Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 It doesn't sound as if there is much difference between the MS Society in the UK or US! I e-mailed the West Texas Chapter a couple of times about a year ago but never heard anything back! Marcie In a message dated 10/15/2004 11:13:36 AM Central Daylight Time, davidtaylor@... writes: Re UK Ms Society We live in the UK and whilst researching LDN for my wife I wrote 2 emails to the UK MS society and they did not reply to either. Have they publised what they belive - who knows. Have they publised what they have to help MS poeple - if they had an interest in helping I think they would have replied to at least one of my emails. My wife has been on LDN fo about 6 month with very good results. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 I am not taking LDN but am a regular reader of the comments made on this site. I also have emailed my neuro London Ontario Canada about LDN and the Goat Sirum as I read about a man not far from me who has taken the sirum with excellent results. I figured he must be receiving it thru the London Cinic in a trial which would be conducted in London. I have not received an answer either from the neuro about either so I figure that there may be a liability by putting it in print, not that I'm being ignored. Hopfully my questions regarding both will be answered when I visit the clinic in November and can push for an opinion face to face riginal Message ----- From: marciemjm@... low dose naltrexone Sent: Friday, October 15, 2004 12:50 PM Subject: Re: [low dose naltrexone] Re: Low-dose naltrexone (LDN) as a treatment for mult... It doesn't sound as if there is much difference between the MS Society in the UK or US! I e-mailed the West Texas Chapter a couple of times about a year ago but never heard anything back! Marcie In a message dated 10/15/2004 11:13:36 AM Central Daylight Time, davidtaylor@... writes: Re UK Ms Society We live in the UK and whilst researching LDN for my wife I wrote 2 emails to the UK MS society and they did not reply to either. Have they publised what they belive - who knows. Have they publised what they have to help MS poeple - if they had an interest in helping I think they would have replied to at least one of my emails. My wife has been on LDN fo about 6 month with very good results. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 Hello ldn-users, the m.s. society in every country is the same. Also here in the Netherlands the big pharmaceuticals rule the society. The corruption etc. is everywhere. You cannot count on the m.s. society, anywhere. A big breakthrough will be Aimspro (in my opinion) and the big pharmaceuticals will be in big trouble. By the way: i still doing fine with the ldn. It's the best you can get. The society, the neurologists and doctors never heard of it or disapprove it. It's all logical. The pharmaceutical industries rule everything (except us). They decide what kind of medicines will be researched, approved and given by the specialists. And they think just about one thing: how to make as much as possible money. How doesn't matter. Greetings, Simon >From: marciemjm@... >Reply-low dose naltrexone >low dose naltrexone >Subject: Re: [low dose naltrexone] Re: Low-dose naltrexone (LDN) as a >treatment for mult... >Date: Fri, 15 Oct 2004 12:50:36 EDT > >It doesn't sound as if there is much difference between the MS Society in >the >UK or US! I e-mailed the West Texas Chapter a couple of times about a year >ago but never heard anything back! > >Marcie > > >In a message dated 10/15/2004 11:13:36 AM Central Daylight Time, >davidtaylor@... writes: > > > > Re UK Ms Society > > > > We live in the UK and whilst researching LDN for my wife I wrote 2 >emails to > > the UK MS society and they did not reply to either. > > > > Have they publised what they belive - who knows. > > > > Have they publised what they have to help MS poeple - if they had an > > interest in helping I think they would have replied to at least one of >my > > emails. > > > > My wife has been on LDN fo about 6 month with very good results. > > > > > > _________________________________________________________________ Ook een gouden buddy worden in Messenger? Go for gold! http://mobile.msn.com/?lc=nl-nl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 maybe he doesn't know and doesn't want to be sued. ryoung wrote: I am not taking LDN but am a regular reader of the comments made on this site. I also have emailed my neuroLondon Ontario Canada about LDN and the Goat Sirum as I read about a man not far from me who has taken the sirum with excellent results. I figured he must be receiving it thru the London Cinic in a trial which would be conducted in London. I have not received an answer either from the neuro about either so I figure that there may be a liability by putting it in print, not that I'm being ignored. Hopfully my questions regarding both will be answered when I visit the clinic in November and can push for an opinion face to face riginal Message ----- From: marciemjm@... low dose naltrexone Sent: Friday, October 15, 2004 12:50 PM Subject: Re: [low dose naltrexone] Re: Low-dose naltrexone (LDN) as a treatment for mult... It doesn't sound as if there is much difference between the MS Society in the UK or US! I e-mailed the West Texas Chapter a couple of times about a year ago but never heard anything back! Marcie In a message dated 10/15/2004 11:13:36 AM Central Daylight Time, davidtaylor@... writes: Re UK Ms Society We live in the UK and whilst researching LDN for my wife I wrote 2 emails to the UK MS society and they did not reply to either. Have they publised what they belive - who knows. Have they publised what they have to help MS poeple - if they had an interest in helping I think they would have replied to at least one of my emails. My wife has been on LDN fo about 6 month with very good results. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 Simon, $$$$$$$$$$ Sad but oh so true $$$$$$$$$$$$$ -----Original Message----- From: simon cohen [mailto:simoncohen_2@...] Sent: Friday, October 15, 2004 1:30 PM low dose naltrexone Subject: Re: [low dose naltrexone] Re: Low-dose naltrexone (LDN) as a treatment for mult... Hello ldn-users, the m.s. society in every country is the same. Also here in the Netherlands the big pharmaceuticals rule the society. The corruption etc. is everywhere. You cannot count on the m.s. society, anywhere. A big breakthrough will be Aimspro (in my opinion) and the big pharmaceuticals will be in big trouble. By the way: i still doing fine with the ldn. It's the best you can get. The society, the neurologists and doctors never heard of it or disapprove it. It's all logical. The pharmaceutical industries rule everything (except us). They decide what kind of medicines will be researched, approved and given by the specialists. And they think just about one thing: how to make as much as possible money. How doesn't matter. Greetings, Simon >From: marciemjm@... >Reply-low dose naltrexone >low dose naltrexone >Subject: Re: [low dose naltrexone] Re: Low-dose naltrexone (LDN) as a >treatment for mult... >Date: Fri, 15 Oct 2004 12:50:36 EDT > >It doesn't sound as if there is much difference between the MS Society >in the UK or US! I e-mailed the West Texas Chapter a couple of times >about a year ago but never heard anything back! > >Marcie > > >In a message dated 10/15/2004 11:13:36 AM Central Daylight Time, >davidtaylor@... writes: > > > > Re UK Ms Society > > > > We live in the UK and whilst researching LDN for my wife I wrote 2 >emails to > > the UK MS society and they did not reply to either. > > > > Have they publised what they belive - who knows. > > > > Have they publised what they have to help MS poeple - if they had an > > interest in helping I think they would have replied to at least one > > of >my > > emails. > > > > My wife has been on LDN fo about 6 month with very good results. > > > > > > _________________________________________________________________ Ook een gouden buddy worden in Messenger? Go for gold! http://mobile.msn.com/?lc=nl-nl Quote Link to comment Share on other sites More sharing options...
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