Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 Sheila, I have tried what you said about erasing the previous message, is this what you mean, I have done it on this message? Also as you know I am waiting to see Dr. E at Harlow, he was recommended by you as I spoke to you last week which was very nice, but what I would like to know is does Dr. E. prescribe Armour Thyroid? It would be very good if he did. Thanx Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 Sheila, you asked for my blood results again, I am very tired at the moment but my Serum TSH level was - 6.13 miu/L fasting (range 0.35 - 5.5) in the column entitled NORMALITY it was written underneath ABOVE RANGE. So I am above normal and not being treated at the moment, the bad doc I saw said he would monitor me in two months time with another blood test - but I am not going to wait for that when I feel like living death alot of the time, also over the past two years as I have steadily put on more and more weight and got tireder and tireder and had to give up two great college courses because of it, I also developed a very bad back and have over the two years got tendonitits - pain in the achillies heels really badly and can't walk very far sometimes because of the pain, I take osteocare for my bones because of my back and this has improved as well as doing exercises for it that the physio showed me, it has greatly improved but not the tendons in my legs, it would be interesting to see if the when starting the thyroid treatment if these pains go away?! I hope I am sending the messages correctly now, please let me know. Thanx Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2008 Report Share Posted December 18, 2008 Hi Ann - yes, you have done a good job. However, when responding to anybody's post, it helps to leave just a little of the previous message to show what you are responding to - and who you are responding to. The list of doctors I sent are those who will prescribe synthetic combination of T3/T4 or natural thyroid extract (Armour). They do not do this automatically, they do it if their patients are not regaining their normal health on synthetic levothyroxine alone. Lilian is always seeing Dr E and he has started her on T3 (which is the active hormone that every cell in your body and brain needs - albeit on a very low dose, but he is being cautious, because we don't believe he knows that Lilian has already been taking T3 and Armour for years. This is a long story - her GP doesn't believe in any other thyroid hormone replacement other than the mainly inactive levothyroxine and wants her to go back on it. She will no doubt be able to tell you how she got on with Dr E. Luv - Sheila Sheila, I have tried what you said about erasing the previous message, is this what you mean, I have done it on this message? Also as you know I am waiting to see Dr. E at Harlow, he was recommended by you as I spoke to you last week which was very nice, but what I would like to know is does Dr. E. prescribe Armour Thyroid? It would be very good if he did. Thanx Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2008 Report Share Posted December 18, 2008 Thanks Ann - I just needed to be reminded. Your symptoms are definitely those for low thyroid and you do not appear to be converting your thyroxine to T3 and this is why you are getting the pains. I am sure once you are given the thyroid hormone replacement your body is crying out for, these symptoms will gradually disappear. Your symptoms are exactly the same as mine before I started Armour Thyroid. Good luck Ann. Luv - Sheila Sheila, you asked for my blood results again, I am very tired at the moment but my Serum TSH level was - 6.13 miu/L fasting (range 0.35 - 5.5) in the column entitled NORMALITY it was written underneath ABOVE RANGE. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2008 Report Share Posted December 18, 2008 Hi Sheila, Thanks for your message and support unfortunately I have accidently deleted too much of your previous message by mistake - sorry, still trying to get the hang of doing this! I suppose I shouldn't be called 'sub-clinical' if I am over the normal range, can you let me know please. Also I forgot to give you the Serum Free T4 level it was 16.3 pmol/L normal range 10.3 - 18.3 so I suppose it is quite near the top of the range - what does this mean? Free T3 was 4.8 pmol/L normal range 4.0 - 6.8, also I don't know what this means either, I also had anti-bodies tested but they were negative. Also I didn't get the newsletter, said that there was some information there about obtaining Armour Thyroid and it could be in short supply, could you let me know how I could receive this newsletter please. Also my mother is suffering at the moment, she has been hypoT for about 7 years and on thyroxine from the NHS doctor, although I don't know what brand she is on. The problem is she forgets to get her blood tests done, mostly because she is very busy, she is 75 and still works full time in a demanding job as a counsellor. She is about two months behind with having her blood checked and she is very tired at the moment, she is off work and she has brain fog, as well as feeling the cold terribly at the moment and feeling depressed too. I keep telling her about the thyroid condition and to get the blood test done but she says she is sick of hearing about thyroid problems, now that I have it as well, she is very irritable and depressed, I told her it was probably because she needs her thyroxin put up but she doesn't believe me and thinks she has a cold, but she doesn't have any sypmtoms of a cold? She is not very sympathetic towards me at the moment either, maybe we've both got the same kind of symptoms - I don't know - its really difficult at the moment. Also I have put an order in for the book 'Stop this Thyroid Madness' so I hope my mother can read this and be more informed about her thyroid condition as she isn't on the internet, her doc. hasn't told her anything really about it, basically she is not very well informed at all. Look forward to hearing from you. Thanx Ann Thanks Ann - I just needed to be reminded. > > Luv - Sheila > > Sheila, you asked for my blood results again, I am very tired at the > moment but my Serum TSH level was - 6.13 miu/L fasting (range 0.35 - > 5.5) in the column entitled NORMALITY it was written underneath ABOVE > RANGE. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2008 Report Share Posted December 18, 2008 Hi Ann You're doing fine. What you have left of the message is fine. You will be a dab hand at all of this soon. You are using the correct terminology when you call it subclinical hypothyroidism. Your Free T4 is quite near the top of the range which might be because it is not getting converted to the active hormone T3 - as your Free T3 is low in the range. This is probably why you are getting all the pains you are experiencing and feeling so rotten. I have posted how you can read the newsletter in our Files. Would your Mum consider seeing a private doctor such as Dr Peatfield. BTW his book is great too " Your thyroid and Hos to Keep it Healthy " . He wrote it especially to teach patients how to look after themselves with thyroid and adrenal problems. It is an excellent books, and many use this as their bible. You can buy this from Amazon, but don't forget to buy it from our website www.tpa-uk.org.uk where you can click on the link on the Home Page in the right hand column. Luv - Sheila I suppose I shouldn't be called 'sub-clinical' if I am over the normal range, can you let me know please. Also I forgot to give you the Serum Free T4 level it was 16.3 pmol/L normal range 10.3 - 18.3 so I suppose it is quite near the top of the range - what does this mean? Free T3 was 4.8 pmol/L normal range 4.0 - 6.8, also I don't know what this means either, I also had anti-bodies tested but they were negative. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2008 Report Share Posted December 18, 2008 I think you may be a bit like me Ann, even when my TSH was good and my T4 high in range I still had a low T3, 4.06, so we could both be having problems converting thus my decision to try armour. I think if i had carried on with my high dose of T4, 150mcg, I may have ended up going toxic, I knew I still didnt feel right even though the bloods said I was normal! This is why so many of us end up looking after ourselves, I hope your appointment went better today with a different doc Hi Ann I have posted how you can read the newsletter in our Files. Would your Mum consider seeing a private doctor such as Dr Peatfield. BTW his book is great too "Your thyroid and Hos to Keep it Healthy". He wrote it especially to teach patients how to look after themselves with thyroid and adrenal problems. It is an excellent books, and many use this as their bible. You can buy this from Amazon, but don't forget to buy it from our website www.tpa-uk.org. uk where you can click on the link on the Home Page in the right hand column. Luv - Sheila I suppose I shouldn't be called 'sub-clinical' if I am over thenormal range, can you let me know please. Also I forgot to give youthe Serum Free T4 level it was 16.3 pmol/L normal range 10.3 - 18.3 soI suppose it is quite near the top of the range - what does this mean?Free T3 was 4.8 pmol/L normal range 4.0 - 6.8, also I don't know whatthis means either, I also had anti-bodies tested but they were negative. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2008 Report Share Posted December 18, 2008 Hi , The doctor I saw today was a good doctor, he prescribed me with two months supply of Levothyroxine at 25 microgrammes, start taking it tomorrow unitl the Armour arrives - still not here. We do sound a bit the same my TSH was over the range, high T4 but still in range and a low Free T3 at 4.8 - normal range 4.0 - 6.8. I feel I can relax a bit now, now that I have at least some medication. Luv Ann > > I think you may be a bit like me Ann, even when my TSH was good and > my T4 high in range I still had a low T3, 4.06, so we could both be > having problems converting thus my decision to try armour. I think if > i had carried on with my high dose of T4, 150mcg, I may have ended up > going toxic, I knew I still didnt feel right even though the bloods > said I was normal! > [Edit Abbrev Mod] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2008 Report Share Posted December 18, 2008 Hi Ann Thats good to hear, when did you order the armour? Remember the thyroxine doesnt take effect straight away, it takes 6 weeks to have an effect and be fully absorbed by the body so you wont notice anything for a while. it is a waiting game I am afriad. At least you had a result today though! I would actually say your T4 is slightly above mid range, the ref range for my tests is 9-22, I see yours is 18, I do wonder why these ranges vary? Hi , The doctor I saw today was a good doctor, he prescribed mewith two months supply of Levothyroxine at 25 microgrammes, starttaking it tomorrow unitl the Armour arrives - still not here. We dosound a bit the same my TSH was over the range, high T4 but still inrange and a low Free T3 at 4.8 - normal range 4.0 - 6.8.I feel I can relax a bit now, now that I have at least some medication.LuvAnn>> I think you may be a bit like me Ann, even when my TSH was good and> my T4 high in range I still had a low T3, 4.06, so we could both be> having problems converting thus my decision to try armour. I think if> i had carried on with my high dose of T4, 150mcg, I may have ended up> going toxic, I knew I still didnt feel right even though the bloods> said I was normal!> [Edit Abbrev Mod] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2008 Report Share Posted December 18, 2008 What a wonderful stroke of luck Ann. I am really pleased for you. There ARE some decent doctors who actually CARE about their patients. I guess now you will be seeing no other doctor at your surgery - pop the other one in the dust-bin, you don't need a doctor like that. 25 mcgs is a very tiny dose, so you may not feel very much benefit on this until it is increased. Doctors usually increase it every 6 weeks (or they should) by 25mcgs until your symptoms disappear. You should buy 200mcgs Selenium and take this daily with food. Selenium is needed to help you convert the mainly inactive thyroxine to the active hormone T3. Take also 1/2000mgs Vitamin C daily and look in our website under Nutrition and Supplements to see what other supplements are recommended. Luv - Sheila Hi Sheila, I went to another doctor this afternoon at my practice, as I said before he is a very nice doctor, he is new there and is o.k. He told me that I was sub-clinical because as you said, it is because my TSH level is high but my T4 is still within the range, even though it is the top end. BUT and the big BUT is he has prescribed me with Levothyroxine, and so I am very pleased that he is taking my symptoms seriously, unlike the other doc. there who asked me if I had seen a psychiatrist lately. He has prescribed me with 25 microgrammes with two months supply, so at least I can take that until the Armour arrives. I asked him about natural thyroid extract and he didn't seem to know about it and just said the synthetic variety is o.k. But at least I got somewhere. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 Hi - what you are forgetting about when taking Armour is that you are also taking the active hormones T3 and T2. I felt an effect (good) after only 9 days of using Armour. Please can you remember to delete as much as possible from previous messages before clicking SEND and leave just a portion of what you are responding to. Luv - Sheila Remember the thyroxine doesnt take effect straight away, it takes 6 weeks to have an effect and be fully absorbed by the body so you wont notice anything for a while. it is a waiting game I am afriad. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 Hi Sheila I was referring to thyroxine taking 6 weeks to be fully absorbed, I believe Ann has now got a prescription for thyroxine and that is what I was telling her, she has also ordered some armour so not sure which one she will choose to take. I took my first quarter of a grain this morning, it did take about half an hour to be absorbed like you said Sheila. I havent eaten yet but will soon, I thought I might take the next dose about 3pm. Does that sound about right? Hi - what you are forgetting about when taking Armour is that you are also taking the active hormones T3 and T2. I felt an effect (good) after only 9 days of using Armour. Please can you remember to delete as much as possible from previous messages before clicking SEND and leave just a portion of what you are responding to. Luv - Sheila Remember the thyroxine doesnt take effect straight away, it takes 6 weeks to have an effect and be fully absorbed by the body so you wont notice anything for a while. it is a waiting game I am afriad. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 Your dosing regime is fine . Are you also taking 200 mcgs Selenium? It will be interesting to see what you report about your health in the next few weeks ;o) Luv - Sheila I was referring to thyroxine taking 6 weeks to be fully absorbed, I believe Ann has now got a prescription for thyroxine and that is what I was telling her, she has also ordered some armour so not sure which one she will choose to take. I took my first quarter of a grain this morning, it did take about half an hour to be absorbed like you said Sheila. I havent eaten yet but will soon, I thought I might take the next dose about 3pm. Does that sound about right? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 It will be interesting Sheila to how I go on the armour, I just want my head back! I am taking Selenium, have done for months now, I also take Vit C and a high potency Vit B complex, HC and spatone. Thanks Sheila I did wonder if I should wait until after christmas to start the armour but I cant see any reason why, I finish work today for Christmas so I thought it would be a good time to start Your dosing regime is fine . Are you also taking 200 mcgs Selenium? It will be interesting to see what you report about your health in the next few weeks ;o) Luv - Sheila I was referring to thyroxine taking 6 weeks to be fully absorbed, I believe Ann has now got a prescription for thyroxine and that is what I was telling her, she has also ordered some armour so not sure which one she will choose to take. I took my first quarter of a grain this morning, it did take about half an hour to be absorbed like you said Sheila. I havent eaten yet but will soon, I thought I might take the next dose about 3pm. Does that sound about right? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 I have had to edit as you mentioned the doctors name in full again and I have deleted some of the messages already seen which you left. Lilian, moderator. Hi Sheila, yes it was nice to see a doctor who cared, however, I am still going to try the Armour once it arrives. I took 1 pill of Levothyroxine this morning, but as soon as the Armour arrives I'm going to change to that, after everything I have read here and on other web sites I think this is the best way to go. Mind you, I don't know what I am going to do about the blood tests, I know it is said that one doesn't take anything for 24 hours before a test, but the doc. might think it is a bit strange that on only a little amount, as he thinks I'm only on 25 microgrammes, how can my blood be back to normal and remain o.k. etc.? He said I needed another blood test in two months time. I will still have to put in a repeat prescription every two months for the Levothyroxine as if I am taking it, what do you think? I did talk to this doctor yesterday about the natural extract and went on about how this was used since the late 1800's for thyroid problems, but he just said that the synthetic one was o.k. and I asked to be referred to an endocrinologist but he said that doctors manage this illness themselves and that I didn't need to see an endo. However, I am still waiting to see if I can see Dr. E without a referral from a G.P. I emailed his secretary to ask him, but he will not be back to work until Monday. I also went into a local pharmacy where I live and asked the pharmacist if he knew of any doc. who prescribes Armour Thyroid, he said he didn't but he could order it in if I found a doc. he said try a private G.P. But I did go to a private G.P. and she wouldn't prescribe thyroxin because she said only if I had anti-bodies, but my N.H.S. doc. yesterday did, weird isn't it how doctors differ?! Failing doctor E being able to help me I suppose the next thing is to find a doctor who will prescribe the natural thyroid. Also I cannot open the latest newsletter through this web site in the Files, is it possible that you can email it to me at my home email address that you have. Thanx luv Ann > > What a wonderful stroke of luck Ann. I am really pleased for you. There ARE > some decent doctors who actually CARE about their patients > dust-bin, you don't need a doctor like that. 25 mcgs is a very tiny dose, > so you may not feel very much benefit on this until it is increased. Doctors > usually increase it every 6 weeks (or they should) by 25mcgs until your > symptoms disappear. > > Luv - Sheila > > Hi Sheila, I went to another doctor this afternoon at my practice, as > I said before he is a very nice doctor, he is new there and is o.k. He > told me that I was sub-clinical because as you said, it is because my > TSH level is high but my T4 is still within the range, even though it > is the top end. BUT and the big BUT is he has prescribed me with > Levothyroxine, and so I am very pleased that he is taking my symptoms > seriously, unlike the other doc. there who asked me if I had seen a > psychiatrist lately. He has prescribed me with 25 microgrammes with > two months supply, so at least I can take that until the Armour > arrives. I asked him about natural thyroid extract and he didn't seem > to know about it and just said the synthetic variety is o.k. But at > least I got somewhere. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 Hi Sheila, yes it was nice to see a doctor who cared, however, I am still going to try the Armour once it arrives. I took 1 pill of Levothyroxine this morning, but as soon as the Armour arrives I'm going to change to that, after everything I have read here and on other web sites I think this is the best way to go. Mind you, I don't know what I am going to do about the blood tests, I know it is said that one doesn't take anything for 24 hours before a test, but the doc. might think it is a bit strange that on only a little amount, as he thinks I'm only on 25 microgram's, how can my blood be back to normal and remain o.k. etc.? Well - miracles do happen, so he might think this is a miracle. I would always encourage patients to tell their doctor though if they are self-treating, and you can tell him the reasons why and that you are prepared to pay for this yourself if necessary, but would be delighted if he would monitor your progress as you would like him to see how well natural thyroid extract works for patients, and you would feel happier having a doctor beside you anyway. You could then explain what happens with the blood test results when anybody is taking natural thyroid extract…..and that is…..that the TSH becomes completely suppressed, but that is natural because you are taking ALL the thyroid hormones your body requires, so there is no need for any thyroid stimulating hormone (TSH) to be secreted. Your Free T4 and Free T3 will be well up into the top of the reference range - which might surprise him, but again, this is to be expected. Thyroid blood tests are very different if you are taking synthetic levothyroxine alone because this mainly inactive hormone has to convert to the active hormone T3, and not everybody does convert, but even if they do, often their Free T4 and Free T4 are not too high in the range. Doctors recognise only that if your FT4 and FT3 are high and your TSH is suppressed, this must mean you are going hyperthyroid - and this really worries them. Unless you come clean with your doctor from the start of your self-treatment, you are going to have to continue to lie to him and this could cause problems. You are obviously a determined lady and know what you want, but I don't want you making a harder rod for your back than you need. If your GP refers you to Dr E and he agrees to recommend Armour for you and your GP is happy to prescribe it on his recommendations, that means you will get it free of charge on the NHS. However, I think that even Dr E would not start somebody who has just been diagnosed on Armour straight away, he would try them on levothyroxine - and I would still recommend that you try this medication, because IT DOES WORK for the majority of sufferers. I would at least give it a try. Before trying a private GP, it is always best to find out first whether they are willing to prescribe Armour before you pay to go to see them. It's hard work getting there, but you will. I don't understand WHY your private GP said she would only prescribe levothyroxine if a patient had antibodies - doesn't she know that not everybody has antibodies to their thyroid? I will email you the Newsletter to your Home Email address if you give it to me. I am assuming this message is not from that address. Luv - Sheila _ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 > Hi Sheila, yes it was nice to see a doctor who cared, however, I am > still going to try the Armour once it arrives. I took 1 pill of > Levothyroxine this morning, but as soon as the Armour arrives I'm > going to change to that, after everything I have read here and on > other web sites I think this is the best way to go. Mind you, I don't > know what I am going to do about the blood tests, I know it is said > that one doesn't take anything for 24 hours before a test, but the > doc. might think it is a bit strange that on only a little amount, as > he thinks I'm only on 25 microgrammes, how can my blood be back to > normal and remain o.k. etc.? He said I needed another blood test in > two months time. I will still have to put in a repeat prescription > every two months for the Levothyroxine as if I am taking it, what do > you think? I did talk to this doctor yesterday about the natural > extract and went on about how this was used since the late 1800's for > thyroid problems, but he just said that the synthetic one was o.k. and > I asked to be referred to an endocrinologist but he said that doctors > manage this illness themselves and that I didn't need to see an endo. > However, I am still waiting to see if I can see Dr. E without a > referral from a G.P. I emailed his secretary to ask him, but he will > not be back to work until Monday. I also went into a local pharmacy > where I live and asked the pharmacist if he knew of any doc. who > prescribes Armour Thyroid, he said he didn't but he could order it in > if I found a doc. he said try a private G.P. But I did go to a private > G.P. and she wouldn't prescribe thyroxin because she said only if I > had anti-bodies, but my N.H.S. doc. yesterday did, weird isn't it how > doctors differ?! Failing doctor E being able to help me I > suppose the next thing is to find a doctor who will prescribe the > natural thyroid. > > Also I cannot open the latest newsletter through this web site in the > Files, is it possible that you can email it to me at my home email > address that you have. > > Thanx > luv > Ann > > > > [Edit Abbrev Mod] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 , You wrote: > > I was referring to thyroxine taking 6 weeks to be fully absorbed,... T4 is fully absorbed in two hours. What takes 6 weeks is for the blood levels to build to close to a steady state by taking " maintenance " doses. Technically it should take more than 10 half lives to reach that level, but the T4 dose builds more quickly when we are hypoT. Chuck Quote Link to comment Share on other sites More sharing options...
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