Re: Rebif vs. LDN / Just heard about LDN / Taking Rebif & want to try LDN

[Guest guest]

Xtera79,

Just my opinion but scrap the Rebif. It is not compatible with LDN. It

also appears that it causes much more trouble than our ms.

Best wishes,

Tom

----- Original Message -----

From: " xtara79 " <xtara79@...>

<low dose naltrexone >

Sent: Wednesday, October 13, 2004 12:42 PM

Subject: [low dose naltrexone] Rebif vs. LDN / Just heard about LDN / Taking

Rebif & want to try LDN

>

>

> HI -

> I was diagnosed with MS in Dec. '03 after a very severe first

> episode of MS. I won't bore you with all the details, there's too

> many to list. I started Rebif (one of the interferons)in Jan. '04 and

> I am having a hard time taking it. The injections are extremely

> painful and seem to be becoming more painful (it's not the needle,

> it's the medicine entering the body that is painful). Plus, I have

> injection site reactions that don't have time to go away - swelling,

> redness, bruising, tender at the site. Excuse my bluntness, but I

> feel like " crap " on it. It's gotten better considering how awful I

> felt the first few months, but I still have flu-like symptoms &

> severe headaches, especially the day after the injections & I take

> the injections 3x week, so basically I feel bad almost all the time

> on top of the MS symptoms I still have that I never fully recovered

> from after the episode. Also, feel increasingly depressed since

> starting Rebif. I just heard about LDN today & I go see a MS

> specialist in 2 wks. & would like to try it, instead of Rebif. Is

> there anyone else who was taking a " ABCR " drug & is now taking LDN?

> I would love to hear how you are doing, especially in comparison with

> one of the " ABCR " drugs, especially Rebif. THANK YOU -

>

>

>

>

>

>

>

>

[Guest guest]

Xtara79,

The 2 months I was taking Rebif were the worst 2 months of my 23 years with

MS! I had the same symptoms as you. The only thing I can say is, get off of

Rebif and on LDN ASAP. Good luck, your life will be changed with LDN.

-----Original Message-----

From: xtara79 [mailto:xtara79@...]

Sent: Wednesday, October 13, 2004 12:43 PM

low dose naltrexone

Subject: [low dose naltrexone] Rebif vs. LDN / Just heard about LDN / Taking

Rebif & want to try LDN

HI -

I was diagnosed with MS in Dec. '03 after a very severe first episode

of MS. I won't bore you with all the details, there's too many to list. I

started Rebif (one of the interferons)in Jan. '04 and I am having a hard

time taking it. The injections are extremely painful and seem to be becoming

more painful (it's not the needle, it's the medicine entering the body that

is painful). Plus, I have injection site reactions that don't have time to

go away - swelling, redness, bruising, tender at the site. Excuse my

bluntness, but I feel like " crap " on it. It's gotten better considering how

awful I felt the first few months, but I still have flu-like symptoms &

severe headaches, especially the day after the injections & I take the

injections 3x week, so basically I feel bad almost all the time on top of

the MS symptoms I still have that I never fully recovered from after the

episode. Also, feel increasingly depressed since starting Rebif. I just

heard about LDN today & I go see a MS specialist in 2 wks. & would like to

try it, instead of Rebif. Is there anyone else who was taking a " ABCR " drug

& is now taking LDN?

I would love to hear how you are doing, especially in comparison with one of

the " ABCR " drugs, especially Rebif. THANK YOU -

[Guest guest]

--- In low dose naltrexone , " xtara79 " <xtara79@y...>

wrote:

>

> HI -

> I was diagnosed with MS in Dec. '03 after a very severe first

> episode of MS. I won't bore you with all the details, there's too

> many to list. I started Rebif (one of the interferons)in Jan. '04

and

> I am having a hard time taking it.

My 16 year old son used Avonex, then Rebif, and is now on LDN. He

had the exact same problems with the Rebif injections that you are

having. I truly believe that if he had continued to use it, his

depression would have become more than he could bear. I was truly

afraid for him if he continued it. He started LDN in June, and I am

happy to say that he is doing fantastic on it. His energy level has

returned to normal, he has no heat intolerance, his memory and

cognitive skills are back to the way they were prior to his diagnosis

3 years ago - he pulled off honor roll status with his grades this 9

weeks for the first time since his diagnosis. He's living the life

of a teenage boy, finally. Today, he spent the day playing football

in the rain. Tonight, he's out with the boys shooting pool and

cruising. He wasn't able to do this a year ago - he just wasn't up

to it physically or mentally.

Do what you have to do, and don't stop until you get it! It's your

health and your life. Good luck in your decision!

Kim