Guest guest Posted October 23, 2004 Report Share Posted October 23, 2004 As far as Dr. Bihari goes......... I AM one of his patients, I believe in Him, His Work, and LDN. That of which I have been on for over 2 years now, and doing extremley well. I am and will be forever grateful to Dr. Bihahri for what he has given us. I also believe that we are close to getting the studies needed for LDN to get its FDA approval. But, whether under FDA approval or not, I've chosen to take the LDN, and Stay on it, because I Know it works. I'm not sure what research you have done, or how much you truly know about LDN and the benefits it has given to each of us on this site, but I believe I can speak for all of us in saying There ARE Benefits. Now, whether or not you chose to start LDN, is up to you. But I will ask you this~ You say you do a Solumedrol IV every month.. . . . How much "research"have you done on the "long term" effect on steriod usage? Yes, I have tried the ABC's, each one of them, and also did a few (i say a few too many) iv treatments, and I will tell you this, "I am not only doing so much better now, but am also more at peace with myself, knowing I am not putting all that crap into my body. I'm also more at peace, knowing that I am Not a part of the "money issue" when it comes to big pharmacutical companies. " I realize we are all different, each medication affects us in a different way. But, if you are doing all your "research" then hopefully you have done enough to know why we ALL believe in LDN. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2004 Report Share Posted October 23, 2004 I was wondering that exact same thing! I have an Opthamologist who told me himself that he didn't recommend anyone take the IV steroids too an extreme because 'they' don't know long term effects. Once per month sounds a little much to my way of thinking, but hey! Whatever! Marcie In a message dated 10/23/2004 11:03:33 AM Central Daylight Time, sunynbrite56@... writes: You say you do a Solumedrol IV every month.. . . . How much "research" have you done on the "long term" effect on steriod usage? Yes, I have tried the ABC's, each one of them, and also did a few (i say a few too many) iv treatments, and I will tell you this, "I am not only doing so much better now, but am also more at peace with myself, knowing I am not putting all that crap into my body Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2004 Report Share Posted October 23, 2004 What's your website? Was the call from Dr. Bihari HIMSELF? Or was it from the website owners of the low dose naltrexone.org site? As for what Dr. Bihari has done, that's really none of our business. You hear about LDN, you decide whether or not you want to try it or reject it, and you follow your own path in life. Unless you are a direct patient of his, he has nothing to do with you at all. I'm quite thankful for his allowing others to know about the protocol and that those who started LDN before me couldn't help but share what they knew. Dr. Bihari is no different than a neurologist having his patients shoot Copaxone every other day, or just 3 times a week on a Rebif schedule. If word started spreading that Copaxone works just as well 3 days a week as it does every single day, we'd start seeing the MS society say you have to take it every day, we'd see TEVA come out with Press Releases warning to take it every day, and all sorts of other commotion. What is your goal of joining this group? Who are you trying to preach to? People who aren't here, or people who are taking LDN and knowing first hand what benefits they're getting from it? Either way, who are you trying to reach and what is your message? If you don't want to take LDN, great, don't. If you do, then what's the problem? What's your agenda? ----- Original Message ----- From: Jelina Comittino Breakwell low dose naltrexone Sent: Saturday, October 23, 2004 03:51 Subject: [low dose naltrexone] you were right About one thing my original post was written with skepticism. Perhaps that was because of phone conversations 3 years ago between my husband who edits our website and Dr. Bihari soliciting a link from our website to his.Thats was before he edited his website to say that Copaxone could be used in conjunction with LDN. Perhaps that was because what was told to me about LDN by my former neurologist who is only my former because he moved out of state to open a MS clinic in Vermont.What you are incorrect about that the people of this group did not attack me judging by the amount of hate mail that has come to my mailbox from your caring and supportive network of members.In response to 2 questions what has the MS society done to sponsor a study of LDN? What has Dr. Bihari done to get one sponsored? No I am not on coidal.... oh crap I forget what was asked if I was on or not. But I am not on it. I am on Copaxone with a once a month infusion of solu medrol. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2004 Report Share Posted October 23, 2004 A monthly infusion of solumedrol is devastating to your immune system. I would have to be near death before I would allow another round of that particular treatment... it is known to have nasty long term side effects and hazards. LDN has none... ----- Original Message ----- From: Jelina Comittino Breakwell low dose naltrexone Sent: Saturday, October 23, 2004 12:51 AM Subject: [low dose naltrexone] you were right In response to 2 questions what has the MS society done to sponsor a study of LDN? What has Dr. Bihari done to get one sponsored? No I am not on coidal.... oh crap I forget what was asked if I was on or not. But I am not on it. I am on Copaxone with a once a month infusion of solu medrol. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2004 Report Share Posted October 23, 2004 I Do know that steriods, being used too long, can cause bone density damage. My mother, being on prednisone for 8 months, 4 yrs ago, has since had both shoulders and now having both knees replaced. Her Neuro said it was damage due to the Prednisone. My own Neuro agrees with what I found out myself, too much, for too long Will damage your bones later on. Imagine what 1000 mil. a day, for 5 days, then 2 weeks of prednisone after that could do? I'd rather not! I just know, I will NEVER do another IV treatment in life.. Steriods, ABC'S, all have their "down the road" effects. This is why I TRUST LDN. That, too, my Neuro agrees with. . . . nothing that can hurt me later on. And, Dr. Bihari has been taking it for 14 yrs. ~ no "later in life" effects. Oh, and just so you know, all you guys are really great. I get so much out of this site. It's nice knowing you're all here. Thank You Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2004 Report Share Posted October 23, 2004 What ever her agenda, she's the one with the arrogant and angry attitude. Maybe its those once a month shots of steroids, hum? They've been known to alter mood. I agree if she doesn't agree with LDN someone show her the virtual door. On 23-Oct-04, at 9:48 AM, LarryGC wrote: > What's your website? Was the call from Dr. Bihari HIMSELF? Or was it > from the website owners of the low dose naltrexone.org site? > > As for what Dr. Bihari has done, that's really none of our business. > You hear about LDN, you decide whether or not you want to try it or > reject it, and you follow your own path in life. Unless you are a > direct patient of his, he has nothing to do with you at all. I'm > quite thankful for his allowing others to know about the protocol and > that those who started LDN before me couldn't help but share what they > knew. > > Dr. Bihari is no different than a neurologist having his patients > shoot Copaxone every other day, or just 3 times a week on a Rebif > schedule. If word started spreading that Copaxone works just as well > 3 days a week as it does every single day, we'd start seeing the MS > society say you have to take it every day, we'd see TEVA come out with > Press Releases warning to take it every day, and all sorts of other > commotion. > > > > What is your goal of joining this group? Who are you trying to preach > to? People who aren't here, or people who are taking LDN and knowing > first hand what benefits they're getting from it? Either way, who are > you trying to reach and what is your message? > > If you don't want to take LDN, great, don't. If you do, then what's > the problem? > > What's your agenda? > > ----- Original Message ----- > From: Jelina Comittino Breakwell > low dose naltrexone > Sent: Saturday, October 23, 2004 03:51 > Subject: [low dose naltrexone] you were right > > > > About one thing my original post was written with skepticism. Perhaps > that was because of phone conversations 3 years ago between my > husband who edits our website and Dr. Bihari soliciting a link from > our website to his.Thats was before he edited his website to say that > Copaxone could be used in conjunction with LDN. Perhaps that was > because what was told to me about LDN by my former neurologist who is > only my former because he moved out of state to open a MS clinic in > Vermont. > What you are incorrect about that the people of this group did not > attack me judging by the amount of hate mail that has come to my > mailbox from your caring and supportive network of members. > > In response to 2 questions what has the MS society done to sponsor a > study of LDN? What has Dr. Bihari done to get one sponsored? > No I am not on coidal.... oh crap I forget what was asked if I was > on or not. But I am not on it. I am on Copaxone with a once a month > infusion of solu medrol. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2004 Report Share Posted October 23, 2004 My one and only round of IV steroids made me understand a little better those crimes that are committed by people who are normally kind and gentle souls. The mood altering capability of steroids is amazing. Of course I can't excuse post partum infanticide, etc, but I do have a far greater understanding of the loss of control over ones emotions and inhibitions that can be caused by hormonal and chemical imbalances. Dangerous stuff. ----- Original Message ----- From: Kathy Huget low dose naltrexone Sent: Saturday, October 23, 2004 2:48 PM Subject: Re: [low dose naltrexone] you were right What ever her agenda, she's the one with the arrogant and angry attitude. Maybe its those once a month shots of steroids, hum? They've been known to alter mood. I agree if she doesn't agree with LDN someone show her the virtual door. .. Quote Link to comment Share on other sites More sharing options...
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