Guest guest Posted November 28, 2008 Report Share Posted November 28, 2008 Lilers, How about taking some tyrosine or DLPA for increasing your energy levels? Or D-Ribose which I am finding very helpful? Mo http://www.prohealth.com/me-cfs/library/showarticle.cfm? id=7495 & t=CFIDS_FM > > How low can a GP get to show that he is right. > > He has received the letter from the consultant who has prescribed T3 for me, and he is angry. He says that Dr.E suggested that I start T3 at 5mcgs daily. He looks it up and sees it only comes in 20s. He will be writing to Dr.E for his guidance on this. Dr. E has already told me to cut them up. Has nobody thought that they make them that size because most people would take them at that dose and that 5 is far too small a dose. > > However, what he has done is to stop me driving. He wants me to go to a sleep apnea clinic - even though I told him that when I am taking the correct amount of T3 I am not sleepy in the day. But of course, he darn well knows I am not taking sufficient T3, and wants to prove that it is not the T3 that I need. He wants to prove that he is right. > > Next message will be about the choose and book farce. > > Lilian > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2008 Report Share Posted November 28, 2008 oh lillian; poor you, you certainly have landed a nasty gp, would it be worth ringing the endo and explaining the situation to him? your experiences with doctors put mine in the shade, can you get another gp? regards jane > > How low can a GP get to show that he is right. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2008 Report Share Posted November 28, 2008 Hi Lilian, Have you looked at Dr Myhill's website? Will your PCT accept a referral to her, if necessary? Bob > Lilers, How about taking some tyrosine or DLPA for increasing your > energy levels? > Or D-Ribose which I am finding very helpful? > Mo > http://www.prohealth.com/me-cfs/library/showarticle.cfm? > id=7495 & t=CFIDS_FM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2008 Report Share Posted November 28, 2008 Here's some info on it : http://www.upmarketnutrition.co.uk/acatalog/D.L.P.A.html I use it every morning. Mo > > Thanks for the suggestion Mo. What is DLPA? > > Lilian > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2008 Report Share Posted November 28, 2008 I have been spending a lot of time on Dr Myhill's website recently Bob so your post caught my attention big-time. Can we get an NHS referral to the good doctor do you know? Mo > > Hi Lilian, > > Have you looked at Dr Myhill's website? > Will your PCT accept a referral to her, if necessary? > > Bob > > > > > Lilers, How about taking some tyrosine or DLPA for increasing your > > energy levels? > > Or D-Ribose which I am finding very helpful? > > Mo > > http://www.prohealth.com/me-cfs/library/showarticle.cfm? > > id=7495 & t=CFIDS_FM > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2008 Report Share Posted November 28, 2008 Hi Mo, .....considering that they were trying to haul up before the GMC 'mob', then backed off, anything could happen. A referral to a doctor that knows more than most of the medical profession and is, indeed, ahead of most of the medical profession in her specialist skills and knowledge ~ a request for funding to get a proper diagnosis should be perfectly acceptable, else where can you get properly diagnosed, otherwise. They (PCT) might not like admitting it, but they probably don't understand how or why she is having success, in her specialisation. Choose and book goes along the lines of ~ 'the NHS don't have a doctor skilled enough to make a diagnosis'.....I'd like to be seen by a competent specialist. best wishes Bob > > I have been spending a lot of time on Dr Myhill's website recently > Bob so your post caught my attention big-time. > Can we get an NHS referral to the good doctor do you know? > Mo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2008 Report Share Posted November 28, 2008 I just went to the site again Lilers and had no problem, clicked on D- Ribose and here it is in case it is of interest. http://www.drmyhill.co.uk/article.cfm?id=429 > > I went to her sight Mo, but do not seem to be able to read anything. Does one have to register or something. I have clicked on sleep problems but it does not give any real information. > > Lilian > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2008 Report Share Posted November 28, 2008 Here's the section on sleep apnoea Lilers - http://www.drmyhill.co.uk/article.cfm?id=161 > > I went to her sight Mo, but do not seem to be able to read anything. Does one have to register or something. I have clicked on sleep problems but it does not give any real information. > > Lilian > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2008 Report Share Posted November 28, 2008 Hi Lillian hon Is it sleep apnea that he has stopped you driving for? Sounds wierd to me. Lots of people suffer from it and they are still allowed to drive, unless you have narcolepsy I really cannot see his concern, you have the necessary judgement about whether or not to drive yourself, or does he feel you are mentally incompetant? I would go from doctor to doctor until I got that decision reversed. Blimey, you are feeling ill, the last thing you needed was having your only means of getting anywhere taken from you. Having said that, I have only one practice with about 40 doctors in it so I would prolly get a unanimous banding together of docs Anyway that brought a rant out in me, sorry hon, I was putting myself in your position. lotsa luv and God bless Dawnx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2008 Report Share Posted November 29, 2008 You could try melatoni9n to lower it? And the D-Ribose can help with the heart and its issues AND increase energy. The DLPA is less likely to raise BP I think than the Tyrosine and I had high BP and it did not raise it, I think it is a case of suck it and see. I can send you a few to try if you would like Lilers? Mo > > I see they say it is not suitable for people with high blood pressure, and I have very high BP . > > Lilian > > Here's some info on it : > > http://www.upmarketnutrition.co.uk/acatalog/D.L.P.A.html > > I use it every morning. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2008 Report Share Posted November 29, 2008 Hi Lilian With the two specific complaints and I are working on right now (the one on 'The Unfair Trading Practices within Endocrinology and The Guidance of Practitioners' - and the other - 'Human Rights Complaint on the Practices of Endocrinology and Its Guidance of Practitioners Regarding Certain Ignored Maladies for Which Government Approved Medications Are Available But Denied' - we are wanting stories from members who have been treated badly within the NHS and those who have had need to go outside of the NHS to regain their health, especially those who remained ill on levothyroxine alone but who got well on either synthetic combination T4/T3 therapy or the use of natural Thyroid extract, Armour thyroid, USP. I know you sent me your story previously, but what you are going through now throws a completely different light on things and once again, shows that although you regained your health on T4/T3 synthetic combo, and then on Armour Thyroid, you are now suffering dreadfully within the hands of NHS doctors who took your T3 away and put you back onto levothyroxine. These clowns do not know what they are doing and the fact that they have allowed you only 5 mcgs T3 with your GP questioning this is just beyond the pale. Please could you write me your 'new' story and let me have this, but try not to make it too long, or it won't get read by the authorities concerned. These stories are SO important to show how badly hypothyroid sufferers are being treated within the NHS. Anybody else who has such stories, please write to me as soon as possible. Luv - Sheila This doctor IS another one My old one was just as bad. Out of fat into fire. I asked to change from my old one, but had no say in the one chosen for me. I was told he was the only doctor with a vacancy. I am wondering what will be put on my records if I say I want to change yet again. If I keep putting that I cannot get on with my doctor they will begin to think I would not be able to get on with any doctor and that there is something wrong with me. So the next doctor will be preparing themselves for an awkward patient. Lilian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2008 Report Share Posted November 29, 2008 Pass this back to your latest endo Dr E Lilian and ask him if he can intervene. This is appalling behaviour by your GP. The science shows him to be absolutely incorrect. You cannot live without T3 - why is he trying to stop you having this when it has been shown that you need it. Luv - Sheila He has done it to be bl**dy minded Dawn. His nose has been put out of joint because he was so adamant that the new consultant would say the same as the other one and the same as him, but he didn't, he has given me a prescription for T3 (albeit a microscopic dose). He only wrote that letter to me after he received the consultants letter telling me he was prescribing T3. He told me his reason for not giving me T3 (or any more thyroxine) was because I could have a heart attack. Next time I see him I will mention that I feel re-assured that he has guaranteed I will now never have a heart attack, and see what he says to that lol. Lilian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2008 Report Share Posted November 30, 2008 Oh Lillian ''During those 5 years I gradually got better and better. In fact during the last six months I started to diet again and began losing weight at a steady safe pace like any normal person would on such a diet. I slept well, was awake during the day, no aches and pains, and generally speaking felt 20 years younger. My cholesterol went down to 4.3 my tryglicerides were excellent, I had better control of my blood sugar, although I did suffer from high blood pressure, the pills I was taking kept it down to a reasonable number. I was able to join clubs, read books, and had even bought a camcorder ready to take videos of my forthcoming holiday. Then my GP told me he was not happy with what I was doing and that I must stop taking anything other than 100mcg of thyroxine a day or he will not be my GP. I tried to explain that 100mcg of thyroxine would be much too low as I was unwell when it was put up to 150mcg but he was adamant.'' The more I hear stories like this the more sad I get about the care Drs are giving. By looking at your records he should be able to see that his insistance for you to take the thyroxine alone has had a negative effect on your health. He is supposed to help you not make you worse for goodness sakes. NO idea wha tmy doc will do when he sees my bloods and finds out about my hc taking too. I might get a similar story. Hope not. That is one of the reasons I have stayed away for so long, not wanting to go back until I can walk in looking radiant and slimmer, however, in your case it seems even this didn't work on your GP. I do hope you will get the T3 you need hon off this new doc. Good health to you, and soon. God bless Dawnxx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2008 Report Share Posted November 30, 2008 > Will try to keep a long story as short as possible: > During those 5 years I gradually got better and better. > Then my GP told me he was not happy with what I was doing and that >I must stop taking anything other than 100mcg of thyroxine a day or >he will not be my GP. By the time I went on holiday a couple of >months later, I could hardly walk. Of late I have become very >breathless. Again since stopping the Armour. I wanted to go on >Lighter Life. When I asked him for my money back he refused saying >that he had filled in the form. Lilian, since I joined this forum I've picked up various elements of your story but when I read here about the whole journey from the beginning til now, I'm absolutely speechless. It's an unbeliveable string of events and I just cannot understand how they can do that to you. It's inhuman. I'm so very sorry about how you've been treated. Talk about " Do no harm. " I really, really hope you have a breakthrough of some sort in terms of your treatement and that you start feeling well again. Just by the by, I was speaking to my sister in law yesterday. She has been hypothyroid for years and was massively overweight, had tried every diet going. She went on Lighter Life sometime recently, and has lost three stone and is hoping to lose more. I do hope things change for the better for you Lilian. x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2008 Report Share Posted November 30, 2008 That's an appalling story Lilian and it is not medical care, it is institutionalised abuse in my view. Like you, I feel I am no spring chicken and I don't have time on my side in dealing with these eejits. I have 'seen' you go downhill in recent times and it saddens and angers me that this is being done to you. If it were me, I would simply go ahead and self-treat and make that a priority, then you would have the energy and the health to do battle if necessary with those that have been putting your health. nay your very life, at risk! Mo > > Just to let you know what this GP is like. I wanted to go on Lighter Life and they required the doctor to fill in a form and agree for a nurse to monitor my BP once a month. He filled in the form, charged me £30 for it, then wrote all over it that he is not prepared to monitor my BP and does not agree with it. When I asked him for my money back he refused saying that he had filled in the form. > > Lilian > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2008 Report Share Posted November 30, 2008 > I went to see him about it, he said he would fill the form in but it would cost £30. I took this to be that he agreed. So a week later I took the form to him, he filled it in, and took the £30. > > He then proceeded to write over the form that he does not agree >with it and will not have me monitored. I said they would not >accept this and asked for my money back. He would not do this >saying " you have paid for me to fill in the form and that is what I >have done " . > A decent person would have said before hand that they do not agree >with it and therefore would not fill in the form or take the >£30. Lilian This just goes from bad to worse! This doctor sounds like a thoroughly nasty human being, let alone a poor excuse for a doctor. I almost can't write here because I'm so mad at him for what he did. Of course a decent person wouldn't have taken your money like that. It's just as if he was taking the mickey, one upmanship and all that. How pathetic! I'm truly appalled. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2008 Report Share Posted November 30, 2008 Lillian May I suggest you contact chemists in your area and ask which doctors prescribe T3. Alternatively contact the wholesaler of T3 in UK and ask them which chemist they supply T3 to and then address the same question to that chemist There is always a way dear lady, always a way.............. and it could be worse, you could be going thru this experience and not have access to shelia and this forum, then you would be stumped !! and condemned to goodness know what horrors. jennyfreeman > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2008 Report Share Posted December 1, 2008 > > , > > I cannot remember whether I have mentioned this. I wanted to go to Lighter Life (in desperation), but they needed a form to be filled in by my GP. > > I went to see him about it, he said he would fill the form in but it would cost £30. I took this to be that he agreed. So a week later I took the form to him, he filled it in, and took the £30. > > He then proceeded to write over the form that he does not agree with it and will not have me monitored. I said they would not accept this and asked for my money back. He would not do this saying " you have paid for me to fill in the form and that is what I have done " . > > A decent person would have said before hand that they do not agree with it and therefore would not fill in the form or take the £30. > > Lilian > That's disgraceful. I'd have thought you'd be justified in making a complaint. It's unprofessional and unethical. Is there any way you can change your GP? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2008 Report Share Posted December 1, 2008 Hi Miriam. Do you have the equivalent of a yellow pages in which you can look up 'compounding chemists' - these may be abit more 'on the ball' and guide you to a GP who prescribes in your area, or can give you the name of the manufacturer or wholesaler in Uk who you can phone to see which chemist they deliver to in your area. I wouldnt put the supermarkets high on the list to telephone, but it may be a worthwhile afternoon exercise. You are so close - the answer is just a few phone calls away....... or you may choose to make an order direct to international pharmacy jennyfreeman > > F, > > Well I know my local chemist does not stock it because when I brought in the prescription he had to look it up. > > I could find a doctor who might be willing to prescribe T3 but the consultant say they do not agree with it. > > If it were not for TPA I couldn't imagine how I would be today. > > Lilian > > and it could be worse, you could be going thru this experience and not > have access to shelia and this forum, then you would be stumped !! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2008 Report Share Posted December 1, 2008 I think this is for Lilian, not Miriam? > > Hi Miriam. Do you have the equivalent of a yellow pages in which you > can look up 'compounding chemists' - these may be abit more 'on the > ball' and guide you to a GP who prescribes in your area, or can give > you the name of the manufacturer or wholesaler in Uk who you can phone > to see which chemist they deliver to in your area. > > I wouldnt put the supermarkets high on the list to telephone, but it > may be a worthwhile afternoon exercise. > > You are so close - the answer is just a few phone calls away....... > or you may choose to make an order direct to international pharmacy > jennyfreeman > > > > > F, Quote Link to comment Share on other sites More sharing options...
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