Re: How many mser's happy with LDN results started years after diagnosis?

[Guest guest]

I have had MS for 27 years and had tried Avonex in the past with awful

results. I have been on LDN for two weeks and feel much better - less fatigue,

walking straighter, etc. I think I am going to stick with it. Much cheaper.

VCL

So many people are reporting great results using LDN for MS. I'm

wondering how advanced your condition and how long after diagnosis

you started using it. Also, how long did you use it before you were

able to detect significant change? What change was that? Thanks.

[Guest guest]

what stage are u, rrms, spms

ppms?

----- Original Message -----

From: <manchester_terrier@...>

<low dose naltrexone >

Sent: Tuesday, November 02, 2004 6:08 PM

Subject: Re: [low dose naltrexone] How many mser's happy with LDN results

started years after diagnosis?

> I have had MS for 27 years and had tried Avonex in the past with awful

> results. I have been on LDN for two weeks and feel much better - less

fatigue,

> walking straighter, etc. I think I am going to stick with it. Much

cheaper.

>

> VCL

>

>

>

>

>

>

>

>

>

[Guest guest]

I am in spsm stage. Have never taken any ABCR drugs for MS. Was

diagnosed in 1994. Could have been diagnosed, at least 10yrs earlier

if symptoms more pronounced and MRI had been available. Tried 1.75mg

LDN for 2 months with severe reactions. Trying to decide about trying

3 mg. Thanks.

--- In low dose naltrexone , " ryoung " <ryoung11@c...>

wrote:

> what stage are u, rrms, spms

> ppms?

>

> ----- Original Message -----

> From: <manchester_terrier@i...>

> <low dose naltrexone >

> Sent: Tuesday, November 02, 2004 6:08 PM

> Subject: Re: [low dose naltrexone] How many mser's happy with LDN

results

> started years after diagnosis?

>

>

> > I have had MS for 27 years and had tried Avonex in the past with

awful

> > results. I have been on LDN for two weeks and feel much better -

less

> fatigue,

> > walking straighter, etc. I think I am going to stick with it.

Much

> cheaper.

> >

> > VCL

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

>

> So many people are reporting great results using LDN for MS. I'm

> wondering how advanced your condition and how long after diagnosis

> you started using it. Also, how long did you use it before you were

> able to detect significant change? What change was that? Thanks.

==============

Low Dose Naltrexone Forum - Links to my before LDN & after LDN story

http://ldn.proboards3.com/index.cgi?board=personal & action=display & num=1079136805

[Guest guest]

Hi There - I started LDN 2 months after I was dx'd with MS. My

overall condition is good, very few physical symptoms - but I have

had major fatigue, visual and other facial / sensory problems. I saw

some major positive results within two days - less fatigue, better

attitude - better coping skills. Have lost 100 pounds since April,

just because of my increased ability (and desire) to be active.

I have been on LDN for 200 days. Pre LDN I had two flairups - 45 days

apart - both mostly facial issues and visual problems. Since being on

LDN I have had one flairup - again the facial thing and this time, a

total loss of hearing in my right ear - at about 6 months or 170

days. It was uncomfortable, but I managed to continue working. Still

can't hear in my right ear - but overall, doing well, my face is

now " normal. "

My energy has remained great - as has my mood. I did not begin

sleeping good until about 5.5 months, but have continued to see

improvement there also, even during the latest flairup.

Also - totally aside, I have all my life (and I am 47) had extreme

seasonal allergies. On the LDN, both Spring and Fall allergy symptoms

have been zero for me - nothing. Not even a sneeze. It's been great.

I know the LDN does not effect everyone like that, but for me it is

the best allergy med. ever!!!

Cinders

[Guest guest]

Hi ,

RRMS here since 1985. I started taking copaxone 7 or 8 years ago.

The only thing I got from it was atrophy at the injection site,

and " knots " at the injection site making it impossible to inject. I

never knew if it was really helping me as my MRI's have only been 2

since my diagnosis, which I still don't understand. Anyway, after

researching LDN for almost 2 months, I decided to try it. I began on

Sept. 29 of this year. My new birthday! LOL! The VERY next day I

noticed amazing energy that I hadn't seen in close to 10 years! And I

have energy every day now! Also, I noticed that the leg tremors

that I got at night totally disappeared! They used to keep me up

sometimes all night. Now, if I get them, as soon as I take LDN, they

are gone within 5 minutes of taking it. It amazes me! I am also

noticing a slow but gradual improvement in my bladder function and my

balance as well. My neuro agreed to prescribe LDN for me after I

threatened to get it elsewhere. He actually made me promise not to

tell anyone he prescribed it for me! LOL! He never even looked at

the info I had for him on LDN. Since taking LDN, I stopped taking

the Copaxone, which my neuro doesn't know yet. He will not be

pleased about that, but tough! All I can say is LDN has changed my

life. I am now able to do things after work if I choose, something I

haven't been able to do in years. I was always too tired. I can't

wait to go back to my neuro and tell him how great LDN is working for

me. Maybe, just maybe, he will look further into it. Although I

doubt it. All I can say is ife restarted for me when I started

taking LDN and I plan on taking it for as long as I can! :-)

Joan

[Guest guest]

Joan, can I suggest you make a concise list of the changes? If you can present him with concise info on paper perhaps he will eventually consider LDN for other patients...

JT

----- Original Message -----

From: jdgcasac

low dose naltrexone

Sent: Thursday, November 04, 2004 10:29 AM

Subject: [low dose naltrexone] Re: How many mser's happy with LDN results started years after diagnosis?

Hi , RRMS here since 1985. I started taking copaxone 7 or 8 years ago. The only thing I got from it was atrophy at the injection site, and "knots" at the injection site making it impossible to inject. I never knew if it was really helping me as my MRI's have only been 2 since my diagnosis, which I still don't understand. Anyway, after researching LDN for almost 2 months, I decided to try it. I began on Sept. 29 of this year. My new birthday! LOL! The VERY next day I noticed amazing energy that I hadn't seen in close to 10 years! And I have energy every day now! Also, I noticed that the leg tremors that I got at night totally disappeared! They used to keep me up sometimes all night. Now, if I get them, as soon as I take LDN, they are gone within 5 minutes of taking it. It amazes me! I am also noticing a slow but gradual improvement in my bladder function and my balance as well. My neuro agreed to prescribe LDN for me after I threatened to get it elsewhere. He actually made me promise not to tell anyone he prescribed it for me! LOL! He never even looked at the info I had for him on LDN. Since taking LDN, I stopped taking the Copaxone, which my neuro doesn't know yet. He will not be pleased about that, but tough! All I can say is LDN has changed my life. I am now able to do things after work if I choose, something I haven't been able to do in years. I was always too tired. I can't wait to go back to my neuro and tell him how great LDN is working for me. Maybe, just maybe, he will look further into it. Although I doubt it. All I can say is ife restarted for me when I started taking LDN and I plan on taking it for as long as I can! :-) Joan

[Guest guest]

Joan do you think your nuero will listen to you now especially after the new findings on Copaxone are released?

I just feel so vindicated right now

Probably those results (the nonstopping of MSprogress) are why copax works along with LDN as it wasn't really doing anything anyway.

Reg.

-------Original Message-------

From: low dose naltrexone

Date: 11/04/04 11:31:13

low dose naltrexone

Subject: [low dose naltrexone] Re: How many mser's happy with LDN results started years after diagnosis?

Hi , RRMS here since 1985. I started taking copaxone 7 or 8 years ago. The only thing I got from it was atrophy at the injection site, and "knots" at the injection site making it impossible to inject. I never knew if it was really helping me as my MRI's have only been 2 since my diagnosis, which I still don't understand. Anyway, after researching LDN for almost 2 months, I decided to try it. I began on Sept. 29 of this year. My new birthday! LOL! The VERY next day I noticed amazing energy that I hadn't seen in close to 10 years! And I have energy every day now! Also, I noticed that the leg tremors that I got at night totally disappeared! They used to keep me up sometimes all night. Now, if I get them, as soon as I take LDN, they are gone within 5 minutes of taking it. It amazes me! I am also noticing a slow but gradual improvement in my bladder function and my balance as well. My neuro agreed to prescribe LDN for me after I threatened to get it elsewhere. He actually made me promise not to tell anyone he prescribed it for me! LOL! He never even looked at the info I had for him on LDN. Since taking LDN, I stopped taking the Copaxone, which my neuro doesn't know yet. He will not be pleased about that, but tough! All I can say is LDN has changed my life. I am now able to do things after work if I choose, something I haven't been able to do in years. I was always too tired. I can't wait to go back to my neuro and tell him how great LDN is working for me. Maybe, just maybe, he will look further into it. Although I doubt it. All I can say is ife restarted for me when I started taking LDN and I plan on taking it for as long as I can! :-) Joan

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

[Guest guest]

> Joan, can I suggest you make a concise list of the changes?

JT, I planned on doing exactly that!

Joan

[Guest guest]

--- In low dose naltrexone , " Reg Kreil " <regkreil@h...>

wrote:

> Joan do you think your nuero will listen to you now especially

after the new

> findings on Copaxone are released?

Reg...One can only hope! I had always thought of my neuro as an open

minded doctor. But over the years...19 to be exact, no...only in the

last 8-10 years have I seen him change a bit. Ironic, as it was

about then that he started me on the Copaxone. I think it was about

2 years prior that the FDA approved it for use here in the states.

He knows that I am big on getting my information online. I sometimes

think that makes him nervous, as silly as that sounds. Lets face it

the age of computers has given the world a new way to obtain info

that was previously unavailable, or difficult to get at just your

local library. My doctor many others are going to have to face it,

the information age has put their patients at an advantage that has

to make doctors think a little more before shutting their patients

ideas out. If he shuts my LDN info out...I will seek out another

doctor and I will make that clear to him. Forgive me my ramblings, I

just get so hot under the collar about this subject!

Joan

[Guest guest]

hi joan

i live in australia and find my docs the same. they had know ides about it. although my gp has now given it to me and read some stuff he is holding his judgement, thats ok so i am, just started taking it last night. i have the highest of hopes. i have researched the stuff for 2 months. all the people on this give me so much info it is great. i think i know what i might expect. so here goes. by the way my doc and me decide to say that because of my disease i have become alchol dependant....which i'm not. it is the only way to obtain it without paying big bucks

thank you all so much

raelene

-------Original Message-------

From: low dose naltrexone

Date: 11/05/04 08:24:53

low dose naltrexone

Subject: [low dose naltrexone] Re: How many mser's happy with LDN results started years after diagnosis?

> Joan do you think your nuero will listen to you now especially after the new> findings on Copaxone are released?Reg...One can only hope! I had always thought of my neuro as an open minded doctor. But over the years...19 to be exact, no...only in the last 8-10 years have I seen him change a bit. Ironic, as it was about then that he started me on the Copaxone. I think it was about 2 years prior that the FDA approved it for use here in the states. He knows that I am big on getting my information online. I sometimes think that makes him nervous, as silly as that sounds. Lets face it the age of computers has given the world a new way to obtain info that was previously unavailable, or difficult to get at just your local library. My doctor many others are going to have to face it, the information age has put their patients at an advantage that has to make doctors think a little more before shutting their patients ideas out. If he shuts my LDN info out...I will seek out another doctor and I will make that clear to him. Forgive me my ramblings, I just get so hot under the collar about this subject!Joan

[Guest guest]

Hi ,

Between August 2002 and May of 2003, when I was diagnosed, I had 2

exacerbations and 3 MRI's. I tried Avonex for 5 months during which

I had another exacerbation and I continued to progress. I stopped

taking it in Feb 2004. That April I began taking LDN. The first day

I noticed a difference. More energy, emotionally I felt normal

again, and as time has passed my symptoms have improved. I had

muscle spasms, burning, numbness, trouble speaking and swallowing,

sleeping, thinking, making decisions and walking. All of these

problems have improved or disappeared. The only thing that I can say

is still a problem is fatigue. I am not as tired as before LDN but I

am still tired.

I think even if this drug does not help much with your symptoms, it

seems to be a good alternative to anti-depressants. I've tried

both...LDN is the winner!

I hope this helped.

God Bless,

Penny

>

> So many people are reporting great results using LDN for MS. I'm

> wondering how advanced your condition and how long after diagnosis

> you started using it. Also, how long did you use it before you

were

> able to detect significant change? What change was that? Thanks.

[Guest guest]

Hi ,

I have had MS for 27 years and started LDN in June of 2003. I think that I have had great results. I immediately saw changes in my sleep, my numbness, my spasms, my balance and my emotional health. I am on 4.5 mg since the beginning but I did go to 3 mg for a short time. I had an MRI and there was no progression of the disease.

My husbands nephew was diagnosed with MS last spring. He got on LDN and saw immediate results. Now he doesn't even feel like he has MS>

Marie

----- Original Message -----

From: linda_ssk

low dose naltrexone

Sent: Tuesday, November 02, 2004 4:07 PM

Subject: [low dose naltrexone] How many mser's happy with LDN results started years after diagnosis?

So many people are reporting great results using LDN for MS. I'm wondering how advanced your condition and how long after diagnosis you started using it. Also, how long did you use it before you were able to detect significant change? What change was that? Thanks.

[Guest guest]

Does DX date count, or once DX'd realizing MS Events from way way back? When I was DX 7/02 I immediately thought of my Mystery illness in September 1981. A few months ago I was talking to friends about an incident in 1978 and then realized that that was MS related symptoms!

When I was DX in 2002 I realized I've been having annual flares since 1992.

I refused the CRABs in 02 and begged for LDN since I heard about it, started 4/17/03, 576 days ago.

Never used any other medicines except Advair, and antibiotics way too many times throughout the years.

I don't take many vitamins, never a daily regimen of them, and rarely even take alleve, ecotrin or sinus/allergy pain relievers.

The only thing I do daily is LDN, usually between 12:50 and 1:20AM.

----- Original Message -----

From: Sisk

low dose naltrexone

Sent: Friday, November 12, 2004 15:45

Subject: Re: [low dose naltrexone] How many mser's happy with LDN results started years after diagnosis?

Thanks, Marie.

Had you used any medications for MS before you started LDN? You and your husband's nephew seem to have had excellent results using it. Probably the most encouraging report I've heard yet. I hope you continue to see such improvements. The verdict about using it is still out for me.

Thanks so much for writing.

Marie Deady <Mardea@...> wrote:

Hi ,

I have had MS for 27 years and started LDN in June of 2003. I think that I have had great results. I immediately saw changes in my sleep, my numbness, my spasms, my balance and my emotional health. I am on 4.5 mg since the beginning but I did go to 3 mg for a short time. I had an MRI and there was no progression of the disease.

My husbands nephew was diagnosed with MS last spring. He got on LDN and saw immediate results. Now he doesn't even feel like he has MS>

Marie

----- Original Message -----

From: linda_ssk

low dose naltrexone

Sent: Tuesday, November 02, 2004 4:07 PM

Subject: [low dose naltrexone] How many mser's happy with LDN results started years after diagnosis?

So many people are reporting great results using LDN for MS. I'm wondering how advanced your condition and how long after diagnosis you started using it. Also, how long did you use it before you were able to detect significant change? What change was that? Thanks.