Re: To those who take interferons with LDN, Dr. Bihari says...

[Guest guest]

Hi, thanks for the info but I'm confussed. I had my consultaion with

Dr. Bihari and he told me it was ok to use with avonex. I'm very

confussed as to why he would say this to me. I have been using LDN

4.5 mg every night and avonex once a week for 7 months now. I'm doing

well and my last MRI (august) showed no progression. I know this

could change and I'm not saying your wrong but I thought I was doing

well now I don't know what to think. I guess I need to talk to him

again.

--- In low dose naltrexone , " Bren " <TwisterAlley2@w...>

wrote:

> If you take an immune suppressant with your LDN like interferons,

chemo or steroids you may not get a halt in your MS progression, you

may get some symptom improvement but progression may not halt due to

the immune system suppressant. If you have progression of your MS

and are taking an immune suppressant along with the LDN, LDN cannot

be blamed for your progression. Bihari has clearly stated that LDN

and interferons and steroids are not compatible.

>

>

[Guest guest]

--- In low dose naltrexone , " gda22000 " <gda22000@y...>

wrote:

> Hi, thanks for the info but I'm confussed. I had my consultaion with

> Dr. Bihari and he told me it was ok to use with avonex.

---------------------------------------------------------------

Hi,

Here are a couple of things said by Dr Bihari about CRAB and LDNposted

by 2 people from the messageboard. hope this helps.

Johanne F

------------------------------------------------------------

Dr B LDN n copacone

From: REILLYMICHAELA17@C...

Date: Wed May 12, 2004 1:17 pm

Subject: Re: [low dose naltrexone] to flashykathy

ELAINE - I JUST STARTED LDN AND I TAKE COPAXONE. I'VE NEVER HAD AND

PROBLEMS WITH COPAXONE OR SIDE EFFECTS. DR. B TOLD ME TO STAY ON IT AT

LEAST 3 MONTHS BEFORE MAKING A DECISION TO STOP OR NOT. IF YOU CHOSE

COPAXONE WOULD BE THE BEST CHOICE. KIM

-----------------------------------------------------------

phone consult with Dr Bihari

My mom & I had on LDN

Sun Jun 13, 2004 11:44

209.240.205.61

MS and using Interferons(Betaseron, Avonex, Rebif) along with

LDN--They battle one another. For those who continue to take

interferons with LDN, you aren't protected by LDN from exacerbation.

[Guest guest]

> > Hi, thanks for the info but I'm confussed. I had my consultaion with

> > Dr. Bihari and he told me it was ok to use with avonex.

> ---------------------------------------------------------------

> Hi,

>

> Here are a couple of things said by Dr Bihari about CRAB and LDNposted

> by 2 people from the messageboard. hope this helps.

> Johanne F

>

> ----------------------------------------Dr. Bihari probably won't instruct you

to come off the Avonex since your primary neuro prescribed it.

When I spoke to Bihari I specifically asked the question about LDN and

interferons; my mom was on the phone with us in a 3 way conversation and he said

it's okay to take LDN with interferons but that one can possibly still have new

exacerbations with combining interferons with LDN. LDN's effectiveness is not

near as strong with an interferon in the mix.

The next time you speak to Bihari ask him if coming off the Avonex and just

being on LDN only would be best. He will probably gradually try to wean you

away from the Avonex. Read the website again about which CRAB drugs are

compatible with LDN. Bihari is probably trying not to cause you problems with

your neuro by pulling you off your Avonex. And also, I'm not positive but since

LDN is not FDA approved for the treatment of MS it may be illegal for him to

tell you to come off the Avonex. He's probably hoping you'll see the good in

LDN and make the decision to come off the Avonex yourself like many others have

in the past.