Guest guest Posted September 22, 2004 Report Share Posted September 22, 2004 Hello everyone, I have been offline for an entire month moving from Texas to Seattle. My husband and I had a great cross-country drive, and I got to see Yellowstone – something I thought I'd never be able to do – until LDN came along! Here's some snapshots: http://www.ldners.org/fotog/Yellowstone/ Now that I'm back in Seattle, I will be attending MS support groups and association meetings to spread the word on LDN. Saw my neurologist at University of Texas Southwestern MS Center before I left: - The LDN clinical trial is still progressing. - I will post a link to it as soon as they go public. - He is really curious about my rapid recovery on LDN over the last 8 months. - Says he's seen nothing this positive in other secondary progressive cases. - We scheduled an MRI for next month, to see if there is evidence of remyelination. Once this trial starts, it will make it much easier to get LDN prescriptions, since doctors will have more comfort with it, knowing a major academic MS research center is taking it seriously. The trial will be in progress next spring, so it should coincide nicely with the LDN Conference. But we should still keep up all our efforts until LDN is a standard of care for MS. Take the online LDN Survey #2 - http://www.ldners.org/surveys.htm (98 responses so far measuring change in MS disability, will post results at 200 responses) Take the LDN Research Trust survey on MS to help start research in the UK - http://www.larrygc.com/ldnsurvey/ Mail to: The LDN Research Trust PO Box 1083 Buxton, Norwich NR10 5WY United Kingdom Take care! SammyJo Quote Link to comment Share on other sites More sharing options...
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