RE: Moseley

[Guest guest]

--- Moseley <juliam@...> wrote:

> Moseley

> Alan 02/11/84

> Joanne Natasha 01/13/00 home waterbirth,

> cloth-diapered, co-sleeping,

> exclusively breastfed, and non-vaccinated picture of

> health! (Check us out

> in the attached photo, taken June 18) :-)

So cute! Thanks for sharing.

Aubin

__________________________________________________

[Guest guest]

Thank you - sorry about sending it to you I was in desperate mode.

Thank you so much

Luv Mand

thyroid treatment From: sheilaturner@...Date: Sat, 22 Nov 2008 14:34:18 +0000Subject: Moseley

- I have passed your message on to the message board on our forum as you sent this to me. You will get more responses and suggestions from fellow sufferers there. I have approved your membership and I hope you get all the help and support you need .

Luv - Sheila

________________________________________________________

Good morning Sheila, I have tried to contact Dr. Peatfield and have had an email saying he will be in touch with me. I am so desperate for some help. The NHS wont even aknowledge the fact I have a low T4 and my estrogen is non exsistent, ive been trying to get diagnosed for 3 years and last year i got so stressed with it all and had family problems and ended up with facial weakn ess, neck spasm, leg weakness on teh right side. When it happened hospital just shooed me away as i think I must have hypocondriac on my file and I am struggling to get this sorted out aswell. I came off the pill 6 months ago and showed i had very low estrogen so they sent me to pit specialist in london UCLH. She took all my blood tests but said they are all normal she just wants to scanmy pelvis. I was refered to oral department by my dentsist as she couldnt get my mouth open, back in JUne and he said couldnt see anything and wouldnt listen to me, just discharged me and said about phsyciatric help ( I was very upset). I went back to my dentist and they refered me back to hospital and this time I said well why is my jaw deviated to the right? He said oh yea, sent me to his Maxiofacial Nurse, she said your jaw is deviated as you have facial weakness!! I said I know its affected my neck and leg aswell but no one is listening. She asked if id had a stroke I said I dont know but none of its got better. she said not to worry when you get to Barts Neurologist they will do a head scan as somethings affected your right side and is causing TMJ. So, When i got to my appointment in London, the nuerologist had been sent a letter from the Oral specialist (which he wrote back in JUne) saying nothing wrong with me need phsyciatric help!!! Obviously this affected my appointment and he dismissed my facial weakness!!! I dont know what to do anymore. Ive got another appointment with neuromuscular specialist at Queens Square but god knows whats on my reffereals, i think they are trying to cover up thier misdiagnoses of my muscles. I had booked to see a clinic in london harley street who do treat hormones with Armour,bio dentical hormones etc..but I now have no job and I am worried that I am not seeing the right people. May be I should be seeing Dr. Peatfield, I ve just beenb struggling to wait for a response as I am so depressed and down about the whole thing, i have to keep talking myself out of doing something silly. I dont want to be at war with the NHS I just want to get better. Thanks for listening, sorry to go on I dont know who to ask for help anymore.. Moseley

Get the best wallpapers on the Web - FREE. Click here!

Read amazing stories to your kids on Messenger Try it Now!

[Guest guest]

- I am sorry to hear your sorry tale. Is it not possible for

you to phone Dr Peatfield on Monday?

Mo

>

> Thank you - sorry about sending it to you I was in desperate mode.

>

> Thank you so much

> Luv Mand

>

>

>

> thyroid treatment@...: sheilaturner@...: Sat, 22 Nov 2008

14:34:18 +0000Subject: Moseley

>

>

>

>

>

> - I have passed your message on to the message board on our

forum as you sent this to me. You will get more responses and

suggestions from fellow sufferers there. I have approved your

membership and I hope you get all the help and support you need .

>

> Luv - Sheila

>

> ________________________________________________________

> Good morning Sheila, I have tried to contact Dr. Peatfield and have

had an email saying he will be in touch with me. I am so desperate

for some help. The NHS wont even aknowledge the fact I have a low T4

and my estrogen is non exsistent, ive been trying to get diagnosed

for 3 years and last year i got so stressed with it all and had

family problems and ended up with facial weakn ess, neck spasm, leg

weakness on teh right side. When it happened hospital just shooed me

away as i think I must have hypocondriac on my file and I am

struggling to get this sorted out aswell. I came off the pill 6

months ago and showed i had very low estrogen so they sent me to pit

specialist in london UCLH. She took all my blood tests but said they

are all normal she just wants to scanmy pelvis. I was refered to

oral department by my dentsist as she couldnt get my mouth open, back

in JUne and he said couldnt see anything and wouldnt listen to me,

just discharged me and said about phsyciatric help ( I was very

upset). I went back to my dentist and they refered me back to

hospital and this time I said well why is my jaw deviated to the

right? He said oh yea, sent me to his Maxiofacial Nurse, she said

your jaw is deviated as you have facial weakness!! I said I know its

affected my neck and leg aswell but no one is listening. She asked

if id had a stroke I said I dont know but none of its got better.

she said not to worry when you get to Barts Neurologist they will do

a head scan as somethings affected your right side and is causing

TMJ. So, When i got to my appointment in London, the nuerologist had

been sent a letter from the Oral specialist (which he wrote back in

JUne) saying nothing wrong with me need phsyciatric help!!!

Obviously this affected my appointment and he dismissed my facial

weakness!!! I dont know what to do anymore. Ive got another

appointment with neuromuscular specialist at Queens Square but god

knows whats on my reffereals, i think they are trying to cover up

thier misdiagnoses of my muscles. I had booked to see a clinic in

london harley street who do treat hormones with Armour,bio dentical

hormones etc..but I now have no job and I am worried that I am not

seeing the right people. May be I should be seeing Dr. Peatfield, I

ve just beenb struggling to wait for a response as I am so depressed

and down about the whole thing, i have to keep talking myself out of

doing something silly. I dont want to be at war with the NHS I just

want to get better. Thanks for listening, sorry to go on I dont know

who to ask for help anymore.. Moseley

>

>

>

> Get the best wallpapers on the Web - FREE. Click here!

>

>

>

>

>

>

> _________________________________________________________________

> See the most popular videos on the web

> http://clk.atdmt.com/GBL/go/115454061/direct/01/

>

[Guest guest]

Mandy,

I was wondering whether you could ask to see all your records. This may cost you but you have the right to see them. At least then you might see what has been written about you. I am not sure how you put them right but I am sure someone else here will know, and also how to go about it.

Yours in an appalling story and a disgrace to the medical profession.

Lilian

[Guest guest]

Hello ,

I'm so sorry to read about your health as well as the problems with all

the referrals and lack of diagnosis.

If you feel up to it, and you may well not, it could be time to get a

case together. You have the right to see any information recorded about

you in all of the referrals. Once you had that info, you could put a

case to your GP and the local pct. It is so unfair to be treated in

this way, referrals should only contain facts, not what another

person 'thinks, which is a very 'subjective' area.

You don't need to fall out with the pct, you don't even need to

confront them. It is so powerful to get a good written case together,

and much less stressful than having to present yourself verbally, when

feeling unwell and stressed. You can be seriously measured on paper.

And it's not open to misinterpretation, as conversations can be.

We do have a right to be treated fairly by the nhs, a system that we

pay into for a service.

I'm also undiagnosed, despite my efforts and medical history, although

not as unwell as you sound. I'm going to see Dr P next month in an

effort to get fully better. I've done reasonably well thanks to the

good folk of tpa.

Wishing you better, good luck,

x

>

>

>

> ________________________________________________________

>

>

>

> Good morning Sheila,

>

> I have tried to contact Dr. Peatfield and have had an email saying he

will

> be in touch with me.

>

> I am so desperate for some help. !

>

[Guest guest]

I don't know a huge amount about this area Mandy but what I did myself

was put together a document with my version of events when I discovered

that a concoction had been put together by a GP and a consultant who

were both covering their own backs as they had behaved very

unprofessionally in treating me and then tried to shift the blame by

making my a scapegoat.

I did not manage to have anything they said removed from my file as I

would have liked as they stuck to their guns and closed ranks like they

do.

In your shoes, I would be tempted to give them a very wide berth and

stick with Dr Peatfield.

Mo

>

> Mandy,

>

> I was wondering whether you could ask to see all your records.

This may cost you but you have the right to see them. At least then

you might see what has been written about you. I am not sure how you

put them right but I am sure someone else here will know, and also how

to go about it.

>

> Yours in an appalling story and a disgrace to the medical

profession.

>

> Lilian

>

[Guest guest]

Maybe it will not be possible to remove what they have said, but it does give an opportunity first to see what is being said, and also to put a note in there from you setting out the facts as you find them.

Sometimes though when a mistake is uncovered, they work extra hard to stop a fuss being made. E.g. when a doctor diagnosed a breast lump I had as mastitis, and six months later I saw another doctor who suspected it might not be, he rushed extra quickly for me to see a consultant the next morning. Turned out to be a benign tumour. Still, how often can you get an appointment to see a consultant the next morning, asked especially for him to come in before his first appointment specially to see me.

A friend recently went to emergency department of our hospital, they treated her and sent her home. Later that evening she got worse and had internal bleeding etc. She went back to A & E when they discovered they had given her the wrong treatment. She certainly got the VIP treatment after that. She came out with all praises for the staff and hospital. This from a woman who normally finds fault in everything. They had obviously gone out of their way to make sure there was no complaint.

Lilian

I did not manage to have anything they said removed from my file as I would have liked as they stuck to their guns and closed ranks like they do.

[Guest guest]

Hi Mandy,

Welcome to the Forum, where I know you will get lots of support, you

have come to the right place. I have added comment in capitals, I can

see some similarities in your story to mine.

Love Ali

> ________________________________________________________

.. The NHS wont even aknowledge the fact I have a low T4 and my

estrogen is non exsistent, ive been trying to get diagnosed for 3

years and last year i got so stressed with it all and had family

problems and ended up with facial weakn ess, neck spasm, leg weakness

on teh right side.

RE THE PROBLEMS YOU ARE HAVING WITH YOUR RIGHT SIDE, I HAVE HAD

PROBLEMS WITH A SORE NECK AND SHOULDER ON MY RIGHT SIDE GOING DOWN

INTO MY HIP AND LEG(ALL SINCE HAVING THRYOID PROBLEMS and being on

thyroxine)). DENTIST MADE ME A JIG TO STOP ME GRINDING MY TEETH IN

THE NIGHT.

AS I THINK OTHER MEMBERS HAVE MENTIONED I THINK IT IS WISE TO GET A

COPY OF YOUR RECORDS I DID THIS RECENTLY (COST £10) AND REALISED THAT

SINCE IT SAYS THAT MY SISTER HAS MENTAL HEALTH PROBLEMS AND MY DAD

HAD SCHIZOPHRENIA- THE NHS ARE TRYING TO PIGOEN HOLE ME INTO BEING

DEPRESSED, WHEN MY PROBS ARE DUE TO MY THRYOID NOT BEING TREATED

PROPERLY ON JUST THRYOXINE, ALSO I HAVE ADRENAL FATGIUE CONFIRMED VIA

A SALIVA TEST.

When it happened hospital just shooed me away as i think I must have

hypocondriac on my file and I am struggling to get this sorted out

aswell.

.. I was refered to oral department by my dentsist as she couldnt get

my mouth open, back in JUne and he said couldnt see anything and

wouldnt listen to me, just discharged me and said about phsyciatric

help ( I was very upset).

I WOULD RECOMEND SEEING DR P I SAW HIM FOR THE 1ST TIME IN OCT AND

HAVE NOT LOOKED BACK SINCE, UNFORTUNATELY I HAVE LOST ALL FAITH IN

THE NHS.

May be I should be seeing Dr. Peatfield, I ve just beenb struggling

to wait for a response as I am so depressed and down about the whole

thing, i have to keep talking myself out of doing something silly. I

dont want to be at war with the NHS I just want to get better.

[Guest guest]

THanks Lilian and everyone..x

Yes, I may do that this week Iam sure this is whats happening to me

but I am scared as I do have a muscle problem on my right side which

started suddenly. I think its was eiother a small stroke or I have

something llike Mysthavia Gravis as its gets worse with excersise,

fatiue etc...

My doctors are horrible to me now, its had a massive impact on my

family and friends I feel so lonley and as if people are sick of me.

I have a soacial worker helping me from tomorrow as I also have no

where to live due to the stress of it all had an impact on me and my

parents relationship, they let me come home when ill at teh beginning

when i had the impacted feaces and massive belly. But I went to a

homeopath found out about candida and this took away some swelling

and my dad didnt want to know then said you look okay.

Obviously, when the NHS are saying you are okay who is goingto

believe you. So it got worse and then Ideveloped theright sided

weakness facial drooop, neck spasm etc floppy bum rihgt side.

I was a personal trainer very fit in miss fitness now I cant cycle

more than 10 mins with bad musclae fatigue in my right gluteous and

its flaccid wheni walk...

I ve contacted Dr. Peatfield but do you think he will test

antibodies?? I ve got a feeling I have hashmitos and teh pit

specialist didnt test them as she said my thyroid was normal.

I am very scared that I may have had Hashmitos Encepalitis, which

gives you stroke symptoms on the right side would doctor P know about

this ???!!!

Ive included my log which i have sent to doctor P, to see what you

think..

Thanks so much feel better now ive found you all..xxxxxxxxxxx

Ive included a log, which Ive sent to private doctor Iam now going to

about my thyroid. I thought it may help give a good picture of where

Iam at. I am looking forward to chatting to you and helping others if

I can and visa versa, in this awful land of thyroid disease!! (it

wouldnt be awful if the NHS listened)!!!

Hobbies: I was a personal trainer loved sports, and going out dancing

and meeting people, shopping and reading etc. I cant excersise as

before due to teh fatigue and also the muscle weakness in my right

leg, i still try to go 3 times depending on how bad my leg is and the

fatigue on taht day and i just do a very light work out (but it does

depress me as i was very fit and my leg causes to much pain to cycle

with any resistance so I try to do 20 mins on very low level.

………………………………………………………………………………………………………………..

Medical History:

Appendix removed, nose rebroken, abnormal cells removed twice from

cervix, ovarian cysts removed and hemeorage twice, Hiatus Hernia,

cuyst in groin size of golball..

Menstrual and Obstetric History (age periods began, normal, abnormal,

pregnancies, birth weight

and problems): .………………………………………..………………………………………………………………

Periods began at age 13 years, two abortions (not through choice of

my own)Came off the pill 7 years ago and no period for a year, i just

went back on it at the time. Periods would be missed and then come

back. In the last 3 years no period or very lihgt for one day.

Currently no period for over a year apart from slight spot after cyst

hemorage in Spetember 08.

………………………………………………………………………………………………………………………….…

Present Symptoms (see list on following page and use if required):.…

SKIN: Dry, dehydrated, wrinkly skin, loss of elasticty, itchy skin,

sallow skin, bags under eyes, exma, doey belly, looking patches when

eat allergic foods.

SINUS: Right side blocked constantly, pains in nose and headaches.

DIGESTIVE: Swollen belly all the time,distends when i tiered or eaten

wrong foods, Constipation ( chronic impaction if I eat fruit sugar

etc)

Multiple allergies / intolerances to: yeast, sugar, fruit, wheat,

tomatoes, fat makes me feel very nauseous, I feel best on celiac diet

with very low carbs. If I eat wrong I am very sick to my stomach,

massive distention, constipation, hungover feeling, anxiety heart

palpatations, skin dries out more, feel dehydrated.

Cant tolerate Caffine, Alchahol - had a seizure 3 years ago after

drinking rum (not drunk since)

SMOKING: Trying to give up smoking - smoke about 5 - 10 a day and

notice I start sweating when i smoke my right leg goes cold on teh

side i have the weakness and my anxiety is worse and can feel heart

pounding faster.

Excessive tierdness., sudden bouts of chronic fatigue, no drive or

vitality, never feel refrshed when

wake up

WEIGHT: Weight gain (1/2 stone) / change in body shape (not alot of

weight gain as I am on such a strict diet and am going off the food I

have left to eat). Put on weight very easily. Poor muscle tone.

………………………………………………………………………………………………………………………

GENERAL: Cold blue feet, feel the cold / sometimes intolerant of the

heat sudden temperature changes, senstive to the sun….…

night sweats, more so when ive eaten wrong

Pins and needles

Dizziness

Palpatations

Trembling insomnia, waking up to eat anything with sugar (more so

when eating wrong foods.

Loss of libido, no senstaion , repeated thrush, althletes foot, oral

thrush

Candida

Heavy eyelids craving for salt, carbs, sugar

Hypoglycemia

Puffiness of: eyes, face, whole body when eaten wrong food like I am

holding water.

TMJ - jaw deviated to the right - Im seeing a consultant for this

aparently caused by my facial wesakness but I also grind my teeth

badly at night time.

Dry mouth, ulcers (when eat wrong)Herpes (genital aswell)

Sore tounge

Hearing - deaf more in the right ear certain tones cant hear,

constant whooshing sounds

Eye brows thining and falling out, hair breaking, thinned, colour

doesnt take at hairdressers

nails break, flake

…………………………………………………………………………………………………………………….…

PAIN: Right side back pain bottom of ribs dull ache return s

frequently, bone pain, muscle pain ache, pains up my right foot (bad

shooting pains)

DIGESTIVE PROBLEMS: Chronic consipation, food in stools, cuts aroiund

anus, chronic wind.

Periods stopped

Dry red sore eyes

MENTAL: Panic attacks, memory loss, poor concentrain, nightmares,

jumping up suddenly in sleep heart pounding, Hallucinations, sleep

wallking.

EMOTIONAL - Easily upset, dont want to be around people, mood swings,

nervous / anxiety

depression (chronic/ Manic), lack of confidence, resentment,

personality changes, Suicidal

(even more so when eat wrong foods). (felt like I went a bit mad last

year hullucinating).

BLOOD TESTING ETC

Positive ANA 1:80 speckled pattern

Serum oestrodiol level :85.00 pmol/L -Oestradiol Reference

range :female-follicular:100-610 Midcycle: 570-1620\n Luteal:200-730 -

approx target range 200 - 600\nFasting

U UREA 4.8 1.7 - 8.3

CR CREATINE 46 49 - 92

NA SODIUM 144 135-145

K POTASSIUM 3.7 3.5 - 5.1

GFR ESTIMATED >90

BIL BILLRUBIN 5 0 - 20

ALT ALT 46 10 - 35

ALP ALK.PHOS 87 35 - 104

ALB ALBUMIN 48 34 - 50

CA CALCIUM 2.25 2.15 - 2.55

P PHOSPHATE 1.28 0.87 - 1.45

FSH 8.4

FSH NOTE REF RANGE FOLLICULAR 3.5 - 12.5

REF RANGE MID CYCLE 4.7 - 21.5

REF RANGE LUTEAL 1.7 - 7.7

REF RANGE POST MENO 25.8 - 134.8

LH 7.4

LH NOTE

REF RANGE FOLLICULAR 2.4 - 12.6

REF RANGE MID CYCLE 14.0 - 95.6

REF RANGE LUTEAL 1.0 - 11.4

REF RANGE POST MENO 7.7 - 58.5

PRL PROLACTIN 178 102 - 496

TSH 2.94 0.27 - 4.20

FT4 13.6 12.0 - 22.0

CORTISOL 347 @4PM

CORTISOL REF RANGES: 9AM 171 - 536 : MIDNIGHT <140

DHS 3.1 0.3 - 11.0

OSM OSMOLITY 294 285 - 295

GLUCOSE 3.7 3.9 - 5.8

TEST TESTOSTERONE 1.2 0.20 - 2.90

ESR 8 1 - 7

WCC 11.15 3.0 - 10.00

RCC RBC 4.62 3.95 - 5.15

HB 13.6 11.5 - 15.5

HCT 0.419 0.33 - 0.45

MCV 90.7 80 - 99

MCH 29.4 27.0 - 33.5

MCHC 32.5 32.0 - 34.9

RDW 13.9 11.5 - 15.0

PLTS 298 150 - 400

MPV 11.4 7.13

DWCC 11.15 3.0 - 10.0

NEP 62.6 40 - 75

LYP 31.5 20 - 45

MOP 3.7 2-10

EOP 1.7 1 -6

BASOP 0.5 0-2

NEA 6.98 2.0 - 7.5

LYA 3.51 1.5 - 4.0

EOA 0.19 0.0 - 0.4

BAA 0.06 0.0 - 0.1

Cyst in lower sinus - confirmed by MRI scan

Waiting to see neuromuscular consultant re: right sided weakness

which came on sudden last year whilst very stressed, tried taking

prozac (same night, stopped next night), servere stress.

Please Give an Example of Your Daily Diet:

Breakfast:…Omlette made with one egg and an egg white, a little bit

of sweet potatoe and tuna. Sometimes I have a small bowl of brown

rice (but hard to keep preparing)

……………………………………………………………………………………………………………

……………………………………………………………………………………………………………………………

Lunch:…tuna/chicken with chikpeas and salad or rice and tuna No mayo,

sauces just salt…………………………………………………………………………………………………………….….

……………………………………………………………………………………………………………………………

Dinner: Chicken / mince with vegteables (Cant tolerate fat but try

and have olive oil)

Snacks: ……………Pumpkin seeds (allergic to Sunflower seeds)Not much I

can snack on was snacking on rice cakes but they seemed to make me

hypoglycemic.……………………………………………………………………………………………………

……………………………………………………………………………………………………………………………

Drinks (including alcohol): I drank rum 3 years ago and had a

convulsion so not touched drink accept for vodka twice in the last

few years, affects me too much.

…………………………………………………………………………………………

Vitamin & Mineral Supplementation: I am taking a multi vitamin

(champneys) and I try to take magnesium as it seems to help with

constipation if i take it to bowel tolerance. I am struggling with

money so i try and get b vitamins if i can.

Do You Have Any Food Cravings? (please specify)

I try and stick to low gi , which helps the food cravings, my diet is

so bland sometimes I get fed up and cheat and then it makes me crave

even more. I crave in particular bread and

salt……………………………………………………………………………………………………………………………

Which Foods Do You Hate and Therefore Avoid Eating? (NOT due to

allergy or intolerance)

I am now sick of tuna makes me feel physcialy sick from eating too

much, and oily fish or food makes me nauseous. I am bored of eating

rice all the time.

Lately I have skipped many meals as cant be be bothered to eat whats

left to eat.

……………………………………………………

Which Particular Food and Drink Do You Consume the Most of Every

Single Day?

All I drink is water, or a cup of black tea with a sweetner but it

does make me anxious but helps me go to the tolilet a little bit.

……………………………………………………………………………………………………………………………

Are You Aware of Any Food Allergies or Intolerances?

yes, Chaolmile, Sunflower seed, wheat, yeast, sugar, fruit, msg,

tomatoes, vinegar, rye, chocolate, - I stick to celiac diet and

candida diet at the same time but with additonal intolerances.

Do You Have Any Intolerances to Medication?

Yes, Some heachache tablets so I can only use paracetamol, sleeping

tablets dont really work and make me feel like Ive reacted to them

the next day.I took prozac last year and it made me so anxious and

like my skin was really crawling I reacted badly to it and when ive

tried them once before they made me put on lots of weight.

Anitbiotics - At the begining of my ill health I had a large cyst in

my groin and was given several cousres of antibiotics (tryticuline??

sorry about spelling) and then they had to drain it and then gave me

more antibiotics, when i came out my belly was swollen and everything

started from there on.

Is There a Family History of Confirmed Diagnosis of: (please tick and

specify which relation, eg mother, paternal aunt, maternal

grandfather, maternal cousin)

Dad: Englarged Heart, other problems simular to me but not diagnosed

with anything.

Grandad: Cancer Pancreas

Mum: arthritis, sinisitus

Nan: suffered multiple problems no diagnosis, osterporosis

Sister: Same symptoms as me but on prozac

Grandad two: Died heart disease

Have You Been Diagnosed With:

Thyroid Disease ME/CFS Fibromyalgia Autoimmune Disease

Diabetes Heart Disease/Stroke Mental Illness Arthritis Other

Please Specify: (eg Hashimoto's, Hypothyroidism, Lyme's Disease)

…………………………………………….…

Tried to diagnose me with ME, Chronic Fatigue, Fibromylagia,

autoimmune but they didnt know what, mental illness..

………………………………………………………………………………………………………………

Date Medical Advice First Sought: (approx) September

2005…………………………………… Age:…29 years old

Date Symptoms Began: (approx)…jan / feb 2005…..… Age:…29

years……………………………………….……

Was Private Advice Sought: Yes

Reasons/Details: I paid to go private with Bupa, as I saw phyciatrist

and she said I had a hormone problem and autoimmune by the black mark

across my face and weakness etc. When i went I was taken seriously as

I was so manic and in shock due to my facial weakness and also my

doctor at the time said \i didnt need endocrine and I am sure that

influenced my consultation.

I was also advised to see a homeopath by PALS lady - she said

hospital wont help me.

The homeopath said I had chronic candida and vitamin deficences, put

me on a strict diet but after 8 months wheni tried to eat normal it

just comes back.

…………………………………………………………………………………………………….…

Personal History of Other Illnesses Before Diagnosis: (please give

ages where possible)

Glandular Fever Severe Viral Infection (eg Flu) Diabetes

Any Other Illnesses: ....

I caught herpes wheni was 19 years. Rather than the attacks reducing

each time I ve suffered them constanly sometimes 3 times a month and

hospital said never seen anything like it. When it all started 3

years ago I had a thick rash at base of spine which looked like

shingles!!

Did You Experience Any Major Life Events Before Diagnosis - Mental or

Physical Trauma, Surgery

etc: (please give ages where possible)

Hysterectomy Neck Injury/Whiplash Tonsillectomy Cholecystectomy

Traumatic Pregnancy/Birth Severe Accident Divorce Bereavement

Any Other Events:…Car accident a year before with Wiplash. Left my

fiance a few years before that. Lost my job due to sexual

harrassment.

Kindest regards

[Guest guest]

Hello thank you x

Thats awful, well iam noyt giving up without a fight they hav ruined my

life!!!

They cant just expect me to go away when i have weakness in my right

leg, arm and face and neck can they something has got to have caused it.

Ive even had some say nothing wrong wioth your face and there is !!!!

its crazy..I have been refered directly from a pituitary consultant to

a neuromuscular with in her hospital, so Iam hoping as I ve not got a

refereal from my doctors I will be treated fairly and may find out

whats happened to me.

In teh middle of all this I worked for the hospital as a trainee

radiotherapist, when it happened with my weakness last year Igot signed

off my boss saw me deteriorate.

Ihadnt worked there long and they paid me sick pay for the first few

months and then said that they wasnt supposed to pay it to me for long

as not worked there long enough.

Then a month ago I got a bill from the hospital for 1500 saying they

shouldnthave paid me full sick pay only half pay!!!!! can you believe

it ..theyve ruined my life what a cheek, and to put all teh extra worry

on me when they keep saying i need syciatric help!!! Its thierfault

they shouldnt treat people as a number and maybe it wouldnt of

happened!!!..

Sorry I am so annouyed, upset, suicidal, anxious dissapointed all

rolled into one!!!!!

We need to do something about this dont we!!!

xxxxTake car mate

[Guest guest]

Thank you sheila x

I have been refered to Queens Sqaure by the Pituitary Specialist at

UCLH as I have been refered by her directly may be this will be a good

appointment as my doctor hasnt been able to send other peoples opinions.

Also, wheni go Iam going to stay as strong as I can and not get upset

and prove them Iam not in need of a phuyciatrist.

Ive seen a phyciatrist 3 times and each one has said I have a hormone

problem and something autoimmune by whats happening with my face.

I have an appointmnt next week at barts but have spoken to my doctors

asking what they hav sent to that appointment? So Iam going to find

out this week.

I am also going to ask for my records like you said thank you.

The pit specialist was testing me for Hashmitos encepalitis but the

results wernt on my copy, wheni asked she replied didnt need

investigating!!! I think maybe as my thyroid is low normal she didnt

test it!!!

Ive written complaining to my doctors about refereal to neurologist and

also copied it to the PCT and my local MP.

Ive also got my own social worker now who is going to support me with

it all so i dont fall aprt completly..

The Doctor I found is is LOndon they do test T3 T4 etc prescribe armour

and tests adrenals ...I really want to see Dr. P but I am scared of not

having close monitoring due to my muscle problem if i had a strokle and

self medicate what if it causes another one..

The one in london said they do prescribe but it still wont be a nhs

diagnosis as its just a low T4 but still within the range..but they

think i have more going on than that..

Thanks so much, i dont know what to do i feel like iam watching my life

go by, iam 33years old no kids no man, no life, no confidence when i

was so condfident before, cant keep fit now...oh but glad i found you

guys..xxxxx

[Guest guest]

Hi Mandy,

Some people are especially radiation sensitive.

You may be one of them.

Whiplash may have exacerbated all the symptoms, affecting your

pituitary.

Herpes can be particularly difficult if all the other things are

wrong too.

Tuna (in particular) may have added too much mercury to your system.

It's difficult to know where to start..with all those possibilities.

Stopping smoking might help, but will maybe take some time to wean

you off nicotine.......perhaps a prescribed nicotine patch could be

supplied?

A very sensitive metabolism and food allergies point to an activated

(auto)immune system (which might be worsened with too much mercury

knocking about).

Was the antibiotic used for your cyst ~ tetracycline?

best wishes

Bob

> Hello thank you x

> Thats awful, well iam noyt giving up without a fight they hav

ruined my life!!!

[Guest guest]

I ve contacted Dr. Peatfield but do you think he will

test

antibodies?? I ve got a feeling I have hashmitos and teh pit

specialist didnt test them as she said my thyroid was normal.

You may need to get a private laboratory to test to see if

you have antibodies if your GP will not request this, though I see no reason

why your doctor would refuse this test which is needed to see whether you have

Hashimoto's disease or not. If you have antibodies to your thyroid, then

eventually, your thyroid tissue will become so destroyed there will be little

thyroid hormone excreted and you will have to have thyroid hormone replacement.

Ask for this test . Ask also to have your ferritin level (stored iron)

tested, together with your Vitamin D level.

Sheila

[Guest guest]

>

> I ve contacted Dr. Peatfield but do you think he will test

> antibodies?? I ve got a feeling I have hashmitos and teh pit

> specialist didnt test them as she said my thyroid was normal.

>

> You may need to get a private laboratory to test to see if you have

> antibodies if your GP will not request this, though I see no reason

why your

> doctor would refuse this test which is needed to see whether you

have

> Hashimoto's disease or not. If you have antibodies to your thyroid,

then

> eventually, your thyroid tissue will become so destroyed there will

be

> little thyroid hormone excreted and you will have to have thyroid

hormone

> replacement. Ask for this test . Ask also to have your

ferritin level

> (stored iron) tested, together with your Vitamin D level.

>

> Sheila

Thank you sheila so much xxx

My dads asking when i m getting out today as they are sick of me, as

far as they are concerned no diagnosis nothing wrong so he wants me

out and is being horrible I cant hand much more..

Its a bit strange that she didnt test antibodies unless she did and I

keep getting paranoid they are covering up thier mistakes..

I am also woried that I may have POF as no period and i know this is

common in Hashmitos xxx

[Guest guest]

Hi Bob,

Thank you..x

Yes that was the anibiotic I had to have, they had me on it for 6

weeks two courses and then an op and then more anti's..

I then turned into a monster!!!

Ive got another cyst at the moment really big but Iam not taking

antibiotics again.

I keephaving suicidal thoughts all the time as I am a nice person and

cant believe Ive ended up at war just to try and get better, as you

all must have been through a horrid time aswell you know what i mean

iam sure.

If I could get more support from my family but they dont listen

anymore they know Iam not well but wont come on here and read

anything, I wish I had something that I could give them to read to

explain why this is all happening...

Thank you

Thanks

Mandy

[Guest guest]

Hi Mandy

Were they (also) treating you for rosacea (by accident or by design)http://en.wikipedia.org/wiki/cea

and perhaps one or other extra infections ~ it seems that CMV (citomegalovirus) is endemic and may have been 'triggered' as well.

do your records show exactly what they were treating (or thought they were treating)?

best wishes

Bob

-- In thyroid treatment , moseleymand <no_reply@...> wrote:> Hi Bob,> Thank you..x> Yes that was the anibiotic I had to have, they had me on it for 6 > weeks two courses and then an op and then more anti's..> I then turned into a monster!!!>

[Guest guest]

Give them the link to our website www.tpa-uk.org.uk and read the information

about hypothyroidism and the associated conditions that go along with being

hypothyroid. Ask them to read through the campaigns we have conducted and are

involved in in getting the medical profession to look at the science and listen

to their patients - tell them of the thousands of sufferers who join Internet

forums like this because the NHS has let them down so badly and they only join

because they want somebody to listen to them and make them well. If they will

not read the information that is available, they are no different to the people

in the medical profession that we are fighting to get medical justice.

Sheila

If I could get more support from my family but they dont listen

anymore they know Iam not well but wont come on here and read

anything, I wish I had something that I could give them to read to

explain why this is all happening...

Thank you

Thanks

Mandy

[Guest guest]

Hi Bob,

When i asked them why I had the cyst they said it was from ingrowing

hair, the cyst was size of a golf ball. So, they were giving it to me

to get rid of infection aparently...

Ive got another cyst now its not asbig bt its sore as its full of

infection. I am also bleeding when i wipe my bottom but maybe thats

from being so constipated for so long..

My Doctor has just prescribed a cream as I also have another lump in my

groin which is a lymph node and my doctor said its from fungal

infection in my foot...but i cant see anything on my foot!!!!

Thank you

Slowly going crazy

mandx

> best wishes

>

> Bob

>

> -- In thyroid treatment , moseleymand <no_reply@>

> wrote:

> > Hi Bob,

> > Thank you..x

> > Yes that was the anibiotic I had to have, they had me on it for 6

> > weeks two courses and then an op and then more anti's..

> > I then turned into a monster!!!

> >

>

[Guest guest]

>

> Hi Mandy,

>

> Have you managed to cut out all refined sugar from your diet?

>

> Do you use any anti-inflammatories?

>

> Have they done a C-Reactive Protein (CRP) test and was it very high?

> Have they done a homocysteine test?

>

> How do you react to coconut oil?

> Do you use vit A, vit C, vit E, and Selenium?

>

> Is your vit D status known ~ you are probably very low after a poor

> summer here. Low vit D is known to lower immunity, hence cod liver

oil

> source can add in both vit D and vit A, but don't over-do the vit A.

>

> You can obtain a vit D tablet on its own, if funds allow, to

increase

> your vit D level without over-doing the vit A.

>

> best wishes

> Bob

Morning Bob,

I have had CRP and it was high a while back. I know my ESR is raised

and thats to do with inflamtaion and my WCC is a sign of infection or

something and my ALT has just been repeated as requested by the Pit

secialist.

I have cut sugar out until just now, I am so sick of it all I thought

maybe I should just eat normally again and crumble like i did last

year when the right side thing happened and then they might help

me...stupid i know..

before this morning I only eat eggs, meat, veggies, sweet potatoe,

chici peas and kidney beans. I try and take cod liver oil but makes

e feel sick and my belly swells up.

They havent done the homocysteine test. I dont know what my vit D is

but I reckon its bad. I dont have milk, butter, marg, breads etc

I try and eat green veg but cant be bothered to eat what I have to

keep eating as so bland and boring...

Ive never tried cocounut oil but have read about it, they do it at

waitrose near me maybe i should try some of it, why would it help me?

I dont use antiflamotries, to be honest I so not convinced I dont

have celiac I try and do gluten free aswell.

A homeopath I went to said I am okay with gluten but no so great with

wheat. Before I saw her I did the candida diet and when the

homeopath suggested trying ryvita my stomach started growling like

mad and i was moodier and even more constipated, however the

homeopath made me stop coffee and tea and that was what made me go to

the toilet..

I am trying to stop smoking aswell as when i smoke I start sweating

and my heart starts to pound, its as if it makes me a bit

hyperthyroid..

The night last year when my right side was affected I was eating

choclate, manicly stressed, chain smoking and took a prozac and woken

up suddenly with my mum screaming...I think maybe i had a thyroid

storm in the night or something..sorry I know Iam not a doctor but I

have read so much about it I know its my hormones..x

>

>>

[Guest guest]

Hi ,

Some folk do get diagnosed as hypothyroid through

a psychiatrist, but for others it results in everything they say being ignored.

As the thyroid is one of the major glands in the metabolic system it’s failure

causes problems with the whole body. I would suggest that you look at the

website and write a list of symptoms from the list given and add any others you

have before you see him. In strange surroundings it is far too easy to forget

what you wanted to say. Are you seeing Dr.L? I saw him in Harley St some years ago and found

him very sympathetic.

Stenning

Subject:

Moseley

- I have

passed your message on to the message board on our forum as you sent this to

me. You will get more responses and suggestions from fellow sufferers there. I

have approved your membership and I hope you get all the help and support you

need .

Luv - Sheila

I had booked to see a clinic in london

harley street who do treat hormones

with Armour,bio dentical hormones etc..but I now have no job and I am worried

that I am not seeing the right people. May be I should be seeing Dr.

Peatfield, I ve just beenb struggling to wait for a response as I am so

depressed and down about the whole thing, i have to keep talking myself out of

doing something silly.

I dont want to be at war with the NHS I just want to get better.

Thanks for listening, sorry to go on I dont know who to ask for help anymore..

Moseley

Get the best wallpapers

on the Web - FREE. Click

here!

[Guest guest]

Thanks Bob, the " curse of the Celts " indeed. Well I fit the pitcher

fer sure.

Very pale-skinned as well.

I will ask the doctor when I see him next week.

Mo

>

> Hi Mandy

>

> Were they (also) treating you for rosacea (by accident or by design)

> http://en.wikipedia.org/wiki/cea

> <http://en.wikipedia.org/wiki/cea>

>

> and perhaps one or other extra infections ~ it seems that CMV

> (citomegalovirus) is endemic and may have been 'triggered' as well.

>

> do your records show exactly what they were treating (or thought

they

> were treating)?

>

>

>

> best wishes

>

> Bob

>

> -- In thyroid treatment , moseleymand

<no_reply@>

> wrote:

> > Hi Bob,

> > Thank you..x

> > Yes that was the anibiotic I had to have, they had me on it for 6

> > weeks two courses and then an op and then more anti's..

> > I then turned into a monster!!!

> >

>

[Guest guest]

> > > Hi Bob,

> > > Thank you..x

> > > Yes that was the anibiotic I had to have, they had me on it for

6

> > > weeks two courses and then an op and then more anti's..

> > > I then turned into a monster!!!

What ever it was I have another one in my groin not as big I just

burst it and it is badly infected but I am too scared to have

antibiotics again..x

> > >

> >

>