Re: LDN - What happens when you stop?

[Guest guest]

That sounds like a typical doctor's excuse. What happens when the CRABS drugs are stopped? And why would you stop LDN if it was working? If it wasn't working what difference would stopping make? Does the doctor have anything better to offer?

JT

----- Original Message -----

From: Grrrr!

low dose naltrexone

Sent: Saturday, October 09, 2004 4:40 PM

Subject: [low dose naltrexone] LDN - What happens when you stop?

Hello.I have been lurking here from the UK for some time and using the info to pester my GP about getting LDN prescriptions/supporting a trial etc.,etc. He has agreed to sponsor me for the next 'Aimspro' (goat serum)trial which starts this month but nothing on LDN. Apparently one of the sticking points is around potential long term effects including what happens if and when the medication is ever stopped. Anyone have any helpful experience of stopping?IainLiving in hope but finding it increasingly difficult!

[Guest guest]

Every time I stop or should I say forget to take a pill, 3.0mgs at this point in time,I find that I return to exactly where I was before taking my first pill!

This is no cure it only holds you at a certain point in your progression.After one year on LDN I can say and my Dr. will swear to,as others will attest to, that there are sure no bad side effects from such a small amount of naltrexone.

I just had a liver test and complete blood and urine test done as my Dr. was curious and it was as good as before I started taking LDN. (except for my type two diabetes but then hey I can't exercise and I eat junk food) Im' a bad boy! But then again I am now on 15mgs. of Actos for my diabetes,which is showing promise for those of us with MS also.

Reg.

-------Original Message-------

From: low dose naltrexone

Date: 10/09/04 18:03:54

low dose naltrexone

Subject: Re: [low dose naltrexone] LDN - What happens when you stop?

That sounds like a typical doctor's excuse. What happens when the CRABS drugs are stopped? And why would you stop LDN if it was working? If it wasn't working what difference would stopping make? Does the doctor have anything better to offer?

JT

----- Original Message -----

From: Grrrr!

low dose naltrexone

Sent: Saturday, October 09, 2004 4:40 PM

Subject: [low dose naltrexone] LDN - What happens when you stop?

Hello.I have been lurking here from the UK for some time and using the info to pester my GP about getting LDN prescriptions/supporting a trial etc.,etc. He has agreed to sponsor me for the next 'Aimspro' (goat serum)trial which starts this month but nothing on LDN. Apparently one of the sticking points is around potential long term effects including what happens if and when the medication is ever stopped. Anyone have any helpful experience of stopping?IainLiving in hope but finding it increasingly difficult!

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[Guest guest]

> Every time I stop or should I say forget to take a pill, 3.0mgs at

this

> point in time,I find that I return to exactly where I was before

taking my

> first pill!

Thanks for the reponse - commonsense prevails then I suppose. I

will try again.

Iain

[Guest guest]

After 14 months on LDN, I've seen slow progression. Last winter I didn't

think it was doing anything so I stopped taking it. I got rapidly worse.

So I went back on it and got better, but I'm still walking worse than I

was a year ago. I have PPMS.

Martha

[Guest guest]

Reg, I am in wheelchair since 1988, actually since 1988-1997 totally bedridden, exercise were hard to do, yes I will have times when I will do them and then again when I will not do them, but I keep persisting. Exercises help me with fatique and general well being, I am less tired,and on LDN even less, I keep having a lot of energy, the exercises are simple and as long as I can do them...there are so many benefits from them....why can't you exercise?

Zora

(except for my type two diabetes but then hey I can't exercise and I eat junk food) Im' a bad boy! ut then again I am now on 15mgs. of Actos for my diabetes,which is showing promise for those of us with MS also.

Reg.

[Guest guest]

That is a lame excuse IMHO. Remind your GP that naltrexone has been

around for many years, and is relatively safe at the usual 50 mg

dose in the absence of preexisting liver disease. In the tiny

amounts we are using (1-5 mg) the potential for adverse events are

miniscule to the point of being nonexistent. The danger in stopping

is more likely progression of the disease.

M

--- In low dose naltrexone , " Grrrr! " <pages@i...>

wrote:

>

> Hello.

>

> I have been lurking here from the UK for some time and using the

> info to pester my GP about getting LDN prescriptions/supporting a

> trial etc.,etc. He has agreed to sponsor me for the

next 'Aimspro'

> (goat serum)trial which starts this month but nothing on LDN.

> Apparently one of the sticking points is around potential long

term

> effects including what happens if and when the medication is ever

> stopped.

>

> Anyone have any helpful experience of stopping?

>

> Iain

> Living in hope but finding it increasingly difficult!

[Guest guest]

--- In low dose naltrexone , Martha Burton <mburtonakod@e...>

wrote:

> After 14 months on LDN, I've seen slow progression. Last winter I didn't

> think it was doing anything so I stopped taking it. I got rapidly worse.

> So I went back on it and got better, but I'm still walking worse than I

> was a year ago. I have PPMS.

>

> Martha

==========

Martha,

What mg of LDN are you taking? If you are taking 4.5mg, have you tried 5.5mg or

up to 6mg? You may be one who needs that stronger dose to completely halt your

progression.

Bren

[Guest guest]

I guess I will rephrase that

It,s not that I can't... as I can still walk, which is more than some, like you I guess.

But I am in need of guidance when it comes to what to do and how often or how much.

It comes back to no ambition... no desire to work, so I am in a big slump I guess.

That was not me for all of my working years, I was a Workaholic but I was also in great shape, now I can't even touch my toes or put my own socks on.

I know that exercise is good after all I stretch and do range of motion in my left arm as much as possible to keep loose, but I tire out so bad after just walking twenty feet that I have to sit and rest, and I only weigh two twenty.

Maybe now that I have upped my LDN to 4.5mgs I will find the energy to try again.

Thanks for caring.

Reg.

-------Original Message-------

From: low dose naltrexone

Date: 10/10/04 11:03:48

low dose naltrexone

Subject: Re: [low dose naltrexone] LDN - What happens when you stop?

Reg, I am in wheelchair since 1988, actually since 1988-1997 totally bedridden, exercise were hard to do, yes I will have times when I will do them and then again when I will not do them, but I keep persisting. Exercises help me with fatique and general well being, I am less tired,and on LDN even less, I keep having a lot of energy, the exercises are simple and as long as I can do them...there are so many benefits from them....why can't you exercise?

Zora

(except for my type two diabetes but then hey I can't exercise and I eat junk food) Im' a bad boy! ut then again I am now on 15mgs. of Actos for my diabetes,which is showing promise for those of us with MS also.

Reg.

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