might be some further

improvements but only hopefully.

We also know or at least should know that larger doses of Naltrexone can be

damaging and is NOT in fact LDN at all.

So maybe Dr. Manfred should start a Naltrexone site that would deal with

Naltrexone issues. There are some in this group that want to keep all

issues related to LDN strictly LDN, 50mg or 100mg a day is not LDN.

Regards,

Tom

----- Original Message -----

From: " Johanne F " <johannef@...>

<low dose naltrexone >

Sent: Tuesday, October 05, 2004 9:08 AM

Subject: [low dose naltrexone] Re: Naltrexone, low or normal dose? Please do

LDN!

>

>

>

> >

> > Larry,

> >

> > I sure wish he were online too; it seems to me that if you can set up

> > a website, and tell everyone about the research that you have been

> > doing.....and get all of us here to be using LDN, then maybe you

> > should somehow find someone in your office that could possibly gather

> > some of the questions that we are all asking, and post some answers.

> >

> >

>

> Hi,

>

> Some time ago I went to the officiale LDN site and sent an email here:

> dgluck@...

>

> this person answered my questions about LDN.

>

> If I remember right this person has direct contact with Dr Bihari.

>

> Also I think it is this person who started the website and not DrB.

>

>

>

>

>

>

>

>

[Guest guest]

I totally agree Reg! My own Dr. does not have the time to visit this

web site. She just gave me the low dose cause she felt it would

neither help or harm me but was willing to try. That posting about

him being afraid to be sued sounds right on the mark too!

Kathy

On 4-Oct-04, at 5:27 PM, Reg Kreil wrote:

>  <image.tiff>

>

> I put myself in his(Dr.Bahari's)shoes just now and realised that he

> can not attempt to monitor this forum as with all the phone consults

> and other work he does there is just not enough hours in the day.

> Lets say he does answer just one letter which one would it be? Who

> would feel spurned because the great Dr. didn't respond to them?Why

> did he charge me yet gives others the benefit of his wisdom free of

> charge?When is enuf answers enuf?

> You see what I am getting at?

> If I were him I would have to stay mute.We were getting along just

> fine up until now.Right? 

> Reg. 

>  

> -------Original Message-------

>  

> From: low dose naltrexone

> Date: 10/04/04 16:45:10

> low dose naltrexone

> Subject: [low dose naltrexone] Re: Naltrexone, low or normal dose?

> Please do LDN!

>  

>

> ,

>

> I completely agree with you.  I do not understand why Dr. Bihari

> doesn't " want " to become involved with us on this board. Not only

> would he be a help to us, but maybe our experiences would also aid

> him in his LDN usage.

>

> Pam

>

>

>

>

>

>  

>

>  

> ____________________________________________________

> <image.tiff>  IncrediMail - Email has finally evolved - Click Here

>

>

>