Re: spoke with dr scott today

[Guest guest]

In a message dated 10/12/2004 9:16:59 PM Central Daylight Time, yashagrawal@... writes:

Cilantro, chlorella, waste of money, IMHO

Y.

My opinion: They probably are very good in a natural sort of way to help rid the body of some toxins, but if one is in a crisis, chelation would be much more powerful and faster. Also, I did some expensive cilantro drops and powdered chlorella at one time, but the taste was just awful! I actually got sick on the chlorella and could never make myself go there again! It wasn't fun! And I'm not usually one to have a problem with bad tasting supplements if I think they may be helping. These, in my opinion, weren't helping enough.

Marcie

[Guest guest]

Hi,

My MD who is helping me with ms and LDN is also recommending a millions

expensive tests. I think the idea is to root out all possible toxins that could

be

contributing to your MS. I cannot afford all these tests right now but I am

going

to prioritize and then get them done as I can.

I am in the dumps about this disease too. I am tired of all the symptoms and

having to deal with each one and wondering which ones will go away after

LDN and which ones am I stuck with - it sucks.

Don't feel pressured to get the tests - just know about them and get them

donw as you can afford it. The tests may or may not make any difference. No

one knows for sure.

Alice

--- In low dose naltrexone , " kcapozza " <kcapozza@h...>

wrote:

>

> I had my initial consultation for ldn today. Dr. scott also

> recommended quite a few expensive blood tests to see if I have lyme

> disease. Since I had my amalgams removed 5 months ago, he also

> recommended cilantro and chlorella.

>

> He started me on 1.5mg dose. Has anyone done all these other

> tests?

>

> I am soo sick of spending money on this disease.

>

> karen

[Guest guest]

Cilantro, chlorella, waste of money, IMHO

Y.

--- In low dose naltrexone , " kcapozza " <kcapozza@h...>

wrote:

>

> I had my initial consultation for ldn today. Dr. scott also

> recommended quite a few expensive blood tests to see if I have

lyme

> disease. Since I had my amalgams removed 5 months ago, he also

> recommended cilantro and chlorella.

>

> He started me on 1.5mg dose. Has anyone done all these other

> tests?

>

> I am soo sick of spending money on this disease.

>

> karen

[Guest guest]

--- In low dose naltrexone , " kcapozza " <kcapozza@h...>

wrote:

>

> I had my initial consultation for ldn today. Dr. scott also

> recommended quite a few expensive blood tests to see if I have

lyme

> disease.

Hi, . Dr. also pushed for us to have the Lyme testing

done on my son, so I asked him to send me the info on it, which he

did. (By the way, he has done the same with several other people

who are using him to get LDN for MS.) I have the info in hand, but

haven't done anything about it yet. You are right, it is very

expensive, and it is also still in research stages, so my question

is how would I feel about the results if I had them??? Would I

trust that diagnosis anymore than I trust the one we have? I have

always felt my son could have Lyme, since the testings wasn't done

until much later in his illness, and the window of opportunity for

accurate test results was long past. When I got the packet that Dr.

sent me, I went into " full Mom research mode " again, and I

learned that 99% of the people who have used this particular form of

testing come back positive for Lyme, and the testing is based on the

theory that Lyme is contracted in many more ways than just a tic

bite. I believe this to be true, have always believed this to be

true, but my son's diagnosis has been changed so many times that I

don't know if I want to utilize research testing or not. (We've run

the gamut from inoperable brain tumors to encephalitis to MS...He

was covered with mosquito bites at the onset.) I'm really on the

fence on this one. I am hesitant to have the expensive testing done

(no insurance will cover testing in the research stages) when I

don't know how I will feel about the results when we get them. With

all the recent talk about antibiotic treatment being beneficial to

MS, we have to wonder, since antibiotics and detoxification are used

to treat Lyme. Please keep us posted on your decision. Take care!

Kim