Re: Back to answer the posts

[Guest guest]

Again No Name,

You really have not covered all of your bases! If you had read back very far here, you would have seen that the individuality of MS is discussed quite often. What may work for one may not even effect the next person. LDN is a miracle for some in terms of halting progression or bringing symptomatic improvement and may do nothing for the next.

The power of positive thinking and placebo effect are a factor in just about every study done with different drugs. Not only LDN.

I am the person who asked questions of the NMSS in regards to modifying my vehicle. I was NOT asking for funding. Only questions as to what exactly I needed. Apparently, you misunderstood.

As far as the various celebrities go...here's my take on that. They, like many others, are just doing what their doctors suggest. Maybe it is really helping or possibly that is how they would have progressed at any rate. My guess about Montel is that this is how he would have progressed at any rate. It hasn't hurt that he strives to be very healthy As far as the ones who have progressed to some devastative point, my guess is, they just didn't find out about other alternatives soon enough to try them before the progression turned bad. That's how it happened in my case. I am happy with the small improvements, but I still hope for more. The LDN has given me reason to hope. I don't know how much more rationality is needed. Nothing else before LDN helped me in the least. I slept for 6 hours straight last night! I couldn't do that before. I was, often times, up 4 - 5 times per hour to go to the restroom! Actually, that's pretty big improvement in my book!

This is one of those 'agree to disagree' situations. I hope you find something that helps you. Bee stings did help me, but I had to discontinue once the Africanized Bees had mixed with all the local hives. It is just too dangerous to go near the hives. Best of luck to ya!

Marcie

In a message dated 10/21/2004 4:34:40 AM Central Daylight Time, jelinab_mswalk@... writes:

am not ruling out LDN I am just asking everyone questions which came to mind as the good Dr. solicited me to put up as link on my family website dealing with MS. The MS quarterly review does not just cover recognized drugs, it also covers ongoing studies nationwide as well as across the ocean in England.It is not published by the NMSS it is a joint publication of the united spinal association, the cmsc/ North American research comiiee on MS. They cover not only big pharmacy test drugs but also write about non traditional treatments such as bee sting therapy and the use of marijuana in lessening spasticity.They also report on the tests ongoing with the use of over the counter statins. Some of which have recently been pulled from the shelves because they were found to be hazardous. I know another big drug company conspiracy. One thing you all seem to forget is that MS affects so many in many different ways which may explain why some have success with LDN while others may not. Then again it has also been shown in test studies that those receiving placebo show improvement as do those who are receiving the actual drug being tested. That to me shows the mind plays an important role in the healing as well.

As for the snap judgements about if I really needed ldn and my lack of being willing to take a chance, being seen by a physician who only goes with recognized treatments, you all could not be anymore wrong.

I was in the final FDA approval for beta seron, I was one of the first to undergo low dose cytoxin which worked wonders the first time raising my baseline. The second time was not as effective. I have asked about bee sting therapy and have been encouraged to pursue that by my physician.

I would have expected no less hostility from this group with the questions and actually no one in here to me gave a rational answer. Its a conspiracy, the NMSS does not care about curing the reason for their existence. The NMSS did not help me modify my vehicle... Well they did not help me get my mobility either from their loan closet or secure financing. Why has Montel never asked about LDN? He after all has a personal stake in this. Terri Garr? Landers? Annette Funicello?They are all being bought off by the big drug companies as well right? With the number of people with MS it would be very profitable for a company even with the patent expiring.

[Guest guest]

I went to a clinic in Reno back in 2000 for 6 weeks. Annette had been there. At that time, in 2000, they said she was in such a progressed state that it was going to be difficult to repair any damage. LDN would definately have been worth trying!

Maarcie

In a message dated 10/21/2004 9:31:07 AM Central Daylight Time, larrygc@... writes:

Terri and Montel are Copaxone Spokespersons, aren't they? Not sure which ones and Annette are on, but they are all on the CRABs and they probably never heard of LDN.

[Guest guest]

Hello

Am using the " Reply to all system " since my e-mail box has been swamped with

mail. I did register to recieve LDN newsletter but seem to be getting all

the forum correspondence.

I've only just heard of LDN. Went to see my local Neurological Outreach

Worker who mentioned it. She told me that there was one medical practice in

my area which used to prescribe it but after being swamped with requests

they stopped doing so. So am slowly reading up on it and really haven't come

to any conclusions about it.

All the correspondence has been quite interesting.

It would probably be helpful if people stated which country they are writing

from since it doesn't appear (at least to me) where they are located. I'm

located in England. Oh yes, needless to say have also got MS.........nearly

forgot))))))))

(Bob)

----- Original Message -----

From: " Jelina Comittino Breakwell " <jelinab_mswalk@...>

<low dose naltrexone >

Sent: Thursday, October 21, 2004 10:33 AM

Subject: [low dose naltrexone] Back to answer the posts

>

>

> I am not ruling out LDN I am just asking everyone questions which

> came to mind as the good Dr. solicited me to put up as link on my

> family website dealing with MS.

> The MS quarterly review does not just cover recognized drugs, it also

> covers ongoing studies nationwide as well as across the ocean in

> England.It is not published by the NMSS it is a joint publication of

> the united spinal association, the cmsc/ North American research

> comiiee on MS. They cover not only big pharmacy test drugs but also

> write about non traditional treatments such as bee sting therapy and

> the use of marijuana in lessening spasticity.They also report on the

> tests ongoing with the use of over the counter statins. Some of which

> have recently been pulled from the shelves because they were found to

> be hazardous. I know another big drug company conspiracy. One thing

> you all seem to forget is that MS affects so many in many different

> ways which may explain why some have success with LDN while others

> may not. Then again it has also been shown in test studies that those

> receiving placebo show improvement as do those who are receiving the

> actual drug being tested. That to me shows the mind plays an

> important role in the healing as well.

> As for the snap judgements about if I really needed ldn and my lack

> of being willing to take a chance, being seen by a physician who only

> goes with recognized treatments, you all could not be anymore wrong.

> I was in the final FDA approval for beta seron, I was one of the

> first to undergo low dose cytoxin which worked wonders the first time

> raising my baseline. The second time was not as effective. I have

> asked about bee sting therapy and have been encouraged to pursue that

> by my physician.

> I would have expected no less hostility from this group with the

> questions and actually no one in here to me gave a rational answer.

> Its a conspiracy, the NMSS does not care about curing the reason for

> their existence. The NMSS did not help me modify my vehicle... Well

> they did not help me get my mobility either from their loan closet or

> secure financing. Why has Montel never asked about LDN? He

> after all has a personal stake in this. Terri Garr? Landers?

> Annette Funicello?They are all being bought off by the big drug

> companies as well right? With the number of people with MS it would

> be very profitable for a company even with the patent expiring.

>

>

>

>

>

>

>

>

>

[Guest guest]

Boy oh boy! I don't think the common improvements can be placebo issues. Particularly the improved bladder control that we did not discuss for a very long time. When it WAS mentioned many many people confirmed that they indeed had much better bladder control. It was unexpected for most of us.

If you don't want to try LDN just go away. If you are as open about alternative treatments as you claim to be then try it yourself.

If you read even a limited number of posts here you would realize that we DO understand that LDN will affect us all differently due to the variation in how MS affects each individual. That is a common thread in many posts.

Since you seem to be here just to ask questions we've all discussed over and over you would save us all a lot of irritation by reading previous posts and finding the answers to the questions you are asking...

JT

----- Original Message -----

From: Jelina Comittino Breakwell

low dose naltrexone

Sent: Thursday, October 21, 2004 2:33 AM

Subject: [low dose naltrexone] Back to answer the posts

I am not ruling out LDN I am just asking everyone questions which came to mind as the good Dr. solicited me to put up as link on my family website dealing with MS.

[Guest guest]

Maybe they've never heard of LDN, I haven't seen them browsing online, and from what I can see, every email attempt to reach Montel or Oprah or Dr. Phil or any of them have been answered by a minimum wage media blocker with form emails to reply.

Terri and Montel are Copaxone Spokespersons, aren't they? Not sure which ones and Annette are on, but they are all on the CRABs and they probably never heard of LDN.

It would be great to get a personal connection to one of them and let them know about LDN. Going through media blockers don't work.

----- Original Message -----

From: marciemjm@...

low dose naltrexone

Sent: Thursday, October 21, 2004 10:17

Subject: Re: [low dose naltrexone] Back to answer the posts

As far as the various celebrities go...here's my take on that. They, like many others, are just doing what their doctors suggest. In a message dated 10/21/2004 4:34:40 AM Central Daylight Time, jelinab_mswalk@... writes:

Why has Montel never asked about LDN? He after all has a personal stake in this. Terri Garr? Landers? Annette Funicello?They are all being bought off by the big drug companies as well right?