Re: Help, Dr gave me ultimation!!!

[Guest guest]

Get the prescription and don't take it. That gives you a breathing

space to find an endo to take over your care.

And you should not start on a dose of 100mcg. you neesd to start on

25mcg and build up over a few weeks. If your GP is saying that you

should take that dose straight off, get on to your PCT and explain

how you feel, pointing out that the doctor has asked you to do

something that is medically unsafe to do.

Glynis

>

> Hi, I hope someone can help me! I spoke to my Dr today and he

> is saying I need to take thyroxine, because my T4 is rock bottom

> (I'm on T3 only with Dr P).

> Also I,m in danger of a cardiac arrest if I don't take it.

> I tried to explain that I take T3 and I don't

> convert T4, but he was having none of it, and threatened to stop

> treating my thyroid if I

> don't start taking 100mgs of thyroxine imediately.

>

> Is there a decent endo in the middlesbrough area that anyone knows

> about, or somewhere near!!

>

> I rely on my Dr because, I'm on incapacity benefit and he could be

> awkward, if he chose to be.

>

> He slammed the phone down on me!!

>

> Can anyone help!!

>

> Thanks in advance.

> South

>

>

> re-posted

>

[Guest guest]

I agree - this is the time to say " Yes Dear' take the script, (dont

have to get it filled) - keep the disability and keep seeing Dr P.

There is more than one way to skin a cat and some cats are rats anyway

and not worth trying to educate.

>

jennyfreeman*not medially trained

> He slammed the phone down on me!!

>

> Can anyone help!!

>

> Thanks in advance.

> South

>

>

> re-posted

>

[Guest guest]

Hi ,

Are you well yet?? Arer you at the point where you feel sure T3 is

better for you?

I ask as I am just thinkning along the lines of saying to the doctor -

" look I understand your concerns, I know the course of action I am

taking is not the standard one, but I feel much better than I ever

have (or whatever). When I took T4 I had these symptoms, xxxx, which

have now gone away using T3. I am unable to take both as mixing the

two appears to give me these symptoms, xxxx.I am reluctant to go back

to T4 as I felt that my symptoms were too awful to tolerate and it

would affect my quality of life. Saying that, I know that at as a

good and conscientious doctor you want the best for me, so is there a

way of reassuring us (that's important - don't say you, it makes it

sound like you don't share his concerns - which you probably don't

but it's more productive for him to think you do!) that my cardiac

function is OK - perhaps an ECG?

etc...etc...perhaps this might be best in a letter??

So at least you are acknowledging his beliefs and concerns, making

him feel he is doing his job properly, but still at least trying to

get what you want...

Leah xxx

>

> Help, Dr gave me ultimation!!!

>

> Wednesday, 3 December, 2008 9:20 PM

> From: " jnnfr_south " <jennifer.south1@...>

> thyroid treatment

>

> Hi, I hope someone can help me! I spoke to my Dr today and he

> is saying I need to take thyroxine, because my T4 is rock bottom

> (I'm on T3 only with Dr P).

> Also I,m in danger of a cardiac arrest if I don't take it.

> I tried to explain that I take T3 and I don't

> convert T4, but he was having none of it, and threatened to stop

> treating my thyroid if I

> don't start taking 100mgs of thyroxine imediately.

>

> Is there a decent endo in the middlesbrough area that anyone knows

> about, or somewhere near!!

>

> I rely on my Dr because, I'm on incapacity benefit and he could be

> awkward, if he chose to be.

>

> He slammed the phone down on me!!

>

> Can anyone help!!

>

> Thanks in advance.

> South

>

>

> re-posted

>

[Guest guest]

endo in the middlesbrough area

If you find one will ya let me know? I am not far from there.

Take the script, I agree with the others, I have a script for 25 mg

thyroxine which I intend to top up with when I get on decent armour

dose. You are obvously happy on your T3? But you may as well take the

scripts, there may be a time when you need to top up and do combo

therapy at some point.

Hope you find a decent endo, if ya do, let me know, we have none down

this end that I know of.

Lotsa luv

Dawnx (Whitby)

[Guest guest]

Hi /Leah,

....and the counter-argument is that 'just L-T4' has put people in

hospital with serious cardiac arrhythmia (12 hourly for about a week,

requiring cardioversion on each occasion to suppress torsades de

pointes) from thyrotoxicosis, and which comes on suddenly with

compromised adrenal glands.

best wishes

Bob

>

> Hi ,

> Are you well yet?? Arer you at the point where you feel sure T3 is

> better for you?

> I ask as I am just thinkning along the lines of saying to the

> doctor - " look I understand your concerns, I know the course

[Edit Abbrev Mod]

[Guest guest]

- no doctor likes to be told anything medical from a non-medical individual,

especially when that person is his patient. He obviously isn't happy that

somebody knows more than he does and naturally gets cross and embarrassed when

he realises he has been copped as not knowing very much about thyroid disease.

However, having said that, if your T4 is so very low, then you may need to take

a little with your T3. T4 is needed by your brain along with T3 to make it

function properly and so do other organs and perhaps you should give yourself a

trial of combination therapy. Both your Free T4 and Free T3 should be in the

upper third of the reference range.

Ask

your GP to refer you to an endocrinologist of your choice as you need the

specialist input for your particular case (I am sending you a list of good

doctors) and you can now 'Choose and Book' the specialist of your choice since

April 2008.

Luv -

Sheila

Help, Dr gave me ultimation!!!

..

..

Hi, I hope someone can help me! I spoke to my Dr today and he

is saying I need to take thyroxine, because my T4 is rock bottom

(I'm on T3 only with Dr P).

Also I,m in danger of a cardiac arrest if I don't take it.

I tried to explain that I take T3 and I don't

convert T4, but he was having none of it, and threatened to stop

treating my thyroid if I

don't start taking 100mgs of thyroxine imediately.

_,___

[Guest guest]

>

> Dawn

> I love Whitby, you are so lucky to live there! Sorry changing the

subject a bit but it really is my favourite seaside place, I have been

there so many times and never get bored of it!

Yes I am lucky I luv it too, bit cold this time o year tho, North

facing bay brrrrr lol.

Please let me know if you are coming through at any time, we can have

a cuppa somewhere and chat about thyroids Anyone in fact coming

through this way would be great to meet up and chat health

lotsa luv

Dawnx

[Guest guest]

range.

>

>

>

> Ask your GP to refer you to an endocrinologist of your choice as you

need

> the specialist input for your particular case (I am sending you a

list of

> good doctors) and you can now 'Choose and Book' the specialist of your

Hi Sheila, Thanks for your help. I came off Armour as I don't seem to

tolerate the T4 that well, but, I may have to try and get back on it!

However, he wants me on thyroxine no messing, so I'm really stuffed!!

Thanks for the info that you sent, but it came out blank!! and I'm not

that good with computers so I don't know what has happened.

Best wishes

.

[Guest guest]

>

> If you cant tollerate the T4 in armour how will you be able the

tollerate the thyroxine which is all T4? Is there a difference between

the T4 in each of these?

>

>

Hi , I won't be able to, thats the point, but he's not

listening to what I have to say!!

Best wishes

South.

[Guest guest]

>

> I agree, you shouldnt start off taking 100mcg, thats really bad

advice, I was started off on 50mcg, but elderly people and those with

heart problems are started off even lower

Hi All, I've decided not to take the useless stuff, and make another

appointment to see Dr P, for a bit of morale support!!

I picked up the script today, and it says to take 100mgs in the

morning!! Silly man!!

Never mind, I'm feeling more determined by the day,and if he wants

to strike me off his books he can!

He is also young enough to be around when the medical establishment

eventually

realise what idiots they have been, regarding thyroid issues, and he

might say to himself, " she wasn't such a silly woman after all " (I wish).

Best wishes

South.

[Guest guest]

Hi Dawn,

I too love Whitby, hubby and I were there last w/e it was fab. I will

get in touch next time I come over and maybe we can meet up and talk

thyroids etc. It would be lovely to meet you.

Ali xx

>

> >

> > Dawn

> > I love Whitby, you are so lucky to live there! Sorry changing the

> subject a bit but it really is my favourite seaside place, I have been

> there so many times and never get bored of it!

>

> Yes I am lucky I luv it too, bit cold this time o year tho, North

> facing bay brrrrr lol.

> Please let me know if you are coming through at any time, we can have

> a cuppa somewhere and chat about thyroids Anyone in fact coming

> through this way would be great to meet up and chat health

>

> lotsa luv

> Dawnx

>

[Guest guest]

Hi All, I've decided not to take the useless stuff, and make another

appointment to see Dr P, for a bit of morale support!!

Best wishes

South.

Hi Sheila, I live near Middlesbrough. I think I might ask

Dr P to write a letter for me!

What do you think?

Best wishes

South.