Re: Thanks everyone for the Sea Adine answers.

[Guest guest]

You have a difficult case. I would lay off the sea veggies though. I would

add some selenium and magnesium plus Vit C to help your toxic nodule. Can

you apply the iodine topically to your neck? Maybe that would help as a

transdermal solution.

Thanks everyone for the Sea Adine answers.

> Ive read through alot of sites on Iodine and think I better leave this

> alone. A couple of my Drs have suspected that I have a Very rare

> disease called " Porphyria " and taking anything to detoxify would only

> put my life in immediate danger.

> Im also diagnosed with a possible rare adrenal issue the Drs cant

> figure out.....yet.

> I bought some detoxified Iodine and Iodum purum 10x but am too fearful

> at the thought of all heck breaking out with the extreme tachycardia

> and hypermetabolism that nearly killed me 2 weeks ago.

> Just spoke with my pharmacist and she thinks I have a toxic thyroid

> nodule . Im soooo desperately want to " see " what would happen....just

> too fearful after the severe experinces with the dulse.

> Desperate for help with the health problems Im having , so might

> continue to ask question as the regular Drs are so far at a

> loss......Ron

>

>

>

> ------------------------------------

>

>

>

>

>

[Guest guest]

I was untreated for hypothyroidism for 30 years after a partial thyroidectomy which caused every hypo symptom! I thought I had porphyria too! you sound like a person who needs good thyroid/adrenal treatment including the right amount of iodine. keep it in mind when you get sick of all the testing and illness.

gracia

Ive read through alot of sites on Iodine and think I better leave this alone. A couple of my Drs have suspected that I have a Very rare disease called "Porphyria" and taking anything to detoxify would only put my life in immediate danger.Im also diagnosed with a possible rare adrenal issue the Drs cant figure out.....yet.I bought some detoxified Iodine and Iodum purum 10x but am too fearful at the thought of all heck breaking out with the extreme tachycardia and hypermetabolism that nearly killed me 2 weeks ago.Just spoke with my pharmacist and she thinks I have a toxic thyroid nodule . Im soooo desperately want to "see" what would happen....just too fearful after the severe experinces with the dulse.Desperate for help with the health problems Im having , so might continue to ask question as the regular Drs are so far at a loss......Ron

No virus found in this incoming message.Checked by AVG. Version: 7.5.524 / Virus Database: 270.6.0/1602 - Release Date: 8/9/2008 1:22 PM

[Guest guest]

Can you get another opinion? Drs are so ignorant about hypothyroidism

they can't recognize it. What kind of tests have they done to make

these disgnoses?

Dorothy

> Ive read through alot of sites on Iodine and think I better leave

this

> alone. A couple of my Drs have suspected that I have a Very rare

> disease called " Porphyria " and taking anything to detoxify would only

> put my life in immediate danger.

> Im also diagnosed with a possible rare adrenal issue the Drs cant

> figure out.....yet.

[Guest guest]

All I can say is thanks....I have been going through absolute hell for 8 years and just gave up for about 4....I look in my refrig and its scary to eat...no kidding.

I have been suffering really bad with severe anxiety for a very long time that is debillitating . Then when I eat cetain foods it seems....Wham..a severe attack of something ?

I got a very metallic taste in my mouth after almost killing myself with tiny mcg ammounts of iodine....so confused its almost like being in a nightmare.

Thanks for your concern....Ron

From: Gracia <circe@...>Subject: Re: Thanks everyone for the Sea Adine answers.iodine Date: Sunday, August 10, 2008, 10:47 PM

I was untreated for hypothyroidism for 30 years after a partial thyroidectomy which caused every hypo symptom! I thought I had porphyria too! you sound like a person who needs good thyroid/adrenal treatment including the right amount of iodine. keep it in mind when you get sick of all the testing and illness.

gracia

Ive read through alot of sites on Iodine and think I better leave this alone. A couple of my Drs have suspected that I have a Very rare disease called "Porphyria" and taking anything to detoxify would only put my life in immediate danger.Im also diagnosed with a possible rare adrenal issue the Drs cant figure out.....yet.I bought some detoxified Iodine and Iodum purum 10x but am too fearful at the thought of all heck breaking out with the extreme tachycardia and hypermetabolism that nearly killed me 2 weeks ago.Just spoke with my pharmacist and she thinks I have a toxic thyroid nodule . Im soooo desperately want to "see" what would happen....just too fearful after the severe experinces with the dulse.Desperate for help with the health problems Im having , so might continue to ask question as the regular Drs are so far at a loss......Ron

No virus found in this incoming message.Checked by AVG. Version: 7.5.524 / Virus Database: 270.6.0/1602 - Release Date: 8/9/2008 1:22 PM

[Guest guest]

Thanks....I just started taking selenium yesterday...It didnt seem to agree with me after not taking it for a loooong time. I also had a crap diet and wasnt getting any iodized salt at all.

Now im seem to be boucing back and forth between hypo and hyper. I understand that minerals have alot to do with it too...but have to be very cautios at the moment.

I havent been diagnosed with a nodule , and hope I dont have one. My body doesnt seem to be doing the right thing with iodine , but potassium iodide doesnt seen to bother me.

Need the sometimes idiot Drs to run the Free t3 and Free t4 tests.....so frustrated.....Thanks

From: ladybugsandbees <ladybugsandbees@...>Subject: Re: Thanks everyone for the Sea Adine answers.iodine Date: Sunday, August 10, 2008, 10:33 PM

You have a difficult case. I would lay off the sea veggies though. I would add some selenium and magnesium plus Vit C to help your toxic nodule. Can you apply the iodine topically to your neck? Maybe that would help as a transdermal solution. Thanks everyone for the Sea Adine answers.> Ive read through alot of sites on Iodine and think I better leave this> alone. A couple of my Drs have suspected that I have a Very rare> disease called "Porphyria" and taking anything to detoxify would only> put my life in immediate

danger.> Im also diagnosed with a possible rare adrenal issue the Drs cant> figure out.....yet.> I bought some detoxified Iodine and Iodum purum 10x but am too fearful> at the thought of all heck breaking out with the extreme tachycardia> and hypermetabolism that nearly killed me 2 weeks ago.> Just spoke with my pharmacist and she thinks I have a toxic thyroid> nodule . Im soooo desperately want to "see" what would happen....just> too fearful after the severe experinces with the dulse.> Desperate for help with the health problems Im having , so might> continue to ask question as the regular Drs are so far at a> loss......Ron>>>> ------------ --------- --------- ------>>>>>

[Guest guest]

Where do you live Ron? Maybe we have a good doc for you.

Steph

Re: Thanks everyone for the Sea Adine answers.iodine Date: Sunday, August 10, 2008, 10:47 PM

I was untreated for hypothyroidism for 30 years after a partial thyroidectomy which caused every hypo symptom! I thought I had porphyria too! you sound like a person who needs good thyroid/adrenal treatment including the right amount of iodine. keep it in mind when you get sick of all the testing and illness.

gracia

Ive read through alot of sites on Iodine and think I better leave this alone. A couple of my Drs have suspected that I have a Very rare disease called "Porphyria" and taking anything to detoxify would only put my life in immediate danger.Im also diagnosed with a possible rare adrenal issue the Drs cant figure out.....yet.I bought some detoxified Iodine and Iodum purum 10x but am too fearful at the thought of all heck breaking out with the extreme tachycardia and hypermetabolism that nearly killed me 2 weeks ago.Just spoke with my pharmacist and she thinks I have a toxic thyroid nodule . Im soooo desperately want to "see" what would happen....just too fearful after the severe experinces with the dulse.Desperate for help with the health problems Im having , so might continue to ask question as the regular Drs are so far at a loss......Ron

No virus found in this incoming message.Checked by AVG. Version: 7.5.524 / Virus Database: 270.6.0/1602 - Release Date: 8/9/2008 1:22 PM

[Guest guest]

When presenting in the ER ...I get a tsh and maybe a t4.......thats it and lots of tranquilizers that DONT help sometimes at all.

Minerals have alot to do with it too...but I found out that I must be very very cautios.

I seem to go between hypo and hyper easily....based on symptoms only.

Something wierd is that I can take potassium iodide....but dont be able to even touch the tinyiest ammount of iodine ? were talking miniscule ammounts...not take , just touch...screaming metabolism that is like a severe panick attack that almost sends me into atrial fib......And than this metallic taste in my mouth ??

Thanks for your concern.........Ron

From: dorothyroeder <dorothyroeder@...>Subject: Re: Thanks everyone for the Sea Adine answers.iodine Date: Sunday, August 10, 2008, 11:02 PM

Can you get another opinion? Drs are so ignorant about hypothyroidismthey can't recognize it. What kind of tests have they done to makethese disgnoses? Dorothy> Ive read through alot of sites on Iodine and think I better leavethis > alone. A couple of my Drs have suspected that I have a Very rare > disease called "Porphyria" and taking anything to detoxify would only > put my life in immediate danger.> Im also diagnosed with a possible rare adrenal issue the Drs cant > figure out.....yet.

[Guest guest]

Stay away from iodized salt. The brine used to clean it is toxic. Full of chlorides that inhibit thyroid hormone production. Maybe a methylated form of the selenium would work better. How about B12 do you take that? Methylcobalamin might be easier since it is already in the reduced form.

Steph

Thanks everyone for the Sea Adine answers.> Ive read through alot of sites on Iodine and think I better leave this> alone. A couple of my Drs have suspected that I have a Very rare> disease called "Porphyria" and taking anything to detoxify would only> put my life in immediate danger.> Im also diagnosed with a possible rare adrenal issue the Drs cant> figure out.....yet.> I bought some detoxified Iodine and Iodum purum 10x but am too fearful> at the thought of all heck breaking out with the extreme tachycardia> and hypermetabolism that nearly killed me 2 weeks ago.> Just spoke with my pharmacist and she thinks I have a toxic thyroid> nodule . Im soooo desperately want to "see" what would happen....just> too fearful after the severe experinces with the dulse.> Desperate for help with the health problems Im having , so might> continue to ask question as the regular Drs are so far at a> loss......Ron>>>> ------------ --------- --------- ------>>>>>

[Guest guest]

Ron if you can get to a good doctor here is what you need to check:

TSH

Free T3

Free T4

TPO Ab

Tg Ab

Ferritin / Iron

B12

These need to be done at a bare minimum. Also if you can test for the MTHFR gene mutation (You can search the history of this group to find out more info) this may shed light on the situation as this mutation can cause some really bad reactions in the body - tied to autism and heart conditions.

I suspect your hyper hypo swings are due to an autoimmune thyroid disease. Probably hashimotos which would be identified by the TPO Ab and Tg Ab testing. Some people with hashi's will have a reaction like you describe when taking iodine.

Re: Thanks everyone for the Sea Adine answers.iodine Date: Sunday, August 10, 2008, 11:02 PM

Can you get another opinion? Drs are so ignorant about hypothyroidismthey can't recognize it. What kind of tests have they done to makethese disgnoses? Dorothy> Ive read through alot of sites on Iodine and think I better leavethis > alone. A couple of my Drs have suspected that I have a Very rare > disease called "Porphyria" and taking anything to detoxify would only > put my life in immediate danger.> Im also diagnosed with a possible rare adrenal issue the Drs cant > figure out.....yet.

[Guest guest]

i read somewhere that metallic taste in mouth is sign of bromine detox.

bw

nil

Re: Re: Thanks everyone for the Sea Adine answers.

When presenting in the ER ...I get a tsh and maybe a t4.......thats it and lots of tranquilizers that DONT help sometimes at all.

Minerals have alot to do with it too...but I found out that I must be very very cautios.

I seem to go between hypo and hyper easily....based on symptoms only.

Something wierd is that I can take potassium iodide....but dont be able to even touch the tinyiest ammount of iodine ? were talking miniscule ammounts...not take , just touch...screaming metabolism that is like a severe panick attack that almost sends me into atrial fib......And than this metallic taste in my mouth ??

[Guest guest]

It is like my teeth are metallic and vcery sensitive....reminds me of years ago when I had a amalgam filling....I was also using small ammounts of iodized salt as my adrenals are shot I think.......? Im wondering if the potassium iodide is blocking the thyroid so its forcing the adrenals to do double duty with lots of ecess adrenaline cause I cant seem to produce sufficent cortisol...? One of my theorys...because I suddenly have very high blood sugar that also drops very very low.....no adrenal response at all.....just crashes.

From: Nil <yildiz22@...>Subject: Re: Re: Thanks everyone for the Sea Adine answers.iodine Date: Sunday, August 10, 2008, 11:41 PM

i read somewhere that metallic taste in mouth is sign of bromine detox.

bw

nil

Re: Re: Thanks everyone for the Sea Adine answers.

When presenting in the ER ...I get a tsh and maybe a t4.......thats it and lots of tranquilizers that DONT help sometimes at all.

Minerals have alot to do with it too...but I found out that I must be very very cautios.

I seem to go between hypo and hyper easily....based on symptoms only.

Something wierd is that I can take potassium iodide....but dont be able to even touch the tinyiest ammount of iodine ? were talking miniscule ammounts...not take , just touch...screaming metabolism that is like a severe panick attack that almost sends me into atrial fib......And than this metallic taste in my mouth ??

[Guest guest]

Be sure your doc checks you for celiac. They often don't,

but porphyria is a common side-effect of that disease (as

are a lot of other weird symptoms). Google " porphyria celiac " .

The celiac blood test isn't all that accurate, but it's cheap

and easy and catches the more serious cases.

On Sun, Aug 10, 2008 at 2:53 PM, captivebredchuckwallas

<captivebredchuckwallas@...> wrote:

> Ive read through alot of sites on Iodine and think I better leave this

> alone. A couple of my Drs have suspected that I have a Very rare

> disease called " Porphyria " and taking anything to detoxify would only

> put my life in immediate danger.

> Im also diagnosed with a possible rare adrenal issue the Drs cant

> figure out.....yet.

> I bought some detoxified Iodine and Iodum purum 10x but am too fearful

> at the thought of all heck breaking out with the extreme tachycardia

> and hypermetabolism that nearly killed me 2 weeks ago.

> Just spoke with my pharmacist and she thinks I have a toxic thyroid

> nodule . Im soooo desperately want to " see " what would happen....just

> too fearful after the severe experinces with the dulse.

> Desperate for help with the health problems Im having , so might

> continue to ask question as the regular Drs are so far at a

> loss......Ron

>

>

>

> ------------------------------------

>

>

>

>

>

[Guest guest]

Thank you so much.

I actually have asked for most of theese but dont get them. I had a severe attack on my body of either porphyria or something immune about 2 months ago and the ER drs wouldnt do anything other than "tell" me that I need a good endo workup....I pleaded with them to put me in the hospital...lol No insurance...no treatment. I have insurance now but have to wait.

I had 2 nuclear scans looking for a pheochromocytoma 6 years ago...now wondering what all that I131 radiation really did to me ?

Im keeping this email...thanks soooo much

From: dorothyroeder <dorothyroeder@ gmail.com>Subject: Re: Thanks everyone for the Sea Adine answers.iodinegroups (DOT) comDate: Sunday, August 10, 2008, 11:02 PM

Can you get another opinion? Drs are so ignorant about hypothyroidismthey can't recognize it. What kind of tests have they done to makethese disgnoses? Dorothy> Ive read through alot of sites on Iodine and think I better leavethis > alone. A couple of my Drs have suspected that I have a Very rare > disease called "Porphyria" and taking anything to detoxify would only > put my life in immediate danger.> Im also diagnosed with a possible rare adrenal issue the Drs cant > figure out.....yet.

[Guest guest]

If you have BP issues then you need unrefined salt in your diet. Make sure you drink enough water too. The added sodium will increase the potassium in your cells and help with the BP issues. Also the salt will help the adrenals and the sodium iodine symporters to help your thyroid as well since this is how the iodide is pulled into the cells.

Re: Re: Thanks everyone for the Sea Adine answers.

When presenting in the ER ...I get a tsh and maybe a t4.......thats it and lots of tranquilizers that DONT help sometimes at all.

Minerals have alot to do with it too...but I found out that I must be very very cautios.

I seem to go between hypo and hyper easily....based on symptoms only.

Something wierd is that I can take potassium iodide....but dont be able to even touch the tinyiest ammount of iodine ? were talking miniscule ammounts...not take , just touch...screaming metabolism that is like a severe panick attack that almost sends me into atrial fib......And than this metallic taste in my mouth ??

[Guest guest]

They have checked that repeatedly.....seems I NEVER test positive....lol--- On Mon, 8/11/08,

[Guest guest]

You can order them yourself from www.healthcheckusa.com if you are not in NY or CA.

Steph

Re: Thanks everyone for the Sea Adine answers.iodinegroups (DOT) comDate: Sunday, August 10, 2008, 11:02 PM

Can you get another opinion? Drs are so ignorant about hypothyroidismthey can't recognize it. What kind of tests have they done to makethese disgnoses? Dorothy> Ive read through alot of sites on Iodine and think I better leavethis > alone. A couple of my Drs have suspected that I have a Very rare > disease called "Porphyria" and taking anything to detoxify would only > put my life in immediate danger.> Im also diagnosed with a possible rare adrenal issue the Drs cant > figure out.....yet.

[Guest guest]

Im in Tucson Arizona.

From: Gracia <circefairpoint (DOT) net>Subject: Re: Thanks everyone for the Sea Adine answers.iodinegroups (DOT) comDate: Sunday, August 10, 2008, 10:47 PM

I was untreated for hypothyroidism for 30 years after a partial thyroidectomy which caused every hypo symptom! I thought I had porphyria too! you sound like a person who needs good thyroid/adrenal treatment including the right amount of iodine. keep it in mind when you get sick of all the testing and illness.

gracia

Ive read through alot of sites on Iodine and think I better leave this alone. A couple of my Drs have suspected that I have a Very rare disease called "Porphyria" and taking anything to detoxify would only put my life in immediate danger.Im also diagnosed with a possible rare adrenal issue the Drs cant figure out.....yet.I bought some detoxified Iodine and Iodum purum 10x but am too fearful at the thought of all heck breaking out with the extreme tachycardia and hypermetabolism that nearly killed me 2 weeks ago.Just spoke with my pharmacist and she thinks I have a toxic thyroid nodule . Im soooo desperately want to "see" what would happen....just too fearful after the severe experinces with the dulse.Desperate for help with the health problems Im having , so might continue to ask question as the regular Drs are so far at a loss......Ron

No virus found in this incoming message.Checked by AVG. Version: 7.5.524 / Virus Database: 270.6.0/1602 - Release Date: 8/9/2008 1:22 PM

[Guest guest]

You can order the tests yourself on the Internet. Which is what I did ...

I got tired of trying to convince the docs. Also, if you are diagnosed with

celiac it kills your insurance. Insurance companies really don't like

it, because

it's associated with short, sick, life spans unless you stick to a diet (and the

insurance companies don't think anyone sticks to a diet). Also the various

celiac groups offer " free screening tests " at fairs and other events.

You can also decide to stop eating any gluten and see what happens.

For some people this works ... there is an immediate effect. But it takes

some people months or years to heal, so the effect can take a long time

to notice, which is where testing is better.

On Sun, Aug 10, 2008 at 5:04 PM, Ron Oaks

<captivebredchuckwallas@...> wrote:

> Thank you so much.

> I actually have asked for most of theese but dont get them. I had a severe

> attack on my body of either porphyria or something immune about 2 months ago

> and the ER drs wouldnt do anything other than " tell " me that I need a good

> endo workup....I pleaded with them to put me in the hospital...lol No

> insurance...no treatment. I have insurance now but have to wait.

> I had 2 nuclear scans looking for a pheochromocytoma 6 years ago...now

> wondering what all that I131 radiation really did to me ?

> Im keeping this email...thanks soooo much

>

>

>

> From: dorothyroeder <dorothyroeder@ gmail.com>

> Subject: Re: Thanks everyone for the Sea Adine answers.

> iodinegroups (DOT) com

> Date: Sunday, August 10, 2008, 11:02 PM

>

> Can you get another opinion? Drs are so ignorant about hypothyroidism

> they can't recognize it. What kind of tests have they done to make

> these disgnoses?

>

> Dorothy

>

>> Ive read through alot of sites on Iodine and think I better leave

> this

>> alone. A couple of my Drs have suspected that I have a Very rare

>> disease called " Porphyria " and taking anything to detoxify would only

>> put my life in immediate danger.

>> Im also diagnosed with a possible rare adrenal issue the Drs cant

>> figure out.....yet.

>

>

>

>

--

[Guest guest]

I don't know AZ but are any of these close? They are iodine literate practitioners.

Carpenter, NMD2165 E Warner RdTempe, Arizona 85284480.831.5370 Myers, ND, Upchurch, ND928.445.1999Prescott, AZ928.445.1999 Zieve, MD - Prescott, AZwww.pinetreeclinic.com928.778.3500

Re: Thanks everyone for the Sea Adine answers.iodinegroups (DOT) comDate: Sunday, August 10, 2008, 10:47 PM

I was untreated for hypothyroidism for 30 years after a partial thyroidectomy which caused every hypo symptom! I thought I had porphyria too! you sound like a person who needs good thyroid/adrenal treatment including the right amount of iodine. keep it in mind when you get sick of all the testing and illness.

gracia

Ive read through alot of sites on Iodine and think I better leave this alone. A couple of my Drs have suspected that I have a Very rare disease called "Porphyria" and taking anything to detoxify would only put my life in immediate danger.Im also diagnosed with a possible rare adrenal issue the Drs cant figure out.....yet.I bought some detoxified Iodine and Iodum purum 10x but am too fearful at the thought of all heck breaking out with the extreme tachycardia and hypermetabolism that nearly killed me 2 weeks ago.Just spoke with my pharmacist and she thinks I have a toxic thyroid nodule . Im soooo desperately want to "see" what would happen....just too fearful after the severe experinces with the dulse.Desperate for help with the health problems Im having , so might continue to ask question as the regular Drs are so far at a loss......Ron

No virus found in this incoming message.Checked by AVG. Version: 7.5.524 / Virus Database: 270.6.0/1602 - Release Date: 8/9/2008 1:22 PM

[Guest guest]

Ah, sorry, I missed that reply!

On Sun, Aug 10, 2008 at 5:05 PM, Ron Oaks

<captivebredchuckwallas@...> wrote:

> They have checked that repeatedly.....seems I NEVER test positive....lol

>

> --- On Mon, 8/11/08,

[Guest guest]

what test did you get? I am having big gluten issues lately but my

blood tests are normal so I keep wondering if I should do something else.

Steph

----- Original Message -----

From: "

[Guest guest]

Thank you...bunches !

From: Gracia <circefairpoint (DOT) net>Subject: Re: Thanks everyone for the Sea Adine answers.iodinegroups (DOT) comDate: Sunday, August 10, 2008, 10:47 PM

I was untreated for hypothyroidism for 30 years after a partial thyroidectomy which caused every hypo symptom! I thought I had porphyria too! you sound like a person who needs good thyroid/adrenal treatment including the right amount of iodine. keep it in mind when you get sick of all the testing and illness.

gracia

Ive read through alot of sites on Iodine and think I better leave this alone. A couple of my Drs have suspected that I have a Very rare disease called "Porphyria" and taking anything to detoxify would only put my life in immediate danger.Im also diagnosed with a possible rare adrenal issue the Drs cant figure out.....yet.I bought some detoxified Iodine and Iodum purum 10x but am too fearful at the thought of all heck breaking out with the extreme tachycardia and hypermetabolism that nearly killed me 2 weeks ago.Just spoke with my pharmacist and she thinks I have a toxic thyroid nodule . Im soooo desperately want to "see" what would happen....just too fearful after the severe experinces with the dulse.Desperate for help with the health problems Im having , so might continue to ask question as the regular Drs are so far at a loss......Ron

No virus found in this incoming message.Checked by AVG. Version: 7.5.524 / Virus Database: 270.6.0/1602 - Release Date: 8/9/2008 1:22 PM

[Guest guest]

You are welcome. That's why I am here. BTW those are recommended practitioners by people who have used them so they have already been "tested".

Steph

Re: Thanks everyone for the Sea Adine answers.iodinegroups (DOT) comDate: Sunday, August 10, 2008, 10:47 PM

I was untreated for hypothyroidism for 30 years after a partial thyroidectomy which caused every hypo symptom! I thought I had porphyria too! you sound like a person who needs good thyroid/adrenal treatment including the right amount of iodine. keep it in mind when you get sick of all the testing and illness.

gracia

Ive read through alot of sites on Iodine and think I better leave this alone. A couple of my Drs have suspected that I have a Very rare disease called "Porphyria" and taking anything to detoxify would only put my life in immediate danger.Im also diagnosed with a possible rare adrenal issue the Drs cant figure out.....yet.I bought some detoxified Iodine and Iodum purum 10x but am too fearful at the thought of all heck breaking out with the extreme tachycardia and hypermetabolism that nearly killed me 2 weeks ago.Just spoke with my pharmacist and she thinks I have a toxic thyroid nodule . Im soooo desperately want to "see" what would happen....just too fearful after the severe experinces with the dulse.Desperate for help with the health problems Im having , so might continue to ask question as the regular Drs are so far at a loss......Ron

No virus found in this incoming message.Checked by AVG. Version: 7.5.524 / Virus Database: 270.6.0/1602 - Release Date: 8/9/2008 1:22 PM

[Guest guest]

Dr. Fine's stool test (www.finerhealth.com) is probably

the most accurate. The problem with the IgA test is that

a lot of people who react to gluten simply don't produce

huge quantities of the antibodies they test for.

Dr. Fasano recently talked about another issue though: the

only real test they have now is for celiac. But the mechanism

of celiac is " autoimmune " ... the body is attacking itself, and

specifically in the gut. So the tests for celiac look for an autoimmune

attack to the gut.

But ... a far larger group of people react to gluten without

this particular reaction. Instead of reacting with an autoimmune

attack to the gut, they react with an attack to the pancreas or thyroid,

or with brain issues. There aren't any standard tests for this: they

can test if you have anti-thyroid antibodies, but only a few studies

have studied whether these can be linked to gluten (and yes,

they can be).

Dr. Fine's test tests for levels of IgA in the gut (which is where

it is produced). It's the only test of that kind, and it's patented

to him. From the years I've been following it though, it seems

accurate, and it's surprisingly easy to take (albeit *weird* ...

" stool samples " aren't exactly a household word ...).

But the state of research about gluten is very much in flux.

They are finding out more and more stuff about it, and

all of it is pretty depressing.

http://findarticles.com/p/articles/mi_m0FKA/is_5_67/ai_n13665611

This one specifically talks about " gluten sensitivity " vs " celiac " :

http://www.diet.com/dietblogs/read_blog.php?title=Celiac+Disease+vs.+Gluten+Sens\

itivity & blid=11838

On Sun, Aug 10, 2008 at 5:37 PM, ladybugsandbees

<ladybugsandbees@...> wrote:

> what test did you get? I am having big gluten issues lately but my

> blood tests are normal so I keep wondering if I should do something else.

>

> Steph

>

>

> ----- Original Message -----

> From: "

[Guest guest]

I always wondered about the possibility of having a selenium defficency causing a person to NEVER test positive for an antibodies , even though they have severe symptoms ?

almost like HIV , or immune defficency syndrome ?

Then when they try to enhance their wrecked health with nutritional supplements the bodies own immune system revs up and attacks its self ?

Would any of this make sense ?--- On Mon, 8/11/08,