Re:Rebif & LDN - sorry--off topic on Copaxone

[Guest guest]

Connie,

I took Copaxone for a year with few, if any, side effects. It apparently doesn't conflict with LDN. My Neurologist told me that there were studies that indicated it might be effective for Progressive MS -- I was too newly diagnosed for her to know just what kind of MS I have--she said it would probably take a few years to tell.

But my symptoms kept increasing and I never remitted at all--maybe my remitting stage was 5 or 10 years ago as I did have 1 active & 2 older leisions on my spine for that first MRI. If I had it then, I didn't know it.

Anyway, she let me make my own choice on a drug--sent me home with all the videotapes from all 4 drugs--and then applauded my choice of Copaxone--said she thought it was a good choice. I never seemed to have an other exacerbation on the Copaxone but I'm so much better on LDN!

So if you're getting nervous and want to try an ABCR drug--you mite consider Copaxone because then you could keep up the LDN. Feel free to email me if you'd like.

Daphne

[Guest guest]

Daphne, thanks for the note and also anyone else who emailed me about Rebif. So now my question is how do I talk to my neuro about this? From what I've found researching online, none of these drugs are oked for SPMS. I have no idea if my insurance would even cover any of this. I just feel like I need to do something. I honestly don't know if the LDN is doing much now. Of course, I think some of my problem is that I have either a cold or a sinus infection that is doing a number on me. Connie

----- Original Message -----

From: gateswill@...

low dose naltrexone

Sent: Monday, October 25, 2004 8:00 PM

Subject: [low dose naltrexone] Re:Rebif & LDN - sorry--off topic on Copaxone

Connie,

I took Copaxone for a year with few, if any, side effects. It apparently doesn't conflict with LDN. My Neurologist told me that there were studies that indicated it might be effective for Progressive MS -- I was too newly diagnosed for her to know just what kind of MS I have--she said it would probably take a few years to tell.

But my symptoms kept increasing and I never remitted at all--maybe my remitting stage was 5 or 10 years ago as I did have 1 active & 2 older leisions on my spine for that first MRI. If I had it then, I didn't know it.

Anyway, she let me make my own choice on a drug--sent me home with all the videotapes from all 4 drugs--and then applauded my choice of Copaxone--said she thought it was a good choice. I never seemed to have an other exacerbation on the Copaxone but I'm so much better on LDN!

So if you're getting nervous and want to try an ABCR drug--you mite consider Copaxone because then you could keep up the LDN. Feel free to email me if you'd like.

Daphne