Re: recently heard about this drug! PLEASE write if its helping you!

October 9, 2004

Hi

Almost daily I am amazed by what LDN has done for me,or should I say is still doing for me.

I am still SPMS but no longer have Neropathic pain and or L'Hermettes sign(that went away after the fourth day).I no longer go to the washroom with urgency problems (that rectified itself after the third day). And since then my thinking has cleared up to normal levels,at least normal for a fifty year old.

I can't say it's a miracle cure as I still use a wheel chair for any distance and I do tire out easy but then again I am out of shape big time.

I do know that if I would have been on the 4.5mgs sooner I would still be working but such is life

it seems that until there was no other recourse I could not have gotten a prescription.

I know a few people now that can not get a prescription as they havn't tried the CRAB drugs yet,

in my books that is just not right!

Reg.K.

-------Original Message-------

From: low dose naltrexone

Date: 10/09/04 09:46:12

low dose naltrexone

Subject: [low dose naltrexone] recently heard about this drug! PLEASE write if its helping you!

Hi, my 32 yr old son has relapsing remitting AND progessive m.s. On Oct 8, his neurologist agreed to put him on disability= If this drug is helping you, PLEASE email me and tell me what changes you have had taking this drug. My son has severe back & leg spasms. head aches that feel like things are breaking in his head, that has been so painful he drops to the ground= his hands have been paralzyed for 4 months, he drags his left leg- his last mri showed "80" lessions and 2 bad plates- my cousin died from complications of m.s 5 yr ago- two months after my son was diagnosed-in his early 40's he was diagnosed at 18= last 3 yr paralyzed from neck down in nursing home= is ANYONEout there seeing this like my son or worse, etc or ANYONE who will send me email about this drug helping so i can give to his neurologist who IS open minded about knowing more about this drug, but at this time wont perscribe it-but is willing to know more about it! GOD BLESS YOU ALL============== A LOVING MOTHER!I AM NOT ABLE TO JOIN THE CHATS , I DONT HAVE ACCESS TO WHAT NEEDS TO BE DOWNLOADED SO PLEASE EMAIL ME AT christian48f@...PAT KING

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

October 9, 2004

Reg, I just need to share with you my experience in the time I've been on the 4.5. It's only been a couple of weeks, but I am so thrilled that I have more energy and stamina. I actually am going to a volleyball tournament in a town about 180 miles away, something that I wouldn't have even entertained the idea of doing some time ago. So I guess we're all different on the LDN, jus like we are with MS. I'm thrilled that your bladder control is better, but I can't say that the LDN has done that for me. (Ihave SPMS) I think that doing the yoga that a couple of the gals suggested I try has definitely helped too.

Thanks for sharing with us..what a bond we all share! Connie

----- Original Message -----

From: Reg Kreil

low dose naltrexone

Sent: Saturday, October 09, 2004 2:32 PM

Subject: Re: [low dose naltrexone] recently heard about this drug! PLEASE write if its helping you!

Hi

Almost daily I am amazed by what LDN has done for me,or should I say is still doing for me.

I am still SPMS but no longer have Neropathic pain and or L'Hermettes sign(that went away after the fourth day).I no longer go to the washroom with urgency problems (that rectified itself after the third day). And since then my thinking has cleared up to normal levels,at least normal for a fifty year old.

I can't say it's a miracle cure as I still use a wheel chair for any distance and I do tire out easy but then again I am out of shape big time.

I do know that if I would have been on the 4.5mgs sooner I would still be working but such is life

it seems that until there was no other recourse I could not have gotten a prescription.

I know a few people now that can not get a prescription as they havn't tried the CRAB drugs yet,

in my books that is just not right!

Reg.K.

-------Original Message-------

From: low dose naltrexone

Date: 10/09/04 09:46:12

low dose naltrexone

Subject: [low dose naltrexone] recently heard about this drug! PLEASE write if its helping you!

Hi, my 32 yr old son has relapsing remitting AND progessive m.s. On Oct 8, his neurologist agreed to put him on disability= If this drug is helping you, PLEASE email me and tell me what changes you have had taking this drug. My son has severe back & leg spasms. head aches that feel like things are breaking in his head, that has been so painful he drops to the ground= his hands have been paralzyed for 4 months, he drags his left leg- his last mri showed "80" lessions and 2 bad plates- my cousin died from complications of m.s 5 yr ago- two months after my son was diagnosed-in his early 40's he was diagnosed at 18= last 3 yr paralyzed from neck down in nursing home= is ANYONEout there seeing this like my son or worse, etc or ANYONE who will send me email about this drug helping so i can give to his neurologist who IS open minded about knowing more about this drug, but at this time wont perscribe it-but is willing to know more about it! GOD BLESS YOU ALL============== A LOVING MOTHER!I AM NOT ABLE TO JOIN THE CHATS , I DONT HAVE ACCESS TO WHAT NEEDS TO BE DOWNLOADED SO PLEASE EMAIL ME AT christian48f@...PAT KING

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

October 9, 2004

Hey Reg,

A couple of months ago I was telling everyone that after about three months of being on 3mg of ldn I tried 4.5 and had a horrible experience of having to use the bathroom instead of once during the night, using it 6 times! ( I believe you had problems with 4.5 as well) I dropped back to 3mg and have been fearful of trying 4.5 again. Well I'm pleased to announce everything happens in time! Finally after being on 3mg since the 1st of February, 4.5 dose is working wonderfully. Hope everyone is having a great weekend!

From: Reg Kreil [mailto:regkreil@...] Sent: Saturday, October 09, 2004 3:32 PMlow dose naltrexone Subject: Re: [low dose naltrexone] recently heard about this drug! PLEASE write if its helping you!

Hi

Almost daily I am amazed by what LDN has done for me,or should I say is still doing for me.

I am still SPMS but no longer have Neropathic pain and or L'Hermettes sign(that went away after the fourth day).I no longer go to the washroom with urgency problems (that rectified itself after the third day). And since then my thinking has cleared up to normal levels,at least normal for a fifty year old.

I can't say it's a miracle cure as I still use a wheel chair for any distance and I do tire out easy but then again I am out of shape big time.

I do know that if I would have been on the 4.5mgs sooner I would still be working but such is life

it seems that until there was no other recourse I could not have gotten a prescription.

I know a few people now that can not get a prescription as they havn't tried the CRAB drugs yet,

in my books that is just not right!

Reg.K.

-------Original Message-------

From: low dose naltrexone

Date: 10/09/04 09:46:12

low dose naltrexone

Subject: [low dose naltrexone] recently heard about this drug! PLEASE write if its helping you!

Hi, my 32 yr old son has relapsing remitting AND progessive m.s. On Oct 8, his neurologist agreed to put him on disability= If this drug is helping you, PLEASE email me and tell me what changes you have had taking this drug. My son has severe back & leg spasms. head aches that feel like things are breaking in his head, that has been so painful he drops to the ground= his hands have been paralzyed for 4 months, he drags his left leg- his last mri showed "80" lessions and 2 bad plates- my cousin died from complications of m.s 5 yr ago- two months after my son was diagnosed-in his early 40's he was diagnosed at 18= last 3 yr paralyzed from neck down in nursing home= is ANYONEout there seeing this like my son or worse, etc or ANYONE who will send me email about this drug helping so i can give to his neurologist who IS open minded about knowing more about this drug, but at this time wont perscribe it! -but is willing to know more about it! GOD BLESS YOU ALL============== A LOVING MOTHER!I AM NOT ABLE TO JOIN THE CHATS , I DONT HAVE ACCESS TO WHAT NEEDS TO BE DOWNLOADED SO PLEASE EMAIL ME AT christian48f@...PAT KING

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

October 10, 2004

,

That's very encouraging and a possitive message for others to see

this treatment through.....things DO eventually settle and start to

become worthwhile on this medication - we just need patience and Im

so glad you stuck with it whereas others would have found the

excessive night bathroom visits enough reason to abandon LDN.....

All the best.......

Friday (156 days on LDN or just over 22 wks @ 4.5mg, ppms and still

going strong)

--- In low dose naltrexone , " Baden " <lbaden@t...>

wrote:

Well I'm pleased to announce everything

> happens in time! Finally after being on 3mg since the 1st of

February, 4.5.

October 11, 2004

Hi,

This is really a case of waiting for something " not to happen " .

I've been taking LDN nightly (4.5 mg) and my mind is clearer. Lot's

of my other MS symptoms still exist (bad balance, bad shot term

memory, ...) I'm not dealing with the side-effects from Rebif (or

before that Avonex, then Betaseron).

So, at least it's not hurting me and I love not injecting

anything!!!!

Larry

>

> Well I'm pleased to announce everything

> > happens in time! Finally after being on 3mg since the 1st of

> February, 4.5.

October 11, 2004

Larry et al,

How long had you been using LDN before you dropped the injections?

AND are there others out there that have decided to drop whatever injections/medications they are/where taking as a result of the confidence LDN has given?

Curiosly yours,

XGRAF

----- Original Message -----

From: Larry

low dose naltrexone

Sent: Monday, October 11, 2004 5:49 AM

Subject: [low dose naltrexone] Re: recently heard about this drug! PLEASE write if its helping you!

Hi,This is really a case of waiting for something "not to happen". I've been taking LDN nightly (4.5 mg) and my mind is clearer. Lot's of my other MS symptoms still exist (bad balance, bad shot term memory, ...) I'm not dealing with the side-effects from Rebif (or before that Avonex, then Betaseron).So, at least it's not hurting me and I love not injecting anything!!!!Larry> > > Well I'm pleased to announce everything> > happens in time! Finally after being on 3mg since the 1st of > February, 4.5.

October 11, 2004

I got off Copaxone a month before I started LDN. Copaxone was doing a number on me. It was the best thing that I have ever done. I have been on LDN for 17 months now.

Marie

----- Original Message -----

From: Tomasta

low dose naltrexone

Sent: Monday, October 11, 2004 4:25 AM

Subject: Re: [low dose naltrexone] Re: recently heard about this drug! PLEASE write if its helping you!

Larry et al,

How long had you been using LDN before you dropped the injections?

AND are there others out there that have decided to drop whatever injections/medications they are/where taking as a result of the confidence LDN has given?

Curiosly yours,

XGRAF

----- Original Message -----

From: Larry

low dose naltrexone

Sent: Monday, October 11, 2004 5:49 AM

Subject: [low dose naltrexone] Re: recently heard about this drug! PLEASE write if its helping you!

Hi,This is really a case of waiting for something "not to happen". I've been taking LDN nightly (4.5 mg) and my mind is clearer. Lot's of my other MS symptoms still exist (bad balance, bad shot term memory, ...) I'm not dealing with the side-effects from Rebif (or before that Avonex, then Betaseron).So, at least it's not hurting me and I love not injecting anything!!!!Larry> > > Well I'm pleased to announce everything> > happens in time! Finally after being on 3mg since the 1st of > February, 4.5.

October 11, 2004

My son used Avonex and then Rebif for a total of 2 years prior to

starting LDN. He had his final Rebif injection 2 nights prior to

starting the LDN. This is an interesting topic! It is also

interesting to note that the " depression " that was always attributed

to the disease itself " lifted " immediately upon stopping the Rebif

and starting the LDN. I truly believe that if he had remained on the

interferons, we would have had some really severe problems relating

to the depression.

Take care!

Kim

> Larry et al,

>

> How long had you been using LDN before you dropped the injections?

October 11, 2004

> Larry et al,

>

> How long had you been using LDN before you dropped the injections?

>

> AND are there others out there that have decided to drop whatever

injections/medications they are/where taking as a result of the

confidence LDN has given?

>

> Curiosly yours,

>

> XGRAF

Hi XGRAF, I am another person who stopped injecting Copaxone daily

after I started LDN. I had been wanting to stop it after taking it

for 7 years. The side effects were really getting to me, atrophy at

the injection site, making it very difficult for injection, was the

biggest one for me. I am now just taking the LDN with a couple of

other meds. But I am loving life without injections, plus whatever

perks LDN is giving me. I am not on LDN long at all, but I was lucky

enough to notice a difference in just one day. Now I have energy

again! Yippeeeeee!

Joan

October 11, 2004