Guest guest Posted October 21, 2004 Report Share Posted October 21, 2004 Hello my friends, I read all the posts and I want to tell you my experience with ldn. I went to all the dr in my area and nobody would perscribe it for me, but being a nurse I knew ldn was the way to go with ms so I became dr bihari's patient so I could get it. First let me tell you that dr bihari only uses lactose filler with the ldn he said anything else the ldn will not work. He also told me that it has to be taken between 9pm and 3am to work well. He told me all my symptoms would lessen by 80% and they did. I have been on ldn now for two years and in my belief it is the best medication for us. I found it takes time for us to see results depending on the amount of damage we have and I had alot of damage to my brain, we have to be patient. the first thing I noticed was all the numbness was gone. My balance and walking impoved and my head felt normal in time. I feel like a normal person again. Probably if I quit smoking I would see more improvement so going to try to quit and see if that helps. He also said if you have allergies or get a cold which I haven't had since taken ldn the symptoms come back while you are ill and they did when I have an allergy attack which I know is temporary. He also said while taking ldn which I will never go without you will have no cancer which to me is a real plus. I am walking and still working partime but you also have to help yourself by working the muscles to your level and then go alittle more. Its a mircle pill but you have to help it achieve the level you want by physical activity and a positive attitude. Just want to tell you my experience with LDN. Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2004 Report Share Posted October 21, 2004 I WISH YOU WELL, BUT PLEASE DON'TCONTINUE MAIL ON THIS SUBJECT. I HAVE BEEN DELUGED ON LDN AND HANDLE ANY MORE. THANKYOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2004 Report Share Posted October 21, 2004 > > Hello my friends, > > I read all the posts and I want to tell you my experience with ldn. > I went to all the dr in my area and nobody would perscribe it for > me, but being a nurse I knew ldn was the way to go with ms so I > became dr bihari's patient so I could get it. First let me tell you > that dr bihari only uses lactose filler with the ldn he said > anything else the ldn will not work. Kathy - It is hard for me to believe that Dr. Bihari would say that LDN would not work w/ other fillers; that you would never get cancer and that 80% of your symptoms would disappear. From everything I have read and from what other patients of his have shared, there is no way that he could be so definitive about the results of LDN. In fact, it is my understanding that symptom relief may occur, but stopping the progression of MS is the likely benefit of taking LDN. I am not trying to diminish how well things are going for you and I truly hope it continues. Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2004 Report Share Posted October 21, 2004 I agree as I find that it is working for me and with acidophilus as a filler too. It just isn,t working as well as for others. Reg -------Original Message------- From: low dose naltrexone Date: 10/21/04 12:03:52 low dose naltrexone Subject: [low dose naltrexone] Re: LDN and ME > > Hello my friends,> > I read all the posts and I want to tell you my experience with ldn. > I went to all the dr in my area and nobody would perscribe it for > me, but being a nurse I knew ldn was the way to go with ms so I > became dr bihari's patient so I could get it. First let me tell you > that dr bihari only uses lactose filler with the ldn he said > anything else the ldn will not work.Kathy - It is hard for me to believe that Dr. Bihari would say thatLDN would not work w/ other fillers; that you would never get cancerand that 80% of your symptoms would disappear. From everything I haveread and from what other patients of his have shared, there is no waythat he could be so definitive about the results of LDN. In fact, itis my understanding that symptom relief may occur, but stopping theprogression of MS is the likely benefit of taking LDN. I am not trying to diminish how well things are going for you and Itruly hope it continues. Gail ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2004 Report Share Posted October 21, 2004 > I WISH YOU WELL, BUT PLEASE DON'TCONTINUE MAIL ON THIS SUBJECT. I HAVE BEEN > DELUGED ON LDN AND HANDLE ANY MORE. > > THANKYOU =============== If you don't want the posts coming to your e-mail " YOU " have to go to the upper righthand corner and click on Edit My Membership and un-click the area that send posts directly to your e-mail. ========== I remember Dr. Bihari saying that Lactose is the BEST filler for LDN and for one not to be able to use lactose he/she must be extremely allergic to lactose. The two second best fillers are Acidophilus and Avicel(many have allergic reactions to avicel like nausea, headache and vomiting). Calcium Carbonate is a no no for LDN, it can be good one batch and bad the next. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2004 Report Share Posted October 21, 2004 Hi Kathy, I've read all the posts, and felt I needed to chime in. I started taking LDN after a phone consult with Dr. Bihari 3 weeks ago. My LDN prescription is mixed with calcium carbonate, as per Dr. B, because I have lactose intolerance. When I read these posts, I double checked with the NY pharmacy Dr. B uses (Park Irmat), and they said there's no problem with calcium carbonate at all. FYI, Dr. B did talk to me about his successes with HIV and cancer patients using LDN, but made no claims about it as a preventive. Most importantly, you're doing well. And we know that this disease plays out in unique ways for everyone, so there aren't any hard and fast rules about what works. BTW, I have a lot more energy with LDN, but my sleep has been sporadic. I'm going down to 2mg from 3mg to see if that helps. (I weigh under 110 which may be a factor). Best of luck. > > Hello my friends, > > I read all the posts and I want to tell you my experience with ldn. > I went to all the dr in my area and nobody would perscribe it for > me, but being a nurse I knew ldn was the way to go with ms so I > became dr bihari's patient so I could get it. First let me tell you > that dr bihari only uses lactose filler with the ldn he said > anything else the ldn will not work. He also told me that it has to > be taken between 9pm and 3am to work well. He told me all my > symptoms would lessen by 80% and they did. I have been on ldn now > for two years and in my belief it is the best medication for us. I > found it takes time for us to see results depending on the amount of > damage we have and I had alot of damage to my brain, we have to be > patient. the first thing I noticed was all the numbness was gone. My > balance and walking impoved and my head felt normal in time. I feel > like a normal person again. Probably if I quit smoking I would see > more improvement so going to try to quit and see if that helps. He > also said if you have allergies or get a cold which I haven't had > since taken ldn the symptoms come back while you are ill and they > did when I have an allergy attack which I know is temporary. He also > said while taking ldn which I will never go without you will have no > cancer which to me is a real plus. I am walking and still working > partime but you also have to help yourself by working the muscles to > your level and then go alittle more. Its a mircle pill but you have > to help it achieve the level you want by physical activity and a > positive attitude. Just want to tell you my experience with LDN. > > > Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2005 Report Share Posted August 11, 2005 > Bren, > I just received my Revia from Mexico today in the mail. Tonight I took my > first dose of 1.0 and will continue for the first 7 days as you > suggested. I am really excited to have it work. I have no doubt that it > is going to do wonders for me. As soon as I have something that show for > the good, I will make an appointment with my neuro and get him on the band > wagon. He is wanting to know the progression and will prescribe it to > other with good results from me. Thanks again for the help and the > protocol. I am going to keep a daily diary on my blog. I haven't been > good about it up to now but plan to keep this up so I have something to > show the neuro. I think this was a great birthday present and came the day > before. That has to be a good omen. All for now. Thanks a bunch for the > help, now have 3 angels.(, my wife, my daughter and my > granddaughter) By the way, it tastes really bad. > > Griffith > ======== , Try putting it in a tablespoon of orange juice or adding some Stevia sweetener(healthfood store) to it. Go light on the Stevia...it can make it too sweet. Take things as slow as you need to but do eventually get up to 3.0mg and if you can tolerate more then go higher than 3.0mg. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2005 Report Share Posted August 11, 2005 HELLO, I LIVE IN WISCONSIN AND HAVE MS, I AM AWAITING MY PACKAGE OF LDN FOR THE FIRST DOSE TO START SOON.. DOES ANYONE AKE LDN AND HAVE MS TOO? NICE TO MEET YOU ALL, TAMMY IN WISCONSIN Griffith <ggriffith@...> wrote: Bren,I just received my Revia from Mexico today in the mail. Tonight I took my first dose of 1.0 and will continue for the first 7 days as you suggested. I am really excited to have it work. I have no doubt that it is going to do wonders for me. As soon as I have something that show for the good, I will make an appointment with my neuro and get him on the band wagon. He is wanting to know the progression and will prescribe it to other with good results from me. Thanks again for the help and the protocol. I am going to keep a daily diary on my blog. I haven't been good about it up to now but plan to keep this up so I have something to show the neuro. I think this was a great birthday present and came the day before. That has to be a good omen. All for now. Thanks a bunch for the help, now have 3 angels.(, my wife, my daughter and my granddaughter) By the way, it tastes really bad. Griffith<mailto:ggriffith@...>ggriffith@...http://ggriffith.blogspot.com/Few cases of eyestrain have been developed by looking on the bright side of things. Start your day with - make it your home page Quote Link to comment Share on other sites More sharing options...
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