Guest guest Posted December 2, 2008 Report Share Posted December 2, 2008 Maybe not all endos. When I saw the new one the other day he has arranged for a morning cortisol blood test, although nobody has told me whether it should be any particular time of the morning. At least he is thinking a bit on those lines. I am sure I have read somewhere that the adrenals should be checked before treating the thyroid, as if it should be common practice. Lilian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2008 Report Share Posted December 2, 2008 It is written on the Patient Information Leaflet (PIL) that you should tell your doctor if you have low adrenal reserve. Your doctor should NOT prescribe thyroxine for you until your adrenals have been treated with steroids. However, medical practitioners believe this ONLY to mean those patients who are suffering 's disease. Had this been the case, surely on the PIL it would have stated " Tell your doctor if you are suffering 's disease " Your morning cortisol blood test will likely show that your cortisol is within range. You should be tested to see where your cortisol and DHEA are at four specific times during the day because your cortisol and DHEA give out different amounts throughout the day. Cortisol is highest in the morning and lowest at night, and DHEA is the opposite, being lowest in the morning and highest at night. Doing a blood test (unless you have 's disease) at only one time during the morning is, in my view, a waste of time and will not give your doctor the true facts of your adrenal status. You should have the 24 hour salivary profile done. Luv - Sheila Maybe not all endos. When I saw the new one the other day he has arranged for a morning cortisol blood test, although nobody has told me whether it should be any particular time of the morning. At least he is thinking a bit on those lines. I am sure I have read somewhere that the adrenals should be checked before treating the thyroid, as if it should be common practice. Lilian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2008 Report Share Posted December 2, 2008 I tried getting the salivary test done with NPTech but using all the 'tricks' could still not produce enough saliva So it really will not matter what time of the morning I have the blood test Lilian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2008 Report Share Posted December 2, 2008 I found scraping my tongue on my lower front teeth (quite hard and a bit painful) helped me make saliva. Also I read somewhere that you can gather it over a few days, getting a bit of saliva at each of the times in each of the tubes and saving the tubes in the fridge or freezer. Then top them up at their respective times until you have enough. The lab could probably confirm if that is ok for them. Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2008 Report Share Posted December 2, 2008 Why is it that my wonderful NHS endocrinologist discourages me from campaigning to get medical practitioners to recognise the thyroid/adrenal connection. I know it's not scientific but cortisol has certainly done it for me and I would defy any medical practitioner to say otherwise! Pen x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2008 Report Share Posted December 2, 2008 Hi Sheila, You are right- otherwise why does it say that we should tell docs we have adrenal problems as per the PIL on all thyroid meds. How do we know we have adrenal problems unless this has been diagnosed by the doc? Most patients only know they feel poorly and expect( quite rightly in an ideal world) the doc to know if it is adrenal, thyroid or often both. Stenning Subject: Cortisol, cortisol, cortisol Why is it that my wonderful NHS endocrinologist , who constantly encourages me to campaign for T4/T3 combination therapy and especially for Armour Thyroid - discourages me from campaigning to get medical practitioners to recognise the thyroid/adrenal connection. I think more and more that this subject has to be our next campaign and give them all (including the BTA Executive Committee) the evidence that must make them re-think the thyroid/adrenal connection. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2008 Report Share Posted December 2, 2008 There are two saliva glands just under your chin and if you place your forefinger and thumb either side of your trachea you will feel them. You should just massage these gently to produce saliva. luv - Sheila I found scraping my tongue on my lower front teeth (quite hard and a bit painful) helped me make saliva. Also I read somewhere that you can gather it over a few days, getting a bit of saliva at each of the times in each of the tubes and saving the tubes in the fridge or freezer. Then top them up at their respective times until you have enough. The lab could probably confirm if that is ok for them. Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2008 Report Share Posted December 2, 2008 I know Pen - I saw the miracle for myself last Friday - it was just wonderful to see you looking and feeling so well - yes, even down to doing the little hop. skip and jump. Luv - Sheila Why is it that my wonderful NHS endocrinologist discourages me from campaigning to get medical practitioners to recognise the thyroid/adrenal connection. I know it's not scientific but cortisol has certainly done it for me and I would defy any medical practitioner to say otherwise! Pen x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2008 Report Share Posted December 2, 2008 ...I know Pen - I saw the miracle for myself last Friday - it was just wonderful to see you looking and feeling so well - yes, even down to doing the little hop. skip and jump. .. That so SO fantastic to hear YAYY wtg x Quote Link to comment Share on other sites More sharing options...
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