Re: Latest results. Advice needed please.

[Guest guest]

Hi Justeen,

I think you have not allowed enough time to see which way if any you need to go. The recent blood test will just have shown the doctor that you are not taking too much, but having said that it takes 10 weeks for the dose of thyroxine to finally settle and so at the end of that time the bloods (frees) might be a higher than they are at the moment. I think if you are in a rush to alter the dose of either the T4 or T3 you might miss your sweet spot, so I would stay at this dose for the ret of the 10 weeks, then have more blood tests & only then decide what to do if anything.

Val

> 15th SEPT 08 ON 100mcg T4> > TSH 0.18 (0.3 - 5.5)> FT4 19.0 (11 - 24)> FT3 5.2 (3.5 - 6.7)> > I kept on getting hot flushes and profuse sweating. I guessed the T4> was pooling so I requested T3 which has now stopped those problem.> > 13TH OCT 08 ON 50mcg T4 & 10mcg T3> > TSH 0.27 (0.3 - 5.5)> FT4 12.8 (11 - 24)> FT3 4.6 (3.5 - 6.7)> > Recent bloods> 17TH NOV 08 0N 100mcg T4 & 20mcg T3> > TSH <0.1 (0.3 - 5.5)> FT4 16.2 (11 - 24)> FT3 5.7 (3.5 - 6.7)> > To date I'm still on 100 mcg T4, 20mcg T3

[Guest guest]

Justeen,

With the t3 if your are taking too much you can reduce it and will

get out of your system more quickly, whereas with the T4 if you take

too much it takes longer to get out of your system. When I went from

t4 100 mcg to 125 mcg it was toxic to me and I felt dizzy, heart

palps, emotional,headaches weakness, fatigue etc etc. Was off work

for three weeks. It's up to you ultimately; but just a warning.

You may be able to cope with the higher dose; but I could not and Dr

P confirmed this.

At least your Gp is concerned about the effects on your heart, mine

did not give a damn and I had to reduce the dose myself.

If you do decide to take a higher dose note all of the side effects

of T4 and beware, just concerned for you Hon, thats all.

Love Ali

> Well if that is the state of play e, then I would think a

> little T3 could be the answer for you.

> I hear what you are saying about the sex hormones and I would ask

> what is the situation about your adrenal hormones i.e. have they

> been tested?

[Edit Abbrev Mod]

[Guest guest]

Hi Val,

I'm having my TFT's done in January so that will be about right. After

the advice I've been given I'm not going to increase my meds now. I'll

bet that the results do show a difference. I didn't realise they took

so long to settle. My GP always re tests after 4/5 weeks. Thanks for

the info

Luv Justeen x

> Hi Justeen,

>

> I think you have not allowed enough time to see which way if any you

need to go. The recent blood test will just have shown the doctor

that you are not taking too much, but having said that it takes 10

weeks for the dose of thyroxine to finally settle and so at the end of

that time the bloods (frees) might be a higher than they are at the m

[Guest guest]

Hi ali,

Thank you. I've decided I'm not going to increase yet. Good point

about becoming toxic. I've got enough to deal with without that as well!!

Thank you for your concern.

Luv Justeen

<alibongo85@...> wrote:

>

> Justeen,

>

> With the t3 if your are taking too much you can reduce it and will

> get out of your system more quickly, whereas with the T4 if you take

> too much it takes longer to get out of your system. When I went from

> t4 100 mcg to 125 mcg it was toxic to me and I felt dizzy, heart

> palps, emotional,headaches weakness, fatigue etc etc. Was off work

> for three weeks. It's up to you ultimately; but just a warning.

>

>

[Guest guest]

Hi Sheila, thank you so much for your comprehensive reply (secretly thinks Sheila is super woman) Salivary progesterone 7067.8 (follicular phase 8.0 - 300.0) WOW - that is high. What did your GP suggest???He didn't subscribe to saliva tests. He ordered a blood test done which showed normal prog. I asked why the difference in tests, said he didn't know but it was now fine. I don't agree. But what do I know. Salivary Testosterone 406.7 (35 - 350) This reading is also high. He didn't blood test this but again offered no explanation when pressed. NAE - Take 3 in the morning with your breakfast and one around 1.00p.m. with your lunch and if no better in a couple of weeks, you can add yet another NAE tablet. You can take up to 6 (many people need to do this) OK, I will do this. Thank you.and if you still find you are not getting better, you may wish to speak with Dr Peatfield on the phone. Where about in the UK do you live - let me know this Justeen.I'm in Nottingham. Actually, these temperatures are quite good though a little erratic. I wouldn't worry about these right now.Ok, I won't. Are you sure that you have vaginal thrush and that this is not Lichen Schelrosis, these are very similar in symptoms, both producing severe itching but with LS you cannot clear this with medications for ordinary thrush - you have to use steroid cream such as Dermovate. This is interesting. No, I don't know if it's thrush, I just assumed. However, at one stage I did think it was Lichen Schelrosis, but then just dimissed this. I do have some Dermovate cream in the cupboard. Perhaps what you should do is to write to your GP. Doing a B12 test is a test that should be done if there is a possibility this could be low. Tell your doctor you still suffer with the following symptoms and make a list. Tell him you are trying to find the connection between high oestrogen, high progesterone, high testosterone and your low thyroid symptoms, and that you would like your B12 and Vitamin D tested to see whether these are also low. Tell him that if he is not able to help you, then please could he refer you to an endocrinologist so you can have a thorough check up - but insist that you see a thyroid specialist rather than a diabetic specialist. Ask for your letter to be placed in your medicalnotes and be assertive in how you write it, let your GP know in a very nice way that you are going to do everything you can to find what is causing your problems. I'm going to get on with it and make an appointment to see him this week. I'll hold off on the letter for now. He's easy to talk to. I think I'm just starting to doubt myself now. But a B12 and Vit D it is.If he won't recognise your salivary tests, then don't worry about this. Many NHS doctors do not understand them and only go by the NHS ACTH test - which would make even a dead donkey kick. This is a road you will, of necessity, need to go down yourself. Others have done it and got themselves well. Ok, I won't worry about this. I'll deal with it if I need to at a later date.If you want some help in composing a letter to your GP. let me know Justeen. You should not be afraid to ask for tests from your GP - this is YOUR health and not his. I will see how I go face to face but the offer is very much appreciated. I will take you up on the offer if I need to though.Thank you again Sheila.Luv Justeen x> > > > > HI Justeen> > > > I doubt you ened to increase either your T4 or your T3, the results show> > these are OK so you should perhaps be looking elsewhere as to the> > reasons your thyroid hormone replacement is not getting rid of your> > symptoms which are causing you many problems. Have you ever done the 24> >>>

[Guest guest]

Hi

Sheila, thank you so much for your comprehensive reply (secretly thinks Sheila

is super woman)

Awe - Shucks! I

only wish I was, but thank you Justeen.

Salivary

progesterone

7067.8 (follicular phase 8.0 - 300.0) WOW - that is high. What did your

GP suggest???

He didn't

subscribe to saliva tests. He ordered a blood test done which showed

normal prog. I asked why the difference in tests, said he didn't know but it

was now fine. I don't agree. But what do I know.

There is a

difference. The blood test is done ONLY to check whether you are suffering

's disease (VERY low cortisol levels). This test does not check whether

there are any shades of grey between Cushing's Syndrome (too much Cortisol) and

's disease. Did they ONLY draw blood to test your cortisol level or did

they give you an injection of Synacthen and then test your blood results. This

injection would make the adrenals of a dead donkey kick in - so many people who

have been given this test show " normal " . The ONLY test to show

whether you have low adrenal reserve is the 24 hour salivary profile, but the

NHS refuse not recognise this. The reason your doctor doesn't subscribe

to saliva tests is simply because he doesn't understand them. This is why most

people have to treat their adrenal condition themselves.

Salivary Testosterone

406.7 (35 - 350) This reading is also high.

He didn't

blood test this but again offered no explanation when pressed.

Another reason

to write a letter to him. List (by numbering) each of the questions you need

answers to and tell him you would like a response to each of your questions in

the next couple of weeks. We need to nail such doctors to the sticking post.

Make them respond and do not take NO for an answer.

NAE - Take 3 in

the morning with your breakfast and one around 1.00p.m. with your lunch

and if no better in a couple of weeks, you can add yet another NAE

tablet. You can take up to 6 (many people need to do this)

OK, I will do this. Thank you.

and if you still find

you are not getting better, you may wish to speak with Dr Peatfield on the

phone. Where about in the UK do you live - let me know this Justeen.

I'm in

Nottingham.

>OK - thanks

for that. I will work on this information and get back to you.

Actually, these

temperatures are quite good though a little erratic. I wouldn't worry about

these right now.

Ok, I won't.

Are

you sure that you have vaginal thrush and that this is not Lichen

Schelrosis, these are very similar in symptoms, both producing severe

itching but with LS you cannot clear this with medications for ordinary

thrush - you have to use steroid cream such as Dermovate.

This is interesting. No, I don't know if it's thrush, I just assumed. However,

at one stage I did think it was Lichen

Schelrosis, but then just dimissed this. I do have some Dermovate cream in the

cupboard.

>Then try it.

You just need a little blob the size of a pea and rub it well in over the

affected area. Do this when you wake and when you go to bed. Sometimes, it

works (sorry boys) to leave off your panties and wear a long skirt.

Perhaps what you

should do is to write to your GP. Doing a B12 test is a test that should

be done if there is a possibility this could be low. Tell your doctor you

still suffer with the following symptoms and make a list. Tell him

you are trying to find the connection

between high oestrogen, high progesterone, high testosterone and your

low thyroid symptoms, and that you would like your B12 and Vitamin D

tested to see whether these are also low. Tell him that if he is not able

to help you, then please could he refer you to an endocrinologist so you

can have a thorough check up - but insist that you see a thyroid

specialist rather than a diabetic specialist. Ask for your letter to be

placed in your medical

notes and be assertive in how you write it, let your GP know in a very

nice way that you are going to do everything you can to find what is

causing your problems.

I'm going to

get on with it and make an appointment to see him this week. I'll hold off on

the letter for now. He's easy to talk to. I think I'm just starting to doubt

myself now. But a B12 and Vit D it is.

>good. Make a

list of the questions you need to ask him and if he says there is no need for

such a test, this will probably be because he doesn't know the reason. Look in

our website www.tpa-uk.org.uk and click

on 'Hypothyroidism' and then 'Associated Conditions' and on the page that

opens, scroll down to the document about Vitamin D and the thyroid. Also, check

out http://www.pakmedinet.com/12445 regarding the need to test the level of Vitamin B12

for those suffering hypothyroidism.

If he won't recognise

your salivary tests, then don't worry about this. Many NHS doctors do not

understand them and only go by the NHS ACTH test - which would make even

a dead donkey kick. This is a road you will, of necessity, need to go

down yourself. Others have done it and got themselves well.

Ok, I won't

worry about this. I'll deal with it if I need to at a later date.

If

you want some help in composing a letter to your GP. let me know Justeen. You

should not be afraid to ask for tests from your GP - this is YOUR health and

not his.

I will see

how I go face to face but the offer is very much appreciated. I will take you

up on the offer if I need to though.

Thank you again Sheila.

>Good luck

Justeen.

>Luv - Sheila

Luv Justeen x

_

[Guest guest]

Hi Sheila, ......The blood test is done ONLY to check whether you are suffering 's disease (VERY low cortisol levels). This test does not check whether there are any shades of grey between Cushing's Syndrome (too much Cortisol) and 's disease. Did they ONLY draw blood to test your cortisol level or did they give you an injection of Synacthen and then test your blood results. This injection would make the adrenals of a dead donkey kick in - so many people who have been given this test show "normal". I had 2 x 24 hr urine collection test for cortisol. I collected 2 x 24

hours or urine. This was checked to see what the overall volume of

cortisol was. I also had a blood test after taking Dexamethasone (I

think it's that). Endo said all results were fine. I do have a copy of

them. Where about in the UK do you live - let me know > this Justeen. I'm in Nottingham. OK - thanks for that. I will work on this information and get back to you.Thank you x Re: Lichens sclerosis and DermovateThen try it. You just need a little blob the size of a pea and rub it well in over the affected area. Do this when you wake and when you go to bed. Sometimes, it works (sorry boys) to leave off your panties and wear a long skirt.What, in this weather I will start using it, thanks.Look in our website www.tpa-uk.org.uk and click on > 'Hypothyroidism' and then 'Associated Conditions' and on the page that opens, scroll down to the document about Vitamin D and the thyroid. Also, check out http://www.pakmedinet.com/12445 regarding the need to test the level of Vitamin B12 for those suffering hypothyroidism.I will do, thank you.Sheila, when you get a spare moment, could you PM me any NHS endos' in or around Nottingham. In fact anywhere in England!! The nearer the better but beggars can't be choosers!!Thank you again Sheila for your help x Luv Justeen >> Thank you again Sheila.> > >Good luck Justeen.> > >Luv - Sheila> > Luv Justeen x> > > > > _>