Re: Some advice on blood results needed please.....

[Guest guest]

Hi Sheila,Thank you again for your advice, I have had a rubbish day trying to get results and wanted results from my stay in Nevill Hall, my results from The Heath and my local doctor's results, unfortuantely I had a horrible time on the phone to Nevill Hall and have been told I need to go through patient records, which is a long winded process of form filling to get my results. I was eventually passed onto the head of clinical governence who said there was nothing more he could do to help. One doctor even hung up the phone - how long would it take them to tell me - 5 minutes? The Heath also said no due to confidentaility and by now I had run out of steam - I have asked for an appointment at the Heath and so will wait and get the appt letter. Luckily the nurse at my local GP gave me that

set of results done earlier this week... I feel quite tired and upset - on the positive side I have just ordered Dr Peatfield's book from the Internet,Thanks again emily xFrom: Sheila <sheilaturner@...>thyroid treatment Sent: Friday, December 12, 2008 3:50:57 PMSubject: RE: Some advice on blood results needed please.....

[Guest guest]

Dear Cat,Thank you so much for your post, all the information is really helpful. I am back on 150mcgs of levothyroxine now, but this is obviously still not enough. I would like to try Armour and hope that this would help. Can I ask if you are taking Levothyroxine and if you feel ok? Have you ever taken t3 or armour? Can I ask how much thyroxine you take, I know we are all different but if you could tell me how much you normally take, how much you took before conception and during pregnancy that would help alot. Thanks so much for all your info posted so far, I have copied it over into my word file of useful info! (I'm feeling a bit obsessed at the moment but I just want to understand my

body)Thanks again emily x

Hi ,

First of all, I'm sorry to hear of your miscarriage. ...........

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[Guest guest]

> Dear Cat,

> Thank you so much for your post, all the information is really helpful. I am

back on

150mcgs of levothyroxine now, but this is obviously still not enough. I would

like to try

Armour and hope that this would help. Can I ask if you are taking Levothyroxine

and if

you feel ok? Have you ever taken t3 or armour? Can I ask how much thyroxine you

take, I

know we are all different but if you could tell me how much you normally take,

how much

you took before conception and during pregnancy that would help alot. Thanks so

much

for all your info posted so far, I have copied it over into my word file of

useful info! (I'm

feeling a bit obsessed at the moment but I just want to understand my body)

> Thanks again emily x

Hi,

When I was pregnant with my DD I had just had my levothyroxine dose raised to

75mcg

and I didn't need a rise through my pregnancy (TSH stayed steady at 0.6), in

fact I

improved slightly (due to pregnancy suppressing the immune system, hence giving

my

thyroid a break!). About six months postpartum I had a big attack and ended up

on

150mcg.

That was the dose I was then on when pregnant with DS, again I didn't need an

increase in

pregnancy (again TSH steady at 0.6) but had the backlash postpartum and ended up

on

225mcg. I never felt right, though, after that last attack (TBH I'd not really

felt well properly

since my thyroid started to fail).

Long story short, after needing steroids on an increasingly regular basis I've

switched to

Armour (I started switching in January this year) and I'm now on 4 grains per

day (although

I find some days 3 grains is enough) and I haven't needed steroids since

January! And I feel

well!

In pregnancy the literature says that a foetus needs T4 so I can't see why

Armour wouldn't

be ok, you could always add in a bit of levothyroxine if necessary to ensure

your FT4 level

is high enough. I hope you can get your levels sorted, a future pregnancy stands

a better

chance if you are balanced at the start.

Take care, and feel free to ask more questions!

Cat.

[Guest guest]

Dear Sheila,

Many thanks - again. I have taken a look at the babies in photos, I

have a long way to go before I can think about getting pregnant again

but it is nice to know it is possible, so thank you. I still worry

about the antibodies in my blood as presumably these won't just go

with the switch to armour?

I am also in a constant panic about my little boy of 5, who I had

whist on levothyroxine. Looking back I was on a high dose prior to

getting pregnant and so the pregnancy went well, without

complications. Through medical error however and my naivity, my

thyroxine dose was not increased until the last month of pregnancy - I

/ It was simply overlooked. As you can imagine I have read a lot about

this since and recently the teacher has talked to me about my little

boy's reading and maths and understanding in the class, she has

described him as 'slow'. They don't know what I know but obviously I'm

in a horrible place at the moment and feel so on top of everything

else I feel paranoid about his development. I feel increasingly

shocked by the NHS and it's incompetencies. Please tell me has any one

individual ever challenged them legally about their mistreatment

within the thyroid circles and have they ever got any results?

x

>

> We have at least 3 TPA 'Armour babies' that I know about. These

babies would

> not have been born had it not been that their Mum's changed from

> levothyroxine to Armour Thyroid. I have photo's of all three and two

of them

> are posted in the 'PHOTO'S' section of this forum website.

>

>

>

> Luv - Sheila

>

> In pregnancy the literature says that a foetus needs T4 so I can't

see why

> Armour wouldn't

> be ok, you could always add in a bit of levothyroxine if necessary

to ensure

> your FT4 level

> is high enough. I hope you can get your levels sorted, a future

pregnancy

> stands a better

> chance if you are balanced at the start.

>

>

>

>

> ___

>

[Guest guest]

>

> Dear Sheila,

> Many thanks - again. I have taken a look at the babies in photos, I

> have a long way to go before I can think about getting pregnant again

> but it is nice to know it is possible, so thank you. I still worry

> about the antibodies in my blood as presumably these won't just go

> with the switch to armour?

>

> I am also in a constant panic about my little boy of 5, who I had

> whist on levothyroxine. Looking back I was on a high dose prior to

> getting pregnant and so the pregnancy went well, without

> complications. Through medical error however and my naivity, my

> thyroxine dose was not increased until the last month of pregnancy - I

> / It was simply overlooked. As you can imagine I have read a lot about

> this since and recently the teacher has talked to me about my little

> boy's reading and maths and understanding in the class, she has

> described him as 'slow'. They don't know what I know but obviously I'm

> in a horrible place at the moment and feel so on top of everything

> else I feel paranoid about his development. I feel increasingly

> shocked by the NHS and it's incompetencies. Please tell me has any one

> individual ever challenged them legally about their mistreatment

> within the thyroid circles and have they ever got any results?

>

> x

Hi ,

I'm taking my daughter to see Dr P next week as she's been having hypothyroid

symptoms

and we're getting nowhere on the NHS.

You talk about your antibodies worrying you, but there's no point. They will

decrease over

time as they 'do their job' (no matter how annoying that job is!). I too had

high thyroid

antibodies (particularly when pregnant with my daughter), the worry I now have

is that the

antibodies may have crossed the placenta, giving her a head start on getting

autoimmune

hypothyroidism.

I hope the school is helping your son, it's possible he's just not quite ready

for reading yet

and will flourish with extra help! However, if the school truly believes he is

'slow' then ask

them to do an IQ test.

Take care,

Cat.

[Guest guest]

And I know of one who does not belong to TPA (so that is four altogether).

Lilian

We have at least 3 TPA 'Armour babies' that I know about

[Guest guest]

Hi

To put

your mind at rest, please take your little boy to your GP and ask, because of

the circumstances of his birth and the conversation you had with his teacher,

whether he would do a full thyroid function test. If he has a thyroid problem,

then the sooner he starts treatment, the better and this will avoid lots of

problems for him in the future.

I am

not sure about any one individual challenging the NHS legally regarding

mistreatment of thyroid disease, but I can absolutely assure you that this

forum (and I know of no other in the UK) is most definitely actively challenging

the system. Right now, we have a complaint on the unfair trading practices of endocrinology

and its guidance of practitioners with the Office of Fair Trading and also the

Solicitor General and we have just completed a 60 page Human Rights complaint,

which we are awaiting legal advice regarding this as to the correct procedure we

have to follow. I don't post the details to the forum as both of these

complaints have to be kept completely confidential as they may end up in the

High Court.

Luv -

Sheila

I feel increasingly shocked by the NHS and it's in

competencies. Please tell me has any one

individual ever challenged them legally about their mistreatment

within the thyroid circles and have they ever got any results?

x

.._,___

[Guest guest]

Hi Sheila,

Yes you are probably right about my getting a test done on my little

boy, I didn't want to put him through any unnecessary pain but it

would probably be wise, all things considered.

As mentioned before I am going to retrieve my medical records (and

his) from the last 14 years, and I feel there are many errors and

areas of mistreatment. I just feel so cross. It is nice to know that

something is being done, if there is anything I can do to help you

with this, then I will.

Thanks as always

emily x

>

> Hi

>

>

>

> To put your mind at rest, please take your little boy to your GP and

ask,

> because of the circumstances of his birth and the conversation you

had with

> his teacher, whether he would do a full thyroid function test. If he

has a

> thyroid problem, then the sooner he starts treatment, the better and

this

> will avoid lots of problems for him in the future.

>

>

>

>

>

> ._,___

>

[Guest guest]

Hi Cat,

Thanks for your post, can I quiz you on your daughter and why you have

started to question whether she is hypo? Could I also ask how you both

get on with Dr P?

I think we are in a great school, having moved from Cardiff to hay on

wye, recently where the class sizes are much smaller and teachers have

more time to help, so I'm sure we can work on things together, I just

feel in a state of paranoia at the moment, after eveything and also

have remembered that when he was born the doctors were worried about

his adrenals being swollen - this of course meant nothing to me at the

time...

Love emily

>

>

>

> Hi ,

>

> I'm taking my daughter to see Dr P next week as she's been having

hypothyroid symptoms

> and we're getting nowhere on the NHS.

>

> You talk about your antibodies worrying you, but there's no point.

They will decrease over

> time as they 'do their job' (no matter how annoying that job is!). I

too had high thyroid

> antibodies (particularly when pregnant with my daughter), the worry

I now have is that the

> antibodies may have crossed the placenta, giving her a head start on

getting autoimmune

> hypothyroidism.

>

> I hope the school is helping your son, it's possible he's just not

quite ready for reading yet

> and will flourish with extra help! However, if the school truly

believes he is 'slow' then ask

> them to do an IQ test.

>

> Take care,

> Cat.

>