Guest guest Posted November 15, 2004 Report Share Posted November 15, 2004 Zora, I strongly suspect that what we call MS is in fact many diseases. Much like there are many forms of cancer, there are probably many things that are CALLED MS but have different causes and take different courses. And therefore respond differently to the many different supplements and treatments... JT ----- Original Message ----- From: Zora low dose naltrexone Sent: Monday, November 15, 2004 11:02 AM Subject: [low dose naltrexone] Re: ldn, exacerbations, feeling less improvement I have problem with this vit D theory...I live since 1977 in tropics, been on sun every day since then and even with all the supplements and LDN I am not seeing fantastic improvemnts!ZoraTrinidadWI> > In a message dated 11/13/2004 12:58:18 PM Eastern Standard Time, > jatrac1@p... writes:> > I wonder most about the vitamin D connection. As the days have become > shorter I've had a continuing increase in symptoms and discomfort despite taking > supplemental vitamin D. And I find myself craving sunshine...> > > > JT> Like I posted to Sheila, I think the lack of sunshgine/Vit D has a lot to do > with mood, which in turn causes stress, which in turn causes an increase in > symptoms.> > I guess Ashton Embry's theories on vit D are valid (he's the originator of > the BBD).> > Arlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2004 Report Share Posted November 15, 2004 Marcie, Your words tell me that you're a real survivor. Being a hard headed rebel is something I certainly can relate to and is one of your best traits! My mother is ppms but she is so hard headed she will not even listen to my LDN speeches! Please always remember that you have friends on this board wishing you well now and always From: marciemjm@... [mailto:marciemjm@...] Sent: Monday, November 15, 2004 10:26 AMlow dose naltrexone Subject: Re: [low dose naltrexone] ldn, exacerbations, feeling less improvement Here's my point, when a person is able-bodied and making it fairly well through their days, not falling and bouncing their heads off of the floor or cutting partrs of their body on the way down during the fall, faith is much easier. The last time this happened to me, as I dragged my paralyzed body to the stool that I had made so that I don't have to call the PD or EMS everytime I need back in my chair (and take it from me, the stool doesn't make the job of getting in the chair easy!), I left a trail of blood from the bathroom to my bedroom. It wasn't a comfort to know that God was there watching me. Maybe it's just me, but truly, I didn't know that I could lose so much. No doctors will tell one about this since it can send someone over the edge. None of the literature even came close. I've learned as I've gone! Like I've said, I'm hard-headed and I ain't giving in! It will be over my dead body that I let this disease win! I know that nothing could have prepared me for this hell on earth! I had to learn it on my own! Proverbs mentions that a peaceful spirit is good for the soul, but stife and turmoil will rot the bones! I know this is true for me. I've been an emotional wreck my entire life. My parents used to think it was cute how I worried about things as a child. I think their ignorance let them perceive it as responsibility somehow. Or maybe I wouldn't get into trouble if I was so concerned about consequences. They had control issues! Anyway...stress is a killer. Don't worry...be happy! If a person isn't making mistakes, they aren't living! Life on this earth needs to be lived to the fullest! There's my advice to anyone! Oh, and if a diagnosis of MS comes along, get LDN ASAP!! Marcie In a message dated 11/14/2004 9:02:04 PM Central Standard Time, etna@... writes: Thankyou Yolanda...that was kinda the point I was making. Was only trying to encourage, I care deeply about all of you and only wish the best for everyone on this forum. God for me is the best. Love to all, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2004 Report Share Posted November 15, 2004 Hello I am glad that you are taking LDN. I am very sorry that you had and still have to go through such difficult times. Loneliness is strange thing. I have very nice family, but we do not talk about MS, neither we talk about my husband's heart problems and so on. So although I am not alone physically, I am alone in my own ordeal. I try not to be bothered by it, because situation can be worse. I literally have to force myself to be positive as positive can be. I had to work on my mind for years...just to get out of depressions. Till recently I used to call MS all negative things, now I turned it to Morning Serenity, Morning Starter, Morning Star. It helps. What really keeps me now alive? Before it were our children as they were small when I started having problems with MS, now they are all grown up and gone and I fell less useless, but the idea that life was given to me somehow keeps me going. And I have HOPE. Zora Trinidad WI http://www.geocities.com/mumza18/ > Yes , I've been taking LDN since February 04. It hasn't done for me what it has for others but it has helped a little so I see no reason to stop taking it. I appreciate you responding to my message and your concern but there are other people who are in much worse shape than I am. I can still drive and get around with a cane, which isn't the case for many. I was just trying to express my frustrations at all the other problems that a chronic illness like MS brings to life. Loneliness is what bothers me the most because it isn't something that should ever happen. It really is frustrating to watch people who were once close run away we have leprocy. The one person who would have stood by me is my wife but she was in a nursing home before I needed any help. I'm glad that I stuck by her all those years before she went into the nursing home but it was painful to watch all her friends turn her back on her. I just want to point out to the public how much more difficult being disabled is because of the way we are treated. Perfect strangers seem to treat us the best, opening doors and helping any way they can but people who were close tend to be downright mean. I can tell by the responses that I received that I'm not alone in the way I feel. It's just that I watched it happen to my wife before it happened to me and it made me sick both times. Thankfully we have the internet so we can support each other because we are going through basically the same thing. The responses that I got from you, Joanne, , Russ, Marcie, , Chi and others are all important to me. > Best wishes, > Chris > -------------- Original message -------------- > > > > > > > your story touches me very much and I'm sorry you have to go > > through this. I'm curious to know if you're taking LDN and if it's > > helped at all... > > > > > > > > ________________________________________________________________ > > Juno Platinum $9.95. Juno SpeedBand $14.95. > > Sign up for Juno Today at http://www.juno.com! > > Look for special offers at Best Buy stores. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2004 Report Share Posted November 15, 2004 Yes I agree with you it is very complex mammoth. Zora > Zora, I strongly suspect that what we call MS is in fact many diseases. Much like there are many forms of cancer, there are probably many things that are CALLED MS but have different causes and take different courses. And therefore respond differently to the many different supplements and treatments... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2004 Report Share Posted November 15, 2004 Good for you, Marcie! You said that beautifully. ________________________________________________________________ Juno Platinum $9.95. Juno SpeedBand $14.95. Sign up for Juno Today at http://www.juno.com! Look for special offers at Best Buy stores. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2004 Report Share Posted November 16, 2004 Zora....I like your new definitions of MS and admire your attitude. We all battle depression with this dreaded disease but the key word is " battle " . Sounds like your are winning yours! Thanks for the inspiration. Kathy Canada On 15-Nov-04, at 3:49 PM, Zora wrote: > > Hello > I am glad that you are taking LDN. > I am very sorry that you had and still have to go through such > difficult times. > > Loneliness is strange thing. I have very nice family, but we do not > talk about MS, neither we talk about my husband's heart problems and > so on. So although I am not alone physically, I am alone in my own > ordeal. I try not to be bothered by it, because situation can be > worse. > I literally have to force myself to be positive as positive can be. > I had to work on my mind for years...just to get out of depressions. > Till recently I used to call MS all negative things, now I turned it > to Morning Serenity, Morning Starter, Morning Star. It helps. > What really keeps me now alive? Before it were our children as they > were small when I started having problems with MS, now they are all > grown up and gone and I fell less useless, but the idea that life > was given to me somehow keeps me going. And I have HOPE. > Zora > Trinidad > WI > http://www.geocities.com/mumza18/ > > > > > Yes , I've been taking LDN since February 04. It hasn't done > for me what it has for others but it has helped a little so I see no > reason to stop taking it. I appreciate you responding to my message > and your concern but there are other people who are in much worse > shape than I am. I can still drive and get around with a cane, which > isn't the case for many. I was just trying to express my > frustrations at all the other problems that a chronic illness like > MS brings to life. Loneliness is what bothers me the most because it > isn't something that should ever happen. It really is frustrating to > watch people who were once close run away we have leprocy. The one > person who would have stood by me is my wife but she was in a > nursing home before I needed any help. I'm glad that I stuck by her > all those years before she went into the nursing home but it was > painful to watch all her friends turn her back on her. I just want > to point out to the public how much more difficult being disabled is > because of the way we are treated. Perfect strangers seem to treat > us the best, opening doors and helping any way they can but people > who were close tend to be downright mean. I can tell by the > responses that I received that I'm not alone in the way I feel. It's > just that I watched it happen to my wife before it happened to me > and it made me sick both times. Thankfully we have the internet so > we can support each other because we are going through basically the > same thing. The responses that I got from you, Joanne, , Russ, > Marcie, , Chi and others are all important to me.  > >                                                                   >                             Best wishes, > >                                                                   >                             Chris > > -------------- Original message -------------- > > > > > > > > > > > your story touches me very much and I'm sorry you have to > go > > > through this. I'm curious to know if you're taking LDN and if > it's > > > helped at all... > > > > > > > > > > > > ________________________________________________________________ > > > Juno Platinum $9.95. Juno SpeedBand $14.95. > > > Sign up for Juno Today at http://www.juno.com! > > > Look for special offers at Best Buy stores. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2004 Report Share Posted November 16, 2004 Kathy you're welcome. The self talk and what sort of self talk is important! Nobody can do anything about that but you. And if I have to hypnotize myself to feel better, I'll do it. Zora Trinidad WI --- In low dose naltrexone , Kathy Huget <etna@s...> wrote: > Zora....I like your new definitions of MS and admire your attitude. > We all battle depression with this dreaded disease but the key word is > " battle " . Sounds like your are winning yours! Thanks for the > inspiration. > > Kathy > Canada Quote Link to comment Share on other sites More sharing options...
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