Guest guest Posted September 24, 2008 Report Share Posted September 24, 2008 Did you fast overnight for the blood glucose test ? If he took the blood without this and you tested as high sugar then I think a fasting one is required to get an accurate picture. Do you have any of the symptoms of diabetes? Mo Just got back from my appointment, he was actually a nice enough man, but did rubbish my adrenal profile results as very inaccurate, I pointed out the grey areas between s and Cushings but he didnt seem to agree, he has advised I stop the HC so they can do their adrenal tests, when I saw Dr P and he did the adrenal tests on me he didnt seem to think my adrenals were too bad and it was me who asked him if I could start the HC, he didnt tell me at our meeting to start it, so I think I will boost my adrenals in other ways and gradually reduce the HC. The endo did say I could just stop as I havent been on it long, 5 weeks but not at full 20mg dose, but I said I would prefer to withdraw slowly. He took bloods etc and there were traces of sugar in my urine so hes took blood for diabeties too, maybe thats why I havent felt well?! Who knows. He did say I could go back straight on 150mcg of T4 but I said no way! I said I would wait until I get the bloods back from today and see where my levels lie. So all in all I did know what he would say and no surprises really. He did say the 20mcg of HC would be too much if my adrenal were ok and could cause me problems, weight gain etc and I said well it hasnt made me feel any better!I dont think I should have a problen stopping the HC but will taper it anywayDo you value your online security? - http://www.tiscali.co.uk/security ________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2008 Report Share Posted September 24, 2008 The sugar just showed in my urine Mo, I did think that the blood one should be fasting, but they took blood for that anyway. No I dont show any symptoms of diabeties apart from the tiredness. Could you tell me Mo where to order an accurate thermometer from if you know of anywhere?--- On Wed, 24/9/08, moosborne@... <moosborne@...> Did you fast overnight for the blood glucose test ? Mo Just got back from my appointment, he was actually a nice enough man, but did rubbish my adrenal profile results as very inaccurate, I pointed out the grey areas between s and Cushings but he didnt seem to agree, he has advised I stop the HC so they can do their adrenal tests, when I saw Dr P and he did the adrenal tests on me he didnt seem to think my adrenals were too bad and it was me who asked him if I could start the HC, he didnt tell me at our meeting to start it, so I think I will boost my adrenals in other ways and gradually reduce the HC. The endo did say I could just stop as I havent been on it long, 5 weeks but not at full 20mg dose, but I said I would prefer to withdraw slowly. He took bloods etc and there were traces of sugar in my urine so hes took blood for diabeties too, maybe thats why I havent felt well?! Who knows. He did say I could go back straight on 150mcg of T4 but I said no way! I said I would wait until I get the bloods back from today and see where my levels lie. So all in all I did know what he would say and no surprises really. He did say the 20mcg of HC would be too much if my adrenal were ok and could cause me problems, weight gain etc and I said well it hasnt made me feel any better!I dont think I should have a problen stopping the HC but will taper it anyway Do you value your online security? - http://www.tiscali. co.uk/security ____________ _________ _________ _________ _________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2008 Report Share Posted October 23, 2008 Hi sheila and all I'm off to see Dr B again tomorrow. I'm not really quite sure what I am going to say. It is now ten weeks since my last dose increase currently on T4 125mcg and T3 20mcg I think I am starting to feel better but I am frightened that it will stop. I am slowly losing weight 3lbs in last 3 weeks I feel really happy and optimistic but I don't know why does this make any sense. I am still having the thigh pains but on and off. I look better when I look in the mirror. My basal temps on days 2-5 were 97.5 - 97.3. I was going to ask him for Armour but I don't want to rock the boat as things may be starting to work, but I'm not sure. My legs feel as though they are bruised when I touch certain areas on my thighs really tender but they are'nt bruised. Perhaps I may only need a small increase this time and I may have cracked it but not knowing my blood levels until I go into see him is a nuisance. It would be great if we could have them before hand then I could think about what I might ask for. This is such a rambling message sorry! but it does help to put it down on paper if you see what I mean. Love Lizzie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2008 Report Share Posted October 23, 2008 I wonder if this could be Fibromyalgia. Ask Dr B about this. There are specific areas in your body that are tender points with this disease. Do you have pain elsewhere or feelings of tenderness Lizzie. Luv - Sheila .. I will be keeping this to myself. After saying that I have been feeling better I have had the worst afternoon in a while with sore legs. They really do feel as thought they are bruised and very tender. any ideas? Love Lizzie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2008 Report Share Posted October 31, 2008 Hi Everyone well a week has now passed since my cancelled appointment. So off I will be trotting in an hour or so to see Dr B. I don't think I will mention fibromyalgia specifically because I think he will wash his hands of me and tell me it is something entirely disconnected with hypo. I believe not after researching the condition. I will tell him that I have felt some improvement since last dose increase but not as much as I would have liked. I may ask for an increase in T3 and a decrease in T4 and see what he says about that or if I am feeling really brave I may ask for a trial of Armour. Watch this space. Love Lizzie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2008 Report Share Posted October 31, 2008 Hi Lizzie, I hope your appointment goes well and look forward to hearing how it went. Love Alice <lassey@...> wrote: > > Hi Everyone > > well a week has now passed since my cancelled appointment. So off I > will be trotting in an hour or so to see Dr B. I don't think I will > mention fibromyalgia specifically because I think he will wash his > hands of me and tell me it is something entirely disconnected with > hypo. I believe not after researching the condition. I will tell him > that I have felt some improvement since last dose increase but not as > much as I would have liked. I may ask for an increase in T3 and a > decrease in T4 and see what he says about that or if I am feeling > really brave I may ask for a trial of Armour. Watch this space. > > Love Lizzie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2008 Report Share Posted October 31, 2008 Good luck Lizzie - I will be thinking about you. Be brave - and ask, otherwise you will never know. Luv - Sheila Hi Everyone well a week has now passed since my cancelled appointment. So off I will be trotting in an hour or so to see Dr B. I don't think I will mention fibromyalgia specifically because I think he will wash his hands of me and tell me it is something entirely disconnected with hypo. I believe not after researching the condition. I will tell him that I have felt some improvement since last dose increase but not as much as I would have liked. I may ask for an increase in T3 and a decrease in T4 and see what he says about that or if I am feeling really brave I may ask for a trial of Armour. Watch this space. Love Lizzie _,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2008 Report Share Posted October 31, 2008 Hi Sheila and Everyone Well I've been to see Dr B. He was lovely, I was the last patient in an overun clinic and he had plenty of time for me. My blood results were as follows:- T4 11.1 T3 5.4 TSH 0.11 antibodies 19 I told him that I had felt some improvement but that it had stopped and that my leg pains had continued throughout. He said that an increase was needed but which one. I suggested T3 but he said that as it was nearer to the top of the range and T4 was nearer to the bottom of the range it would make more sense to put up the T4 as it would bring up the T3 as well. So I am to increase T4 from 125mcg to 150mcg alternate days for four weeks and then if I feel okay no hyper symptoms to take 150mcg daily. I have a further appointment to see him in eight weeks time. He also said any problems to get in touch. I feel quite pleased with this as I may just be having the leg pains because I have still not settled on the correct dose. Thank you to you all for your support. Love Lizzie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 I am so pleased he was supportive of you Lizzie. I would keep a daily diary of everything that happens to you and also chart your temperatures as per Dr Rind's theory. That way, you will be able to get an idea of what is happening. I hope you are able to convert the T4, but if you do get any adverse affects, don't hang on this time, do contact Dr B immediately. Let's hope this works for you. Did you get to mention Armour at all? Luv - Sheila Hi Sheila and Everyone Well I've been to see Dr B. He was lovely, I was the last patient in an overun clinic and he had plenty of time for me. My blood results were as follows:- T4 11.1 T3 5.4 TSH 0.11 antibodies 19 I told him that I had felt some improvement but that it had stopped and that my leg pains had continued throughout. He said that an increase was needed but which one. I suggested T3 but he said that as it was nearer to the top of the range and T4 was nearer to the bottom of the range it would make more sense to put up the T4 as it would bring up the T3 as well. So I am to increase T4 from 125mcg to 150mcg alternate days for four weeks and then if I feel okay no hyper symptoms to take 150mcg daily. I have a further appointment to see him in eight weeks time. He also said any problems to get in touch. I feel quite pleased with this as I may just be having the leg pains because I have still not settled on the correct dose. Thank you to you all for your support. Love Lizzie _,_._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2009 Report Share Posted April 29, 2009 Hi , I am going to have a good think about this before I do anything. I orginally thought when I first started the Iodine Protocol that I would be taking Iodoral for around 3 months and then would wean myself off of it but as my blood test is not a good as I had hoped for I need to rethink this especially as I am currently not on any thyroid meds. I would love my endo to get it, but really the test is for me. I want to know whether iodine has had real lasting benefit on my thyroid and that my goiter does not come swiftly back once I stop iodine. I do realise the importance of iodine and within this last month decided that I would continue taking 50mg of Iodoral for another 3 months and then would reduce my quantity to around 12.5mg once I had my conversion issue under control and I was on Armour. > > Honestly I don't think I would go off my iodine for that purpose. You are hurting your body with ups and downs as you try to heal. I understand how you would like to help this doctor to " get it " but it will be at the expense of your own well being and I personally would not trade that. He would be better of to try it on others and see how they do on it. There is a chance it will grow after 6 weeks but I doubt it would be anything drastic unless you are consuming goitrogenic foods and toxic halides. > > > > > Endo Visit > > > > > > Hi , > > Today I had my first endo appt after 3 months of Iodoral and I was actually surprised by the French endo. He is due to retire in July but wants me back to see him before then as he is researching iodine. He nearly fell off his chair when I told him I was taking 50mg Iodoral. He inspected my thyroid, as it is no longer a goiter and then looked at my scan from Jan 2009. He told me that my 3cm nodule has gone! > > He asked me how much longer I was considering taking Iodoral and I told him that I wanted to continue for another 3 months. He then asked me a favour. He wants me to come off of iodine for 6 weeks so he can study me. He wants me to have another scan with the same doctor who scanned me in Jan (he emphasised that it needed to be the same doctor) and have blood tests too. He wants to see whether the Iodoral has cured my goiter. > > If I come off Iodoral for 6 weeks do you think there is a chance that my goiter will start to grow again? After 17 years of having a goiter I really do not want to go back. Can I stop or do I need to drop my dosage over the week? I would like to do this especially if I can spread the words " iodine is good for your thyroid " . I was talking to someone on STTM who had her goiter removed JUST because it was too big!!! I could not believe it. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2009 Report Share Posted April 29, 2009 I see what you are doing and I understand your logic but speaking as someone who considers Iodine my insurance policy against cancer I would never give this up. They will pry it from my cold dead hands. I don't believe anyone can never take it again and the iodine docs are starting to see that 50 mgs is the maintenance dose due to all the toxic halides we are bombarded with - flame retardants in electronics, fabric, carpeting, cars and the list goes on. Steph Endo Visit> > > > > > Hi ,> > Today I had my first endo appt after 3 months of Iodoral and I was actually surprised by the French endo. He is due to retire in July but wants me back to see him before then as he is researching iodine. He nearly fell off his chair when I told him I was taking 50mg Iodoral. He inspected my thyroid, as it is no longer a goiter and then looked at my scan from Jan 2009. He told me that my 3cm nodule has gone! > > He asked me how much longer I was considering taking Iodoral and I told him that I wanted to continue for another 3 months. He then asked me a favour. He wants me to come off of iodine for 6 weeks so he can study me. He wants me to have another scan with the same doctor who scanned me in Jan (he emphasised that it needed to be the same doctor) and have blood tests too. He wants to see whether the Iodoral has cured my goiter.> > If I come off Iodoral for 6 weeks do you think there is a chance that my goiter will start to grow again? After 17 years of having a goiter I really do not want to go back. Can I stop or do I need to drop my dosage over the week? I would like to do this especially if I can spread the words "iodine is good for your thyroid". I was talking to someone on STTM who had her goiter removed JUST because it was too big!!! I could not believe it.> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2009 Report Share Posted April 29, 2009 Hi ,I agree with in that I wouldn't go off iodine and hurt my health just for a doc! :)But that said, what exactly does the endo want you to go off iodine for? To see if the iodine " cured " the goiter? That is a sort of oxymoron... well, what i mean is that your body needs iodine so it grows a goiter to try to seek more iodine (the thyroid enlarging seeking more iodine and to try to work better with what it's got.) So your body NEEDS the iodine. I'm working with my nutritionist, but so far it sees that people NEED a fair amount of iodine just for good health, forget about correcting problems! As a species, it seems humans " grew up " near the oceans and took in a lot of iodine and that is how our bodies work best, so even after healing various issues, we still need much more iodine than the RDA. It seems that for some 12 mg is a maintenance dose for good health. Remember that the thyroid is not at all the only organ in the body that needs iodine to function. So even if your thyroid is getting enough and you have no more goiter, the rest of your body still loves iodine! Also, you mention a conversion issue. Do you mean T4 to T3? Or do you mean you have a problem with Reverse T3? Something that has helped me with a Reverse T3 issue is taking a combination of Wild Yam and Chinese Skullcap tinctures. Robin F.On Wed, Apr 29, 2009 at 9:22 AM, elcyd23 <cindychurch@...> wrote: Hi , I am going to have a good think about this before I do anything. I orginally thought when I first started the Iodine Protocol that I would be taking Iodoral for around 3 months and then would wean myself off of it but as my blood test is not a good as I had hoped for I need to rethink this especially as I am currently not on any thyroid meds. I would love my endo to get it, but really the test is for me. I want to know whether iodine has had real lasting benefit on my thyroid and that my goiter does not come swiftly back once I stop iodine. I do realise the importance of iodine and within this last month decided that I would continue taking 50mg of Iodoral for another 3 months and then would reduce my quantity to around 12.5mg once I had my conversion issue under control and I was on Armour. > > Honestly I don't think I would go off my iodine for that purpose. You are hurting your body with ups and downs as you try to heal. I understand how you would like to help this doctor to " get it " but it will be at the expense of your own well being and I personally would not trade that. He would be better of to try it on others and see how they do on it. There is a chance it will grow after 6 weeks but I doubt it would be anything drastic unless you are consuming goitrogenic foods and toxic halides. > > > > > Endo Visit > > > > > > Hi , > > Today I had my first endo appt after 3 months of Iodoral and I was actually surprised by the French endo. He is due to retire in July but wants me back to see him before then as he is researching iodine. He nearly fell off his chair when I told him I was taking 50mg Iodoral. He inspected my thyroid, as it is no longer a goiter and then looked at my scan from Jan 2009. He told me that my 3cm nodule has gone! > > He asked me how much longer I was considering taking Iodoral and I told him that I wanted to continue for another 3 months. He then asked me a favour. He wants me to come off of iodine for 6 weeks so he can study me. He wants me to have another scan with the same doctor who scanned me in Jan (he emphasised that it needed to be the same doctor) and have blood tests too. He wants to see whether the Iodoral has cured my goiter. > > If I come off Iodoral for 6 weeks do you think there is a chance that my goiter will start to grow again? After 17 years of having a goiter I really do not want to go back. Can I stop or do I need to drop my dosage over the week? I would like to do this especially if I can spread the words " iodine is good for your thyroid " . I was talking to someone on STTM who had her goiter removed JUST because it was too big!!! I could not believe it. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2009 Report Share Posted April 29, 2009 By the way, when I said 12 mg as a daily maintenance dose, I meant only for the thyroid's daily use... many people need more for the rest of their bodies, and as mentioned, for the daily bombardment of toxins. Robin F.On Wed, Apr 29, 2009 at 12:26 PM, Robin Fletcher <stargirl277@...> wrote: Hi ,I agree with in that I wouldn't go off iodine and hurt my health just for a doc! But that said, what exactly does the endo want you to go off iodine for? To see if the iodine " cured " the goiter? That is a sort of oxymoron... well, what i mean is that your body needs iodine so it grows a goiter to try to seek more iodine (the thyroid enlarging seeking more iodine and to try to work better with what it's got.) So your body NEEDS the iodine. I'm working with my nutritionist, but so far it sees that people NEED a fair amount of iodine just for good health, forget about correcting problems! As a species, it seems humans " grew up " near the oceans and took in a lot of iodine and that is how our bodies work best, so even after healing various issues, we still need much more iodine than the RDA. It seems that for some 12 mg is a maintenance dose for good health. Remember that the thyroid is not at all the only organ in the body that needs iodine to function. So even if your thyroid is getting enough and you have no more goiter, the rest of your body still loves iodine! Also, you mention a conversion issue. Do you mean T4 to T3? Or do you mean you have a problem with Reverse T3? Something that has helped me with a Reverse T3 issue is taking a combination of Wild Yam and Chinese Skullcap tinctures. Robin F.On Wed, Apr 29, 2009 at 9:22 AM, elcyd23 <cindychurch@...> wrote: Hi , I am going to have a good think about this before I do anything. I orginally thought when I first started the Iodine Protocol that I would be taking Iodoral for around 3 months and then would wean myself off of it but as my blood test is not a good as I had hoped for I need to rethink this especially as I am currently not on any thyroid meds. I would love my endo to get it, but really the test is for me. I want to know whether iodine has had real lasting benefit on my thyroid and that my goiter does not come swiftly back once I stop iodine. I do realise the importance of iodine and within this last month decided that I would continue taking 50mg of Iodoral for another 3 months and then would reduce my quantity to around 12.5mg once I had my conversion issue under control and I was on Armour. > > Honestly I don't think I would go off my iodine for that purpose. You are hurting your body with ups and downs as you try to heal. I understand how you would like to help this doctor to " get it " but it will be at the expense of your own well being and I personally would not trade that. He would be better of to try it on others and see how they do on it. There is a chance it will grow after 6 weeks but I doubt it would be anything drastic unless you are consuming goitrogenic foods and toxic halides. > > > > > Endo Visit > > > > > > Hi , > > Today I had my first endo appt after 3 months of Iodoral and I was actually surprised by the French endo. He is due to retire in July but wants me back to see him before then as he is researching iodine. He nearly fell off his chair when I told him I was taking 50mg Iodoral. He inspected my thyroid, as it is no longer a goiter and then looked at my scan from Jan 2009. He told me that my 3cm nodule has gone! > > He asked me how much longer I was considering taking Iodoral and I told him that I wanted to continue for another 3 months. He then asked me a favour. He wants me to come off of iodine for 6 weeks so he can study me. He wants me to have another scan with the same doctor who scanned me in Jan (he emphasised that it needed to be the same doctor) and have blood tests too. He wants to see whether the Iodoral has cured my goiter. > > If I come off Iodoral for 6 weeks do you think there is a chance that my goiter will start to grow again? After 17 years of having a goiter I really do not want to go back. Can I stop or do I need to drop my dosage over the week? I would like to do this especially if I can spread the words " iodine is good for your thyroid " . I was talking to someone on STTM who had her goiter removed JUST because it was too big!!! I could not believe it. > > > Quote Link to comment Share on other sites More sharing options...
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