Re: New LDN user with question

[Guest guest]

In a message dated 10/11/2004 4:02:28 PM Central Daylight Time, mycrazygirl23@... writes:

I have multiple sclerosis and just started on 3mg of LDN two weeks ago today. A few days prior to me starting, I got sick. I also had one or two new minor symptoms, maybe due to the fact that I was sick and off of Betaseron for a few weeks.

Did you know that you can nourish the thyroid naturally? Most good lines of vitamins/supplements have something to help with this. It won't happen overnight, but stick with it, and your thyroid can work efficiently most likely. Allergies will/can cause the problems you have described. Do you, by chance, know what you may be allergic to?

I have read about old symptoms reoccurring while starting LDN. Maybe this is a positive thing. As far as progression goes, it does happen in some (less than more). Do you think you were in an exacerbation when you started? Have you considered trying a different filler?

Dam this disease! So many questions, not enough answers! Hang in there!

Marcie (I am PPMS and do feel like LDN has stopped my progression. I was very progressed to begin with)

[Guest guest]

--- In low dose naltrexone , " mycrazygirl23 " <mycrazygirl23@y...>

wrote:

>

> I have multiple sclerosis and just started on 3mg of LDN two weeks

> ago today. A few days prior

> to me starting, I got sick. I also had one or two new minor

> symptoms, maybe due to the fact that I was sick and off of Betaseron

> for a few weeks.

>

> But since starting, I've noticed pressure in my ears on day 5 and

> trouble swallowing (throat pressure) that is still happening today.

> Not to mention my voice going in and out. I was told by my reg. dr

> that I have thyroiditis, and by an ENT dr that I have allergies

> causing swelling & fluid retention in my ears & throat. I think its

> just the MS,

> personally. Also, I have been having a different old symptom return

> almost every day.

>

> My question is, isnt the LDN supposed to stop the onset of new

> symptoms? Am I having trouble because I'm still sick? Or should I

> change my dosage? Or should I just give the LDN more time?

>

> I dont expect anyone on here to have exact answers, but even some

> suggestions would be great.

>

> Thank you!

===============

Try upping your LDN to 4.5mg just in case you are possibly in an exacerbation

and if you can tolerate 4.5mg then hold there. Have the allergy and thyroiditis

treated and if that doesn't help then look at the problem possibly being MS

related.

Bren

[Guest guest]

Bren, If symptoms have increased or new ones appeared with a very low

dosage of LDN, who says a higher dosage would be better? I've been on

the absolute minimum for less than 2 months. My symptoms are turning

more toward what I had at MS diagnosis 10 years ago. I know I was

already in an exacerbated conditon before starting LDN. I welcome

your input. Thanks,

> >

> > I have multiple sclerosis and just started on 3mg of LDN two

weeks

> > ago today. A few days prior

> > to me starting, I got sick. I also had one or two new minor

> > symptoms, maybe due to the fact that I was sick and off of

Betaseron

> > for a few weeks.

> >

> > But since starting, I've noticed pressure in my ears on day 5 and

> > trouble swallowing (throat pressure) that is still happening

today.

> > Not to mention my voice going in and out. I was told by my reg.

dr

> > that I have thyroiditis, and by an ENT dr that I have allergies

> > causing swelling & fluid retention in my ears & throat. I think

its

> > just the MS,

> > personally. Also, I have been having a different old symptom

return

> > almost every day.

> >

> > My question is, isnt the LDN supposed to stop the onset of new

> > symptoms? Am I having trouble because I'm still sick? Or should I

> > change my dosage? Or should I just give the LDN more time?

> >

> > I dont expect anyone on here to have exact answers, but even some

> > suggestions would be great.

> >

> > Thank you!

> ===============

>

> Try upping your LDN to 4.5mg just in case you are possibly in an

exacerbation and if you can tolerate 4.5mg then hold there. Have the

allergy and thyroiditis treated and if that doesn't help then look at

the problem possibly being MS related.

>

> Bren

[Guest guest]

,

Dr. Bihari usually recommends 4.5mg if one is starting LDN during an

exacerbation. The extra punch 4.5mg gives I guess.

Bren

[Guest guest]

Mycrazy.

My question is, isnt the LDN supposed to stop the onset of new

symptoms? Yes.

Am I having trouble because I'm still sick? It is hard to say but

probably.

Or should I

change my dosage? What is the dose?

Or should I just give the LDN more time? Yes.

Regards,

Tom

----- Original Message -----

From: " mycrazygirl23 " <mycrazygirl23@...>

<low dose naltrexone >

Sent: Monday, October 11, 2004 5:00 PM

Subject: [low dose naltrexone] New LDN user with question

>

>

> I have multiple sclerosis and just started on 3mg of LDN two weeks

> ago today. A few days prior

> to me starting, I got sick. I also had one or two new minor

> symptoms, maybe due to the fact that I was sick and off of Betaseron

> for a few weeks.

>

> But since starting, I've noticed pressure in my ears on day 5 and

> trouble swallowing (throat pressure) that is still happening today.

> Not to mention my voice going in and out. I was told by my reg. dr

> that I have thyroiditis, and by an ENT dr that I have allergies

> causing swelling & fluid retention in my ears & throat. I think its

> just the MS,

> personally. Also, I have been having a different old symptom return

> almost every day.

>

> My question is, isnt the LDN supposed to stop the onset of new

> symptoms? Am I having trouble because I'm still sick? Or should I

> change my dosage? Or should I just give the LDN more time?

>

> I dont expect anyone on here to have exact answers, but even some

> suggestions would be great.

>

> Thank you!

>

>

>

>

>

>

>

>