Thyroid UK refuses to take part in our petitions.

[Guest guest]

I wrote to Lyn Mynott of Thyroid

UK and to Dawn Wood of Thyroid Disease quite some time ago to ask if they would

please add the two petition links to their websites so their members would have

the opportunity to sign them. I have never had a response from Thyroid

Disease neither of the links have been put on their website. However, I

am utterly disgusted today with the decision made by the Committee of Thyroid

UK regarding their refusal to give their members the opportunity to sign either

of these petitions.

Both of these Petitions are

EXTREMELY important and both are to be used to lobby medical boards throughout

the world for medical justice and for a choice of thyroid hormone replacement

to be given to those patients who do not do well on levothyroxine only. One

of the Petitions actually bears Lyn Mynott's name. How the hell are we expected

to bring about ANY changes when we are constantly up against such unhelpful

attitudes and organisations. Do the committee members of Thyroid UK feel that

they, and they alone, are the only organisation capable of doing anything to

bring about these changes and that organisations such as TPA-UK are completely

irrelevant. Is it any wonder I have little hair left?

Dear

Sheila,

Thank

you for your email regarding these petitions. I am sorry for the delay in

responding but I have been away at meetings and giving talks.

We

had a committee meeting recently and the subject of petitions came up. It

has been decided that unless we feel that particular petitions have a good

chance of doing some good, such as the Welsh Assembly Petition, we will not be

putting them onto our website or in our newsletter.

We

feel that we want to spend all of our time on projects such as our own that

will enable us to help people with underactive thyroid and also people with

overactive thyroids.

We

are extremely busy at the moment working on the Pilot project of the Department

of Health’s Health Accreditation Scheme and other projects as well as

changes we are making to our organization.

We

all have our own way of trying to change things and I’m sure that we will

get there in the end.

Best

wishes,

Lyn

Lyn

Mynott,

Chair

Thyroid UK

[Guest guest]

Surely they must have members who dont do so well on thyroxine alone? They must be aware of this and it would seem sensible that all thyroid organisations joined together for the benefit of everyone, it just doesnt make sense does it?

Dear Sheila,

Thank you for your email regarding these petitions. I am sorry for the delay in responding but I have been away at meetings and giving talks.

We had a committee meeting recently and the subject of petitions came up. It has been decided that unless we feel that particular petitions have a good chance of doing some good, such as the Welsh Assembly Petition, we will not be putting them onto our website or in our newsletter.

We feel that we want to spend all of our time on projects such as our own that will enable us to help people with underactive thyroid and also people with overactive thyroids.

We are extremely busy at the moment working on the Pilot project of the Department of Health’s Health Accreditation Scheme and other projects as well as changes we are making to our organization.

We all have our own way of trying to change things and I’m sure that we will get there in the end.

Best wishes,

Lyn

Lyn Mynott,ChairThyroid UK

[Guest guest]

> However, I am utterly disgusted today with the

> decision made by the Committee of Thyroid UK regarding their refusal

to give

> their members the opportunity to sign either of these petitions.

And rightly so Sheila. Talk about a blinkered approach. What's wrong

with them? Anyone would think we were on different sides, not all

aiming for the same thing. Unbelievable!

[Guest guest]

Outrageous! What on earth does " .....We all have our own way of trying

to change things " mean? Surely we are all on the same side! Sadly this

narrow minded " silo " mentality will just make it harder for thyroid

patients to get the right treatment.

United we stand and all that...

Pen x

[Guest guest]

I wish I could get a good nights sleep Sheila, I should have told the endo that I am not well enough for work let alone following his suggestion of going to medical school so I have the knowledge to challenge him! Its all very draining, but I keep telling myself I am low in thyroid and when thats sorted I will feel the benefits of HC etc. He said people do feel well on steriods, I said well I dont!

It sometimes seems the TPA stands alone, but why? Where do you get your energy from Sheila?

No - it certainly doesn't make sense , and when I have had a good nights sleep to get over the shock of receiving such a message from Thyroid UK, I will be writing to all of the members of their committee and asking for a full explanation of their reasoning behind this.

Luv - Sheila

Surely they must have members who dont do so well on thyroxine alone? They must be aware of this and it would seem sensible that all thyroid organisations joined together for the benefit of everyone, it just doesnt make sense does it?

Dear Sheila,

Thank you for your email regarding these petitions. I am sorry for the delay in responding but I have been away at meetings and giving talks.

We had a committee meeting recently and the subject of petitions came up. It has been decided that unless we feel that particular petitions have a good chance of doing some good, such as the Welsh Assembly Petition, we will not be putting them onto our website or in our newsletter.

We feel that we want to spend all of our time on projects such as our own that will enable us to help people with underactive thyroid and also people with overactive thyroids.

We are extremely busy at the moment working on the Pilot project of the Department of Health’s Health Accreditation Scheme and other projects as well as changes we are making to our organization.

We all have our own way of trying to change things and I’m sure that we will get there in the end.

Best wishes,

Lyn

Lyn Mynott,ChairThyroid UK

[Guest guest]

gosh sheila; they must feel very threatened by you, keep up the

good work !! luv jane

>

> I wrote to Lyn Mynott of Thyroid UK and to Dawn Wood of Thyroid

Disease

> quite some time ago to ask if they would please add the two

petition links

> to their websites so their members would have the opportunity to

sign them.

> I have never had a response from Thyroid Disease neither of the

links have

> been put on their website. However, I am utterly disgusted today

with the

> decision made by the Committee of Thyroid UK regarding their

refusal to give

> their members the opportunity to sign either of these petitions.

>

>

>

> Both of these Petitions are EXTREMELY important and both are to be

used to

> lobby medical boards throughout the world for medical justice and

for a

> choice of thyroid hormone replacement to be given to those patients

who do

> not do well on levothyroxine only. One of the Petitions actually

bears Lyn

> Mynott's name. How the hell are we expected to bring about ANY

changes when

> we are constantly up against such unhelpful attitudes and

organisations. Do

> the committee members of Thyroid UK feel that they, and they alone,

are the

> only organisation capable of doing anything to bring about these

changes and

> that organisations such as TPA-UK are completely irrelevant. Is it

any

> wonder I have little hair left?

>

>

>

>

>

> Dear Sheila,

>

>

>

> Thank you for your email regarding these petitions. I am sorry for

the

> delay in responding but I have been away at meetings and giving

talks.

>

>

>

> We had a committee meeting recently and the subject of petitions

came up.

> It has been decided that unless we feel that particular petitions

have a

> good chance of doing some good, such as the Welsh Assembly

Petition, we will

> not be putting them onto our website or in our newsletter.

>

>

>

> We feel that we want to spend all of our time on projects such as

our own

> that will enable us to help people with underactive thyroid and

also people

> with overactive thyroids.

>

>

>

> We are extremely busy at the moment working on the Pilot project of

the

> Department of Health's Health Accreditation Scheme and other

projects as

> well as changes we are making to our organization.

>

>

>

> We all have our own way of trying to change things and I'm sure

that we will

> get there in the end.

>

>

>

> Best wishes,

>

>

>

> Lyn

>

>

>

>

>

> Lyn Mynott,

> Chair

> Thyroid UK

>

[Guest guest]

There is a lot of hubris in folks. They would rather do things

their way. A far worse example of this sort of self-destructive

behavior is in the Wilk v. AMA case where a chiropractic association

was against the lawsuit that Wilk was bringing to protect all

chiropractors from the AMA's effort to destroy that profession.

However, Wilk, with the help and sacrifice of an attorney, managed

to prevail.

I suppose that the Lyn Mynott, Shomon, et al., will be so happy

to report the case, albeit without mentioning who brought it.

Remember, money is being made by abusing we victims.

Money is being made by pseudo helping us.

Most don't care or can't afford to care.

And then there are a very few altruistic souls who do care.

So much for grandure of human nature.

Have a better day,

> I wrote to Lyn Mynott of Thyroid UK and to Dawn Wood of Thyroid

[Edit Abbrev Mod]

[Guest guest]

I don't really believe that Thyroid UK is interested in fixing the

problem, just finding a good way of living with debilitating

symptoms of hypothyroidism. I was in contact with Thyroid UK long

before I wrote to Sheila and joined TPA-UK. They could be the ones

making our complaints, but they refused to do so. To me, Thyroid UK

does not seem to be up to the task of righting this health issue.

Have a great day,

>

> gosh sheila; they must feel very threatened by you, keep up

the

> good work !! luv jane--- In

>

[Guest guest]

-already, you know that you know more than your endoprat.

He has his head stuck in a bucket and too scared to take it out because to make

his poor patients well again, he just might have to work outside of the mainstream

teachings and what doctor is going to dare to do that.

Have you considered trying melatonin to help you get  your body

clock back in order and to help you sleep. Dr Peatfield and many doctors

recommend this, and I most certainly do.

I get my energy from sheer anger at the way I was treated and

the way thousands of other sufferers are treated within the NHS for this

disease. The science is out there for all of them to follow, but they won't.

Luv - Sheila

I wish I could get a good nights sleep Sheila, I should

have told the endo that I am not well enough for work let alone following his

suggestion of going to medical school so I have the knowledge to challenge

him! Its all very draining, but I keep telling myself I am low in thyroid and

when thats sorted I will feel the benefits of HC etc. He said people do feel

well on steriods, I said well I dont!

It sometimes seems the TPA

stands alone, but why? Where do you get your energy from Sheila?

 

[Guest guest]

Well, I just wonder if that demonstrates her personal feelings, over what can be expressed or acted on as a group of individuals?

I am part of an organisation professionally, and I have to say, don't always agree with the wider decisions made, which don't necessarily reflect my personal take on a given situation. However, I have to support/go along with consensus quite a bit of the time. Quite frustrating.

M

x

[Guest guest]

Hi Sheila

Thanks for your kind words about the loss of our dog and you having been through it will know how heart breaking it is.

i

From: Sheila <sheilaturner@...>Subject: RE: Thyroid UK refuses to take part in our petitions.thyroid treatment Date: Tuesday, 18 November, 2008, 7:46 AM

-already, you know that you know more than your endoprat. He has his head stuck in a bucket and too scared to take it out because to make his poor patients well again, he just might have to work outside of the mainstream teachings and what doctor is going to dare to do that.

Have you considered trying melatonin to help you get your body clock back in order and to help you sleep. Dr Peatfield and many doctors recommend this, and I most certainly do.

I get my energy from sheer anger at the way I was treated and the way thousands of other sufferers are treated within the NHS for this disease. The science is out there for all of them to follow, but they won't.

Luv - Sheila

I wish I could get a good nights sleep Sheila, I should have told the endo that I am not well enough for work let alone following his suggestion of going to medical school so I have the knowledge to challenge him! Its all very draining, but I keep telling myself I am low in thyroid and when thats sorted I will feel the benefits of HC etc. He said people do feel well on steriods, I said well I dont!

It sometimes seems the TPA stands alone, but why? Where do you get your energy from Sheila?

[Guest guest]

Hi Sheila

Thanks for your kind words about the loss of our dog and you having been through it will know how heart breaking it is.

I have thought about melatonin yes, i think the present sleep problems are being caused by the AD's I started 2 weeks ago, this is a side effect and should settle in time, its just very frustrating and most days I have a stinking headache.

-already, you know that you know more than your endoprat. He has his head stuck in a bucket and too scared to take it out because to make his poor patients well again, he just might have to work outside of the mainstream teachings and what doctor is going to dare to do that.

Luv - Sheila

I wish I could get a good nights sleep Sheila, I should have told the endo that I am not well enough for work let alone following his suggestion of going to medical school so I have the knowledge to challenge him! Its all very draining, but I keep telling myself I am low in thyroid and when thats sorted I will feel the benefits of HC etc. He said people do feel well on steriods, I said well I dont!

It sometimes seems the TPA stands alone, but why? Where do you get your energy from Sheila?