thanks for answers

[Guest guest]

thanks everyone...and yes, it is MS that I'm taking LDN for. So you go off the LDN only if you have to take an opiate for some reason. And the only people who take it right before going to sleep are those it seems to keep awake. Otherwise, take any time between 9 pm and 2 am. Got it! One more question: do any of you get flu shots? if you do, do you get a vaccine that doesn't have certain things (can't remember what they are--is it theraminserol or something like that? which contains mercury, I think.) ? is that supposed to be safer or is it something else about the vaccine that's not a good idea for us MSers?

The Rx just arrived, so tonight will be my maiden voyage with this stuff. I've been off Copaxone for 2 weeks now and my swollen saliva glands have almost returned to normal. (it was the only side effect I had). I have met my out of pocket amt for health insurance so I'm going to go ahead and have the MRI as my neuro suggested--just so I can have a base line in another year to show her the difference, if any, between this date and a year of LDN, assuming all goes well and I stay on it.

All this talk of the neurologists. I just love mine--she's bright and very attentive and listens to me...she has all the latest info from the medical world--but she doesn't know a thing about diet, alternatives and certainly doesn't think I should be on LDN unless none of the ABCR drugs will work. I had to bite the inside of my cheeks to keep from laughing out loud and just told her that I definitely wouldn't take the ABR choices and since I'd just told her I wanted to try LDN, I didn't belabor the point. Fortunately for me, I have this other Internal Medicine/holistic/alternative doc who read up on it when I asked him to and prescribed without hesitation. Why keep a neuro? Just in case...maybe in another year she'll be gone. I could go to the foremost MS neuro expert here in town, I know who it is, but his patients that I know are all progressing despite ABCR's and none of them know about diet and alternatives at all...so I know he doesn't either! Can you believe a neurologist specializing in MS doesn't at least know about the Swank diet? Just amazing!

I'm just glad I learned a long time ago, that when these things come you have to be your own physician to some degree, do your own research, invest a bunch of time and energy in yourself and not just take the easy way and do what the medical profession tells you without a blink. I don't like it--I'd rather just get good advice and take it and have more time for other things--but that's just too dangerous.

Really appreciate the group--does anyone know what % of us here are taking LDN for what? I'm assuming MS, cancer, and ???

I get the daily digest so it'll probably be tomorrow before I hear your answers.

Daphne