RE: I knew SSRIs were poison, I am suffering from it

[Guest guest]

Thank you for digging that up Dawn!

Most illuminating.

best wishes

Bob

>

> The developer is totally opposed to the drugs she helped develop, no

> wonder, read it here....

>

> http://www.consumerhealth.org/articles/display.cfm?ID=20060209190055

>

[Guest guest]

YRW Bob,

terrible stuff innit?

Oh by the way, someone on the STTM forum was saying that their doctor

helped develop T4 drugs and wouldn't use them.

Wouldn't it be great to get that

Dr on the team?

lotsa luv

Dawnx

[Guest guest]

That is one powerful article Dawn - thank you for posting it - I have

bookmarked it for any future use...

jennyfreeman

>

> http://www.consumerhealth.org/articles/display.cfm?ID=20060209190055

>

[Guest guest]

Pretty scarey reading Dawn, but I think some of these effects are dose related. Too many people are put on too high doses when they probably shouldnt be. 20mg is considered the thearputic dose of most SSRI's, I certainly have never gone above that dose and never will, I have never suffered any of those bad effects after the initial few weeks of adjusting to them. Are you going to stop your seroxat?

The developer is totally opposed to the drugs she helped develop, nowonder, read it here....http://www.consumer health.org/ articles/ display.cfm? ID=2006020919005 5

[Guest guest]

Having been on these anti-depressants myself I digested this article in horror! In particular the line "Avoid glandular products because they produce a steroid effect and can cause very serious reactions after taking these drugs" - can anyone clarify what this means? I was going to try the andrenal support extra talked about on the forums, but now I'm unsure.

From: blondiethefirstuk <whitbywitchuk@...>thyroid treatment Sent: Wednesday, 10 December, 2008 0:00:07Subject: I knew SSRIs were poison, I am suffering from it

The developer is totally opposed to the drugs she helped develop, nowonder, read it here....http://www.consumer health.org/ articles/ display.cfm? ID=2006020919005 5

[Guest guest]

Hi Chris

I believe you need to be careful that the serotonin syndrome is kept

under check....

and yes, it does raise the need for a review of these products in

combination...treating the depression rather than the underlying

disease seems to be the fault....

the fact that 'SSRIs' cause an increase in cortisol is behind the

suspicion that most/all psychiatric conditions are more to do with

the HPA axis than anything else...(See Spiga, Lightman et al 2008)

best wishes

Bob

>

> Having been on these anti-depressants myself I digested this

article in horror!  In particular the line " Avoid glandular products

because they produce a steroid effect and can cause very serious

reactions after taking these drugs " - can anyone clarify what this

means?  I was going to try the andrenal support extra talked about

on the forums, but now I'm unsure. 

>

[Edit Abbrev Mod]

[Guest guest]

Should we be taking HC if we are taking SSRI's then?

Hi ChrisI believe you need to be careful that the serotonin syndrome is kept under check....and yes, it does raise the need for a review of these products in combination. ..treating the depression rather than the underlying disease seems to be the fault....the fact that 'SSRIs' cause an increase in cortisol is behind the suspicion that most/all psychiatric conditions are more to do with the HPA axis than anything else...(See Spiga, Lightman et al 2008)best wishesBob>> Having been on these anti-depressants myself I digested this article in horror! In particular the line "Avoid glandular products because they produce a steroid effect and can cause very serious reactions after taking

these drugs" - can anyone clarify what this means? I was going to try the andrenal support extra talked about on the forums, but now I'm unsure. > [Edit Abbrev Mod]

[Guest guest]

Did

you ask the writer of that message WHY that particular doctor won't use T4. Dr

Lowe also won't use T4, he thinks it was one of the worse drugs ever invented.

luv -

Sheila

YRW Bob,

terrible stuff innit?

Oh by the way, someone on the STTM forum was saying that their doctor

helped develop T4 drugs and wouldn't use them.

Wouldn't it be great to get that

Dr on the team?

lotsa luv

Dawnx

[Guest guest]

I was thinking last night Sheila that T4 could be responsible for my funny heads, it is the ONLY drug I have taken all the time while having these funny heads but I never gave it a second thought. I have took AD's on and off and none of them made any difference to me head wether on them or off them so I now wonder if T4 is the culprit.

I shall be interested to see what happens when I come off it and start armour, I am beginning to think this is the way to go for me, all T4 has done for me is make my bloods look ok!

Did you ask the writer of that message WHY that particular doctor won't use T4. Dr Lowe also won't use T4, he thinks it was one of the worse drugs ever invented.

luv - Sheila

YRW Bob, terrible stuff innit?Oh by the way, someone on the STTM forum was saying that their doctorhelped develop T4 drugs and wouldn't use them. Wouldn't it be great to get that Dr on the team?lotsa luvDawnx

[Guest guest]

All drugs should be avoided if your body doesn't require

them. All 'glandular products' should be avoided if all of your glands are

secreting the correct amount of hormone. You should only replace hormones with

glandular products (such as cortisol and thyroid hormones etc) if your glands

are not producing sufficient glandular hormones. Nutri Adrenal Extra contains a

tiny amount of glandular hormone and if you need adrenal support, these will do

you no harm.

Luv -

Sheila

Having been on these anti-depressants myself

I digested this article in horror! In particular the line " Avoid glandular products because they produce a

steroid effect and can cause very serious reactions after taking these

drugs " - can anyone clarify what this means? I was going to try the

andrenal support extra talked about on the forums, but now I'm unsure.

_,___

[Guest guest]

Thanks for your reply Sheila, I'm reassured - I'm going to hold fire anyway until I know what I'm dealing with.... I was on anti-depressants for nearly 3 years and did stop rather too quickly in retrospect, but I'm not prepared to go back on them. I'm wondering now if the anti-depressants may have had an effect (on adrenals) rather than it being my thyroid. I've just had a call from my GP to say my blood results are in and I'm to go see her on Monday to talk things over..... not sure what that means. Meanwhile she wants me to do my basal temp thing over the next few days - will a regular thermometer be OK to use for this or do I need a specialised one? Thanks to you all for your continued support -this forum has a wealth of information - difficult to

take it all in!!

Moley

From: Sheila <sheilaturner@...>thyroid treatment Sent: Wednesday, 10 December, 2008 10:57:35Subject: RE: I knew SSRIs were poison, I am suffering from it

All drugs should be avoided if your body doesn't require them. All 'glandular products' should be avoided if all of your glands are secreting the correct amount of hormone. You should only replace hormones with glandular products (such as cortisol and thyroid hormones etc) if your glands are not producing sufficient glandular hormones. Nutri Adrenal Extra contains a tiny amount of glandular hormone and if you need adrenal support, these will do you no harm.

Luv - Sheila

Having been on these anti-depressants myself I digested this article in horror! In particular the line "Avoid glandular products because they produce a steroid effect and can cause very serious reactions after taking these drugs" - can anyone clarify what this means? I was going to try the andrenal support extra talked about on the forums, but now I'm unsure.

_,___

[Guest guest]

Yes I have emailed the gal on the forum hoping that she will give me

the name of the doc so I can email him, I am interested to know why he

hates the drug so much, it would be interesting to hear from the

developers point of view I think. Just depends if the lassy gets back

to me now.

lotsa luv

Dawnx

[Guest guest]

Hi there all,this is taken from wikipedia-PAROXETINE ( seroxat,paxil.) (SSRI)because of side effects such as suicidal ideation and withdrawal syndrome which have resulted in legal proceedings against the manufacturer.regards angel.

[Guest guest]

The

question I think you should be asking rather is " Should we be taking

SSRI's if we are taking Hydrocortisone " . That is the more important

question. Finish your course of HC and take the right thyroid hormone

replacement and it is quite likely there will be no need whatsoever for any

SSRI's

luv -

Sheila

Should we be taking HC

if we are taking SSRI's then?

[Guest guest]

Wow

- sounds as if your GP knows what he's doing and knows that blood test results

are NOT the only way to find out if a patient is needing thyroid hormone

replacement. Yes, a regular thermometer is OK, if, by regular, you mean a

Mercury thermometer. The digital one's tend not to give as accurate a temperature

as they should, or so I am told. I use a mercury one. Take your basal

temperature for say 5 days, before you get out of bed each morning.

luv -

Sheila

Thanks for your reply Sheila, I'm reassured

- I'm going to hold fire anyway until I know what I'm dealing

with.... I was on anti-depressants for nearly 3 years and did stop

rather too quickly in retrospect, but I'm not prepared to go back on

them. I'm wondering now if the anti-depressants may have had an

effect (on adrenals) rather than it being my thyroid. I've just had

a call from my GP to say my blood results are in and I'm to go see her on

Monday to talk things over..... not sure what that means. Meanwhile she

wants me to do my basal temp thing over the next few days - will a regular

thermometer be OK to use for this or do I need a specialised one? Thanks

to you all for your continued support -this forum has a wealth of information -

difficult to take it all in!!

Moley

_

[Guest guest]

Seroxat is one of the worst to withdraw from if not the worst, I can vouch for that.

Also it is the best one I have been on and really did work wonders for me, prozac is the easy one to stop because of its long half life but I also found that very hard to adjust to and it took ages to work, ideally I would rather not take any

From: judith franklin <angel47572000@...>Subject: Re: I knew SSRIs were poison, I am suffering from itthyroid treatment Date: Wednesday, 10 December, 2008, 2:02 PM

Hi there all,this is taken from wikipedia-PAROXETINE ( seroxat,paxil. ) (SSRI)because of side effects such as suicidal ideation and withdrawal syndrome which have resulted in legal proceedings against the manufacturer.regards angel.

[Guest guest]

Hi Sheila - yes my GP seems wonderful - she is determined to find out why I feel so awful. I am still not 100% it is a thyroid issue, but at least by doing these tests I can hopefully either confirm or rule it out. However, I'm feeling so low - if its not thyroid disease I don't know what else to look at - I'm at the end of my rope so to speak. My GP agrees that all the symptoms point to thyroid problems - and the strong family history etc. I've been off work this week with a flu bug - and now sinusitis (funny I read somewhere that constant infections/sinus problems can also be a symptom!!) so waiting for that to clear before I do my basal temp - as clearly the readings might not be accurate. I'm wondering what percentage of people here are self-treating or

being treated for hypothyroid even with a diagnosis of "normal" thyroid by tests. I've done a LOT of reading around the subject this week while I've been laid up in bed (feeling sorry for myself) and it does seem that not only are blood tests not very conclusive, but that it's treated differently depending on the doctor you happen to get, the country you happen to live in!!! Time for change!!! I work in the NHS (only clerical I hasten to add) and the number of treatment anomolies I come across never ceases to amaze me... but thats a whole other story.

Sheila - if these T3 tests come back "normal" what should I ask of my GP next? I don't want to harrass her as she's been so lovely, but I feel I need to go armed and ready with my questions and suggestions. I'm interested to read that a lot of hypo patients have low pulse and low bp - mine are at the higher end of the spectrum - does this suggest to you that I'm NOT hypothyroid? I'm so confused and rambling now I'm sorry... My GP, although wonderful, was hesitant to supply me with my results - I think as she knows I'm intelligent and won't be fobbed off....I've not pushed it as she agreed to do this other blood test.

Sorry for my confused post, this is how my head is at the moment - I feel I'm going round in circles. Would it be worth my trying to see your Dr P at this stage or should I hang on and hope for results with the NHS?

From: Sheila <sheilaturner@...>thyroid treatment Sent: Wednesday, 10 December, 2008 14:54:49Subject: RE: I knew SSRIs were poison, I am suffering from it

Wow - sounds as if your GP knows what he's doing and knows that blood test results are NOT the only way to find out if a patient is needing thyroid hormone replacement. Yes, a regular thermometer is OK, if, by regular, you mean a Mercury thermometer.. The digital one's tend not to give as accurate a temperature as they should, or so I am told. I use a mercury one. Take your basal temperature for say 5 days, before you get out of bed each morning.

luv - Sheila

Thanks for your reply Sheila, I'm reassured - I'm going to hold fire anyway until I know what I'm dealing with.... I was on anti-depressants for nearly 3 years and did stop rather too quickly in retrospect, but I'm not prepared to go back on them. I'm wondering now if the anti-depressants may have had an effect (on adrenals) rather than it being my thyroid. I've just had a call from my GP to say my blood results are in and I'm to go see her on Monday to talk things over..... not sure what that means. Meanwhile she wants me to do my basal temp thing over the next few days - will a regular thermometer be OK to use for this or do I need a specialised one? Thanks to you all for your continued support -this forum has a wealth of information - difficult to take it all in!!

Moley

_

[Guest guest]

Hi

Just to let you know I have always had a normal pulse but my bp has always been highish but I am hypoT (hashimotos) so it doesnt always go that hypoT people have low blood pressure. I also have very good colesterol, 4.3 on last test, but a lot of sufferers have high colesterol. We dont all fit the same mould and have the same symptoms, which makes things more confusing!

Your basal temps will give you a pretty strong indication if you are HypoT though, I hope you soon get over your illness and start to feel better.

A lot of us here have had to turn our back on the NHS and its not easy and a lot of us are self treating and that can be daunting too. I have been on T4 for just over 2 yrs and never felt totally better, I have never felt really human again! It wasnt until last summer that a did the adrenal salivary profile that I found out my adrenals were not working as they should be. I would never have known about that if it wasnt for the TPA, I am now changing my thyroid treatment over to armour and have been taking HC since the end of August, this is all self treating, if we dont take our health into our hands I am afraid the NHS will keep us ill as scarey as that sounds

Hi Sheila - yes my GP seems wonderful - she is determined to find out why I feel so awful. I am still not 100% it is a thyroid issue, but at least by doing these tests I can hopefully either confirm or rule it out.

Sorry for my confused post, this is how my head is at the moment - I feel I'm going round in circles. Would it be worth my trying to see your Dr P at this stage or should I hang on and hope for results with the NHS?

From: Sheila <sheilaturner@ tpa-uk.org. uk>thyroidpatientadvoc acygroups (DOT) comSent: Wednesday, 10 December, 2008 14:54:49Subject: RE: [thyroidpatientadvo cacy] I knew SSRIs were poison, I am suffering from it

Wow - sounds as if your GP knows what he's doing and knows that blood test results are NOT the only way to find out if a patient is needing thyroid hormone replacement. Yes, a regular thermometer is OK, if, by regular, you mean a Mercury thermometer. . The digital one's tend not to give as accurate a temperature as they should, or so I am told. I use a mercury one. Take your basal temperature for say 5 days, before you get out of bed each morning.

luv - Sheila

Thanks for your reply Sheila, I'm reassured - I'm going to hold fire anyway until I know what I'm dealing with.... I was on anti-depressants for nearly 3 years and did stop rather too quickly in retrospect, but I'm not prepared to go back on them. I'm wondering now if the anti-depressants may have had an effect (on adrenals) rather than it being my thyroid. I've just had a call from my GP to say my blood results are in and I'm to go see her on Monday to talk things over..... not sure what that means. Meanwhile she wants me to do my basal temp thing over the next few days - will a regular thermometer be OK to use for this or do I need a specialised one? Thanks to you all for your continued support -this forum has a wealth of information - difficult to take it all in!!

Moley

_

[Guest guest]

Chris

- the big mistake is to believe that thyroid function tests are infallible -

they are NOT. There are tens of thousands of sufferers of this disease that are

being refused a diagnosis and therefore, no treatment, because their thyroid

function tests are returned within the normal range. Some NEVER go outside of

the range for years - so NEVER - period. Doctors should look at symptoms,

signs, look at the temperature, listen to the patients story, test for

antibodies, ask if there are family members with a thyroid or autoimmune

disease and last, but not least, give the patient a thorough clinical

examination. When TFT's are returned within the normal range, the doctor never

bothers to try to find out what IS causing his/her patient's problems and sends

him/her away with a bottle of antidepressants telling them to take more

exercise, lose weight and stop feeling sorry for themselves. So, just a warning

not to rely on test results alone.

The British Thyroid Association have so much

influence with doctors and make sure they follow their recommendations, and

should they dare to diagnose and treat outside of these recommendations, they

will not think twice of reporting errant doctors to other GMC - so you can understand

the reluctance of doctors to go outside mainstream thinking. They do not want

to put their livelihood at risk.

There is a large majority of members here who

have been forced into self-treating but we have the information and good

medical advisers. You might buy Dr Peatfield's book " Your Thyroid and How

to Keep it Healthy " - he wrote this book because he wanted to help

sufferers to treat themselves, and he teaches you well. He explains everything

and the reasons why he recommends what he does.

It depends on what you mean by normal - there

is low normal, slap bang in the middle normal and high normal. What you worry

about with a Free T3 test is that if it comes back low normal, you need to be

treated with thyroid hormone replacement - and that would, in the first

instance, be synthetic levothyroxine - which works fine for the majority of sufferers.

If you can convert the mainly inactive levothyroxine to the active hormone T3 -

you will be fine - and you probably will have no problem whatsoever. Many of us

are here because we cannot convert, but our doctors do not understand this - in

fact, some don't even know that you need to be able to convert T4 to T3 to make

you well. They think T4 is the most wonderful tablet and everybody does well on

it.

Wait and see what your thyroid function tests

show and do get the results. Post them here together with the reference range

for each of the tests and we can help you interpret them. Unfortunately, many

laboratories write " normal " at the side of your results, and because

doctors don't know how to interpret them, they tell you " your tests show

that you are normal " . After we have seen your results, we can take it from

there. Having a highish BP and pulse doesn't automatically mean you are not

hypothyroid, though most are low. Are you cold and do you have any of the other

symptoms and signs of hypothyroidism on the list in our web site www.tpa-uk.org.uk - go and check these out.

Particularly, look at the 'signs' and see how many of those you have. You are

entitled to your blood results, no doctor can withhold these from you. Tell her

you want to keep a diary of everything that is happening to you and you need to

keep a check on your blood results to see what difference medication might (or

not) make.

If your blood results are returned as normal

and your GP is not happy to refer you to an endocrinologists - then you can

think about seeing Dr P.

Luv - Sheila

Sheila - if these T3 tests come back

" normal " what should I ask of my GP next? I don't want to harrass her

as she's been so lovely, but I feel I need to go armed and ready with my

questions and suggestions. I'm interested to read that a lot of hypo

patients have low pulse and low bp - mine are at the higher end of the spectrum

- does this suggest to you that I'm NOT hypothyroid? I'm so confused and

rambling now I'm sorry... My GP, although wonderful, was hesitant to supply me

with my results - I think as she knows I'm intelligent and won't be fobbed

off....I've not pushed it as she agreed to do this other blood test.

Sorry for my confused post, this is how my

head is at the moment - I feel I'm going round in circles. Would it be

worth my trying to see your Dr P at this stage or should I hang on and hope for

results with the NHS?

,___