Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 Dear ADJ, I also just started taking LDN but at the 4.5 mg. dose. The thing I notice is that I am walking better (I do not feel like my right knee is going to give out), and I am a little less fatigued. But, those two things have made my life better so be thankful for the small stuff. I keep a calendar everyday and I put a big 'B' for bad day and " G' for a good day. I have had more G's lately. Take it easy. Every body is different! Peace! VCL I just started taking LDN (3mg) last Saturday night, 10/23/04. Then increasing to 4.5 mg after 7 days. I was just wondering and I know everyone is different but about how long before you notice any changes. Right now I sleep ok, been getting up about every two - three hours to urinate. That's normal for me. Had some dry mouth. Still have everything from before. Stiffness, Spasms. I know 2 days is not enough but I was just wondering how others reacted. Thanks. ADJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 That may be all you get but just hope for more. Reg. -------Original Message------- From: low dose naltrexone Date: 10/25/04 15:22:18 low dose naltrexone Subject: [low dose naltrexone] Those taking LDN I just started taking LDN (3mg) last Saturday night, 10/23/04.Then increasing to 4.5 mg after 7 days. I was just wondering and I know everyone is different but about how long before you notice any changes. Right now I sleep ok, been getting up about every two - three hours to urinate. That's normal for me. Had some dry mouth. Still have everything from before. Stiffness, Spasms. I know 2 days is not enough but I was just wondering how others reacted.Thanks.ADJ ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 Hi Thanks for your reply. unfotunately in australia we can't get LDN. Your G'S and B'S sound like an excellent idea Raelene -------Original Message------- From: low dose naltrexone Date: 10/26/04 07:36:34 low dose naltrexone Subject: Re: [low dose naltrexone] Those taking LDN Dear ADJ,I also just started taking LDN but at the 4.5 mg. dose. The thing I notice is that I am walking better (I do not feel like my right knee is going to give out), and I am a little less fatigued. But, those two things have made my life better so be thankful for the small stuff. I keep a calendar everyday and I put a big 'B' for bad day and "G' for a good day. I have had more G's lately.Take it easy. Every body is different! Peace!VCL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 Hi I live in Australia and we can't get LDN I want get hold of it. Heard heaps of good stuff about it.I need to talk to as many people as I can, and so far they have had good reports.....keep plugging away at it, at least you can get it. Raelene -------Original Message------- From: low dose naltrexone Date: 10/26/04 06:49:24 low dose naltrexone Subject: [low dose naltrexone] Those taking LDN I just started taking LDN (3mg) last Saturday night, 10/23/04.Then increasing to 4.5 mg after 7 days. I was just wondering and I know everyone is different but about how long before you notice any changes. Right now I sleep ok, been getting up about every two - three hours to urinate. That's normal for me. Had some dry mouth. Still have everything from before. Stiffness, Spasms. I know 2 days is not enough but I was just wondering how others reacted.Thanks.ADJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2004 Report Share Posted October 26, 2004 Hi ADJ, It sounds like your not feeling, WOW, much better and see an immediate difference. It's hard but try to give it a few weeks before you start to make an evaluation. It effects all of us differently, but I'm sure all will agree you need to give it some time. Best of luck to you, I hope things start to improve! -----Original Message----- From: adj022762 [mailto:adj022762@...] Sent: Monday, October 25, 2004 5:20 PM low dose naltrexone Subject: [low dose naltrexone] Those taking LDN I just started taking LDN (3mg) last Saturday night, 10/23/04. Then increasing to 4.5 mg after 7 days. I was just wondering and I know everyone is different but about how long before you notice any changes. Right now I sleep ok, been getting up about every two - three hours to urinate. That's normal for me. Had some dry mouth. Still have everything from before. Stiffness, Spasms. I know 2 days is not enough but I was just wondering how others reacted. Thanks. ADJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2004 Report Share Posted October 26, 2004 Raelene, If we cant get LDN in AUstralia, what the heck have I been taking all these months?lol Seriously, there are many of us here in Australia taking LDN, and in just my circle of MSer friends? - there are 5 of us. Friday > Hi > Thanks for your reply. unfotunately in australia we can't get LDN. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2004 Report Share Posted October 26, 2004 Try to not be discouraged. I just started LDN 4.5 a few weeks ago and have decided that the real test will be when I get my next MRI. If lesions are healed and things are looking good I'll know its working. I am also doing the Dr. Swank, Multiple Sclorosis Diet along with anything my MD, ND tells me to do. He has a lot of ideas of things to help me. However I did feel more energy immediately after taking the LDN, all else remains the same as I am in the middle of a new flare up and I know I may be stuck with it. We'll see. But things take time and we must be patient. For instance, with Dr. Swank's diet, he says it take a few years before you really know if it is working. I think it will be less time with the LDN from what I've been hearing but as my mom tells me " Be patient " and let it work. Take care and stay in touch, Alice --- In low dose naltrexone , " adj022762 " <adj022762@y...> wrote: > > I just started taking LDN (3mg) last Saturday night, 10/23/04. > Then increasing to 4.5 mg after 7 days. I was just wondering and I > know everyone is different but about how long before you notice any > changes. Right now I sleep ok, been getting up about every two - > three hours to urinate. That's normal for me. Had some dry mouth. > Still have everything from before. Stiffness, Spasms. I know 2 days > is not enough but I was just wondering how others reacted. > Thanks. > ADJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2004 Report Share Posted October 26, 2004 > I was just wondering how others reacted. Here is my experience with LDN: http://www.ldners.org/mission.htm SammyJo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2004 Report Share Posted October 26, 2004 Hello ADJ, i started 03-08-2004 with ldn (4.5 mg). The first 10 days i noticed nothing. But after 10 days it started: less tremor, much more energy, much better mood, and other little improvements. All good things, but not everyday. About 4 days in the week. Like you said: every person react differently. But every m.s.-er should try. The best, regards, Simon >From: " adj022762 " <adj022762@...> >Reply-low dose naltrexone >low dose naltrexone >Subject: [low dose naltrexone] Those taking LDN >Date: Mon, 25 Oct 2004 21:19:39 -0000 > > >I just started taking LDN (3mg) last Saturday night, 10/23/04. >Then increasing to 4.5 mg after 7 days. I was just wondering and I >know everyone is different but about how long before you notice any >changes. Right now I sleep ok, been getting up about every two - >three hours to urinate. That's normal for me. Had some dry mouth. >Still have everything from before. Stiffness, Spasms. I know 2 days >is not enough but I was just wondering how others reacted. >Thanks. >ADJ > > > _________________________________________________________________ MSN Zoeken, voor duidelijke zoekresultaten! http://search.msn.nl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2004 Report Share Posted October 26, 2004 Raelene, there are compounding pharmacies in Australia that have access to pure naltrexone. I have a list of compounding pharmacies there. Regards, Wayne L.(compounding pharmacist) ----- Original Message ----- From: raelene yandell low dose naltrexone Sent: Monday, October 25, 2004 5:29 PM Subject: Re: [low dose naltrexone] Those taking LDN Hi I live in Australia and we can't get LDN I want get hold of it. Heard heaps of good stuff about it.I need to talk to as many people as I can, and so far they have had good reports.....keep plugging away at it, at least you can get it. Raelene -------Original Message------- From: low dose naltrexone Date: 10/26/04 06:49:24 low dose naltrexone Subject: [low dose naltrexone] Those taking LDN I just started taking LDN (3mg) last Saturday night, 10/23/04.Then increasing to 4.5 mg after 7 days. I was just wondering and I know everyone is different but about how long before you notice any changes. Right now I sleep ok, been getting up about every two - three hours to urinate. That's normal for me. Had some dry mouth. Still have everything from before. Stiffness, Spasms. I know 2 days is not enough but I was just wondering how others reacted.Thanks.ADJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2004 Report Share Posted October 26, 2004 Hi raelene of course you can get it-just go to medsmex.com and buy it without prescription from mexico! there's quite a few other sites to in america/canada that require no prescription. rgds paul ----- Original Message ----- From: raelene yandell low dose naltrexone Sent: Monday, October 25, 2004 11:29 PM Subject: Re: [low dose naltrexone] Those taking LDN Hi I live in Australia and we can't get LDN I want get hold of it. Heard heaps of good stuff about it.I need to talk to as many people as I can, and so far they have had good reports.....keep plugging away at it, at least you can get it. Raelene -------Original Message------- From: low dose naltrexone Date: 10/26/04 06:49:24 low dose naltrexone Subject: [low dose naltrexone] Those taking LDN I just started taking LDN (3mg) last Saturday night, 10/23/04.Then increasing to 4.5 mg after 7 days. I was just wondering and I know everyone is different but about how long before you notice any changes. Right now I sleep ok, been getting up about every two - three hours to urinate. That's normal for me. Had some dry mouth. Still have everything from before. Stiffness, Spasms. I know 2 days is not enough but I was just wondering how others reacted.Thanks.ADJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2004 Report Share Posted October 26, 2004 HI PAUL THATS WHAT I'VE BEEN LOOKING FOR....BUT GOOD NEWS WENT TO MY GP AND I CAN GET A PRIVATE SCRIPT...IT'S A LITTLE DIFFERENT FOR SCRIPTS IN AUSTRALIA THAN AMERICA....IT WILL COST EXTRA BUT THATS OK I NEED TO GIVE IT A TRY.....THANKS FOR YOUR REPLY RAELENE -------Original Message------- From: low dose naltrexone Date: 10/27/04 01:13:05 low dose naltrexone Subject: Re: [low dose naltrexone] Those taking LDN Hi raelene of course you can get it-just go to medsmex.com and buy it without prescription from mexico! there's quite a few other sites to in america/canada that require no prescription. rgds paul ----- Original Message ----- From: raelene yandell low dose naltrexone Sent: Monday, October 25, 2004 11:29 PM Subject: Re: [low dose naltrexone] Those taking LDN Hi I live in Australia and we can't get LDN I want get hold of it. Heard heaps of good stuff about it.I need to talk to as many people as I can, and so far they have had good reports.....keep plugging away at it, at least you can get it. Raelene -------Original Message------- From: low dose naltrexone Date: 10/26/04 06:49:24 low dose naltrexone Subject: [low dose naltrexone] Those taking LDN I just started taking LDN (3mg) last Saturday night, 10/23/04.Then increasing to 4.5 mg after 7 days. I was just wondering and I know everyone is different but about how long before you notice any changes. Right now I sleep ok, been getting up about every two - three hours to urinate. That's normal for me. Had some dry mouth. Still have everything from before. Stiffness, Spasms. I know 2 days is not enough but I was just wondering how others reacted.Thanks.ADJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2004 Report Share Posted October 26, 2004 HI WAYNE THANKS FOR YOU INFO......GOOD NEWS MY GP WILL GIVE TO ME PRIVATELY.....SO I CAN GIVE IT A GO..... -------Original Message------- From: low dose naltrexone Date: 10/27/04 00:09:22 low dose naltrexone Subject: Re: [low dose naltrexone] Those taking LDN Raelene, there are compounding pharmacies in Australia that have access to pure naltrexone. I have a list of compounding pharmacies there. Regards, Wayne L.(compounding pharmacist) ----- Original Message ----- From: raelene yandell low dose naltrexone Sent: Monday, October 25, 2004 5:29 PM Subject: Re: [low dose naltrexone] Those taking LDN Hi I live in Australia and we can't get LDN I want get hold of it. Heard heaps of good stuff about it.I need to talk to as many people as I can, and so far they have had good reports.....keep plugging away at it, at least you can get it. Raelene -------Original Message------- From: low dose naltrexone Date: 10/26/04 06:49:24 low dose naltrexone Subject: [low dose naltrexone] Those taking LDN I just started taking LDN (3mg) last Saturday night, 10/23/04.Then increasing to 4.5 mg after 7 days. I was just wondering and I know everyone is different but about how long before you notice any changes. Right now I sleep ok, been getting up about every two - three hours to urinate. That's normal for me. Had some dry mouth. Still have everything from before. Stiffness, Spasms. I know 2 days is not enough but I was just wondering how others reacted.Thanks.ADJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2004 Report Share Posted October 27, 2004 , Start some trouble, bring up LDN, heck bring up Aimspro the goat serum, it may shake them up. Get with some other people and go for it, Attack them good. ADJ > Yes, Kathy. An extended family exists here. As any family, there is an antagonistic comment offered, every so often ! Yet we do love ...all of us ! > As a family member, I ask all here for advise. > Here is the question. > There is an MS Center here in Columbus Ohio. It must be new, I have yet to hear about it. Until today. A drug rep. from Sereno called me up and asked me to attend a meeting tomorrow night. (Wed) She wanted me to get the word out to my support group I facilitate and another I visit. That was her message she left at my home answering message, along with saying there would be a quest speaker, world reknown, Dr. Romahan. He was instrumental in Provigil medicine development and is very pro- Novantrone and Rebif supporter. > > Four responses,more on the emotional side from me. > ..I have been on LDN for 2 months now. > I quit Beta Seron ,in preparation. > ..I will go, presumingly to be wined and dined ! Drug reps. have a way of providing ! > .. I lost my job, thanks to Novantrone. It put me under !! > ..Assuming there is discussion.....shall I bring up LDN ? > > There will be other 'power people' there...I assume NMSS people' and others. > > ..MY QUESTION TO YOU ALL...what shall my approach be ? > I will respond back to you all, if there is a desired report. > Thank you for any/all thoughts. > > Jon Sayers SPMS Columbus, Ohio > > ----- > > ADVERTISEMENT > > <f2_free2_300x250_def_0904.gif> > <l.gif> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2004 Report Share Posted October 27, 2004 Hi Raelene, I read your email asking for compounding pharmacies in Australia and see Wayne L has sent you a list. I live in South Australia and use Greens Pharmacy and they do compound pure Naltrexone powder now. If you would like to send me your private email address perhaps we could correspond, or if you live in SA we could catch up on the phone. Hopefully because I have already been down that road I may be able to help you. I have been on ldn for about 16 months now and have PPMS. Its great that the word is getting out in AUS. Regards ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2004 Report Share Posted October 27, 2004 HI SANDRA THANKS FOR YOUR E-MAIL. YES I WOULD DEFINATELY LIKE TO WRITE TO YOU. I LIVE IN MOONTA ON THE YORKE PENNISULA. I'VE NEVER DONE ALL THIS BEFORE AND HAVE FOUND GREAT PEOPLE. HOW DO YOU GET YOUR LDN? MY GP SAID I'LL HAVE TO PAY PRIVATE NOT BY MEDICARE. IT COSTS$167 BUT I NEED TO GIVE IT ATRY. HOW ARE YOU FINDING IT? I AM IN CHRONIC SECONDARY, JUST A STEP AWAY FROM YOU. THANKS RAELENE -------Original Message------- From: low dose naltrexone Date: 10/27/04 15:49:59 low dose naltrexone Subject: Re: [low dose naltrexone] Those taking LDN Hi Raelene, I read your email asking for compounding pharmacies in Australia and see Wayne L has sent you a list. I live in South Australia and use Greens Pharmacy and they do compound pure Naltrexone powder now. If you would like to send me your private email address perhaps we could correspond, or if you live in SA we could catch up on the phone. Hopefully because I have already been down that road I may be able to help you. I have been on ldn for about 16 months now and have PPMS. Its great that the word is getting out in AUS. Regards Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2004 Report Share Posted October 27, 2004 BRAVO !! Doesn't it feel good to help lift others out of MS misery? It is efforts like this that will get this drug into the mainstream standard of care. My husband and I talk about LDN with everyone we meet. Keep up the good work! SammyJo http://LDNers.org > When I first started taking LDN, even though my MS Clinic was being wined and dined by the big drug companies I most certainly stood up and talked about LDN! Quote Link to comment Share on other sites More sharing options...
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