Re: Re: Babinski and the wayward toes

[Guest guest]

I had one neurologist tell me that in school they suggested using Mercedes keys for this test... I told him I would at least prefer an older key with more rounded edges.

JT

----- Original Message -----

From: Martha Burton

low dose naltrexone

Sent: Friday, October 29, 2004 7:19 PM

Subject: [low dose naltrexone] Re: Babinski and the wayward toes

Actually, my toes didn't move much anywhere, up OR down. Perhaps it's my rubbing technique.Martha

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[Guest guest]

Or any like object, in the hands of someone else. Not really a DIY, like aegis says. The point of the Mercedes key was simply to impress the patient with the doctor's wealth. In my world a Ford Escape key is more appropriate, but I'm sure there are other models equally effective.

JT

----- Original Message -----

From: aegis_on_ms

low dose naltrexone

Sent: Saturday, October 30, 2004 6:21 AM

Subject: [low dose naltrexone] Re: Babinski and the wayward toes

Aegis would like to remind you, that the Babs is not a DIY "Do It Yourself" project. The results WILL be wrong, if you are primed about the way the toes should curl, and you certainly dont need a Mercedes key to do it, for the Ford Neon key works as well.A

> > > --------------------------------> ----------------------------------------> >

[Guest guest]

I have been on LDN for exactly two weeks now and have felt fairly good.

However, when I got up this morning, I had a lot of stiffness in my legs. Is

that one of the side effects of using LDN because I didn't see anything listed

on the site? Are there any other side effects I should look for as I keep

taking this? I've had MS for 27 years and I absolutely feel the Grace of God

surround me because I am still walking, talking, writing, etc. If I had taken

the advice of all those neurologists, I'd be in a wheelchair, bedridden, or

dead. Thank yu to the Internet and this site which gave me an alternative to

the CARBs.

Vickie

Well, i've always known about that toe thingy test, and my big toe

always shoots straight up, believe me, you dont need to do much to

stimulate it to do that these days - im too far gone, lol...

actually, when i stand to transfer? the big toe on my left foot not

only sticks up, it shakes, rattles and rolls into its own dance

routine. Puts a new spin on DIY... no problems at all getting that

reaction from my toe.

Yepppaaaa, gotta make light of these little situations..at least it

impresses my niece somewhat...

Where aegis is concerned? waaaay off on this one.

Friday

[Guest guest]

Vickie, the stiffness is pretty common. For many people it goes away after a while, sometimes several months. For me, it just stays and sometimes makes me crazy. You might try changing your dose, either up or down, depending on what you are taking. At 1.5 I have little stiffness, at 3.0 quite a bit, and 4.5 is impossible. Some people do better at 4.5 than 3. It is very very individual.

There is a continuing concern that 1.5 is not enough to prevent progression but I do still have the improvements in bladder control, strength, etc at that dose, so that's where I am for now.

JT

----- Original Message -----

From: manchester_terrier@...

low dose naltrexone

Sent: Saturday, October 30, 2004 11:41 AM

Subject: Re: [low dose naltrexone] Re: Babinski and the wayward toes

I have been on LDN for exactly two weeks now and have felt fairly good. However, when I got up this morning, I had a lot of stiffness in my legs. Is that one of the side effects of using LDN because I didn't see anything listed on the site? Are there any other side effects I should look for as I keep taking this? I've had MS for 27 years and I absolutely feel the Grace of God surround me because I am still walking, talking, writing, etc. If I had taken the advice of all those neurologists, I'd be in a wheelchair, bedridden, or dead. Thank yu to the Internet and this site which gave me an alternative to the CARBs.Vickie

[Guest guest]

Thanks JT,

I think I will stay at the 4.5 mg. If stiffness is my only complaint, then I

can live with that, Being able to walk straight without looking like a drunk

is one goal.

VCL

Vickie, the stiffness is pretty common. For many people it goes away after a while, sometimes several months. For me, it just stays and sometimes makes me crazy. You might try changing your dose, either up or down, depending on what you are taking. At 1.5 I have little stiffness, at 3.0 quite a bit, and 4.5 is impossible. Some people do better at 4.5 than 3. It is very very individual.

There is a continuing concern that 1.5 is not enough to prevent progression but I do still have the improvements in bladder control, strength, etc at that dose, so that's where I am for now.

JT

----- Original Message -----

From: manchester_terrier@...

low dose naltrexone

Sent: Saturday, October 30, 2004 11:41 AM

Subject: Re: [low dose naltrexone] Re: Babinski and the wayward toes

I have been on LDN for exactly two weeks now and have felt fairly good. However, when I got up this morning, I had a lot of stiffness in my legs. Is that one of the side effects of using LDN because I didn't see anything listed on the site? Are there any other side effects I should look for as I keep taking this? I've had MS for 27 years and I absolutely feel the Grace of God surround me because I am still walking, talking, writing, etc. If I had taken the advice of all those neurologists, I'd be in a wheelchair, bedridden, or dead. Thank yu to the Internet and this site which gave me an alternative to the CARBs.Vickie

[Guest guest]

Hang in there, maybe your stiffness will go away after a while. That has been true for quite a few people.

----- Original Message -----

From: manchester_terrier@...

low dose naltrexone

Sent: Saturday, October 30, 2004 12:48 PM

Subject: Re: [low dose naltrexone] Re: Babinski and the wayward toes

Thanks JT,I think I will stay at the 4.5 mg. If stiffness is my only complaint, then I can live with that, Being able to walk straight without looking like a drunk is one goal.VCL

[Guest guest]

Yes, this is the first time I have had this kind of stiffness in the morning.

Thanks,

Vickie

--- In low dose naltrexone , manchester_terrier@i...

wrote:

> I have been on LDN for exactly two weeks now and have felt fairly

good.

> However, when I got up this morning, I had a lot of stiffness in my

legs. Is

> that one of the side effects of using LDN because I didn't see

anything listed

> on the site? Are there any other side effects I should look for as

I keep

> taking this? I've had MS for 27 years and I absolutely feel the

Grace of God

> surround me because I am still walking, talking, writing, etc. If

I had taken

> the advice of all those neurologists, I'd be in a wheelchair,

bedridden, or

> dead. Thank yu to the Internet and this site which gave me an

alternative to

> the CARBs.

>

> Vickie

Vickie, May I ask, if this is the first time in 27 years that you had

such stiffness in the morning? As I've read the board, I see others

reporting stiffness. I used it for about 2 months on a VERY low dose

and had the same effect. After pausing to reconsider, the stiffness

is mild. Thanks for posting.