Guest guest Posted December 18, 2008 Report Share Posted December 18, 2008 When I saw Dr R I showed him the results of my 24 hr thyroid urine test, 24hr adrenal saliva test - His answer to my question.............. Q - Why did Dr R ignore my private test results? A - Dr R did not ignore the test but took advice as to its appropriate use in ORTHODOX PRACTICE. He was informed that this WAS NOT USED IN ORTHODOX MEDICINE. aaaaaaaaaaaaaggggggggggggghhhhhhhhhhhhhhhh B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2008 Report Share Posted December 18, 2008 Oh my GAWD! What a completely idiotic doctor. I would write back to the Chief Executive as quickly as possible and ask him to question this doctor as to WHY he believes conversion disorders are not recognised as a problem, never mind that he adds on " in orthodox medicine " when this is medical science. Conversion disorders ARE recognised and you should cite the following references to show they are. Is it any wonder that NHS endocrinologists are leaving thousands of sufferers ill because they have no idea what they are doing when it comes to treating thyroid disorders. They don't even know that the mainly inactive hormone Thyroxine has to convert to the active hormone T3 to make our bodies function. As the Chief Executive to get a FULL explanation from this doctor as to why he has not done the research to find out about hypothyroidism and denying what is obvious. You must NOT let this doctor (can we call him something else???) pull the wool over the CE's eyes. Perhaps the scientists here could cite more references than I have shown to show the problems associated with conversion of thyroid hormones. Tell the Chief Executive that if you can find the science to show there ARE many problems with conversion and you are NOT medically qualified, why is this Doctor allowed to continue in practice when he is giving out such grossly incorrect information. He needs sacking. As for " What do we do now " - we have some fun and slap it right back in his face and tell him in future, to read the information that Thyroid Patient Advocacy-UK sends out to all NHS endocrinologists, and had he not thrown it in his bin, he might have learned something, and not be in the trouble that I hope he will find himself in now. Since at least a third of treated hypothyroid patients whose blood tests have been restored to " normal " continue to have symptoms, therefore modern thyroid treatment is often unsuccessful, a fact which is hardly surprising given the fact that triiodothyronine (T3) is the crucially important active thyroid hormone; and the commonly seen failure to convert T4 to T3 (and also, to a lesser extent T2) will result in an unsatisfactory treatment outcome.( 25,6,27,28) 25. Arem, R., The Thyroid Solution, Ballantine Books, 1999, New York. 26. Shames, RL, Shames, KH, Thyroid Power: 10 Steps to Total Health, Harper Publishers, New York, 2001. 27. Saravanan, P., et al, Clinical Endocrinology 57 (5), 577-585, 2002. 28. Rothfeld, G.S., Romaine, D.S., “Thyroid Balance: Traditional and Alternative Methods for Treating Thyroid Disorders”, Media Corporation, Avon, Massachusetts, USA, 2003. Show the CE the many conditions that may reduce the conversion of T4 to T3, e.g. aging, obesity, disease, stress, exercise, malnutrition, etc., potentially reducing the efficacy of a T4 alone treatment, and in which a natural or synthetic T4/T3 treatment may be more effective.(51,52,53,54,55,56,57) 51. Burroughs V, Shenkman L. “Thyroid function in the elderly”. Am J Med Sci. 1982, 283 (1): 8-17 52. JN, Eastman CJ, Corcoran JM, and Lazarus L. “Inhibition of conversion of thyroxine to triiodothyronine in patients with severe chronic illness”. Clin Endocrinol. 1976; 5: 587-94 53. Tulp OL and McKee TD Sr. “Triiodothyronine neogenesis in lean and obese LA/N-cp rats”. Biochem Biophys Res Communications. 1986; 140 (1): 134-42 54. Katzeff HI, Selgrad C. “Impaired peripheral thyroid hormone metabolism in genetic obesity”. Endocrinology. 1993; 132 (3): 989-95 55. Croxson MS and Ibbertson HK. “Low serum triiodothyronine (T3) and hypothyroidism in anorexia nervos”. J Clin Endocrinol Metab. 1977; 44: 167-73 56. Harns ARC, Fang SH, Vagenakis AG, and Braverman LE. “Effect of starvation, nutriment replacement, and hypothyroidism on in vitro hepatic T4 to T3 conversion in the rat. Metabolism”. 1978;27(11):1680-90 57. Opstad PK, Falch D, Öktedalen O, Fonnum F, and Wergeland R. “The thyroid function in young men during prolonged physical exercise and the effect of energy and sleep deprivation”. Clin Endocrinol. 1984; 20: 657-69 There are also toxic substances such as phenols, cadmium, and mercury and medications such as propranolol, amiodarone and several others that may interfere by inhibiting the T4 to T3 conversion.(65,66,67,68,69) 65. Feyes D, Hennemann G and Visser TJ. ”Inhibition of iodothyronine deiodinase by phenolphtalein dyes” Fed Eur Biomed Sci. 1982; 137(1):40-4 66. Bahn AK, Mills JL, Snyder PJ, Gann PH, Houten L, Bialik O, Hollmann L, and Utiger RD. „Hypothyroidism in workers exposed to polybrominated biphenyls” N Engl J Med. 1980; 302: 31-3 67. Ikeda T, Ito Y, Murakami I, Mokuda O, Tominaga M and Mashiba H. “Conversion of T4 to T3 in perfused liver of rats with carbontetrachloride-induced liver injury”. Acta Endocrinol. 1986;112: 89-92 68. Paier B, Hagmüller K, Nolli Mi, Pondal M, Stiegler C and Zaninovich AA. “Changes induced by cadmium administration on thyroxine deiodination and sulfhydryl groups in rat liver” J Endocrinol. 1993; 138: 219-24 69. Barregärd L, Lindstedt G, Schütz A, Sällsten G. “Endocrine function in mercury exposed chloralkali workers”. Occup Envir Med. 1994; 51: 536-40 There are deficiencies in hormones, such asT3 itself, TSH, growth hormone, insulin, cortisone and certain trace elements such as selenium, iron, zinc, copper, iodine partially block this essential conversion step for thyroid function.(70.71.72.73.74.75.76.77.78.79.80.81.82.83) 70. Burger AG, Lambert M, Cullen M. “Interférence de substances médicamenteuses dans la conversion de T4 en T3 et rT3 chez l’homme“. Ann Endocrinol (Paris). 1981,42:461-9 71. Grussendorf M, Hüfner M. “Induction of the thyroxine to triiodothyronine converting enzyme in rat liver by thyroid hormones and analogs”. Clin Chim Acta. 1977;80:61-6 72. kson VJ, Cavalieri RR, Rosenberg LL. “Thyroxine-5’-diodinase of rat thyroid, but not that of liver, is dependent on thyrotropin”. Endocrinology. 1982;111:434-40 73. Rezvani I, Di AM, Dowshen SA, Bourdony CJ. “Action of human growth hormone on extrathyroidal conversion of thyroxine to triiodothyronine in children with hypopituitarism.” Pediatr Res. 1981;15:6-9 74. Schröder-Van der Elst JP, Van der Heide D. “Effects of streptozocin-induced diabetes and food restriction on quantities and source of T4 and T3 in rat tissues”. Diabetes. 1992;41:147-52 75. Gavin LA, Mahon FA, Moeller M. “The mechanism of impaired T3 production from T4 in diabetes”. Diabetes. 1981;30:694-9 76. Hoover PA, Vaughan MK, Little JC, Reiter RJ. “N-methyl-D-aspartate does not prevent effects of melatonin on the reproductive and thyroid axes of male Syrian hamsters”. J Endocrinology. 1992;133:51-8 77. Chanoine J-P, Safran M, Farwell AP, Tranter P, Ekenbarger DM, Dubord S, s, Arthur JR, Beckett GJ, Braverman LE, Leonard JL. “Selenium deficiency and type II 5’-deiodinase regulation in the euthyroid and hypothyroid rat: evidence of a direct effect of thyroxine”. Endocrinology. 1992;130:479-84 78. Arthur JR, Nicol F, Beckett GJ. “Selenium deficiency, thyroid hormone metabolism, and thyroid hormone deiodinases”. Am J Clin Nutr Suppl. 1993; 57:236S-9S 79. Beard J, Tobin B, and Green W. “Evidence for thyroid hormone deficiency in iron-deficient anemic rats”. J Nutr. 1989;772-8 80. Fujimoto S, Indo Y, Higashi A, Matsuda I, Kashiwabara N, and Nakashima I. “Conversion of thyroxine into triiodothyronine in zinc deficient rat liver”. J Pediatr Gastroenterol Nutr. 1986;5:799-805 81. Olin KI, Walter RM, and Keen CL. “Copper deficiency affects selenoglutathione peroxidase and selenodeiodinase activities and antioxidant defense in weanling rats”. Am J Clin Nutr 1994;59:654-8 82. Westgren U, Ahren B, Burger A, Ingemansson S, Melander A. “Effects of dexamethasone, desoxycorticosterone, and ACTH on serum concentrations ot thyroxine, 3,5,3’-triiodothyronine and 3, 3’, 5’-triiodothyronine”. Acta Med Scand. 1977;202 (1-2): 89-92 83. Heyma P, Larkins RG. “Glucocorticoids decrease the conversion of thyroxine into 3, 5, 3’-triiodothyronine by isolated rat renal tubules”. Clin Science. 1982; 62: 215-20 On the other hand, excess hormones such as glucocorticoids, ACTH, oestrogens and some trace elements may slow down the conversion of T4 to T3.(84,85,86) 84. Scammell JG, Shiverick KT, Fregly MJ. ”Effect of chronic treatment with estrogen and thyroxine, alone and combined, on the rate of deiodination of l-thyroxine to 3, 5, 3’-triiodothyronine in vitro. Pharmacology”. 1986;33: 52-7 85. Aizawa T, Yamada T. “Effects of thyroid hormones, antithyroid drugs and iodide on in vitro conversion of thyroxine to triiodothyronine”. Clin Exp Pharmacol Physiol. 1981; 8: 215-25 86. Voss C, Schrober HC, Hartmann N. „Einfluss von Lithium auf die in vitro-Deioderung von l-Thyroxin in der Ratten leber“. Acta Biol Med Germ. 1977; 36:1061-5 Q - Why did Dr R fail to consider my problem as a conversion dysfunction? A - Dr R comments that conversion disorders are NOT RECOGNISED AS A PROBLEM IN ORTHODOX MEDICINE. Well there you are - I am not ill. Dr P has misdiagnosed me and NPTech results which showed my T3 under range are wrong. I will be sending the letter to Sheila for her comments and eventually to Dr P. I have also asked the hospital for a form so that I can request copies of my medical records and copies of the tests. I am hoping that the records cannot be altered by Dr R when he knows I have asked for them (me being cynical. To all on the Forum who have a conversion problem - what do we do now??? B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2008 Report Share Posted December 18, 2008 Hi Sheila, I detect a lot of arrogance in this endo when he refers to the tests I had done as unorthodox - and to Dr P as being unorthodox. He uses the word orthodox quite a lot when he trying to justify his stance. It is a shame that throughout my life - from a little blond haired girl to a dark brown (dyed) haired woman - I have always trusted doctors as being there to help me and make me better. Over the past few years - and especially since I have been a member of the tpa, I my illusions have been shattered beyond belief. It is like being told there is no Father Christmas. It makes me want to weep over the stories I read on the forum - and there must be thousands more whose lives has been completely ruined by miss and non-diagnosis. The endos, doctors, NHS etc., are all hiding behind a wall of hubris - it beggars belief that they are so ignorant. B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2008 Report Share Posted December 18, 2008 I feel your pain , I always used to think the doc knew what was causing stuff and could make it better. It was a kind of safe feeling,even though we knew some things weren't curable. Now all I see them as is symptom managers, not doctors, 'orthodox' ie Allopathic medicine and allopathy don't cure anything any more, they manage it. The only way they ever cure anything is by cutting it off and even then the cause is still there. Humbug! luv Dawnx PS awesome list of references there Shiela hon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2008 Report Share Posted December 18, 2008 Of all the delimitations of 'orthodox' , the one that he appears to be using is " …adhering to what is commonly accepted, customary, or traditional " - what is commonly accepted, customary or traditional doesn't mean that it is correct. I only hope the Chief Executive sees this and realises that this doctor has no mind of his own, nor does he do his research to find the FACTS. Luv - Sheila When I saw Dr R I showed him the results of my 24 hr thyroid urine test, 24hr adrenal saliva test - His answer to my question.............. Q - Why did Dr R ignore my private test results? A - Dr R did not ignore the test but took advice as to its appropriate use in ORTHODOX PRACTICE. He was informed that this WAS NOT USED IN ORTHODOX MEDICINE. aaaaaaaaaaaaaggggggggggggghhhhhhhhhhhhhhhh B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2008 Report Share Posted December 18, 2008 The spell check put in a word on my previous post that I hadn't used. The correct word was 'definitions' Luv - Sheila From: thyroid treatment [mailto:thyroid treatment ] On Behalf Of frances.sacramento Sent: 18 December 2008 13:24 To: thyroid treatment Subject: Re: OFFICIAL - conversion disorders do not exist !!!!!!!!!!!!!! When I saw Dr R I showed him the results of my 24 hr thyroid urine test, 24hr adrenal saliva test - His answer to my question.............. Q - Why did Dr R ignore my private test results? A - Dr R did not ignore the test but took advice as to its appropriate use in ORTHODOX PRACTICE. He was informed that this WAS NOT USED IN ORTHODOX MEDICINE. aaaaaaaaaaaaaggggggggggggghhhhhhhhhhhhhhhh B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2008 Report Share Posted December 18, 2008 I wish I could say I was surprised, but I cant. My salivary profile was poo pooed at the hospital and i was told they were basically rubbish and inacurrate but then the endo kept them for himself! Why I wonder? When I saw Dr R I showed him the results of my 24 hr thyroid urine test, 24hr adrenal saliva test - His answer to my question.... ......... .Q - Why did Dr R ignore my private test results?A - Dr R did not ignore the test but took advice as to its appropriate use in ORTHODOX PRACTICE. He was informed that this WAS NOT USED IN ORTHODOX MEDICINE.aaaaaaaaaaaaagggggg ggggggghhhhhhhhh hhhhhhh B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2008 Report Share Posted December 18, 2008 Has anyone ever wondered what some of these docs and endos would do if they were faced with a thyroid problem? I really wish some of them could experience it for themselves and see that we are not just a bunch of winging, moaning women, after all who actually wants to be ill all the time? Its like they think we enjoy being ill and running to them every week, we didnt ask for this. When I go to the docs and I walk in and he says how are you, I actually say not too bad thanks! What a question to ask cos if I was well I wouldnt be there!! How can they say there is no such thing as a conversion problem?? There so obviously is!!! Of all the delimitations of 'orthodox' , the one that he appears to be using is "…adhering to what is commonly accepted, customary, or traditional" - what is commonly accepted, customary or traditional doesn't mean that it is correct. I only hope the Chief Executive sees this and realises that this doctor has no mind of his own, nor does he do his research to find the FACTS. Luv - Sheila When I saw Dr R I showed him the results of my 24 hr thyroid urine test, 24hr adrenal saliva test - His answer to my question.... ......... .Q - Why did Dr R ignore my private test results?A - Dr R did not ignore the test but took advice as to its appropriate use in ORTHODOX PRACTICE. He was informed that this WAS NOT USED IN ORTHODOX MEDICINE.aaaaaaaaaaaaagggggg ggggggghhhhhhhhh hhhhhhh B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2008 Report Share Posted December 18, 2008 I have had three doctors telephone me and one doctor email me asking me if I could let them have more details about Armour Thyroid. Each one was hypothyroid and each one was not doing well on levothyroxine. I gave them details of how and where they could purchase it and details of how to use it plus details of how they could get another doctor to prescribe it for them on the NHS. It was a doctor who wrote to me asking if I knew whether the parathyroids were removed from the pigs thyroids before being desiccated. She was already taking Armour and had been for some time, but she had problems with her calcium and this is why she wanted to know about the removal or not of the parathyroids. I found this out and sent her the details. I know we have doctors who are members of this forum (one wrote that he just wanted to " see the other side of this problem " - so be assured, doctors DO know that the NHS one and only treatment doesn't work for everybody and I hope they are learning the importance of taking the adrenal function into account when their patient remains unwell on thyroid hormone replacement. I hope many more doctors join us in 2009 and pass the benefit of what they learn on to their patients. To those doctors who think we are nothing other than whinging moaning women, that is because they happen to be our doctors and it is the fact they don't bother researching and finding out about medicine that we whinge and moan. Luv - Sheila Has anyone ever wondered what some of these docs and endos would do if they were faced with a thyroid problem? I really wish some of them could experience it for themselves and see that we are not just a bunch of winging, moaning women, after all who actually wants to be ill all the time? Its like they think we enjoy being ill and running to them every week, we didnt ask for this. When I go to the docs and I walk in and he says how are you, I actually say not too bad thanks! What a question to ask cos if I was well I wouldnt be there!! How can they say there is no such thing as a conversion problem?? There so obviously is!!! Quote Link to comment Share on other sites More sharing options...
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