Guest guest Posted October 3, 2004 Report Share Posted October 3, 2004 I would like to hear from anyone who has used LDN to fight the effects of SLE(systemic lupus). Regards, Alain Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2008 Report Share Posted February 29, 2008 Cami, besides a lot of other things I have lupus, also IBS. I stopped taking plaquenil long ago, since I have been on LDN neither of these 'diseases' have bothered me...... Best Celia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2008 Report Share Posted February 29, 2008 Cami, Would you be so kind as to send me your private e-mail so that I can send you some information in regards to LDN and to Lupus. Thanks, Aletha Aletha@... [low dose naltrexone] Re: LDN and Systemic Lupus i think the LDN will do you good.for the hormones you can find a doctor that works with bio-idendical-hormones.they can give you estrogen and progesterone.the progesterone is also very importantant for the auto-immune diseases.you can read about it in the books of dr.lee.>> Hi,> > I have always elected to manage things as naturally as> possible. I have been able to keep my IBD mostly> under control through avoidance of IGE/IGG allergens> and a ton of supplements focusing mostly on> anti-inflammatories. It's been hard work and oddly> the list of foods I have to avoid has been increasing.> If I ate whatever I wanted, I would be constantly> bloated, in pain, malnourished, inflamed etc (I know> because I've been there). I've also struggled with> interstitial cystitis and now am diagnosed with lupus> with a small positive ANA and enough symptoms and> issues that other problems have been ruled out. I've> done a hormone panel and my estrogen is extremely low> and the progesterone cycling is extremely off. I've> been told that I'm probably not ovulating (they were> really surprised I was even having a period) and if I> did get pregnant I would not be able to carry the baby> to term. This is OK for right now as I am 27 and not> married, but am wondering how I'm going to "fix" all> of this. Other problems include neurological> symptoms, recurring low white blood cell count,> recurring low grade fevers, and a bunch of other> symptoms. Adrenalin issues are probably also present> because of the hormone issues and extreme fatigue. > > Is LDN something that can help lupus? Are there> certain manifestations that it helps more? If nothing> else, can someone point me to an online support group> that focuses on managing lupus as naturally as> possible? I'm really struggling to come to terms with> everything and feel a bit lost. I have a very> supportive family and my grandmother called me up very> excited to have found an article on LDN in Dr.> Whitaker's newsletter. I promised I would research> and follow-up. I've gone to the official website and> the research on crohn's is very promising and I have> passed trials and links to my ND hoping she'll find> this positive and be able to help me present an> argument to my doctor or find someone willing to> prescribe.> > I'm not in a bad flare but they're starting to happen> much more frequently (latest was 3 weeks break) and> it's getting hard to function normally and keep> working full time. Right now it's just fatigue and> fevers, but that's usually just the start. I would> really appreciate any information people can refer me> to.> > Thank you very much,> > Cami in Washington State> > > ________________________________________________________________________> Be a better friend, newshound, and > know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ> Quote Link to comment Share on other sites More sharing options...
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