One year update

[Guest guest]

Thanks for the update. Yeah, the big wonder is How would you be feeling Now if you never heard of LDN.

I can't imagine. I remember the direction I was heading though. Certainly never regained where I've been, but 549 days ago I said if I could have "just one more day" ... so every time I have one of those 'one more' days I am thankful. And still, the worst of my days in the last 549 have been better than the best of the days in the 13 months prior.

Definitely had to learn to appreciate the good more and just deal with the rest of the crap

----- Original Message -----

From: Reg Kreil

low dose naltrexone ; MSWatchers

Sent: Saturday, October 16, 2004 13:53

Subject: [MSWatchers] Re: [low dose naltrexone] One year update

Hello to all of my friends

I am not compaining but I said when I started the LDN that I would tell you all how it has been going.Well here it is one year to the day that I started to take LDN, This is what has happened in my life.

To begin with I am at this point and probably for the last three years or more been slowly progressing, I have to sadly admit this as I am now using my electric wheelchair in my house almost full time!

A year ago I only used it to get to my garage which is one hundred feet away from where I sit now, and also it allowed me to have the energy to do some wood working or to putter once I got there.

Today I won't trust myself around my power tools, or tablesaw,I like having all my fingers even if my left hand isn't that useable it is still attached, and I want to keep it that way!

Last year I could get into my bathtub to shower and after get out on my own, at this point my wife has to help me get my legs over the tub or I can not have a shower. A bath is totally out of the question as once I am down.... I am down for the count and she is not built like a wrestler.

I now have a tub seat and have applied for a home renovation grant to get a wheelin shower stall built.I never thought that I would have to do this especially after seeing my improvements on LDN.

Those few improvements while impressive were not to last though and for the last three months have been dissapearing.

I am taking as always a large amount of suppliments,too many to list here, and I don't believe they have hurt me in anyway.I asked at a drugstore yesterday and the druggest hadn't heard of ferulic acid and since I live in rural Canada I can't get it delivered to my roadside postal box.

I have slowly increased my dose and now (as of five days ago) am up to 4.5mgs a night,just what I started with, I still use Acidophilus as a filler and use the same compounder as I started with,cause I don't have many choices.

I wish I could trade my flue shot with those of you that want it,as I don't and won't get one.(who needs Alzheimers?)

Now that there is a vaccine shortage it is strange how our Flue drugs are now OK for Export to the States ain,t it?

I am not going to stop taking LDN though, as with chronic progressive MS there is nothing else to take,maybe I would be way worse off if I hadn't taken LDN for the last year.At least I can still go an extended period without using the washroom and that's a blessing.As a guy I can only hope that it is holding off the flue or prostate cancer, as that would be the final straw.

I have not seen anything in anyway at all bad come from taking LDN,but I sure miss those wild dreams I once had.

I have taken the odd break from LDN but it seemed to me that I was always farther behind every time I started again!

So in summation: in my case, it appears LDN or the LDN made here is not the end all or the total answer for me. But it was sure a fun ride while the good times lasted,

You know I reread this and even though it sounds like a farewell letter that is not the case, I still feel great and look forward to many more years of contributing my twobits worth.

Reg

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