RE: Re: Good news Bad news : Sheila you can use this if you wish

[Guest guest]

Hi

The

one thing that is screaming out right now is that you are NOT on a high enough

dose of levothyroxine. This needs to be increased by 25 mcgs every 6 weeks or

so until you get rid of your symptoms. 75 mcgs is a reasonably low dose and the

average dose (here in the UK anyway) is around 125 to 150 mcgs. Ask your GP for

a trial of an increase as your symptoms are not going away 9and actually

getting worse) on 75 mcgs.

You

should also get the 24 hour salivary adrenal profile done through Genova

Diagnostics. This tests your cortisol and DHEA at four specific times

during the day. If this is low, no amount of thyroid hormone replacement can be

absorbed and you will get a toxic effect if your levothyroxine (T4) is not

converting to the active hormone t3 - which is a distinct possibility because

of what you have written. Depending upon your results, if very low, you need

adrenal supplementation. Read Dr Peatfield's paper on the thyroid/adrenal

connection. Go to our website www.tpa-uk.org.uk

and click on 'Hypothyroidism - then click on Associated Conditions - then click

on Adrenals. This should help you understand what we are talking about and the

necessity to treat this condition immediately.

Have

you had your ferritin (stored iron), Vitamin B12 and Vitamin D checked by your

GP. If not, ask him to do these tests to rule out any of these being the cause

of your problems.

You

definitely need to push your GP into getting you an urgent referral to the

endocrinologist at Addenbrookes.

Would

you be prepared to see a private doctor - if so, let me know.

Luv -

Sheila

Its very difficult to get people to understand what is wrong with you

and that just because you have a diagnosis it doesn't necessarily mean

you feel any better!! I can hardly sit and explain it to everyone I

meet. If I had a broken leg or had gone blind for example it would be

imediately obvious - a brain which doesn't work properly isn't!!

Over the past few months new 'weird' symptoms have crept in which I

haven't even been to my GP about for fear he'll think I'm

hypochondriac not just hypo T!!! Intermittently I get a niggling pain

in my back/kidney region, nausea, feeling of needing the loo/pressure

all the time particularly when standing/walking, continuous ringing in

ears (tinnitus), nasal congestion, tiredness to the point of

exhaustion, plus all the previous hypo T stuff I mentioned.

So I guess its yet another phone call to the surgery to ask them to

'remind'(lol) GP to chase up the Addenbrooke's referral in the hope

they may listen where others have failed to. Work is a continual

struggle - I can hardly wear a sign which explains my problems. I'm

beginning to think the only solution is to try to find a job which is

more 'routine' or 'manual' which doesn't require use of a brain but

have yet to come up with one!!

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