Guest guest Posted October 8, 2004 Report Share Posted October 8, 2004 I just started taking LDN 2 nights ago for MS. I'll report how it's going to everybody. Thanks for all the advice. So far so good. Another question I have: Is anybody on the board taking LDN for Parkinson's? I have a friend with Parkinson's and he would like some input. le Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2006 Report Share Posted April 8, 2006 The MS support group is first rate. Is there a similar group for Parkinsons , and if there is would you kindly give me the E mail adress. Thanks Ernest Visit your group "low dose naltrexone" on the web. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2006 Report Share Posted April 8, 2006 Ernest, At present I don't believe there is an LDN / Parkinson's support group. This list serves all using LDN, no matter for what condition. Although the majority of posters on this list deal with MS, there are some of us who deal with Parkinsons and other disorders. My husband, diagnosed with Parkinsons over 2 years ago at age 50, has been on 4.5 mg of LDN for a little over a year now. We have seen no appreciable progress in the symptoms that we clearly know are associated with his Parkinsons over the past year's time. He does have more nerve pain and disability in his right arm and hand, but it is not clear whether that is part of PD or not. (Very much like restless leg syndrome symptoms but has not been helped by trying Mirapex, which is good for RLS nor been helped by extensive physical therapy.) With the recent discussion on the list about serrapeptase helping pain conditions, he ordered some and just started taking that yesterday to see if it will help. So, even though the majority of posts deal with MS, we still find much information of value in many of them. Kathie On Sat, 8 Apr 2006 05:56:51 -0400 "ernest ortner" <ernest.ortner@...> writes: The MS support group is first rate. Is there a similar group for Parkinsons , and if there is would you kindly give me the E mail adress. Thanks Ernest Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2006 Report Share Posted April 8, 2006 Thanks Kathe, i appreciate your feedback. Ernest Re: [low dose naltrexone] LDN and Parkinsons Ernest, At present I don't believe there is an LDN / Parkinson's support group. This list serves all using LDN, no matter for what condition. Although the majority of posters on this list deal with MS, there are some of us who deal with Parkinsons and other disorders. My husband, diagnosed with Parkinsons over 2 years ago at age 50, has been on 4.5 mg of LDN for a little over a year now. We have seen no appreciable progress in the symptoms that we clearly know are associated with his Parkinsons over the past year's time. He does have more nerve pain and disability in his right arm and hand, but it is not clear whether that is part of PD or not. (Very much like restless leg syndrome symptoms but has not been helped by trying Mirapex, which is good for RLS nor been helped by extensive physical therapy.) With the recent discussion on the list about serrapeptase helping pain conditions, he ordered some and just started taking that yesterday to see if it will help. So, even though the majority of posts deal with MS, we still find much information of value in many of them. Kathie On Sat, 8 Apr 2006 05:56:51 -0400 "ernest ortner" <ernest.ortner@...> writes: The MS support group is first rate. Is there a similar group for Parkinsons , and if there is would you kindly give me the E mail adress. Thanks Ernest Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 As a former (Texas life licence) English teacher/school lbrarian/media specialist, any way you want to spell a word (after the first few letters) is recognizable and fine with me! Best, Shirley --- maxwell98king <wjkeeman@...> wrote: > Hello again, I just noticed how badly I spelled > knowledgable. > My correction below, sorry. > > > > > > > The MS support group is first rate. Is there a > similar group for > > Parkinsons , and if there > > > is would you kindly give me the E mail adress. > > > Thanks Ernest > > > a.. Visit your group " low dose naltrexone " on > the web. > > > > > > b.. Quote Link to comment Share on other sites More sharing options...
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