Guest guest Posted December 16, 2008 Report Share Posted December 16, 2008 Hi Sheila- Having looked at thyroid forums, cystitas forums, and having vent my feelings on a survey being carried out for kidney patients for Surrey PCT (although under Hampshire I was invited to join in). We are all being treated in the same way by the NHS and by GPs alike. My own feelings are that longstanding Hypothyroidism is caused by Kidney failure, and that the diseases of kidney failure are simply stages in the process of kidney decline. Like other drugs as ones kidneys get worse they cannot take the same strengths of drugs. Thyroxine is the same, but all the coatings etc that are used make things worse through allergies etc. I am taking EVOTROX LIQUID not the drug (so no coatings are involved).I stopped the Evotrox a few weeks ago due to problems that resolved on stopping it. I again went back to taking it, and again problems, but for me upset stomache's which it causes plus pain in the kidneys, my abnormal one in particular. My feet and hands get very cold, but my feet were bad last night and very painful. It is no good for a GP to say that ones kidneys are OK, as there is no test available for CHRONIC KIDNEY FAILURE, only when ones kidneys have completley failed. To take vitamins can upset ones kidneys even more as food becomes an overload to ones kidneys, and so too the same with vitamins. When you go of colour, and you also go off eating this is how ones body gets rid of toxins from food, and Hypothyroid is the same thing that transit of food slows down too leading on too an upset stomache, ailing kidneys lead to water infections. Pregnancy places a strain on ones kidneys causing high BP in turn damaging to a child (I was hospitalised for both my Daughters). I was warned by the GP then who even apologised for the problems I had in pregnancy, he told me to finish my family by the age of 30. It is my guess that both Daughters were damaged, as like myself one was said to have IBS and the other HYPOTHYROIDISM. This Daughter first became pregnant while on the pill, but the child had died, but was not removed until some infection was cleared up, she had two more failed pregnancies plus a molar pregnancy (partial as there was a baby, but She managed to get a boy and girl, but the third close after the second, and AI even tried to warm her that another may not be ok. It was this child that had to be delivered early due to having stopped growing for 3 weeks, and her organs were shutting down. Drs said that her kidneys etc were not damaged (but I hang a question mark on that now). Her brain was not scanned at birth, but she developed like my Brother epilepsy at the age of 3. She is now 7 and the damage to the brain is said to be extensive. My Family are blaming me for this, neither keep in touch. To add to this I married the wrong sort of Husband who never helped in the house, or shopping, or with bringing up the children. He is an only child to make things worse, so always wanting his own way, and even resenting it if I was ill (he treated his mother like it at the end too). His family too were a drinking family, and all males died from their ailing lungs (my Husband did not smoke). Neither would seek help when they were ill either, so infection goes round in a circle. I am in the process of a Divorce and have got to the first stage, the finance stage is on the 12th Jan, and the absolute should be in 6 weeks. There is also a complication to all this, as my Husband had a Power of attourney made out when he made his will, but things have now altered, as he is not in a fit state himself to act as Power of Attourney and I would not like to act as his. My Daughters do not even keep in touch, so how could they act, and I also do not know if they are fit to act. This also applies to being listed as next of kin. As far as Hospitals go I put down " NO NEXT OF KIN " . The POWER OF ATTOURNEY DOCUMENT, having sent to the solicitor for it, is already in my custody (not yet destroyed). Have you any advice here. At the weekend I looked into MICROCEPHALY which is what my Grandaughter was said to have, and this linked to PHENYLKETONURIA, in turn caused by defective enzyme genes. This in turn blocks the path to TYROSINE, AND THYROXINE, AND ALSO DOPAMINE AND MELANINE. I was placed on PIMOZIDE for 14 years and already on it when diagnosed with HYPOTHYROID GLAND. Pimozide blocks DOPAMINE. causing me more problems plus being placed at the same time on REGULAN, but this was altered in the ingrediants with ASPARTAME replacing suger to suit diabetics (not sure this is good for diabetics either). I got more upset stomaches after this. I had a rough year comming off PIMOZIDE, found to have breast cancer enduring 3 ops, then anaemia, and after wrong advice on pushing fluids suffered a water imbalance which nearly killed me, by the time they admitted me to hospital. I have in turn suffered from drugs issued PIMOZIDE being the worst which I believe caused cancer plus other damage.I have already been in contact with my GP as regards PHENYLKETONURIA and he has disregarded it despite me having a protein problem plus problems with being unable to take EVOTROX. He has said that it does not show in tests, but I cannot see that any tests have been done to discount this, and no overnight tests on urine have been done, and any that have, have been done in the morning, so protein can subside by then. He would not even believe me if I dipstick it at night myself. I also tried a tin of SOYA PROTEIN ISOLATE from H & B, but suggest nobody else has any, as it caused a worse upset stomache, and felt like I had poisened myself (I did not take much either). I got a sorry cant help then from my GP despite taking the tin to him. I had a browse at this again in H & B today, and although there is no ASPARTAME there is PHENYLALANINE PLUS TYROSINE, but the enzyme needed is PHENYLALANINE HYDROXYLASE plus a special protein diet which one has to go through ones GP for, but if one cannot get help, any ideas to offer could be welcome. I am on benefits so cannot afford the costs of tests listed. I am also booked to go away at XMAS and have mentioned that I am vegetarian, as I do not want to spend another XMAS on my own and also to tie it in with a visit to my Brother, and so far have not received a note from my GP in case of ill health while away (in case of errors in the NHS) although I have requested one.I also have something else to add as regards the thyroid gland. I also studied my Mothers records again. She had a large lump removed from the right side of her neck, and assume it was either part or all of the thyroid gland but for what reason I do not know (there was a lot of TB in her Mothers family). This was in 1910 not NHS then, so what surgery of this sort was like then I do not know, and if any damage was done at the time to anything else I don't know, but she was rushed to Hospital with acute otitis media again on the right side during a flu epidemic. This went on to cause a brain tumour (she had no control over her temper, and turned on us). Finally surgery was done when she was 60, but it looks like there were two tumours. They removed a large meningioma said to be benign. She was ill again within 6 months, and died two and a half years later. She was never on thyroxine, so could this fact cause a tumour or could damage done during removing all or part of the thyroid gland have led to this.I have already established a link that this could have caused my abnormal kidney. I am not sure if to place it on your site as it could worry some, but would welcome advice, and hope that some things could be useful to you. Can you also tell me about the natural thyroxine, whats in it where it comes from, and if it is suited to vegetarians, and is that in turn likely to cause an upset stomache. An addition to this today, as I took my EVOTROX to the chemist and ask them for advice and if they could not give it could I have a phone number to contact for advice as I could get no help from my GP. I got in touch with them not long ago, but there were denials about anything in it that could cause problems until I said well what about the thyroxine itself causing problems for the illness that is causing the thyroid problem, and mentioned about my abnormal kidney and the fact that I was unable to take salt or protein, but I was stilled fobbed off. I ask outright if thyroxine being a SODIUM was actually SALT, but I said SALT causes high BP and this is not good for ones heart or kidneys. Also as I am going on holiday and having to give my GP a prod on taking some details on my health with me in case I was taken ill (as I am not too good), he goes round in circles about providing this which at first sounds hopeful, and then he decides that he won't. I had already told him that I wanted to prevent any medical blunders like removing wrong kidneys if I passed out and was unable to inform them which side was the abnormal one. From this I now assume that errors being committed are deliberate in the NHS. I again bought up about thyroxine, he again says I will be very ill in 3 months without it, and again I remind him that it is making me worse, and start to say my Mother had, had part or all of hers removed when only 5 and was never on thyroxine, but he gives an excuse on not giving an answer. Has anyone noticed their BP rising on thyroxine especially when unable to take salt. Having wanted some toothpaste today, and am now looking at ingrediants in things more. In all the toothpasts it had SORBITAL. They place this in things too for DIABETICS who also have kidney problems and some with thyroid problems also. This is in fact a laxative and for females to get upset stomaches, in turn causes water infections. I eventually came across toothpaste in H & B without fluoride or sorbital in it. Children too are developing Diabetis and thyroid problems at an early age, but look at the crisps all with salt in them (no blue bag to choose whether to use salt or not)they consume these as soon as they are weaned in many varieties, but suger replacements can do more harm than suger. I dread to think about how much salt was in the lemonade that I was made to consume, and it had to be the non diet one with suger. I was told that on this occasion that I flushed out SODIUM but I am not surprised.I cannot understand why Doctors want to make me worse and if its hatred having been struck off twice, and does anybody else feel as I do. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 Hi Sheila It would make more sense if it was the other way around, ie, that failing thyriod function causes kidney failure. best wishes Bob > > Do the scientists on this forum have any comments about Kathleen's > theory please? I must admit to never having heard about > hypothyroidism being caused through kidney failure, but then I still > have a lot to learn. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 HI SHEILA- Kidney failure places stress on the liver, so in turn that could lead to Hypothyroidism, if you have kidney problems you go on to suffer from allergies too. There are no liver problems in our family. The Husband could through being a dependant drinker of beer " if so can it be passed on " , and to the family. I gave the GP a reminder on some sort of itinary on my health to take on hol, at first it looked good saying it consisted of 3 a4 pages but could get it onto one, but then decides he will not. I will however place a notice in a body belt with a warning on which side has an abnormal kidney. Anybody know how close the liver is to the right kidney. My GP has already said the liver and adrenal gland are ok. > Do the scientists on this forum have any comments about Kathleen's > theory please? I must admit to never having heard about > hypothyroidism being caused through kidney failure, but then I > still have a lot to learn. [Edit Abbrev Mod] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 Sheila, You wrote: > > Do the scientists on this forum have any comments about Kathleen's > theory please? I must admit to never having heard about hypothyroidism > being caused through kidney failure, but then I still have a lot to learn... Kidneys are certainly important, but it is quite possible to have thyroiditis of one form or another without any kidney impairment. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 Bob, You wrote: > > It would make more sense if it was the other way around, ie, that > failing thyriod function causes kidney failure. Kidney failure is certainly part of myxedema coma, but then everything fails, not just kidneys. I don't think that was her speculation. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2008 Report Share Posted December 18, 2008 HI SHEILA- My GP has informed me that it is a lot of BUNKHAM that the liver or thyroid problem can be connected, but he will include a liver test the next time blood tests are done. I also reminded him that I had in the past took an overdose of PARACETAMOL that is damaging to the liver. He also said the liver rejuvenates itself, lets face it a small piece of liver for a transplant is all that is needed to replace a whole liver. I think people are poisening their thyroid glands with all the drugs given. > > Do the scientists on this forum have any comments about Kathleen's > > theory please? I must admit to never having heard about > > hypothyroidism being caused through kidney failure, but then I > > still have a lot to learn. > > > > [Edit Abbrev Mod] > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.