MS SPECIALIST TOLD ME NO TO LDN

November 1, 2004

I just went to a MS specialist at UT Southwestern MS Clinic a couple

of days ago, which by the way is a very pro-Avonex clinic. I brought

up LDN and she immediately said " no " because there haven't been any

studies showing it helps treat the disease of MS itself. She said

that there are alot of drugs that will make people feel better and

then they mistaking think there MS is getting better. She said you

need a drug that is treating the disease itself, such as the CRAB

drugs. I have been on Rebif for 9 months now and can't handle the

side effects anymore, such as flu-like symptoms, headache, extra

fatigue, weakness in the muscles where I inject, injection-site

reactions, extremely painful injections, & increasing

depression/anxiety, to name a few. The Dr. wants to switch me to

Avonex, which is 1x wk. versus Rebif which is 3x wk., but I know it's

just more of the same side effects, except maybe for a day or two

after the injection versus practically all week with Rebif. It's hard

enough dealing with MS but to be told you must take these powerful

drugs that are painful to take and make you feel bad all the time is

almost too much to deal with. I would love to try LDN, especially

since I have heard so many wonderful things about it & it's a pill!

I don't know what to do - I've got a MS specialist telling me I must

take Avonex or Rebif (she doesn't like the other CRAB's) but it is

ruining the quality of my life, which is hard enough, or I'm doomed

to have future progressive disability. Does anyone know of any

studies being done to verify if LDN treats the disease itself besides

making you feel better. Thank you -

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