Re: A simple way of curing ME /CFS/yuppie flu

[Guest guest]

I used to subscribe to s website (he had CFS as a teenager

for 7 years and after his recovery wrote a book called " Why M.E. " ?

He now runs a clinic in London for CFS patients and they use a

combination of the latest medical research, diet and supplements and

therapies designed to help with the emotional effects of having CFS.

I've never visited them, but I believe they do very good work, and

more importantly, their entire focus is on RECOVERY rather than

learning to live with your illness.

Anyway, I know they used to use LP and later dropped it because they

found it ineffective. I know very little about LP, but as far as I'm

aware, when you notice yourself focussing on a symptom, you

immediately stop yourself. Its a mental/emotional technique as

opposed to something that addresses any underlying physical complaints.

A few years ago I tried Reverse Therapy and although the 2 are

different, there are some similarities. With RT, you assume that

every symptom is a " message " from your body and you have to figure out

what that message is. If you try that approach for long enough, its

not long before you drive yourself nuts trying to figure out all these

blasted " messages " . I had a friend who also has CFS and tried it, and

every time her nose itched she would spend an age trying to work out

the damn " message " . Oh how we laughed !!!

While I acknowledge that CFS can have many different causes, and some

of those could be emotional, I'm afraid I have very little faith in

these things other than their ability to help you emotionally COPE

with the worst of your symptoms. If thats what you need, then they

may help, but I would suggest that methods such as EFT or NLP would

probably be much more effective.

And EFT and NLP will likely be far cheaper because you can learn some

basic EFT and NLP in one session, whereas RT requires many visits to

an expensive therapist, and I would imagine the Lightening Process

also does.

I have been on this CFS roundabout for 5 years and I've tried many

so-called cures, and with each passing cure, so increases my sceptism!

[Guest guest]

I was diagnosed with ME/CFS, if it is some kind of coping technique it

would not have helped me. My physiolical state needs correcting.

Hormonal imbalances contributed to by my menopausal state and my long

treatement on the T4 only meds which left me with hypertension, asthma

and failing kidneys as well as all the painful symptoms of FM and CFS.

I think that some people are maybe diagnosed with CFS when they don't

have it as it is a diagnosis of exclusion. Depends therefore on how

good your doc is at diagnosing before he reaches the conclusion that

nothing else can be responsible.

Nice for anyone who can get well with LP, good luck to them, it

wouldn't have worked for me. My adrenalin surges are mostly due to

blood sugar imbalances, and low cortisol to control bs.

lotsa luv

Dawnx

[Guest guest]

Hi

...............She had already had a feeling about her illness and a connection

to

adrenaline because she felt ill after excitement as joy as well as

negative stress.

I would not try it - anyway £600 for 12 hours teaching!!!!

What I was trying to highlight was that she probably had adrenal fatigue and a

course of

Nutri Adrenal might have helped her - and been cheaper.

B

[Guest guest]

Dawn, I have been meaning to ask you, have you ever had your uric acid

levels checked and if so what was the result. I ask this cos as I

looked at your picture in the files, I saw myself and we have found

that the ongoing body pain (CFS/Fibro) is in fact gout all over the body.

My kidneys have not been releasing the uric acid. Plus I have low

cortisol levels. Keeping in mind that the adrenals sit on the kidneys

I saw the connection for myself.

I recently (Aug) had a bad reaction to some meds which raised uric

acid levels in the body and the affect on my body and brain reminded

me of how I have been in the past at my worst.

The introduction of uric acid releasing meds for the gout has

definately made a difference but its going to take more than a couple

of months to get rid of acid stored for 18 years......

just throwing it out there for your consideration. No matter how well

I was on the thyroid meds, I always had this dreadful body pain that I

couldnt walk to the kerb in front of my house pain was so bad !!!!

sound familar.......

jennyfreeman

>

> I was diagnosed with ME/CFS, if it is some kind of coping technique it

> would not have helped me. My physiolical state needs correcting.

> Hormonal imbalances contributed to by my menopausal state and my long

>

[Guest guest]

Makes a lotta sense ...

Did Kat mention Popsnowbird got his liver transplant, at long last...?

Wednesday I believe.

best wishes

Bob

> Dawn, I have been meaning to ask you, have you ever had your uric acid

> levels checked and if so what was the result. I ask this cos as I

> looked at your picture in the files, I saw myself and we have found

[Guest guest]

Yes NAE might have helped

, it is entirely possible, I had something like gout in 1979 in

my feet, agony is all I can say about it, couldn't even have the

blankets rest on it, big and red, but I don't think the uric acid

levels showed up or they didn't test it.

I am not aware whether I had them tested recently or not, but I will

ask the doc to test my liver and kidney function given all the meds I

am on it might be a good idea anyway, that way I can kill two birds

with one stone. Yes the pain definately rings a bell especially over

the kidney area and stiffness in the back over the ribs ouch, cramps.

Lucky that some magnesium tends to calm it down quite a lot. The liver

will be having heck of a time with the extra clearance it is doing now

I am speeding up the metabolism, doesn't bear thinking about does it.

Thank ever so much for mentioning it to me. Come to think of it I got

terrible shingles the week after doing a liver cleanse last year too

hmmm. Weakness might be there.I know for a fact my kidneys are

struggling that did show up on the blood tests.

I am really glad you have found something that helps, what a surprise

eh? Uric acid. I should imagine yes, it will take a while, but

hopefully not too long for you.

Cheers mi dear

God bless

lotsa luv

Dawnx

[Guest guest]

Hi Marie

Perhaps in a lot of cases sufferers just might need T3 as thyroid hormone

replacement.

Luv - Sheila

I have been on this CFS roundabout for 5 years and I've tried many

so-called cures, and with each passing cure, so increases my sceptism!

[Guest guest]

Sheila

I think you're onto something there. The bottom line is there is a

physical reason why someone gets ill with CFS. That reason could be

thyroid/adrenal, it could be Lyme disease, it could be toxicity, it

could be viral, it could be many different things, but as long as

medicine maintains its " we know best and we're infallible " approach,

patients will continue to suffer and lose years of their lives.

Too many doctors see someone suffering from something that they cannot

explain, but rather than admit that their knowledge is lacking, they

hide behind " normal " blood tests and blame the poor patient for being

a hypochondriac.

I actually had a very memorable conversation with my GP 3 years ago.

I had been feeling severely ill and getting worse for some months. I

had all the classic hypo symptoms. A blood test showed my TSH had

climbed to 30.3 but despite the blood test and my symptoms, he assumed

the lab had made a mistake and it was impossible that my TSH could

have reached 30. I demanded a referral to an endo, told him I wanted

to try a higher dose of T4 to which he reluctantly agreed. Had I been

less pushy he'd have done nothing. Where is the practice of medicine

in an approach like that?

It has always baffled me that doctors who presumably entered the field

of medicine because they loved science or had a burning desire to help

people, could forget all of that when faced with illnesses like

thyroid disease or CFS. How could a man or woman of science lose that

ability to question, investigate, probe? Is it drummed out of them at

medical school?

When did it become acceptable to ignore the patient? I think if I

were such a doctor, I would feel that I had sold my soul to the devil.

I am just grateful that there are doctors out there who break that mould.

Getting off my soapbox now.....

[Guest guest]

Hi Dawn, yes please ensure you get uric acid levels checked - I bet

it will be worth it. High dose Vitamin C is helping as well as

eating 'cherries' - now that is a chore!!! ;_) Vit C neutralises uric acid

Also, when ever I have done a liver cleanse I have gone and flushed

out my thyroid meds and had to rebuild. I think you will find some

documentation somewhere that thyroid meds are converted in the liver

and when you do a liver cleanse/flush, it flushes out the thyroid

hormones. (learnt that one from experience the hard way)

I have an unusual way of knowing when my armour isnt getting into my

system, or something has gone awray - I start to buy port sausages or

crave pork sausages - not ham or bacon - just pork sausages !!!!

When I cant walk past them at the supermarket that is a little flag to

me. cos I would never ever buy them any other time.

All over body gout is so painful - and I am relieved that at last I

know that Fibro isnt Fibro - its all over body gout................

also do you have redness from your ankles to your

knees............thats from the uric acid/gout too - and not because I

gave birth to children as three doctors told me - what medical morons

there are out there !!!!! There was a picture really clear on the

web showing it was gout!!!!! The redness has nearly all gone after 2

months of meds.

I had given up years ago telling doctors that my body felt like it was

full of lactic acid....................I know that if I had been given

these acid blocking/releasing meds years ago my life would have been

alot different.

anyhoo - please make sure you get it checked and also see if high dose

Vit C makes any difference to your pain

jennyfreeman

> , it is entirely possible, I had something like gout in 1979 in

> my feet, agony is all I can say about it, couldn't even have the

> blankets rest on it, big and red, but I don't think the uric acid

> levels showed up or they didn't test it.

>

[Guest guest]

Gosh Bob, I knew he was on a list - he has sprung back from so much

and I hope all goes well for him on this occasion too.

best wishes, jenny

>

>

> Makes a lotta sense ...

> Did Kat mention Popsnowbird got his liver transplant, at long last...?

> Wednesday I believe.

>

>

[Guest guest]

I think that about covers it ~ Mo

>I would feel that I had sold my soul to the devil.

[Guest guest]

Oh my - I

cannot believe this. I have been up to our local farm shop (about 6 miles from

my village) to buy their WONDERFUL pork sausages. They never win prizes simply

because they don't enter their sausages for judging - they have no need, people

queue to buy them and the taste is out of this world. I have just bought four separate

pounds as I had a massive yearning for them. I never tied up the connection

between the two. I will increase my Armour because I have not been feeling up

to par these last couple of weeks.

Thanks Jen

Luv -

Sheila

I have an unusual way of knowing when my armour isnt getting into my

system, or something has gone awray - I start to buy port sausages or

crave pork sausages - not ham or bacon - just pork sausages !!!!

When I cant walk past them at the supermarket that is a little flag to

me. cos I would never ever buy them any other time.

[Guest guest]

Shelia, in the last few weeks you have also had a big disapointment re

the request for action you sent out and big work load on the forum and

elsewhere so you may be having some extra adrenal stress to deal with,

as well as the night time dosing that didnt work out as well as it

originally promised to.

Also dont you have to do armour adjustments from summer to winter - I

know many do who have seasons.

Just BTW, I also have a problem with my armour if I eat peanut butter

- next day I really know it. I think this body gout reflected in the

high uric acid levels has been interfering in thyroid hormone getting

into the cells and doing its job for a very long time - also perhaps

why I need T3.

jennyfreeman

> Oh my - I cannot believe this. I have been up to our local farm shop

(about

> 6 miles from my village) to buy their WONDERFUL pork sausages.

>

>

> I have an unusual way of knowing when my armour isnt getting into my

> system, or something has gone awray - I start to buy port sausages or

> crave pork sausages - not ham or bacon - just pork sausages !!!!

>

> When I cant walk past them at the supermarket that is a little flag to

> me. cos I would never ever buy them any other time.

>

[Guest guest]

HI

Jen

As an

update - the disappointment lasted only a few days. I have sent the complaint

back to that particular department pointing out that in their guidelines, they

should be covering the specific points in our complaint - they are not going to

get away with it that easily. I think they realise that this case could be

absolutely huge, and probably they have never taken anything like this on

before. Also, the Trading Standards Office wanted to pass the complaint on to

the GMC for them to deal with, and again, I have had to point out to them that

the complaint included the GMC. They will all have to get their heads together

to sort this out and I will not take no for an answer. We have further irons in

the fire and the more these come together Jen, the worse the whole thing stinks,

erm sorry - smells! I do usually thrive on stress and find such things a

challenge, but the stress I cannot deal with is when other thyroid

organisations refuse to help us in our campaigning. That really upsets me, and

yes, that causes real stress.

I had

forgotten about the seasonal requirements for thyroid hormone and believe me,

it has gone VERY cold here in the UK and there is a prediction for snow today -

or later today. I have upped my dose and am going to try to go back to night

time dosing again because I am NOT sleeping as well since I dropped back to day

time dosing. Perhaps if I have night-mares again I will take half during the

day and the other half at night to see if that works. is still happy

taking his at night with no problems. I am going to increase my NAE too.

I am

re-threading a bead curtain that divides the staircase from the dining room. I

made this curtain about 15 years ago and it needed re-stringing - so I have

washed all of the beads and they are sitting in a big bucket and every day, we

manage to thread about 4 strings on fishing line. It will take weeks to

complete, but slowly getting there and on top of that, I am in the middle of a

commission to paint a large picture of bluebell woods for Dr P (my

favourite subject - bluebell woods, not Dr P *grin*), so you are correct, right

at this time I have quite a workload.

Luv -

Sheila

Shelia, in the last few weeks you have also had a big

disapointment re

the request for action you sent out and big work load on the forum and

elsewhere so you may be having some extra adrenal stress to deal with,

as well as the night time dosing that didnt work out as well as it

originally promised to.

Also dont you have to do armour adjustments from summer to winter - I

know many do who have seasons.

[Guest guest]

eating 'cherries' - now that is a chore!!

Oh Wowzer, one of my fav fruits mmmmm drool, getting some tomorrow

lol. Yes I am on about 1 gram, 750mg of vit C alternate days, my bowel

cannot tolerate more than that. I don't so much have any redness at

the mo (touch wood) but I did have terrible pain in the joint of my

big toe again the other day and my ankles sometimes flare up. Luckily

I think the vit C may be taking care of that, just, as it is transient.

Sausages, now there is a strange thing eh? Wonder what they put in it

that you crave and are lacking in, ie something that helps which is

not a direct hormone?

I bet ur right about that being the reason for my shingles flare, I

bet I did rinse out all the thyroid hormones my body was converting

because I realise now after reading literature that shingles is common

in hypo people. I must have been on the edge and pushed myself even

more hypo. Silly billy , won't be doing that again, thanks for

pointing it out. Let it also go to warn others who are considering

liver cleansing not to do so unless expressly told to for some reason.

One day I will get up to that doctors, breathing would be useful in

order to do so, but will get there eventually and ask for all the

tests I need, uric acid will be one . Until then, vit C will be

consumed in abundance. Thanks hon.

Lotsa luv

Dawnx

[Guest guest]

Do you have sleep apnea at all - that would make a difference to the

amount of oxygen you are getting into your brain and body during sleep?

Can you get the NHS to come and take bloods from you at home ??? after

chatting with the Doc on the phone.?

High uric acid has had the effect of severe CFS/Fibro where I would

sit and stare at the end of the bed for 20-30 mins and not notice the

time............this was uric acid -'not' lack of sufficient thyroid

hormone. I would know it was going only, but it was like being in a

trance.

jenny

>

> One day I will get up to that doctors, breathing would be useful in

> order to do so, but will get there eventually and ask for all the

> tests I need, uric acid will be one . Until then, vit C will be

> consumed in abundance. Thanks hon.

>

> Lotsa luv

>

> Dawnx

>

[Guest guest]

I have this every day (the liquid) on my breakfast cereal. It is in the kidney cleanse by dr hulda clark, and is also good for arthritis. Apart from that it tastes lovely. I get it from iherb whcih is so much cheaper than my previous source .net

Val

I buy frozen cherries and have some each day - whilst they do havesugar, the benefits are real. There is also some cherry concentratedrinks thats are suposed to be good.

[Guest guest]

Hi Marie,

My lovely Daughter in law was diagnosed with ME and suffered

recurrent bouts of bed ridden weakness. She stopped taking the contraceptive

pill to see if they could have a baby. She almost immediately felt better-

active and lively and back to her old self, then 6 months later is happily

pregnant. These diagnoses are just dump bags for when the doc has run out of

ideas and still lives are ruined. There are probably lots of hormonal

imbalances which cause these 'conditions' and in my opinion thyroid should

be checked as a matter of course- though the tests are not always right and

symptoms and signs need to be taken into account

Stenning

Hi Marie

Perhaps in a lot of cases sufferers just might need T3 as

thyroid hormone replacement.

Luv - Sheila

I have been on this CFS roundabout for 5 years and I've

tried many

so-called cures, and with each passing cure, so increases my

sceptism!

[Guest guest]

Hi Dawn,

Gall Bladder flush may be different from liver cleanse?

Are you in need of vit B1 (thiamine ~ from pork) might account for a

craving, likewise, a bacon sandwich-fetish....lightly grilled, not

dripping fat.

Soemtimes, I wonder what sort of coversation goes on between the

mitochondria and the endoplasmic reticula......I need palmitoyl over

here ~ got any spare?

....got a breakdown in communications; someone's using all mine for

mycolic acid ....prolly an invader (mycobacterium) wants to build

it's own Chinese walls against US little blighters........

bet the banks haven't heard of mycolic acid yet!

(Mycobacterium Avium Paratuberculosis [MAP] ~ prolly one of

the 'inside traders' getting 'inside' with the daily milk

delivery....and wants its 'fair share' of the fatty action for its

own little 'deals'.

Google Wiki ~ MAP Mycobacterium A P, see where it's coming from !

best wishes

Bob

....can understand Mandy not drinking milk products.

> Sausages, now there is a strange thing eh? Wonder what they put in

> it that you crave and are lacking in, ie something that helps which

> is not a direct hormone?

[Guest guest]

Couldn't have put it better myself ;0) I'm always saying similar to

other family members about Dr's; but I suppose it's the fear that

gets them. Fear of groups like certain members of the BTA and having

their careers ruined that is. And fear of not reaching those all

important government targets, losing funding/bonuses.:0(

Louise.

>

> It has always baffled me that doctors who presumably entered the

field

> of medicine because they loved science or had a burning desire to

help

> people, could forget all of that when faced with illnesses like

> thyroid disease or CFS. How could a man or woman of science lose

that

> ability to question, investigate, probe? Is it drummed out of them

at

> medical school?

>

> When did it become acceptable to ignore the patient? I think if I

> were such a doctor, I would feel that I had sold my soul to the

devil.

>

> I am just grateful that there are doctors out there who break that

mould.

>

> Getting off my soapbox now.....

>

[Guest guest]

I have done a liver flush (twice), which is the same thing as a gallbladder flush. Often what is called a liver cleanse is the same thing, or it can be taking various things to strengthen the liver function. It is about time I did another one, trouble is I need to do the kidney cleanse first & this leaves me feeling grotty by the end of it.

Val

[Guest guest]

Hey there

I did the liver cleanse and came down with shingles a few days later,

not good, so in order to support it I think I shall take a glass of

apple juice a day gently does it eh? Might help the old gall

bladder a bit.

''

Do you have sleep apnea at all - that would make a difference to the

amount of oxygen you are getting into your brain and body during sleep?

Can you get the NHS to come and take bloods from you at home ??? after

chatting with the Doc on the phone.?

''

Yes I do wake up gasping occasionally, is worse just after I raise

armour and don't have any hc before bed strangely enough. I can see

how it would be detrimental, sleep apnea causes so many things. We

need Oxygen right? lol. I want to have some sessions in a hyperbaric

chamber, would be wonderful to come out feeling fit even for a little

while ./

I think I might try to get someone out to do the bloods, if I manage

it I will let you know, that would be an amazing accomplishment lol. I

cannot even get them to do the relevent tests so far, and the doc

hates doing home visits even when you are really unable to get there.

They have the monopoly in the town. But it will be fun to ask hehe.

I have a list of tests I want, can just imagine saying to the doc,

please take this down, thanks, now send me a nurse please . LOL. I

will ring him, just for the challenge hehe. OOOO it makes my adrenals

tingle at the thought of it .

I fancy some sausages in a big bun with tinned tomatoes . You all

got me hungry reading this thread Its 4.20am nearly breakfast time.

lotsa luv

Dawnx

[Guest guest]

Hey Bob

It was bacon sarnies that made me break the habit of not eating meat

years ago, complete with dripping fat :P yummy.

''Recent studies have shown that Map present in milk can survive

pasteurization, which has raised human health concerns due to the

widespread nature of Map in modern dairy herds. Map is heat resistant

and it is capable of sequestering itself inside white blood cells,

which may contribute to its persistence in milk. It has also been

reported to survive chlorination in municipal water supplies.''

Sounds wonderful, NOT, putting me off mi mornin cuppa.

You got wrinkles Bob darlin?

''Palmitoyl pentapeptide-4 (Matrixyl), a gentler wrinkle cure

candidate.'' hehe. I might try some of that. IF it hadn't been

developed by Procter and Gamble, they worry me these massive corps and

their chemistry .

Keep researchin Bob, its fascinating. Even if I don't always have the

brains to follow it, sometimes I get it .

lotsa luv

dawnx

[Guest guest]

Hi

... but then got MRSA...

as of last week, still being treated...

Bob

>

> Gosh Bob, I knew he was on a list - he has sprung back from so much

> and I hope all goes well for him on this occasion too.

>

> best wishes, jenny

>