RE: LDN - MS

[Guest guest]

I have spls. Dx in 9/98. I have been on ldn since January 04. I love

it! When I started I had the capsules made into 1.5 mg caps. I

started at 3.0 mg. With the 1.5 caps I could use 1.5,3 or 4.5 mg-

1,2 or 3 caps. I started with 3.0 mg- based on my small size. I

don't know if that matters or not, it is what I did. After a few

weeks, I tried 4.5 but the stiffness in my legs was too much. I

dropped back to 3. Just recently, I moved up to 4.5 and it is good

for me.

I am noticing little improvements along the way. I feel much calmer

and peaceful. I feel that I am a better driver than before. I notice

endurance is better- less naps, more productive.

This week I started 1/4 mile a day on an orbitrek. Daily use of the

ablounger.I am going to work a small amount from home. I have 3 teen

sons, so that involves a lot of work.

I have a website www.healthyways.20fr.com that tells alot of my

journey. My email is there also- and I am always happy to talk with

ms people on the journey towards wholeness.

Get your RX from Skip's pharmacy in FL. I can send you a link if you

want. (go to my site and email me)

I have not experienced the miracles I want (yet) But, ldn is the

best thing I have found so far.

[Guest guest]

SPMS not spls

[Guest guest]

Hi Neil,

The people on this board have two different approaches. The first being to

start at an extremely low dose of 1.5mg and gradually increasing .5mg at a

time. The second approach and the one that I followed 7 months ago was to

start out at 3.0mg and after a period of time hit the ultimate goal of

4.5mg. It took me a good 6 months before I was ready for 4.5mg but listen

to your body, it will tell you when it's ready. If you check out the LDN

website, you should have everything you need for your GP. Good luck, this

is a great board to keep in touch with!

-----Original Message-----

From: lucasneil2000 [mailto:lucas@...]

Sent: Saturday, November 06, 2004 12:56 PM

low dose naltrexone

Subject: [low dose naltrexone] LDN - MS

Hi all

I've heard a lot about LDN, but never gone on to try it!

Read lots of the email from the discussion group.

I feel I should try LDN as the neuro's seem lost! I am spms having been

diag. some 7yrs ago, but it was 'out of sight / mind' until 18mths ago.

(Stress seemed to keep it at bay!)

I need someones advice!!

What dosage should I start at / progress to?

Any other advice I should give to my GP? - (she is great!) I am on the BEST

DIET.

I am not on any betaferon, copaxon, etc. drugs I do have walking, tremour

difficulties.

HELP!

Neil

[Guest guest]

Hi ,

You seem to be extremely educated in alternative therapies, what is your take on chelation?

-------Original Message-------

From: low dose naltrexone

Date: Saturday, November 06, 2004 19:31:01

low dose naltrexone

Subject: RE: [low dose naltrexone] LDN - MS

Hi Neil,

The people on this board have two different approaches. The first being to

start at an extremely low dose of 1.5mg and gradually increasing .5mg at a

time. The second approach and the one that I followed 7 months ago was to

start out at 3.0mg and after a period of time hit the ultimate goal of

4.5mg. It took me a good 6 months before I was ready for 4.5mg but listen

to your body, it will tell you when it's ready. If you check out the LDN

website, you should have everything you need for your GP. Good luck, this

is a great board to keep in touch with!

-----Original Message-----

From: lucasneil2000 [mailto:lucas@...]

Sent: Saturday, November 06, 2004 12:56 PM

low dose naltrexone

Subject: [low dose naltrexone] LDN - MS

Hi all

I've heard a lot about LDN, but never gone on to try it!

Read lots of the email from the discussion group.

I feel I should try LDN as the neuro's seem lost! I am spms having been

diag. some 7yrs ago, but it was 'out of sight / mind' until 18mths ago.

(Stress seemed to keep it at bay!)

I need someones advice!!

What dosage should I start at / progress to?

Any other advice I should give to my GP? - (she is great!) I am on the BEST

DIET.

I am not on any betaferon, copaxon, etc. drugs I do have walking, tremour

difficulties.

HELP!

Neil

[Guest guest]

I started with 3.0 for 300 days, did 38 days of 4.5, dropped back to 3.0; that was back in Feb

Day 551 I did 4.5 again and after 12 days I'm back to 3.0 again.

I think 3.0 is best for me.

----- Original Message -----

From: Baden

low dose naltrexone

Sent: Saturday, November 06, 2004 20:30

Subject: RE: [low dose naltrexone] LDN - MS

Hi Neil,The people on this board have two different approaches. The first being tostart at an extremely low dose of 1.5mg and gradually increasing .5mg at atime. The second approach and the one that I followed 7 months ago was tostart out at 3.0mg and after a period of time hit the ultimate goal of4.5mg. It took me a good 6 months before I was ready for 4.5mg but listento your body, it will tell you when it's ready. If you check out the LDNwebsite, you should have everything you need for your GP. Good luck, thisis a great board to keep in touch with!

[Guest guest]

I do not want to sound stupid, but I do not understand about the different

doses. Some people start at 1.5 mg and gradually increase to 3.0 mg; some

people start at 3.0 mg and increase to 4.5 mg which is recommended for full

benefit of LDN. Why are people doing this? I started at 4.5 mg 3 weeks ago,

and I have had no side effects except for some leg stiffness which I took care

of. What are the side effects that people are having? What should the LDN be

doing that would cause those side effects? To me, it is like taking an M & M at

night before I go to bed. Thanks.

VCL

Hi Neil,

The people on this board have two different approaches. The first being to

start at an extremely low dose of 1.5mg and gradually increasing .5mg at a

time. The second approach and the one that I followed 7 months ago was to

start out at 3.0mg and after a period of time hit the ultimate goal of

4.5mg. It took me a good 6 months before I was ready for 4.5mg but listen

to your body, it will tell you when it's ready. If you check out the LDN

website, you should have everything you need for your GP. Good luck, this

is a great board to keep in touch with!

-----Original Message-----

From: lucasneil2000 [mailto:lucas@...]

Sent: Saturday, November 06, 2004 12:56 PM

low dose naltrexone

Subject: [low dose naltrexone] LDN - MS

Hi all

I've heard a lot about LDN, but never gone on to try it!

Read lots of the email from the discussion group.

I feel I should try LDN as the neuro's seem lost! I am spms having been

diag. some 7yrs ago, but it was 'out of sight / mind' until 18mths ago.

(Stress seemed to keep it at bay!)

I need someones advice!!

What dosage should I start at / progress to?

Any other advice I should give to my GP? - (she is great!) I am on the BEST

DIET.

I am not on any betaferon, copaxon, etc. drugs I do have walking, tremour

difficulties.

HELP!

Neil

[Guest guest]

i have just started at 3 mg and also have had leg stiffness......what did you do to take care of the leg stiffness?

DeLores

decrosby@...

-----Original Message-----From: manchester_terrier@... [mailto:manchester_terrier@...] Sent: Sunday, November 07, 2004 9:19 AMlow dose naltrexone Subject: RE: [low dose naltrexone] LDN - MSI do not want to sound stupid, but I do not understand about the different doses. Some people start at 1.5 mg and gradually increase to 3.0 mg; some people start at 3.0 mg and increase to 4.5 mg which is recommended for full benefit of LDN. Why are people doing this? I started at 4.5 mg 3 weeks ago, and I have had no side effects except for some leg stiffness which I took care of. What are the side effects that people are having? What should the LDN be doing that would cause those side effects? To me, it is like taking an M & M at night before I go to bed. Thanks.VCL

[Guest guest]

I just get up and keep moving around - with a dog that is very easy to do. I

also swim 3-4 times a week at the local gym. Now, I don't even feel any kind

of stiffness.

VCL

i have just started at 3 mg and also have had leg stiffness......what did you do to take care of the leg stiffness?

DeLores

decrosby@...

-----Original Message-----From: manchester_terrier@... [mailto:manchester_terrier@...] Sent: Sunday, November 07, 2004 9:19 AMlow dose naltrexone Subject: RE: [low dose naltrexone] LDN - MSI do not want to sound stupid, but I do not understand about the different doses. Some people start at 1.5 mg and gradually increase to 3.0 mg; some people start at 3.0 mg and increase to 4.5 mg which is recommended for full benefit of LDN. Why are people doing this? I started at 4.5 mg 3 weeks ago, and I have had no side effects except for some leg stiffness which I took care of. What are the side effects that people are having? What should the LDN be doing that would cause those side effects? To me, it is like taking an M & M at night before I go to bed. Thanks.VCL

[Guest guest]

> i have just started at 3 mg and also have had leg

stiffness......what did

> you do to take care of the leg stiffness?

>

when I started LDN over a year ago, I had 87 days of stiffness before

it let up. I tried differnet doses until I found the one best for me.

[Guest guest]

VCL asked:

>I do not want to sound stupid, but I do not understand about the

different

>doses. Some people start at 1.5 mg and gradually increase to 3.0

mg; some

>people start at 3.0 mg and increase to 4.5 mg which is recommended

for full

benefit of LDN. Why are people doing this?

Hi VCL --

I recently started LDN, and I began at 1.5 for the first week. I

know that's low, according to nearly everyone... This is not

something my neurologist told me to do, it's something I wanted to

do.

My reasoning is this: I want to be aware of benefits

and side effects as they occur at the various dosages. For example,

my first week, at 1.5, I noticed more energy, interrupted sleep, and

vivid dreams. I wasn't aware, till I did some research, that vivid

dreams are a side effect of LDN for some people. It only makes

sense, right, with all those endorphins being released when you

sleep...?

So now I know that these things happen to me at 1.5 -- even though

most people say that " nothing " happens at 1.5, I know something is

definitely happening to ME. Now I feel I can compare 1.5 to 3.0,

or 4.5.

Control freak? Yah maybe. But like everyone else out here in LDN-

land, I am my own clinical study.

This week I upped the dosage to 3.0, and I have been at that dosage

for a week. For me, it's pretty much the same as 1.5. I plan to

stay here for a few more weeks, and then try 4.5.

I don't know if this makes sense to anyone else, but... that's why I

do it.

So that's my story and I'm stickin' to it!

-- Maureen

[Guest guest]

thanks..it's good to know that it will get better

DeLores

decrosby@...

-----Original Message-----From: Johanne F [mailto:johannef@...] Sent: Sunday, November 07, 2004 8:09 PMlow dose naltrexone Subject: [low dose naltrexone] Re: LDN - MS> i have just started at 3 mg and also have had legstiffness......what did> you do to take care of the leg stiffness?> when I started LDN over a year ago, I had 87 days of stiffness beforeit let up. I tried differnet doses until I found the one best for me.

[Guest guest]

No complaints here. With you 100%!

----- Original Message -----

From: bentleyfam26

low dose naltrexone

Sent: Sunday, November 07, 2004 20:33

Subject: [low dose naltrexone] Re: LDN - MS

VCL asked: >I do not want to sound stupid, but I do not understand about the different >doses. Some people start at 1.5 mg and gradually increase to 3.0 mg; some >people start at 3.0 mg and increase to 4.5 mg which is recommended for full benefit of LDN. Why are people doing this? Hi VCL -- I recently started LDN, and I began at 1.5 for the first week. I know that's low, according to nearly everyone... This is not something my neurologist told me to do, it's something I wanted to do. My reasoning is this: I want to be aware of benefits and side effects as they occur at the various dosages. For example, my first week, at 1.5, I noticed more energy, interrupted sleep, and vivid dreams. I wasn't aware, till I did some research, that vivid dreams are a side effect of LDN for some people. It only makes sense, right, with all those endorphins being released when you sleep...?So now I know that these things happen to me at 1.5 -- even though most people say that "nothing" happens at 1.5, I know something is definitely happening to ME. Now I feel I can compare 1.5 to 3.0, or 4.5. Control freak? Yah maybe. But like everyone else out here in LDN-land, I am my own clinical study. This week I upped the dosage to 3.0, and I have been at that dosage for a week. For me, it's pretty much the same as 1.5. I plan to stay here for a few more weeks, and then try 4.5. I don't know if this makes sense to anyone else, but... that's why I do it. So that's my story and I'm stickin' to it! -- Maureen

[Guest guest]

That's a very good question , it's also one that does not have a clear answer. I have some friends that swear by it and others that did not see a big difference. I myself have not done chelation. It's one of those things that you've got to do your homework on and decide for yourself. I had my mercury filling out years ago, and today think that it was a expense mistake. Just my opinion. As you know in this "MS world" there is little black and white but an awful lot of gray. Have a great weekend.

From: [mailto:cindyyoung@...] Sent: Saturday, November 06, 2004 9:17 PMlow dose naltrexone Subject: RE: [low dose naltrexone] LDN - MS

Hi ,

You seem to be extremely educated in alternative therapies, what is your take on chelation?

-------Original Message-------

From: low dose naltrexone

Date: Saturday, November 06, 2004 19:31:01

low dose naltrexone

Subject: RE: [low dose naltrexone] LDN - MS

Hi Neil,

The people on this board have two different approaches. The first being to

start at an extremely low dose of 1.5mg and gradually increasing .5mg at a

time. The second approach and the one that I followed 7 months ago was to

start out at 3.0mg and after a period of time hit the ultimate goal of

4.5mg. It took me a good 6 months before I was ready for 4.5mg but listen

to your body, it will tell you when it's ready. If you check out the LDN

website, you should have everything you need for your GP. Good luck, this

is a great board to keep in touch with!

-----Original Message-----

From: lucasneil2000 [mailto:lucas@...]

Sent: Saturday, November 06, 2004 12:56 PM

low dose naltrexone

Subject: [low dose naltrexone] LDN - MS

Hi all

I've heard a lot about LDN, but never gone on to try it!

Read lots of the email from the discussion group.

I feel I should try LDN as the neuro's seem lost! I am spms having been

diag. some 7yrs ago, but it was 'out of sight / mind' until 18mths ago.

(Stress seemed to keep it at bay!)

I need someones advice!!

What dosage should I start at / progress to?

Any other advice I should give to my GP? - (she is great!) I am on the BEST

DIET.

I am not on any betaferon, copaxon, etc. drugs I do have walking, tremour

difficulties.

HELP!

Neil

[Guest guest]

It's great that this works for you, but it is a simplistic solution that will definitely not work for all of us. Yes, the stiffness is at its worst after a period of idleness, be it sleeping, watching TV, or sitting at my desk at work. But our lives demand periods of inactivity. I have little choice about sleeping, and the morning stiffness is severe to the point that walking around is somewhat hazardous for a while. My morning stiffness makes walking my dogs impossible. Nor are the stiffness in my chest and jaw eased by walking around.

I don't have to sit and watch TV but I have very little choice about sitting at my desk at work. I can walk around whenever I want to but I can't be effective in what I'm doing if I get up and take a walk around the block every half hour. So while moving around is a simple solution for you it just isn't a simple answer for all of us, nor does simple activity relieve the stiffness for all of us. I wish it were that easy, and I'm sure a lot of other people do too. And I'm very glad for you that it is currently a solution to a problem that is vexing at the very least.

JT

----- Original Message -----

From: manchester_terrier@...

low dose naltrexone

Sent: Monday, November 08, 2004 7:02 AM

Subject: RE: [low dose naltrexone] LDN - MS

,I just get up in the morning and start walking around - which is quite easy when you have a dog to take care of. I also swim 3-4 times per week and that seems to help. Just keep moving and that will take away the stiffness. If you sit or lay in bed, that makes the stiffness more pronounced.VCL

[Guest guest]

RIGHT....AND MY MOVEMENT IS WITH A WALKER (SLOWLY)

DeLores

decrosby@...

-----Original Message-----From: [mailto:jatrac1@...] Sent: Monday, November 08, 2004 10:50 AMlow dose naltrexone Subject: Re: [low dose naltrexone] LDN - MS

It's great that this works for you, but it is a simplistic solution that will definitely not work for all of us. Yes, the stiffness is at its worst after a period of idleness, be it sleeping, watching TV, or sitting at my desk at work. But our lives demand periods of inactivity. I have little choice about sleeping, and the morning stiffness is severe to the point that walking around is somewhat hazardous for a while. My morning stiffness makes walking my dogs impossible. Nor are the stiffness in my chest and jaw eased by walking around.

I don't have to sit and watch TV but I have very little choice about sitting at my desk at work. I can walk around whenever I want to but I can't be effective in what I'm doing if I get up and take a walk around the block every half hour. So while moving around is a simple solution for you it just isn't a simple answer for all of us, nor does simple activity relieve the stiffness for all of us. I wish it were that easy, and I'm sure a lot of other people do too. And I'm very glad for you that it is currently a solution to a problem that is vexing at the very least.

JT

----- Original Message -----

From: manchester_terrier@...

low dose naltrexone

Sent: Monday, November 08, 2004 7:02 AM

Subject: RE: [low dose naltrexone] LDN - MS

,I just get up in the morning and start walking around - which is quite easy when you have a dog to take care of. I also swim 3-4 times per week and that seems to help. Just keep moving and that will take away the stiffness. If you sit or lay in bed, that makes the stiffness more pronounced.VCL

[Guest guest]

Hi VCL and all,

My name is Chi. I am from Bangkok, Thailand. My husband, Ton, has

had primary progressive MS since 2001. We have just got married for 4

months. I do not know neither anyone in Thailand taking LDN nor any Dr.

prescribing LDN. My husband's neurologist told us during the previous

visit that Naltrexone is not a typical drug being used here. I decided to

join the group anyway thinking it would not hurt to learn what others are

coping with it.

I have been reading the responses to this topic and was wondering what

LDN would do for the leg's stiffness that's already there and if it would

help with the bloating in the stomach. I plan to go see my husband's

neurologist myself this wednesday as he asked for not seeing any

doctors for a while. So maybe I can discuss about LDN with her.

I'm surprised to know that VCL, you swim 3-4 times a week. I used to

want my husband to exercise in the water but he had muscle cram and I

was afraid if something happens I couldn't help him. He's having a hard

time with bloating and the burning sensation in the stomach all the time,

which causes back pain & gait walking. I am having a hard time seeing

him not being ready to exercise due to the above and started to worry

about his weight.

His neurologist prescribes Baclofen and Tegretol but he doesn't want to

be on them due to the drowziness side effect and loosing legs' muscle

strength. He chooses to have stiffness rather than not being able to

walk. So he's now not on any drugs beside Lipitor (help reducing

choresteral.)

I hope all of you don't mind me telling my husband's problems and I

would so much appreciate it if any of you have any suggestion. You all

have been very kind to the group member. Thank you very much.

Chi

--- In low dose naltrexone , manchester_terrier@i...

wrote:

> I just get up and keep moving around - with a dog that is very easy to

do. I

> also swim 3-4 times a week at the local gym. Now, I don't even feel

any kind

> of stiffness.

>

> VCL

>

>

>

>

>

> i have just started at 3 mg and also have had leg stiffness......what did

> you do to take care of the leg stiffness?

>

>

> DeLores

> decrosby@a...

>

> -----Original Message-----

> From: manchester_terrier@i...

> [mailto:manchester_terrier@i...]

> Sent: Sunday, November 07, 2004 9:19 AM

> low dose naltrexone

> Subject: RE: [low dose naltrexone] LDN - MS

>

>

> I do not want to sound stupid, but I do not understand about the

different

> doses. Some people start at 1.5 mg and gradually increase to 3.0

mg; some

> people start at 3.0 mg and increase to 4.5 mg which is recommended

for full

> benefit of LDN. Why are people doing this? I started at 4.5 mg 3

weeks

> ago,

> and I have had no side effects except for some leg stiffness which I

took

> care

> of. What are the side effects that people are having? What should

the LDN

> be

> doing that would cause those side effects? To me, it is like taking an

M & M

> at

> night before I go to bed. Thanks.

>

> VCL

>

>

>

>

>

>

>

[Guest guest]

Thanks for your input. My husband thinks those of us with MS are a vulnerable lot.He thinks we are all so desperate for the cure that we are easy prey for the people who want to sell us expensive treatments that may or may not work.I also had my mercury fillings out, although I don't think it was a mistake. I haven't seen big results, but I don't think it was good for me to have that poison in my head.

The chelation question may be one of those iffy treatments....and very expensive.Snake oil? I don't know?!

Thanks for the great weekend wishes, but it's only Monday where I live.

-------Original Message-------

From: low dose naltrexone

Date: Monday, November 08, 2004 09:12:14

low dose naltrexone

Subject: RE: [low dose naltrexone] LDN - MS

That's a very good question , it's also one that does not have a clear answer. I have some friends that swear by it and others that did not see a big difference. I myself have not done chelation. It's one of those things that you've got to do your homework on and decide for yourself. I had my mercury filling out years ago, and today think that it was a expense mistake. Just my opinion. As you know in this "MS world" there is little black and white but an awful lot of gray. Have a great weekend.

From: [mailto:cindyyoung@...] Sent: Saturday, November 06, 2004 9:17 PMlow dose naltrexone Subject: RE: [low dose naltrexone] LDN - MS

Hi ,

You seem to be extremely educated in alternative therapies, what is your take on chelation?

-------Original Message-------

From: low dose naltrexone

Date: Saturday, November 06, 2004 19:31:01

low dose naltrexone

Subject: RE: [low dose naltrexone] LDN - MS

Hi Neil,

The people on this board have two different approaches. The first being to

start at an extremely low dose of 1.5mg and gradually increasing .5mg at a

time. The second approach and the one that I followed 7 months ago was to

start out at 3.0mg and after a period of time hit the ultimate goal of

4.5mg. It took me a good 6 months before I was ready for 4.5mg but listen

to your body, it will tell you when it's ready. If you check out the LDN

website, you should have everything you need for your GP. Good luck, this

is a great board to keep in touch with!

-----Original Message-----

From: lucasneil2000 [mailto:lucas@...]

Sent: Saturday, November 06, 2004 12:56 PM

low dose naltrexone

Subject: [low dose naltrexone] LDN - MS

Hi all

I've heard a lot about LDN, but never gone on to try it!

Read lots of the email from the discussion group.

I feel I should try LDN as the neuro's seem lost! I am spms having been

diag. some 7yrs ago, but it was 'out of sight / mind' until 18mths ago.

(Stress seemed to keep it at bay!)

I need someones advice!!

What dosage should I start at / progress to?

Any other advice I should give to my GP? - (she is great!) I am on the BEST

DIET.

I am not on any betaferon, copaxon, etc. drugs I do have walking, tremour

difficulties.

HELP!

Neil

[Guest guest]

Delores, Thanks for speaking for those of us unable to walk much, if any. Some of us must use mobility devices, like wheelchairs, to get from place to place even at home. It is true, however, that some form of exercise is helpful and can be done in bed, from a chair, or in other ways. Just like finding the correct LDN dose for one, so we must find other ways of living and being healthy for ourselves. Everybody in this group knows and appreciates that fact, from what I read. Sometimes, it is good to state that openly, while continuing to learn from each other. Thanks to all, who have helped me make decisions about my own situation. Best to all.

delores crosby <decrosby@...> wrote:

RIGHT....AND MY MOVEMENT IS WITH A WALKER (SLOWLY)

DeLores

decrosby@...

-----Original Message-----From: [mailto:jatrac1@...] Sent: Monday, November 08, 2004 10:50 AMlow dose naltrexone Subject: Re: [low dose naltrexone] LDN - MS

It's great that this works for you, but it is a simplistic solution that will definitely not work for all of us. Yes, the stiffness is at its worst after a period of idleness, be it sleeping, watching TV, or sitting at my desk at work. But our lives demand periods of inactivity. I have little choice about sleeping, and the morning stiffness is severe to the point that walking around is somewhat hazardous for a while. My morning stiffness makes walking my dogs impossible. Nor are the stiffness in my chest and jaw eased by walking around.

I don't have to sit and watch TV but I have very little choice about sitting at my desk at work. I can walk around whenever I want to but I can't be effective in what I'm doing if I get up and take a walk around the block every half hour. So while moving around is a simple solution for you it just isn't a simple answer for all of us, nor does simple activity relieve the stiffness for all of us. I wish it were that easy, and I'm sure a lot of other people do too. And I'm very glad for you that it is currently a solution to a problem that is vexing at the very least.

JT

----- Original Message -----

From: manchester_terrier@...

low dose naltrexone

Sent: Monday, November 08, 2004 7:02 AM

Subject: RE: [low dose naltrexone] LDN - MS

,I just get up in the morning and start walking around - which is quite easy when you have a dog to take care of. I also swim 3-4 times per week and that seems to help. Just keep moving and that will take away the stiffness. If you sit or lay in bed, that makes the stiffness more pronounced.VCL

__________________________________________________

[Guest guest]

--- In low dose naltrexone , Sisk <linda_ssk@y...>

wrote:

> Delores, Thanks for speaking for those of us unable to walk much,

if any. Some of us must use mobility devices, like wheelchairs, to get

from place to place even at home. It is true, however, that some form

of exercise is helpful and can be done in bed, from a chair, or in

other ways.

Speaking of exercise from a chair, is anyone familiar with the EF 250

Leg Machine from Ex N' Flex? It is similar to the Motomed that Friday

uses but is less expensive and made in Canada, not Europe. I am

seriously considering getting one so anyone who has one or has used

one in therapy or knows someone who uses it, please email me! It is

very expensive so I want to do my homework before buying it! Thanks!

Gail

[Guest guest]

Hi Chi pleased to meet you

I know the first few months of being diagnosed are and will continue to be tough. But you have found a great group of people here. I would sugest trying to aquire your naltrexone from Medsmex in mexico if your Dr.s or Nuero won't prescribe any. We can help with your mixing or dividing of the pills.

Also The decision to stay off the baclofen is a wise one in my books as walking even on legs like stilts is preferable to not walking at all.

Although a small trial of Baclofen will not hurt in any way and you may find it works well for him.

I tried the Baclofen at 5.0 mgs and even that was making me too weak to walk, however some people have to get a pump installed so they can exist, only your husband can determine whats right for him.

I also tried swimming but being unable to kick my legs at all meant that I soon sank so I have to do some yoga or some thing I guess.

Reg

-------Original Message-------

From: low dose naltrexone

Date: 11/08/04 10:19:04

low dose naltrexone

Subject: [low dose naltrexone] Re: LDN - MS

Hi VCL and all,My name is Chi. I am from Bangkok, Thailand. My husband, Ton, has had primary progressive MS since 2001. We have just got married for 4 months. I do not know neither anyone in Thailand taking LDN nor any Dr. prescribing LDN. My husband's neurologist told us during the previous visit that Naltrexone is not a typical drug being used here. I decided

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[Guest guest]

JT,

I am sorry if I angered you with my " simplistic plan " of just moving around.

My stiffness hurts as much as anyone's, but, like everything else with Life and

MS, you have to force yourself to do more things, I know people are impatient

with me when I am walking so slowly (which takes a great deal of my energy),

but someday they may face the same thing. All of us have a Cross to bear and

MS is ours.

VCL

It's great that this works for you, but it is a simplistic solution that will definitely not work for all of us. Yes, the stiffness is at its worst after a period of idleness, be it sleeping, watching TV, or sitting at my desk at work. But our lives demand periods of inactivity. I have little choice about sleeping, and the morning stiffness is severe to the point that walking around is somewhat hazardous for a while. My morning stiffness makes walking my dogs impossible. Nor are the stiffness in my chest and jaw eased by walking around.

I don't have to sit and watch TV but I have very little choice about sitting at my desk at work. I can walk around whenever I want to but I can't be effective in what I'm doing if I get up and take a walk around the block every half hour. So while moving around is a simple solution for you it just isn't a simple answer for all of us, nor does simple activity relieve the stiffness for all of us. I wish it were that easy, and I'm sure a lot of other people do too. And I'm very glad for you that it is currently a solution to a problem that is vexing at the very least.

JT

----- Original Message -----

From: manchester_terrier@...

low dose naltrexone

Sent: Monday, November 08, 2004 7:02 AM

Subject: RE: [low dose naltrexone] LDN - MS

,I just get up in the morning and start walking around - which is quite easy when you have a dog to take care of. I also swim 3-4 times per week and that seems to help. Just keep moving and that will take away the stiffness. If you sit or lay in bed, that makes the stiffness more pronounced.VCL

[Guest guest]

I agree with you VCL. And good for you.

I guess I was feeling a little protective of the people who've been

around for awhile...

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