Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 Hi all, last night I gave my son his first dose of ldn (1.5 mg). He is RR, and going down lately. Although Avonex seemed to help in the beginning he is now showing some of the bad effects -- depression, flu-like symptoms, increasing dementia -- that I have read about. This morning he was quite a bit worse!! Legs weak, arms shaking badly with uncontrolable motions...exhausted with little sleep, depressed. Has worn off some as the day went on. Not a good start. It is hard to make a decision for someone else, which is what I have to do, pretty much, so decided not to try another dose but see if anyone has any input first. He has an appointment next week with Dr. Mihai (area MS guru at University Hosp. Syracuse) for the first time. I hope for some guru-like insights on his condition, although possibly not on ldn. I also hope for some input from this board if anyone has similar experience, because this is pretty scary! Thanks ine __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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