Moseley

[Guest guest]

- I have passed your message on to the message board on our forum as you sent

this to me. You will get more responses and suggestions from fellow sufferers

there. I have approved your membership and I hope you get all the help and

support you need .

Luv

- Sheila

________________________________________________________

Good morning

Sheila,

I have tried to contact Dr. Peatfield and have had an email saying he will be

in touch with me.

I am so desperate for some help. The NHS wont even aknowledge the fact I

have a low T4 and my estrogen is non exsistent, ive been trying to get

diagnosed for 3 years and last year i got so stressed with it all and had

family problems and ended up with facial weakn ess, neck spasm, leg weakness on

teh right side.

When it happened hospital just shooed me away as i think I must have

hypocondriac on my file and I am struggling to get this sorted out

aswell. I came off the pill 6 months ago and showed i had very low

estrogen so they sent me to pit specialist in london UCLH. She took all

my blood tests but said they are all normal she just wants to scanmy pelvis.

I was refered to oral department by my dentsist as she couldnt get my

mouth open, back in JUne and he said couldnt see anything and wouldnt listen to

me, just discharged me and said about phsyciatric help ( I was very

upset). I went back to my dentist and they refered me back to hospital

and this time I said well why is my jaw deviated to the right? He said oh

yea, sent me to his Maxiofacial Nurse, she said your jaw is deviated as you have

facial weakness!!

I said I know its affected my neck and leg aswell but no one is

listening. She asked if id had a stroke I said I dont know but none of

its got better. she said not to worry when you get to Barts Neurologist

they will do a head scan as somethings affected your right side and is

causing TMJ.

So, When i got to my appointment in London, the nuerologist had been sent a

letter from the Oral specialist (which he wrote back in JUne) saying

nothing wrong with me need phsyciatric help!!! Obviously this affected my

appointment and he dismissed my facial weakness!!!

I dont know what to do anymore. Ive got another appointment with

neuromuscular specialist at Queens Square but god knows whats on my

reffereals, i think they are trying to cover up thier misdiagnoses of my

muscles.

I had booked to see a clinic in london harley street who do treat hormones with

Armour,bio dentical hormones etc..but I now have no job and I am worried that I

am not seeing the right people. May be I should be seeing Dr. Peatfield,

I ve just beenb struggling to wait for a response as I am so depressed and down

about the whole thing, i have to keep talking myself out of doing something

silly.

I dont want to be at war with the NHS I just want to get better.

Thanks for listening, sorry to go on I dont know who to ask for help anymore..

Moseley

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