BTF replies

[Guest guest]

I was a BTF Co ordinator at the outset of BTF and I will never forget sending several members questions to their Medical Advisors

" Why despite optimum dosage do we not feel well on Thyroxine ?"

Response from their advisors

"Is nothing to do with Thyroxine there must be another cause "

Then of course I like other Co Ordinators who dared to send in such questions were told

" We have someone more active to take your place "

BTF and BTA are merely protecting their Egos and will never never admit they are wrong no matter what evidence is put in front of them because to do so would call into question everything their Medical Advisors and the leaders of BTA have touted for so long.

Personally I firmly believe that their is a huge financial interest link between the Leading Lights of BTA /BTF and the Pharmecutical and Lab Test Machine Companies

If only someone was able to expose it.

Pat

[Guest guest]

Ever thought of contacting one of those " whistle blowing " type

programmes with your story??

Leah xx

>

> I was a BTF Co ordinator at the outset of BTF and I will never

forget sending several members questions to their Medical Advisors

>  

> " Why despite optimum dosage do we not feel well on Thyroxine ? "

>  

> Response from their advisors

>  

> " Is nothing to do with Thyroxine there must be another cause "

>  

> Then of course I like other Co Ordinators who dared to send in such

questions were told

>  

> " We have someone more active to take your place "

>  

> BTF and BTA are merely protecting their Egos and will never never

admit they are wrong no matter what evidence is put in front of them

because to do so would call into question everything their Medical

Advisors and the leaders of BTA have touted for so long.

>  

> Personally I firmly believe that their is a huge financial interest

link between the Leading Lights of BTA /BTF and the Pharmecutical and

Lab Test Machine Companies

>  

> If only someone was able to expose it.

>  

> Pat

>

[Guest guest]

The answer, " there must be another cause " is quite correct. The

problem with this answer is that medical practice stops at this

point, ignores medical science, and declares that the patient's

suffering must be in the patient's mind, i.e., " functional

somatoform disorders. "

Some human frailty must cause the stoppage in medical care of those

with " another cause. " You can see this in a comparison of the

medical practice guidelines for hypothyroidism and hypothermia. The

hypothermia guidelines are filled with possibilities -- deficient

hormones, exposure, adverse reactions to drugs, etc. But the

hypothyroidism guidelines are singularly pointed to the thyroid

gland and does not mention any other possible cause for the

symptoms. They do not mention the potential for post thyroid

deficiencies or potential deficiencies in other hormones.

A second component, a substantial component, of the problem is the

imprecision in the language. This imprecision gives

medicine " cover " for its systematic malpractice. The

term " hypothyroidism " has both a proper narrow meaning and an

improper broad meaning. The proper narrow meaning is deficient

secretion by the thyroid gland. The improper broad meaning is

deficient levels of thyroid hormone in the blood. This is

complicated by another linguistic imprecision, " thyroid hormone. "

Although T4 is produced only by the thyroid, T3 is produced mainly

by conversion sites located with a variety of organs around the

body, hence the name peripheral conversion. So although the liver

produces 60% of the T3, it is not a liver hormone but a thyroid

hormone.

So what happens when the patient is tested as " normal " but still has

the symptoms of hypothyroidism? A physician wedded to the existing

paradigm will give you the diagnosis of " functional somatoform

disorder " because you have (in medical's narrow vision) no

detectable problem. The ethical physician who knows medical

science, will know that the thyroid tests (TSH, fT4, and antibodies)

test the thyroid gland and provide some inferences upon preceding

deficiencies. The ethical physician will know that the regulatory

capability of the peripheral conversion (or metabolism) will isolate

the T3 levels from the T4 levels to some degree and consequently the

thyroid tests do not indicate what is happening post thyroid or

after the thyroid. And will then attempt, at his peril, a trial of

a T3-containing hormone replacement.

There are two post thyroid operations, the peripheral conversion of

T4 to T3 and subsequently the reception of the T3 by the body's

cells by hormone receivers so that it can be used by the cells'

nuclei. And then there is the actual use of the T3 by the nuclei.

All of the operations are made possible by various enzymes...

Please note that since all of these hormones are delivered in the

blood stream, these hormone receivers are physically structured to

accept only their hormone by a physical size and shape match. It is

rather like standing about a luggage conveyer at an airport looking

for your luggage. You let bags that are not yours pass, but when

you see yours, you grab it. So there are hormone receptors

everywhere. But behavior of the hormone receptors in the thyroid

gland for TSH can not be distinguished from gland production issues

readily -- and it hardly matters. But hormone reception in the

body's cells is another matter.

Now, let us revisit the tests. Medical practice does not presribe

any tests for the post thryoid realm. Consequently, they know

nothing of it. Consequently, deficiences in this realm go

completely unnoticed by the tests. But some explanation is needed

for the patient -- hence do what medicine has always done, put the

blame somewhere else. The patient will do. Tell her that her

suffering is all in her mind -- " functional somatoform disorder "

or " nonspecific symptoms. "

However, medical science has known of post thyroid operations upon

T4 and the importance of T3 for nearly four decades -- 38 years,

soon to be 39 years. Nonetheless, the endocrinology establishment

ignores or dismisses this medical science.

But, there are physicians who have moved ahead. Brady postulates a

reverse T3 test (rT3) to detect the body's deficient use of T3,

since rT3 is made if there is plenty of T3 in the blood or if

conditions are not favorable for making T3. Baisier, etal., prefer

the level of T3 in a 24-hour urine sample and also postulates a

clinical test upon a combination of eight of the " nonspecific

symptoms. "

Further, there are approved and accepted T3 containing hormone

replacements. But when incomplete testing is deemed the gold

standard, prescribing these replacements is tantamount to medical

heresy. Unfortunately, the medical heresy has been and is

continuing to be committed by the medical establishment in its

dismissal and ignoring of medical science.

It really all boils down to this simple concept chain:

1. Medical science declares and proves that there are operations on

the thyroid hormone thyroxine (T4)to produce the active hormone

triiodothyronine (T3) and to receive the T3 for use in the body's

cells' nuclei.

2. The medical establishment believes that all bodily functions can

become deficient and/or fail.

3. Evidence Based Medicine requires the investigation of all

possible causes known to medical science for the patient's symptoms

before finalizing upon a diagnosis and therapy.

4. But medical practice does not follow evidence based medicine in

this niche of medicine. It ignores the existing medical science of

the post thyroid operations upon T4 and T3. Consequently, it can

not rationalize the prescription of any T3 containing hormone

replacement. And then to provide a diagnosis, it imporoperly and

unprofessionally uses imprecise language, makes over broad

conclusions, and offeres the " functional somatoform disorder " blame

upon the patient. Not only does medicine not care for the patient,

it blames its own frailty upon the patient -- a double whammy.

5. So people with deficient post thyroid operations are doomed to

suffer unless they are fortunate enough to find a physician whose

ethics overcome his fear of the General Medical Council and their

punishment powers for committing the medical heresy of properly

treating their patients.

Once again, I wish to raise your determination to correct this

problem. You can rest assured that Sheila and I are doing what we

can as two individuals to correct this problem. But unless, we can

find powerful sympathetic ears attached to minds set against the

systematic abuse of the people, we will need help in changing those

minds.

In fact, writing to your representatives, members of parliment, or

whatever they are called in your country, is a beginning...

Have a better day,

>

> I was a BTF Co ordinator at the outset of BTF and I will never

forget sending several members questions to their Medical Advisors

>  

> " Why despite optimum dosage do we not feel well on Thyroxine ? "

>  

> Response from their advisors

>  

> " Is nothing to do with Thyroxine there must be another cause "

>  

> Then of course I like other Co Ordinators who dared to send in

such questions were told

>  

> " We have someone more active to take your place "

>  

> BTF and BTA are merely protecting their Egos and will never never

admit they are wrong no matter what evidence is put in front of them

because to do so would call into question everything their Medical

Advisors and the leaders of BTA have touted for so long.

>  

> Personally I firmly believe that their is a huge financial

interest link between the Leading Lights of BTA /BTF and the

Pharmecutical and Lab Test Machine Companies

>  

> If only someone was able to expose it.

>  

> Pat

>

[Guest guest]

Yes I love whistle blowers Heck if I could blow the wistle on

injustice/prejudice/cartels I would do it, unfortunately I don't have

anything to blow on

luv Dawnx

[Guest guest]

At last something I can understand!!

This was very interesting….I love the bit about the

luggage conveyor and the comparison to how we grab our luggage when it comes

round in the same way that the body grabs the hormones it requires…that really

does help to clarify things a bit more clearly with my limited understanding at

the moment.

I am desperately trying to educate myself on the complexities of

the thyroid and I have to admit that some of the articles available on the

forum via the links, go  RIGHT OVER MY HEAD. 

This article hit a nerve because I can assure you my suffering

is definitely NOT in my mind!  For the last two or three years before I

was diagnosed with Hypothyroidism I used to come out the Doctor’s feeling

totally dejected like I was imagining things wrong with me that weren’t.

Now they know differently!

If only all the scientific material could be translated into a

more simpler layman’s format. I am assuming I am not the only one who is   fully

conversant with the heavy technical jargon!

Gillian

From: thyroid treatment

[mailto:thyroid treatment ] On Behalf Of ekp290340

Sent: 13 December 2008 14:15

thyroid treatment

Subject: Re: BTF replies

The answer, " there must be another cause

" is quite correct. The

problem with this answer is that medical practice stops at this

point, ignores medical science, and declares that the patient's

suffering must be in the patient's mind, i.e., " functional

somatoform disorders. "

Some human frailty must cause the stoppage in medical care of those

with " another cause. " You can see this in a comparison of the

medical practice guidelines for hypothyroidism and hypothermia. The

hypothermia guidelines are filled with possibilities -- deficient

hormones, exposure, adverse reactions to drugs, etc. But the

hypothyroidism guidelines are singularly pointed to the thyroid

gland and does not mention any other possible cause for the

symptoms. They do not mention the potential for post thyroid

deficiencies or potential deficiencies in other hormones.

A second component, a substantial component, of the problem is the

imprecision in the language. This imprecision gives

medicine " cover " for its systematic malpractice. The

term " hypothyroidism " has both a proper narrow meaning and an

improper broad meaning. The proper narrow meaning is deficient

secretion by the thyroid gland. The improper broad meaning is

deficient levels of thyroid hormone in the blood. This is

complicated by another linguistic imprecision, " thyroid hormone. "

Although T4 is produced only by the thyroid, T3 is produced mainly

by conversion sites located with a variety of organs around the

body, hence the name peripheral conversion. So although the liver

produces 60% of the T3, it is not a liver hormone but a thyroid

hormone.

So what happens when the patient is tested as " normal " but still has

the symptoms of hypothyroidism? A physician wedded to the existing

paradigm will give you the diagnosis of " functional somatoform

disorder " because you have (in medical's narrow vision) no

detectable problem. The ethical physician who knows medical

science, will know that the thyroid tests (TSH, fT4, and antibodies)

test the thyroid gland and provide some inferences upon preceding

deficiencies. The ethical physician will know that the regulatory

capability of the peripheral conversion (or metabolism) will isolate

the T3 levels from the T4 levels to some degree and consequently the

thyroid tests do not indicate what is happening post thyroid or

after the thyroid. And will then attempt, at his peril, a trial of

a T3-containing hormone replacement.

There are two post thyroid operations, the peripheral conversion of

T4 to T3 and subsequently the reception of the T3 by the body's

cells by hormone receivers so that it can be used by the cells'

nuclei. And then there is the actual use of the T3 by the nuclei.

All of the operations are made possible by various enzymes...

Please note that since all of these hormones are delivered in the

blood stream, these hormone receivers are physically structured to

accept only their hormone by a physical size and shape match. It is

rather like standing about a luggage conveyer at an airport looking

for your luggage. You let bags that are not yours pass, but when

you see yours, you grab it. So there are hormone receptors

everywhere. But behavior of the hormone receptors in the thyroid

gland for TSH can not be distinguished from gland production issues

readily -- and it hardly matters. But hormone reception in the

body's cells is another matter.

Now, let us revisit the tests. Medical practice does not presribe

any tests for the post thryoid realm. Consequently, they know

nothing of it. Consequently, deficiences in this realm go

completely unnoticed by the tests. But some explanation is needed

for the patient -- hence do what medicine has always done, put the

blame somewhere else. The patient will do. Tell her that her

suffering is all in her mind -- " functional somatoform disorder "

or " nonspecific symptoms. "

However, medical science has known of post thyroid operations upon

T4 and the importance of T3 for nearly four decades -- 38 years,

soon to be 39 years. Nonetheless, the endocrinology establishment

ignores or dismisses this medical science.

But, there are physicians who have moved ahead. Brady postulates a

reverse T3 test (rT3) to detect the body's deficient use of T3,

since rT3 is made if there is plenty of T3 in the blood or if

conditions are not favorable for making T3. Baisier, etal., prefer

the level of T3 in a 24-hour urine sample and also postulates a

clinical test upon a combination of eight of the " nonspecific

symptoms. "

Further, there are approved and accepted T3 containing hormone

replacements. But when incomplete testing is deemed the gold

standard, prescribing these replacements is tantamount to medical

heresy. Unfortunately, the medical heresy has been and is

continuing to be committed by the medical establishment in its

dismissal and ignoring of medical science.

It really all boils down to this simple concept chain:

1. Medical science declares and proves that there are operations on

the thyroid hormone thyroxine (T4)to produce the active hormone

triiodothyronine (T3) and to receive the T3 for use in the body's

cells' nuclei.

2. The medical establishment believes that all bodily functions can

become deficient and/or fail.

3. Evidence Based Medicine requires the investigation of all

possible causes known to medical science for the patient's symptoms

before finalizing upon a diagnosis and therapy.

4. But medical practice does not follow evidence based medicine in

this niche of medicine. It ignores the existing medical science of

the post thyroid operations upon T4 and T3. Consequently, it can

not rationalize the prescription of any T3 containing hormone

replacement. And then to provide a diagnosis, it imporoperly and

unprofessionally uses imprecise language, makes over broad

conclusions, and offeres the " functional somatoform disorder " blame

upon the patient. Not only does medicine not care for the patient,

it blames its own frailty upon the patient -- a double whammy.

5. So people with deficient post thyroid operations are doomed to

suffer unless they are fortunate enough to find a physician whose

ethics overcome his fear of the General Medical Council and their

punishment powers for committing the medical heresy of properly

treating their patients.

Once again, I wish to raise your determination to correct this

problem. You can rest assured that Sheila and I are doing what we

can as two individuals to correct this problem. But unless, we can

find powerful sympathetic ears attached to minds set against the

systematic abuse of the people, we will need help in changing those

minds.

In fact, writing to your representatives, members of parliment, or

whatever they are called in your country, is a beginning...

Have a better day,

>

> I was a BTF Co ordinator at the outset of BTF and I will never

forget sending several members questions to their Medical Advisors

> Â

> " Why despite optimum dosage do we not feel well on Thyroxine ? "

> Â

> Response from their advisors

> Â

> " Is nothing to do with Thyroxine there must be another cause "

> Â

> Then of course I like other Co Ordinators who dared to send in

such questions were told

> Â

> " We have someone more active to take your place "

> Â

> BTF and BTA are merely protecting their Egos and will never never

admit they are wrong no matter what evidence is put in front of them

because to do so would call into question everything their Medical

Advisors and the leaders of BTA have touted for so long.

> Â

> Personally I firmly believe that their is a huge financial

interest link between the Leading Lights of BTA /BTF and the

Pharmecutical and Lab Test Machine Companies

> Â

> If only someone was able to expose it.

> Â

> Pat

>

[Guest guest]

Hi Sheila,

That’s a good idea to put ’s explanation in the

files.

I have actually put  Dr Peatfield’s book on my Christmas

present list so I am hoping to find it in my stocking on Xmas morning! If not,

I will purchase it myself as I have already earmarked it on Amazon. I am always

scouring the library shelves for books too.

I haven’t been onto the forum since this funny business

with and age restriction…..my security badge is not showing so I

assume it is not safe to sign in yet.  I am not a prude but I daren’t risk

it just in case I see something I’d rather not!

Gillian

From: thyroid treatment

[mailto:thyroid treatment ] On Behalf Of Sheila

Sent: 14 December 2008 09:41

thyroid treatment

Subject: RE: Re: BTF replies

Hi Gillian - I so agree. has the wonderful capacity of

hitting the nail slap bang in the middle of its head and I am proud to have him

as a member (a valued member) of our forum. I am going to put this explanation

into our FILES and will also put it into our web site so we can direct our

members there if they are confused - so many thanks once .

We do have scientists and doctors who are members of our forum and

the more scientific and technical papers are really for them and those of us

(not me) who understand them. Some need the science behind hypothyroidism and

others of us just need to know enough to help us regain our health once more -

so worry ye not about these links.

It

might help you to go to our website www.tpa-uk.org.uk and click on 'Hypothyroidism'

and read the information there - especially the papers written by Dr Peatfield

(who is Patron and Medical Adviser to our forum). He writes for patients

because he understands their problems and his papers are easier to read than

most other doctors, who often put in far too much science, that completely goes

over my head too. Have you read his book " Your Thyroid and How to Keep it

Healthy " - if not, I would recommend you buy this through Amazon (use the

link from our website which you will find in the right hand column of our Home

Page - because TPA will get a small percentage of the cost). Many of our

members have his book as their Bible. By the way, TPA-UK also has its very own

lending library (have a look in the FILES section of this forum) where you can

borrow books from other members happy to loan them out for the cost of

postage only. If there are any books you would like to borrow, then click on

the members email address and write to them asking for their postal address and

send them either stamps to the value of £4.00 or a cheque for that amount,

enclosing, of course, your own address so they can send the book out to you.

Please do not keep the book for too long because others may be waiting to borrow

it. However, having said that, it might be an idea to wait until after

Christmas because it would be awful if the books were lost (as so many packages

are over Christmas).

When I

first opened this forum Gillian, I knew absolutely nothing about hypothyroidism

or the technical jargon that goes with it but gradually I am learning - so the

more you read the more things will drop into place and you learn through asking

questions - so never be afraid to ask.

Luv -

Sheila

This article hit a nerve because I can

assure you my suffering is definitely NOT in my mind! For the last

two or three years before I was diagnosed with Hypothyroidism I used to come

out the Doctor’s feeling totally dejected like I was imagining things

wrong with me that weren’t. Now they know differently!

If only all the scientific material

could be translated into a more simpler layman’s format. I am assuming I

am not the only one who is fully conversant with the heavy

technical jargon!

From: thyroid treatment

[mailto:thyroid treatment ] On Behalf Of ekp290340

Sent: 13 December 2008 14:15

thyroid treatment

Subject: Re: BTF replies

The answer, " there must be another cause " is quite correct. The

problem with this answer is that medical practice stops at this

point, ignores medical science, and declares that the patient's

suffering must be in the patient's mind, i.e., " functional

somatoform disorders. "

Some human frailty must cause the stoppage in medical care of those

with " another cause. " You can see this in a comparison of the

medical practice guidelines for hypothyroidism and hypothermia. The

hypothermia guidelines are filled with possibilities -- deficient

hormones, exposure, adverse reactions to drugs, etc. But the

hypothyroidism guidelines are singularly pointed to the thyroid

gland and does not mention any other possible cause for the

symptoms. They do not mention the potential for post thyroid

deficiencies or potential deficiencies in other hormones.

A second component, a substantial component, of the problem is the

imprecision in the language. This imprecision gives

medicine " cover " for its systematic malpractice. The

term " hypothyroidism " has both a proper narrow meaning and an

improper broad meaning. The proper narrow meaning is deficient

secretion by the thyroid gland. The improper broad meaning is

deficient levels of thyroid hormone in the blood. This is

complicated by another linguistic imprecision, " thyroid hormone. "

Although T4 is produced only by the thyroid, T3 is produced mainly

by conversion sites located with a variety of organs around the

body, hence the name peripheral conversion. So although the liver

produces 60% of the T3, it is not a liver hormone but a thyroid

hormone.

So what happens when the patient is tested as " normal " but still has

the symptoms of hypothyroidism? A physician wedded to the existing

paradigm will give you the diagnosis of " functional somatoform

disorder " because you have (in medical's narrow vision) no

detectable problem. The ethical physician who knows medical

science, will know that the thyroid tests (TSH, fT4, and antibodies)

test the thyroid gland and provide some inferences upon preceding

deficiencies. The ethical physician will know that the regulatory

capability of the peripheral conversion (or metabolism) will isolate

the T3 levels from the T4 levels to some degree and consequently the

thyroid tests do not indicate what is happening post thyroid or

after the thyroid. And will then attempt, at his peril, a trial of

a T3-containing hormone replacement.

There are two post thyroid operations, the peripheral conversion of

T4 to T3 and subsequently the reception of the T3 by the body's

cells by hormone receivers so that it can be used by the cells'

nuclei. And then there is the actual use of the T3 by the nuclei.

All of the operations are made possible by various enzymes...

Please note that since all of these hormones are delivered in the

blood stream, these hormone receivers are physically structured to

accept only their hormone by a physical size and shape match. It is

rather like standing about a luggage conveyer at an airport looking

for your luggage. You let bags that are not yours pass, but when

you see yours, you grab it. So there are hormone receptors

everywhere. But behavior of the hormone receptors in the thyroid

gland for TSH can not be distinguished from gland production issues

readily -- and it hardly matters. But hormone reception in the

body's cells is another matter.

Now, let us revisit the tests. Medical practice does not presribe

any tests for the post thryoid realm. Consequently, they know

nothing of it. Consequently, deficiences in this realm go

completely unnoticed by the tests. But some explanation is needed

for the patient -- hence do what medicine has always done, put the

blame somewhere else. The patient will do. Tell her that her

suffering is all in her mind -- " functional somatoform disorder "

or " nonspecific symptoms. "

However, medical science has known of post thyroid operations upon

T4 and the importance of T3 for nearly four decades -- 38 years,

soon to be 39 years. Nonetheless, the endocrinology establishment

ignores or dismisses this medical science.

But, there are physicians who have moved ahead. Brady postulates a

reverse T3 test (rT3) to detect the body's deficient use of T3,

since rT3 is made if there is plenty of T3 in the blood or if

conditions are not favorable for making T3. Baisier, etal., prefer

the level of T3 in a 24-hour urine sample and also postulates a

clinical test upon a combination of eight of the " nonspecific

symptoms. "

Further, there are approved and accepted T3 containing hormone

replacements. But when incomplete testing is deemed the gold

standard, prescribing these replacements is tantamount to medical

heresy. Unfortunately, the medical heresy has been and is

continuing to be committed by the medical establishment in its

dismissal and ignoring of medical science.

It really all boils down to this simple concept chain:

1. Medical science declares and proves that there are operations on

the thyroid hormone thyroxine (T4)to produce the active hormone

triiodothyronine (T3) and to receive the T3 for use in the body's

cells' nuclei.

2. The medical establishment believes that all bodily functions can

become deficient and/or fail.

3. Evidence Based Medicine requires the investigation of all

possible causes known to medical science for the patient's symptoms

before finalizing upon a diagnosis and therapy.

4. But medical practice does not follow evidence based medicine in

this niche of medicine. It ignores the existing medical science of

the post thyroid operations upon T4 and T3. Consequently, it can

not rationalize the prescription of any T3 containing hormone

replacement. And then to provide a diagnosis, it imporoperly and

unprofessionally uses imprecise language, makes over broad

conclusions, and offeres the " functional somatoform disorder " blame

upon the patient. Not only does medicine not care for the patient,

it blames its own frailty upon the patient -- a double whammy.

5. So people with deficient post thyroid operations are doomed to

suffer unless they are fortunate enough to find a physician whose

ethics overcome his fear of the General Medical Council and their

punishment powers for committing the medical heresy of properly

treating their patients.

Once again, I wish to raise your determination to correct this

problem. You can rest assured that Sheila and I are doing what we

can as two individuals to correct this problem. But unless, we can

find powerful sympathetic ears attached to minds set against the

systematic abuse of the people, we will need help in changing those

minds.

In fact, writing to your representatives, members of parliment, or

whatever they are called in your country, is a beginning...

Have a better day,

>

> I was a BTF Co ordinator at the outset of BTF and I will never

forget sending several members questions to their Medical Advisors

> Â

> " Why despite optimum dosage do we not feel well on Thyroxine ? "

> Â

> Response from their advisors

> Â

> " Is nothing to do with Thyroxine there must be another cause "

> Â

> Then of course I like other Co Ordinators who dared to send in

such questions were told

> Â

> " We have someone more active to take your place "

> Â

> BTF and BTA are merely protecting their Egos and will never never

admit they are wrong no matter what evidence is put in front of them

because to do so would call into question everything their Medical

Advisors and the leaders of BTA have touted for so long.

> Â

> Personally I firmly believe that their is a huge financial

interest link between the Leading Lights of BTA /BTF and the

Pharmecutical and Lab Test Machine Companies

> Â

> If only someone was able to expose it.

> Â

> Pat

>

[Guest guest]

Hi

Ever since

I opened this forum in 2004 and looked around at other forums, I have not known

of heard of any hypothyroid sufferers marching or demonstrating about the

appalling treatment metered out to them through the NHS. We almost arranged a

demonstration at the last annual meeting of The British Thyroid Association

last year in London, but we had to cancel at that time because it coincided

with Dr Skinner's Hearing at the GMC in Manchester, and we were concerned at

the possible political repercussions that might have come from this for Dr

Skinner because there were members of the BTA giving evidence against him at

that time. I honestly don't know how many would have attended though and

suspect it would have been very few. Even though Dr S's Hearing was open to the

public (and we made sure that every member of all the thyroid forums in the UK

knew about this, begging them to do everything possible to try to attend

to show the GMC how much Dr S and his diagnosing and treatment protocol, which

differed from the mainstream was needed. On the busiest day (and I attended

every day but 2) there were no more than 24 who attended and I reckon half of

those were partners. There should have been a couple of hundred or so. So, it

is probably all part of being hypothyroid and as such, having had to leave paid

employment and living on State Benefits.

This is why

I think it a good idea that TPA-UK keeps up the campaigning work by sending

correct information out to every NHS endocrinologists individually, so they have

a choice of continuing with the NHS (BTA) diagnosing and treatment protocol, or

to start following the medical science that has been out there for the past 40

years - but probably are not even aware of it. However, because of the

stationary, printing and postage, we do need money, but I have found our

members to be particularly generous and I bless each and every one of them.

Luv -

Sheila

But, then we may need folks to demonstrate, although a bunch of

hypometabolic folks demonstrating is somewhat contradictory... I

tried organizing one when the AACE came to Washington. I got one

volunteer....

Have a great day,

_,___

[Guest guest]

Hi

Gillian

There

is no risk unless you actually click on the links. If you go to the forum, you

only have to click that you 'accept' the once and you will get straight onto

the forum, and you will not be sent that message again. The links are only on

our Home Page, put there by that match whatever 'category' is shown in

the settings. cannot interfere with anything that is in the content of

the forum itself, so I can assure you it is quite safe to go to the forum

and the files. You can go direct to the FILES by scrolling to the bottom of

this message and clicking on FILES.

Before

clicking 'Send' when posting a message, please will you check that you have

deleted all the messages previously read and leave just a portion of what you

are responding to.

Luv -

Sheila

I haven’t been onto the forum since this funny business

with and age restriction…..

Gillian

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..

[Guest guest]

''a bunch of

hypometabolic folks demonstrating is somewhat contradictory..''

Yes, thats why they have us, darnit!! We will overcome la la, we will

overcome. Eventually!

Honestly that amount of dedication , and that of Shiela too takes

a certain type of person, even if not hypometabolic. Wonderful.

I think the demonstration is an awesome idea, I need to take my bed

though, actually that might make them sit up and take notice. Isn't

there some law now against demonstrating near Westminster? Not a free

country any more

lotsa luv

Dawnx

[Guest guest]

Well, there are sit-ins. Weetman's office came to mind first, but

then there are presidents of the BTA, the BTF, and those other folks.

How about a sit in at an endocrinology convention? They leftists

did this in the 60's with some effect. The crime is a misdeanor and

is attached to a small fine. But there is the possibility of

gaining media attention -- which of course is the real goal....

How about offices at the NHS?

Actually, sit-ins only require that you get there. As I recall, the

sit-in folks did not resist, but they did not help either -- they

just went limp. Carrying 10-12 stone with no handles is not easy --

it takes several policemen for each one of the sit-in folks.

And you might gain some media attention... Lets see, big government

defending big medicine against its victims.... That headline would

just be dandy and made quite complete with pictures of cops carrying

out mothers and grandmothers..... Those senior women are truly a

danger to society .... LOL

And by the way, thanks for the kudos on the explanation.

Have a great day,

>

> ''a bunch of

> hypometabolic folks demonstrating is somewhat contradictory..''

>

> Yes, thats why they have us, darnit!! We will overcome la la, we

will

> overcome. Eventually!

>

> Honestly that amount of dedication , and that of Shiela too

takes

> a certain type of person, even if not hypometabolic. Wonderful.

>

> I think the demonstration is an awesome idea, I need to take my bed

> though, actually that might make them sit up and take notice. Isn't

> there some law now against demonstrating near Westminster? Not a

free

> country any more

>

> lotsa luv

> Dawnx

>

[Guest guest]

…if

we ever managed to get there in the first place Lilian…

Seems

we have just missed the BTA annual meeting - we could have handed out leaflets

prepared by us to all the endocrinologists as they went into the meeting. Must

think about this next year! Just have big banners with TPA-UK written on them -

they would scatter like flies - what a vision!

58th Meeting of the British Thyroid

Association

27 November 2008, Royal Free Hospital, London

Web: www.british-thyroid-association.org

Luv - Sheila

However

my imagination got the better of me and knowing how a lot of us are, it would

be more like a 'sleep in' rather than a 'sit in'.

_,_._,___

[Guest guest]

Hey, sleep ins work too. More stones work even better. I can just

see a squad of bobbies carrying out one grandmother to the paddy

wagon. What a picture that would make !!

I like sleep in, it fits better with the untreated maladies and the

few extra stones does not hurt either -- although the

endocrinologiests will simply blame you for your condition.

But seriously, I do have a theory that sufficiently hypometabolic

people will develop gastritis before they start loosing weight. But

I have not had the time to check this out. Amazingly, in this

economic downturn, we because very busy....

Have a great day and hopefully some more laughs,

>

> .if we ever managed to get there in the first place Lilian.

>

>

>

> Seems we have just missed the BTA annual meeting - we could have

handed out

> leaflets prepared by us to all the endocrinologists as they went

into the

> meeting. Must think about this next year! Just have big banners

with TPA-UK

> written on them - they would scatter like flies - what a vision!

>

>

>

> 58th Meeting of the British Thyroid Association

> 27 November 2008, Royal Free Hospital, London

> Web: www.british-thyroid-association.org

>

> Luv - Sheila

>

>

>

> However my imagination got the better of me and knowing how a lot

of us are,

> it would be more like a 'sleep in' rather than a 'sit in'.

>

>

>

> _,_._,___

>