Re: Have you read the tragic story in The Daily Mail today?

[Guest guest]

Hi all,

Sheila has explained really well, the article link posted by Sheila

is the orignal article from two years ago, which the journalist talks

about in the article in todays paper,

and here is the link for the one from today...

http://www.dailymail.co.uk/health/article-1093016/Ive-seen-patients-

paralysed-dying-Aids-victims-starving-children--Ive-seen-ill-Lynn.html

Such a sad story...

Leah x

> Apologies everybody, I have got the wrong end of the stick posting

> the previous article about Lynn. Apparently, this article had been

> written 2 years ago and Leah sent it to me because it was referenced > in the

article

[Edit Abbrev Mod]

[Guest guest]

Have

you also read Esther's response

http://www.dailymail.co.uk/femail/article-1093325/ESTHER-RANTZEN-I-weep-devoted-mother-For-I-watched-daughter-endure-living-death-ME.html

Luv -

Sheila

Hi all,

Sheila has explained really well, the article link posted by Sheila

is the orignal article from two years ago, which the journalist talks

about in the article in todays paper,

and here is the link for the one from today...

http://www.dailymail.co.uk/health/article-1093016/Ive-seen-patients-

paralysed-dying-Aids-victims-starving-children--Ive-seen-ill-Lynn.html

Such a sad story...

Leah x

> Apologies everybody, I have got the wrong end of the stick posting

> the previous article about Lynn. Apparently, this article had been

> written 2 years ago and Leah sent it to me because it was referenced >

in the article

[Edit Abbrev Mod]

[Guest guest]

I

promised I would tell you what Dr Thierry Hertoghe had to say after he read the

article about Lynn's story two years ago - though he believed it was a fresh

story when he read it.

He told

me that from reading her symptoms, she had mmultiple hormone deficiency (she had

menopause very young), loss of the myelin that surrounds the nerve endings

degenerative disease, explaining why she was losing her speech capacities. He

told me that even if he could correct all her deficiencies and made her

better, she may have suffered some irreversible changes. The pain she

suffered of fibromyalgia was probably caused by an excess of inflammation and

(myx)oedema that would regress with the association of thyroid and cortisol and

female hormone therapy, but some cutting-edge therapies such as 'oxytocin' and

'relaxin' may have been necessary to overcome her muscle tenseness. The

demyelinisation could have been partially reversed with growth hormone therapy

at high doses, and he mentioned the high expense of this. He said that sometimes, a small detail can make a big difference:

Thierry said that six months ago he had seen a young patient similar to

this girl who had been barely surviving for years and who was literally dying.

She too was completely bed ridden and she was intolerant to most medications,

but eventually managed to get to a consultation at his office in a wheelchair.

He tells me that she dramatically improved after ONLY 3 weeks of high dosed

iodine treatment which puts down auto-immune disease.

Luv -

Sheila

Sheila has explained really well, the article link posted by Sheila

is the orignal article from two years ago, which the journalist talks

about in the article in todays paper,

and here is the link for the one from today...

http://www.dailymail.co.uk/health/article-1093016/Ive-seen-patients-

paralysed-dying-Aids-victims-starving-children--Ive-seen-ill-Lynn.html

Such a sad story...

Leah x

> Apologies everybody, I have got the wrong end of the stick posting

> the previous article about Lynn. Apparently, this article had been

> written 2 years ago and Leah sent it to me because it was referenced >

in the article

[Edit Abbrev Mod]

[Guest guest]

Hi Sheila

I read the article and wondered if things could have been done with

the knowledge your medical advisors have. So tragic and such a waste.

So much suffering for the young woman and all her family.

Is Dr Hertoghe one of your medical advisors?

I am so glad I found your site.

Jo

" Sheila " <sheilaturner@...> wrote:

> I promised I would tell you what Dr Thierry Hertoghe had to say after

> he read the article about Lynn's story two years ago - though he

> believed it was a fresh story when he read it.

[Edit Abbrev Mod]

[Guest guest]

Hi Jo

- I find it so tragic also that young people are being given a diagnosis of ME

(which I call Medical Error) and being told " there is no

cure " and that " it will just go away one day " because doctors

are not bothering to do the research to find the true cause. I know that when I

first opened this group, we had a lady who had been bed-bound for 6 years and

nobody knew the real reason why. When she heard about Armour, she started taking

it and to cut a long story short, she is no longer bed-bound and is doing a

part-time job. We had another lady who was bed-bound for a year and she had a

senior position in Rolls Royce in Derby. She never thought she would be able to

work again, but after a year (and being on Armour) she returned to work. Rolls

Royce asked her what miracle had happened to her and she told them about TPA-UK

and they asked her to ask me if they could do anything to help us. When she

phoned to ask, I asked if they would be willing to print off our TPA-UK

Information Packs (56 pages) and now RR sponsor us by doing this. It's great to

hear such stories.

There

must be many such more success stories that I never hear about because usually,

once somebody has regained their health, there is naturally no need for them to

remain members of the Forum because at last, they are able to get on with their

own lives.

I asked

Dr Hertoghe if he would become one of our medical advisers, but as yet, he has never

responded to that particular question. However, he has always been there for me

if I need an answer for something specific and I know he always will be. We

have an excellent relationship and I actually met him and spoke to him at Dr

Skinner's Hearing at the GMC in Manchester. He asked and I out for

dinner that night, but that day, he was called as Witness and after he was

sworn in, he was not allowed to talk to anybody - and as he was giving evidence

over the following day, we never did get that dinner and as he lives in

Belgium, I now doubt we will get another chance to meet again.

luv -

Sheila

Hi Sheila

I read the article and wondered if things could have been done with

the knowledge your medical advisors have. So tragic and such a waste.

So much suffering for the young woman and all her family.

Is Dr Hertoghe one of your medical advisors?

I am so glad I found your site.

Jo

" Sheila " <sheilaturner@...> wrote:

> I promised I would tell you what Dr Thierry Hertoghe had to say after

> he read the article about Lynn's story two years ago - though he

> believed it was a fresh story when he read it.

[Edit Abbrev Mod]

[Guest guest]

I agree with you there, Sheila.

I am currently reading " Our Stolen Future " by Theo Colborn which is

about endocrine disrupting chemicals in the environment.

http://www.ourstolenfuture.org/

Interestingly, on page 40 it explains that hormones control gene

expression. A researcher into M E, Dr Gow, has found that M E

sufferers have abnormal gene expression - so there is a link.

http://www.meresearch.org.uk/research/projects/genesig.html

It is not really the fault of doctors that research is not being done.

Initially, in this country, M E was categorized as a mental illness,

despite the World Health Organisation recognising it as a neurological

disease. The Countess of Mar and others had to campaign to get this

overturned. Also the money allocated for M E research and treatment

has been given to psychologists instead of to researchers into

physical aspects. Therefore in this country there is only a little

research carried out by independent researchers.

Miriam

>

> Hi Jo - I find it so tragic also that young people are being given a

> diagnosis of ME (which I call Medical Error) and being told " there

is no cure " and that " it will just go away one day " because doctors

are not bothering to do the research to find the true cause.