Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 Tomasta asked: >>AND are there others out there that have decided to drop whatever injections/medications they are/where taking as a result of the confidence LDN has given?<< I dropped the Copaxone just one week before I started LDN. I had been on it a year with few side effects but I had always wanted to try LDN. I decided to drop Copaxone because my saliva glands had gotten so swollen and I just wanted to see if they would go down if I went off it. (They did--mostly). At the end of the week I thought--what the heck--this is a good time to start. I had the Rx already so just went ahead. Immediate changes for the better. No more Copaxone for me as long as LDN is working so well. I've been on LDN almost a month now. And for whoever asked: Copaxone is a daily injection--you use an auto-inject device so it's more like pressing a button on the side of a screw-driver handle than it is giving yourself a shot. Daphne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 Glad to hear about your success with LDN, and the confidence to finally drop Copax! I injected myself with Copax for 3 years when it first came out (before auto inject). My biggest problem was every time my husband touched me in the area I injected it always seemed to really hurt, and that started to become a real drag. . lol LDN is a lot friendlier in so many ways. I wish we could explain that to every MSer that is injecting themselves. Oh well those that want a better choice will find LDN. From: gateswill@... [mailto:gateswill@...] Sent: Monday, October 11, 2004 12:11 PMlow dose naltrexone Subject: [low dose naltrexone] LDN & Copaxone Tomasta asked: >>AND are there others out there that have decided to drop whatever injections/medications they are/where taking as a result of the confidence LDN has given?<< I dropped the Copaxone just one week before I started LDN. I had been on it a year with few side effects but I had always wanted to try LDN. I decided to drop Copaxone because my saliva glands had gotten so swollen and I just wanted to see if they would go down if I went off it. (They did--mostly). At the end of the week I thought--what the heck--this is a good time to start. I had the Rx already so just went ahead. Immediate changes for the better. No more Copaxone for me as long as LDN is working so well. I've been on LDN almost a month now. And for whoever asked: Copaxone is a daily injection--you use an auto-inject device so it's more like pressing a button on the side of a screw-driver handle than it is giving yourself a shot. Daphne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 In a message dated 10/11/2004 6:08:50 PM Central Daylight Time, mcbauman2002@... writes: Hi my name is and I have spms. I now am on novantrone and IVIG? How about novantrone and once a month IVIG when used with ldn??? This should be interesting! Novantrone involves chemo, right? Would that be to slow/kill the immune system? LDN is intended to up-regulate a compromised immune system, so I'm not sure what would happen. Since I know someone who is doing Novantrone, I will be interested to know of anyone's personal experience. IVIG is some type of blood cleasing, right or wrong? I have only heard a little about it, but really don't know anything. I know a man who had it done a couple of years ago, but he didn't see any improvements. He was being treated for something called 'Stiff Man Syndrome', but a new neuro has changed the diagnosis. They just don't know what to call it now. Must be something very rare. If you are still mobile, even to some degree, I would try LDN. I just don't know if the chemo/LDN would cancel each other out so-to-speak. There are cancer patients who are using it, so they might be able to shed some light on the subject. Best of luck to you! Marcie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2004 Report Share Posted October 12, 2004 If you are still mobile, even to some degree, I would try LDN. Marcie, I have a friend who is bed ridden and had very slurred speech and I introduced her to LDN, and she is improving, she has more energy, her slurred speech is disappearing slowly, I think most of people have improvements....on LDN. ***Zora*** San Trinidad, West Indies ****** *** * Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2005 Report Share Posted June 23, 2005 Of course it is your decision on what to do - but after a year of avonex shots (6 years ago) I will never go back to those. I would rather fight with ldn, nutrition and faith.... [low dose naltrexone] LDN & Copaxone I realize Copaxone is okay to take with LDN but is it advisable to do so? In other words, should I have faith in JUST taking the LDN or is it better to combine them and fight the ms with both? I've been using the LDN for 4 months now, the last month at the 4.5 dosage. I stopped the Copaxone 4 months ago. I must say there has been some improvement with my symptoms and the progression has seemed to stop. I also use DLPA 500mg 3X a day.Thanks for your help and good luck to all.Artie Quote Link to comment Share on other sites More sharing options...
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