A new user of LDN

[Guest guest]

I have been reading the posts of this group for about three months

now, and although I had heard about LDN in an odd sort of way,

reading all of your letters and feeling all the good wishes made me

decide to end my almost eight years on Beta Seron and try Low Dose

Naltrexone.

I am only writing in to add my little bit of knowledge to the pot,

and there is not a lot other than to say that the insomnia only

seemed to last for a few days. I have a headache a little more

often, but Advil helps that. Not taking a shot anymore is wonderful,

and I have to think that one of the reasons I began LDN, that it

seemed to be a good idea, is that the shots were beginning to become

painful, and somewhat dreaded. My feelings of tingling and being off

balance were seeming to come back, and I just felt that the Beta

Seron had run it's course.

I don't think that I will feel that LDN is really working until

perhaps a year has gone by without a relapse. I have to say that the

Beta Seron had worked very well for me all those years. Before I

started taking it, I had the major exacerbation which caused me to

have an MRI and know that I had MS (with hindsight, like many that I

have read about, I realize that I had it a long time before I truly

caught on that something was wrong), went for six months and was hit

again, then two months, then two months, then the Beta Seron. A HUGE

expense, and a lot of trouble, but the trade off was worth it. My

Neurologist had told me years ago that it was possible to develop

antibodies that would work against me eventually and maybe that is

what has been happening.

I have RRMS and feel guilty when I read some of the posts, as I have

done remarkably well with this disease, but I still have it, it still

affects my daily life by making itself known in small ways, and I am

terribly grateful to be able to function basically as I did before.

I have high hopes for LDN for myself and a good friend with PPMS who

started taking it at my urging about a month before I did. We both

contacted Dr. Ayres, and I (from reading all the posts) get my

presription sent from Skip's. I have just ordered my second 30 days

and have high hopes for continuted success. My friend has been very

happy so far with her results. She sleeps " like a baby " , which was

not possible before, her balance is better, and she feels better.

She was doing so poorly that her Dr wanted her to take the chemo

drug, and she was afraid to. She has high hopes that she can go in

to her Neurologist in February and surprise him, if not with her

progress, at least with her stability.

Thanks to all of you for all that you contribute to this page. There

is such a wonderful mix of people. I am not very scientific and so

the posts that give me the information that I should be looking for

myself are received with gratitude. The good wishes that you have

for one another's progress is not only wonderful to read, but

comforting and gives me faith in the human spirit. I feel that I have

gotten to know some of you, just by my reading every day, and I

appreciate it, every day.

For the information of those that are considering taking LDN, I will

keep undating periodically with progress reports on myself and my

good computerless friend.